{"id":136777,"date":"2026-06-04T15:49:16","date_gmt":"2026-06-04T20:49:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&#038;p=136777"},"modified":"2026-07-28T23:58:35","modified_gmt":"2026-07-29T04:58:35","slug":"gestion-del-dolor-y-la-fatiga-en-el-ecd","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/es\/event\/managing-ecd-pain-fatigue\/","title":{"rendered":"Tema: C\u00f3mo manejar el dolor y la fatiga en el ECD"},"content":{"rendered":"<h5>Ponente: Kevin O\u2019Brien<br \/>\nEnfermera titulada, M\u00e1ster en Ciencias (MS-CRNP), enfermera especializada,<br \/>\nInvestigador cl\u00ednico, Instituto de Investigaci\u00f3n Gen\u00f3mica,<br \/>\nInstitutos Nacionales de Salud<\/h5>\n<p><strong>Fecha:<\/strong> Jueves, 25 de junio de 2026<br \/>\n<strong>Hora:<\/strong> 13:00 h CDT<\/p>\n<p>Kevin O\u2019Brien es enfermero especializado e investigador cl\u00ednico en el Instituto Nacional de Investigaci\u00f3n del Genoma Humano (NHGRI) de los Institutos Nacionales de Salud, en Bethesda, Maryland. Obtuvo su licenciatura en Ciencias en la Universidad Johns Hopkins y su m\u00e1ster en Ciencias y el t\u00edtulo de enfermero especializado en la Universidad de Maryland.<\/p>\n<p>Kevin ha desempe\u00f1ado un papel fundamental en la investigaci\u00f3n cl\u00ednica del NHGRI, entre otros, en el protocolo 15-HG-0006, un ensayo cl\u00ednico que eval\u00faa el dabrafenib y el trametinib en pacientes con BRAF positivo que padecen la enfermedad de Erdheim-Chester (ECD), as\u00ed como en el estudio sobre la historia natural de la ECD. <\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_QGgE4DkuSISF3cuI6YeEXw\" target=\"_blank\" rel=\"noopener\">Reg\u00edstrate aqu\u00ed<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Speaker: Kevin O&#8217;Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: Thursday, June 25, 2026 Time: 1:00 PM CDT Kevin O\u2019Brien is a nurse [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":136778,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-136777","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tribe_events\/136777","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions"}],"predecessor-version":[{"id":174351,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions\/174351"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/136778"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=136777"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=136777"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tribe_events_cat?post=136777"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}