{"id":74481,"date":"2025-05-26T08:04:02","date_gmt":"2025-05-26T12:04:02","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=74481"},"modified":"2025-05-26T09:32:23","modified_gmt":"2025-05-26T13:32:23","slug":"unidos-por-la-sensibilizacion-el-apoyo-y-la-esperanza-encuentro-de-pacientes-y-familiares-de-la-ecdga-2025","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/united-for-awareness-support-and-hope-ecdga-patient-family-gathering-2025\/","title":{"rendered":"Unidos por la concienciaci\u00f3n, el apoyo y la esperanza \u2013 Encuentro de pacientes y familiares de la ECDGA 2025"},"content":{"rendered":"<p>El Encuentro de Pacientes y Familiares de la ECDGA de este a\u00f1o, celebrado en Barcelona, reuni\u00f3 a pacientes, cuidadores y profesionales sanitarios de todo el mundo. Esta foto de grupo refleja el esp\u00edritu de uni\u00f3n y comunidad que caracteriza a este evento anual.<\/p>\n<p>Juntos compartimos conocimientos, ofrecemos apoyo y reforzamos la voz colectiva de las personas afectadas por la enfermedad de Erdheim-Chester. Gracias a todos los asistentes que han contribuido a que este encuentro haya sido significativo y haya tenido un gran impacto.<\/p>\n<p>Para obtener m\u00e1s informaci\u00f3n sobre nuestra misi\u00f3n y nuestros programas, visita <a class=\"\" href=\"http:\/\/www.erdheim-chester.org\/es\/\" target=\"_new\" rel=\"noopener\">www.erdheim-chester.org<\/a>.<\/p>\n<p><em>La Alianza Global contra la Enfermedad de Erdheim-Chester (ECDGA) no ofrece asesoramiento m\u00e9dico, diagn\u00f3sticos ni tratamientos. Todo el contenido tiene car\u00e1cter meramente informativo. Si tiene alguna duda m\u00e9dica, consulte a un profesional sanitario.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>This year\u2019s ECDGA Patient and Family Gathering in Barcelona brought together patients, caregivers, and medical professionals from around the world. This group photo captures the spirit of connection and community [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":74482,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[2251],"tags":[2397,2256,375,378,2660,387,2662,2252,2659,2495,2491,2497,2661,2602,2402],"class_list":["post-74481","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-social-posts","tag-barcelona2025","tag-bellvitgehospital","tag-ecdawareness","tag-ecdcommunity","tag-ecdconnections","tag-ecdga","tag-ecdhope","tag-erdheimchester","tag-globalunity","tag-histiocytosisawareness","tag-patientfamilygathering","tag-rarediseasesupport","tag-strongertogether","tag-supportandscience","tag-teamecdga"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/74481","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=74481"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/74481\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/74482"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=74481"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=74481"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=74481"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}