{"id":28759,"date":"2024-12-26T21:32:58","date_gmt":"2024-12-27T03:32:58","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=28759"},"modified":"2024-12-26T21:32:58","modified_gmt":"2024-12-27T03:32:58","slug":"se-valiente-con-hank-2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/be-brave-with-hank\/","title":{"rendered":"S\u00e9 valiente con Hank"},"content":{"rendered":"<p>La bodega Running Vines Winery, situada en Chesterton (Indiana), organiz\u00f3 un acto ben\u00e9fico y de sensibilizaci\u00f3n en honor a Hank, un paciente con ECD, durante el fin de semana del D\u00eda de las Enfermedades Raras. Ofrecieron m\u00fasica en directo, comida y camisetas y sudaderas con capucha de sensibilizaci\u00f3n sobre la ECD a la venta. Tras dar a conocer el evento en la comunidad y en Internet, la asistencia fue espectacular. Adem\u00e1s, la bodega don\u00f3 un porcentaje de todas las ventas de vino a la ECDGA en honor a Hank. \u00a1Se logr\u00f3 una gran concienciaci\u00f3n sobre la ECD, adem\u00e1s de las donaciones que se entregaron a la ECDGA!<\/p>","protected":false},"excerpt":{"rendered":"<p>Running Vines Winery in Chesterton, IN hosted a fundraiser and awareness event in honor of ECD patient, Hank during Rare Disease Day weekend. They provided live music, food, and ECD [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":28760,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[250],"tags":[],"class_list":["post-28759","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-fundraisers"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/28759","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=28759"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/28759\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/28760"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=28759"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=28759"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=28759"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}