{"id":102341,"date":"2018-05-16T19:44:54","date_gmt":"2018-05-17T00:44:54","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/6a-reunion-internacional-anual-de-pacientes-y-familiares-de-ecd-orlando-fl\/"},"modified":"2026-05-25T10:22:55","modified_gmt":"2026-05-25T15:22:55","slug":"6a-reunion-internacional-anual-de-pacientes-y-familiares-de-ecd-orlando-fl","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/6a-reunion-internacional-anual-de-pacientes-y-familiares-de-ecd-orlando-fl\/","title":{"rendered":"6.\u00ba Encuentro anual de pacientes y familias con ECD, Orlando, FL"},"content":{"rendered":"

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Fotograf\u00eda de grupo del Encuentro Internacional de Pacientes y Familias con ECD en Orlando 2018<\/p>\n<\/div>\n<\/div>\n

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Resumen del Encuentro de Pacientes y Familias<\/h2>\n

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Un total de 109 pacientes, familiares y m\u00e9dicos de ocho pa\u00edses asistieron a la Reuni\u00f3n de Pacientes y Familiares 2018.<\/p>\n

Los asistentes aprendieron sobre el proceso de ensayo de f\u00e1rmacos, c\u00f3mo gestionar m\u00faltiples medicamentos, c\u00f3mo cuidarse con nutrici\u00f3n y ejercicio, y m\u00e1s sobre la gesti\u00f3n de cuidados. Para m\u00e1s informaci\u00f3n sobre este exitoso evento, consulta el material del evento que figura m\u00e1s abajo. \u00a1Gracias a todos los participantes! <\/p>\n

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Fotograf\u00edas<\/h2>\n

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Fotos de la recepci\u00f3n<\/h3>\n

Las siguientes fotos se tomaron durante la Recepci\u00f3n de la Reuni\u00f3n de Pacientes y Familias de ECD con profesionales m\u00e9dicos y familias de ECD el 15 de noviembre de 2018 en el Centro M\u00e9dico Regional de Orlando Health. Gracias a todos los participantes por asistir y comprometerse con la comunidad. Puedes encontrar m\u00e1s fotos en Facebook con la etiqueta #ECDGA18 o directamente en nuestra p\u00e1gina de FacebookECDGA <\/a>. <\/p>\n

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Fotos de la Reuni\u00f3n de Pacientes<\/h3>\n

Las siguientes fotos fueron tomadas durante la reuni\u00f3n ECD Patient & Family Gathering el 16 de noviembre de 2018 en el Orlando Health – Orlando Regional Medical Center. Gracias a todos los asistentes por participar durante la reuni\u00f3n y los momentos sociales, permitiendo un gran apoyo y conexiones dentro de esta comunidad. Puedes encontrar m\u00e1s fotos en Facebook con la etiqueta #ECDGA18 o directamente en nuestra p\u00e1gina de FacebookECDGA <\/a>. Por favor, \u00a1vuelve a unirte a nosotros el 12 de julio de 2019 en Mil\u00e1n, Italia! <\/p>\n

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Fotograf\u00eda de grupo del Encuentro Internacional de Pacientes y Familias con ECD en Orlando 2018 Resumen del Encuentro de Pacientes y FamiliasUn total de 109 pacientes, familiares y m\u00e9dicos de […]<\/p>\n","protected":false},"author":20,"featured_media":77374,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4860],"tags":[],"class_list":["post-102341","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-reunion-de-pacientes-y-familiares"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102341","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=102341"}],"version-history":[{"count":29,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102341\/revisions"}],"predecessor-version":[{"id":133571,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102341\/revisions\/133571"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/77374"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=102341"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=102341"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=102341"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}