{"id":92680,"date":"2025-09-08T15:59:41","date_gmt":"2025-09-08T20:59:41","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=92680"},"modified":"2025-09-10T22:52:33","modified_gmt":"2025-09-11T03:52:33","slug":"ecd-awareness-week-2025-is-september-8-14","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/ecd-awareness-week-2025-is-september-8-14\/","title":{"rendered":"ECD Awareness Week 2025 is September 8\u201314"},"content":{"rendered":"

ECD Awareness Week is September 8\u201314, 2025<\/b>, and we need YOU to help raise awareness and show the world what it means to be part of the ECD family.<\/p>\n

Awareness Week is important because Erdheim-Chester Disease (ECD) is so rare that many people\u2014 even in the medical field\u2014have never heard of it<\/b>. By taking part in this global effort, you\u2019re helping improve early diagnosis, increasing understanding, and bringing vital attention to the needs of our community.<\/p>\n

 <\/p>\n

Here are two simple ways you can get involved:<\/strong><\/p>\n

    \n
  1. Share ECD Brochures with Local Medical Professionals
    \n<\/strong>You can help educate doctors, nurses, and clinics in your area by giving them an official ECD brochure.
    \n\ud83d\udcc4\u00a0Download<\/a> the Medical Outreach Flyer.<\/strong>
    \nThis flyer includes easy instructions on how to request brochures and share them.<\/li>\n
  2. Host a Community Fundraiser<\/strong>
    \nYou can raise both awareness and support for ECD by organizing a simple event in your community. Big or small, it all makes a difference!
    \n\ud83d\udcc4\u00a0    Download<\/a> the ABCs of ECD Fundraising Flyer.<\/strong>
    \nWe\u2019ve listed fun and easy ideas to get you started\u2014from Awareness Walks & 5ks to Zebra Themed Awareness Campaigns!<\/li>\n<\/ol>\n

    When we all take action\u2014no matter how small\u2014it adds up to something BIG.<\/p>\n

    Let\u2019s raise our voices together this week! <\/strong>Whatever you do to support ECD Awareness Week, please post about it on social media and\/or send us a picture to post!<\/p>\n

    With gratitude,<\/p>\n

    The ECD Global Alliance Team<\/b>
    \n\ud83c\udf10\u00a0    www.erdheim-chester.org<\/a><\/u><\/p>","protected":false},"excerpt":{"rendered":"

    ECD Awareness Week is September 8\u201314, 2025, and we need YOU to help raise awareness and show the world what it means to be part of the ECD family. Awareness […]<\/p>\n","protected":false},"author":14,"featured_media":92790,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[250,51],"tags":[101,4559,3190,4564,374,4560,2261,102,4562,2398,4565,4561,4558,376,4563],"class_list":["post-92680","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-fundraisers","category-news","tag-awareness","tag-cancerresearch","tag-ecd","tag-education","tag-erdheimchesterdisease","tag-genemutations","tag-globalhealth","tag-histiocytosis","tag-hope","tag-medicalresearch","tag-nonprofit","tag-patientcommunity","tag-patientstories","tag-raredisease","tag-support"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/92680","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=92680"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/92680\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/92790"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=92680"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=92680"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=92680"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}