{"id":106817,"date":"2025-11-05T10:00:39","date_gmt":"2025-11-05T16:00:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/la-ecdga-en-la-conferencia-anual-2025-del-colegio-americano-de-reumatologia-acr\/"},"modified":"2025-11-05T11:12:46","modified_gmt":"2025-11-05T17:12:46","slug":"la-ecdga-en-la-conferencia-anual-2025-del-colegio-americano-de-reumatologia-acr","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/la-ecdga-en-la-conferencia-anual-2025-del-colegio-americano-de-reumatologia-acr\/","title":{"rendered":"La ECDGA en la Conferencia Anual 2025 del Colegio Americano de Reumatolog\u00eda (ACR)"},"content":{"rendered":"<p>La semana pasada, <strong>Diane Schriner, presidenta de la ECDGA<\/strong>, y <strong>Jerome Henson, miembro del personal de la ECDGA<\/strong>, representaron a la <strong>Alianza Mundial contra la Enfermedad de Erdheim-Chester (ECDGA<\/strong> ) en la <strong>Conferencia Anual del Colegio Americano de Reumatolog\u00eda (ACR<\/strong>), junto con <strong>la Dra. Mitali Sen<\/strong>, reumat\u00f3loga de <strong>la Universidad de Alabama en Birmingham<\/strong>.<\/p>\n<p>Juntos est\u00e1n sensibilizando a reumat\u00f3logos, m\u00e9dicos e investigadores de todo el mundo sobre <strong>la enfermedad de Erdheim-Chester (ECD)<\/strong>. Mediante la divulgaci\u00f3n educativa, la colaboraci\u00f3n profesional y el compromiso personal, est\u00e1n ayudando a ampliar el reconocimiento de esta enfermedad rara y fomentando un diagn\u00f3stico m\u00e1s precoz y una mejor atenci\u00f3n. <\/p>\n<p>La Conferencia Anual del ACR re\u00fane a miles de expertos dedicados a avanzar en la comprensi\u00f3n y el tratamiento de las enfermedades reumatol\u00f3gicas e inflamatorias raras, por lo que es una plataforma ideal para destacar la ECD y la importancia de la colaboraci\u00f3n multidisciplinar.<\/p>\n<p>Estamos orgullosos de que <strong>Diane, Jerome y el Dr. Sen<\/strong> representen a la comunidad de ECD y ayuden a garantizar que la enfermedad de Erdheim-Chester siga ganando visibilidad en el \u00e1mbito m\u00e9dico.<\/p>\n<p><strong>Gracias por tu compromiso con la sensibilizaci\u00f3n y la creaci\u00f3n de v\u00ednculos en nombre de los pacientes y las familias afectadas por el ECD.<\/strong><\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-scaled.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-106803\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1920\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-scaled.jpg 2560w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-1280x960.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-980x735.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" \/><\/a> <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-106791\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1920\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled.jpg 2560w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-1280x960.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-980x735.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" \/><\/a> <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-106779\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1920\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled.jpg 2560w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-1280x960.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-980x735.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" \/><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>La presidenta de la ECDGA, Diane Schriner, el miembro del personal Jerome Henson y la Dra. Mitali Sen, reumat\u00f3loga de la Universidad de Alabama en Birmingham, asistieron a la Conferencia Anual del Colegio Americano de Reumatolog\u00eda (ACR) para concienciar sobre la enfermedad de Erdheim-Chester (ECD).<br \/>\nSus esfuerzos contribuyen a que el ECD sea reconocido por m\u00e9dicos e investigadores de todo el mundo. Gracias, Diane, Jerome y Dr. Sen, por representar a la ECDGA y a nuestra comunidad. <\/p>\n","protected":false},"author":14,"featured_media":106712,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[391],"tags":[5295,3388,405,392,3852,5298],"class_list":["post-106817","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ecdga-noticias","tag-acr2025","tag-defensa-del-paciente","tag-ecdga-es","tag-enfermedad-de-erdheimchester","tag-rarediseaseawareness-es","tag-reumatologia"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/106817","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=106817"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/106817\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/106712"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=106817"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=106817"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=106817"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}