{"id":162802,"date":"2026-06-25T14:03:41","date_gmt":"2026-06-25T19:03:41","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=162802"},"modified":"2026-06-25T14:03:41","modified_gmt":"2026-06-25T19:03:41","slug":"un-mensaje-para-nuestra-comunidad","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/a-message-to-our-community\/","title":{"rendered":"Un mensaje para nuestra comunidad"},"content":{"rendered":"<p>Cuando alguien oye las palabras \u201cTienes la enfermedad de Erdheim-Chester\u201d, suele tener m\u00e1s preguntas que respuestas.<\/p>\n<ol>\n<li>\u00bfD\u00f3nde puedo encontrar informaci\u00f3n?<\/li>\n<li>\u00bfQui\u00e9n puede ayudarme a entender esta enfermedad?<\/li>\n<li>\u00bfQu\u00e9 opciones de tratamiento existen?<\/li>\n<li>\u00bfC\u00f3mo puedo encontrar a otras personas que padezcan esta enfermedad?<\/li>\n<\/ol>\n<p>La ECDGA ayuda a responder a esas preguntas cada d\u00eda.<\/p>\n<p>Apoya a los pacientes y a sus familias haciendo hoy mismo una donaci\u00f3n con contrapartida.<\/p>\n<p>Estamos a muy poco de alcanzar nuestro reto de igualaci\u00f3n de $10 000,00.  Ya hemos recaudado $7 261,00.  Ay\u00fadanos a conseguir esta igualaci\u00f3n antes del 30 de junio.<\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/event\/2026funrunwalkorroll\/donate\/\" target=\"_blank\" rel=\"noopener\">Haz tu donaci\u00f3n aqu\u00ed<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>When someone hears the words &#8220;You have Erdheim-Chester Disease,&#8221; they often have more questions than answers. Where do I find information? Who can help me understand this disease? What treatment [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":162987,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,5985,376],"class_list":["post-162802","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-funrun","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/162802","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=162802"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/162802\/revisions"}],"predecessor-version":[{"id":162986,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/162802\/revisions\/162986"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/162987"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=162802"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=162802"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=162802"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}