{"id":74467,"date":"2025-05-26T07:57:52","date_gmt":"2025-05-26T11:57:52","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=74467"},"modified":"2025-05-26T09:59:20","modified_gmt":"2025-05-26T13:59:20","slug":"los-medicos-del-servicio-de-urgencias-pediatricas-responden-a-las-preguntas-de-los-asistentes-en-la-reunion-de-pacientes-y-familiares-de-2025","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/ecd-physicians-answer-questions-at-the-2025-patient-family-gathering\/","title":{"rendered":"Los m\u00e9dicos de ECD responden a las preguntas en el Encuentro de Pacientes y Familiares de 2025"},"content":{"rendered":"<p>Uno de los aspectos m\u00e1s valiosos del Encuentro de Pacientes y Familiares de la ECDGA es la oportunidad que tienen los pacientes y sus cuidadores de escuchar directamente a los expertos. Durante el evento de este a\u00f1o celebrado en Barcelona, destacados m\u00e9dicos especialistas en la enfermedad de Erdheim-Chester participaron en una sesi\u00f3n de preguntas y respuestas en directo, en la que aportaron sus conocimientos y respondieron a las preguntas de los asistentes.<\/p>\n<p>Gracias al Dr. Eli Diamond, al Dr. Matt Collin, al Dr. Augusto Vaglio, al Dr. Julien Haroche y al Dr. Xavier Solanich por su compromiso con el apoyo a la comunidad de ECD a trav\u00e9s del di\u00e1logo abierto y el intercambio de conocimientos.<\/p>\n<p>To learn more about our events and the global effort to advance ECD care, visit <a class=\"\" href=\"http:\/\/www.erdheim-chester.org\/es\/\" target=\"_new\" rel=\"noopener\">www.erdheim-chester.org<\/a>.<\/p>\n<p><em>La Alianza Global contra la Enfermedad de Erdheim-Chester (ECDGA) no ofrece asesoramiento m\u00e9dico, diagn\u00f3sticos ni tratamientos. Todo el contenido tiene car\u00e1cter meramente informativo. Si tiene alguna duda m\u00e9dica, consulte a un profesional sanitario.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>One of the most valuable parts of the ECDGA Patient and Family Gathering is the opportunity for patients and caregivers to hear directly from the experts. During this year\u2019s event [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":74613,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[2251],"tags":[2697,2397,2256,378,387,2695,2599,2252,2698,2696,2700,2491,2701,2602,2699],"class_list":["post-74467","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-social-posts","tag-augustovaglio","tag-barcelona2025","tag-bellvitgehospital","tag-ecdcommunity","tag-ecdga","tag-ecdphysicians","tag-elidiamond","tag-erdheimchester","tag-julienharoche","tag-mattcollin","tag-medicalqanda","tag-patientfamilygathering","tag-rarediseaseexperts","tag-supportandscience","tag-xaviersolanich"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/74467","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=74467"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/74467\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/74613"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=74467"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=74467"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=74467"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}