{"id":102341,"date":"2018-05-16T19:44:54","date_gmt":"2018-05-17T00:44:54","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/6a-reunion-internacional-anual-de-pacientes-y-familiares-de-ecd-orlando-fl\/"},"modified":"2026-06-18T09:56:16","modified_gmt":"2026-06-18T14:56:16","slug":"6a-reunion-internacional-anual-de-pacientes-y-familiares-de-ecd-orlando-fl","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/6a-reunion-internacional-anual-de-pacientes-y-familiares-de-ecd-orlando-fl\/","title":{"rendered":"6.\u00ba Encuentro anual de pacientes y familias con ECD, Orlando, FL"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00bb1&#8243; _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_padding=\u00bb20px||0px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_row _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb||10px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.27.5&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_heading title=\u00bb@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@\u00bb _builder_version=\u00bb4.27.6&#8243; _dynamic_attributes=\u00bbtitle\u00bb _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||0px||false|false\u00bb custom_padding=\u00bb||0px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=\u00bbsingle-line-buttons \u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb0px||0px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_button button_text=\u00bbDr. Julio Hajdenberg\u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000&#8243; button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb&#xf007;||fa||400&#8243; button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][et_pb_button button_text=\u00bbOrlando Health\u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000&#8243; button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb&#xf04d;||fa||900&#8243; button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][et_pb_button button_text=\u00bbOrlando, FL\u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000&#8243; button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb&#xe01d;||divi||400&#8243; button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][et_pb_button button_text=\u00bb16 de noviembre de 2018&#8243; _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000&#8243; button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb&#xf274;||fa||400&#8243; button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb0px||||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.27.5&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_image src=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Picture16.png\u00bb title_text=\u00bbEncuentro de Pacientes y Familias (PFG) de Orlando\u00bb align=\u00bbcenter\u00bb force_fullwidth=\u00bbon\u00bb module_class=\u00bbevent-image\u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb border_radii=\u00bbon|10px|10px|10px|10px\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_image][et_pb_text _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb text_font_size=\u00bb14px\u00bb text_line_height=\u00bb-0.1em\u00bb text_orientation=\u00bbcenter\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n<div class=\"mb-10\">\n<div class=\"mb-8\">\n<p class=\"text-center text-gray-600 text-sm mt-3 italic\">Fotograf\u00eda de grupo del Encuentro Internacional de Pacientes y Familias con ECD en Orlando 2018<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00bb1&#8243; _builder_version=\u00bb4.27.5&#8243; _module_preset=\u00bbdefault\u00bb custom_padding=\u00bb0px||||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_row _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb10px||||false|false\u00bb global_colors_info=\u00bb{}\u00bb width__hover_enabled=\u00bboff|desktop\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.27.5&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||15px||false|false\u00bb border_width_bottom=\u00bb2px\u00bb border_color_bottom=\u00bb#35A4BB\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n<h2>Resumen del Encuentro de Pacientes y Familias<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]El Encuentro de Pacientes y Familias (PFG) de 2018 reuni\u00f3 a 75 pacientes y familiares de 4 pa\u00edses. A la comunidad de pacientes y familiares se unieron 44 profesionales cl\u00ednicos y cient\u00edficos apasionados por atender a los pacientes y por aprender m\u00e1s sobre la enfermedad de Erdheim-Chester. Catorce profesionales cl\u00ednicos y cient\u00edficos ofrecieron ponencias sobre la ECD y las necesidades de apoyo relacionadas con la ECD. Se disfrut\u00f3 de una Cena de Celebraci\u00f3n con todos los asistentes, lo que permiti\u00f3 disponer de tiempo para la convivencia y el reconocimiento de los l\u00edderes de la comunidad que dedican su tiempo y recursos a ayudar a la comunidad de ECD. Consulte la informaci\u00f3n que figura a continuaci\u00f3n para saber m\u00e1s sobre las actividades y presentaciones del PFG, as\u00ed como para ver fotograf\u00edas de la conferencia.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb10px||20px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb width__hover_enabled=\u00bboff|desktop\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.27.5&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb border_width_bottom=\u00bb2px\u00bb border_color_bottom=\u00bb#35A4BB\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n<h2>Programas con Agenda del Encuentro<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00bb1_3,1_3,1_3&#8243; module_class=\u00bbsingle-line-buttons \u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb1_3&#8243; _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_image src=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Picture13-1.png\u00bb title_text=\u00bbImagen1(3)\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Final-PFG-2018-booklet-V2.pdf\u00bb url_new_window=\u00bbon\u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb hover_enabled=\u00bb0&#8243; border_radii=\u00bbon|8px|8px|8px|8px\u00bb border_width_all=\u00bb1px\u00bb border_color_all=\u00bb#b2b2b2&#8243; global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb sticky_enabled=\u00bb0&#8243;][\/et_pb_image][\/et_pb_column][et_pb_column type=\u00bb1_3&#8243; _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_column][et_pb_column type=\u00bb1_3&#8243; _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb0px||0px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.27.5&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||15px||false|false\u00bb border_width_bottom=\u00bb2px\u00bb border_color_bottom=\u00bb#35A4BB\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n<h2>Presentaci\u00f3n<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb||0px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.27.5&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text module_class=\u00bbevent-table\u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n\n<table id=\"tablepress-59\" class=\"tablepress tablepress-id-59\">\n<thead>\n<tr class=\"row-1\">\n\t<th class=\"column-1\">Presenter<\/th><th class=\"column-2\">Presentation Slides<\/th><th class=\"column-3\">Video<\/th>\n<\/tr>\n<\/thead>\n<tbody class=\"row-striping row-hover\">\n<tr class=\"row-2\">\n\t<td class=\"column-1\">Eric Jacobsen, MD, PhD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Jacobsen_The-Drug-Development-Process.pdf\" target=\"_blank\">The Drug Trial Process<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=HJ3ahoEmGbw\" target=\"_blank\">The Drug Trial Process - Eric Jacobsen<\/a><\/td>\n<\/tr>\n<tr class=\"row-3\">\n\t<td class=\"column-1\">Ronald S. Go, MD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Go_2018-ECD-Global-Allitance-Treatment-Options.pdf\" target=\"_blank\">Treatment Options for ECD<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=_sIOwTcDv2A\" target=\"_blank\">ECD Treatment Options - Ronald Go<\/a><\/td>\n<\/tr>\n<tr class=\"row-4\">\n\t<td class=\"column-1\">Cassie Nguyen, PharmD, BCOP<\/td><td class=\"column-2\">Drug Management<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=aKtwos-aYj0\" target=\"_blank\">Drug Management for ECD Patients - Cassie Nguyen<\/a><\/td>\n<\/tr>\n<tr class=\"row-5\">\n\t<td class=\"column-1\">Eli L. Diamond, MD<\/td><td class=\"column-2\">ECD and the Brain<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=rGJSPHObwCU\" target=\"_blank\">ECD Patient Registry - Eli Diamond<\/a><\/td>\n<\/tr>\n<tr class=\"row-6\">\n\t<td class=\"column-1\">Allison Mofsky, MA, CCC-SLP<\/td><td class=\"column-2\">Speech and Swallowing<\/td><td class=\"column-3\"><\/td>\n<\/tr>\n<tr class=\"row-7\">\n\t<td class=\"column-1\">Fady Hannah-Shmouni, MD, DABIM FRCPC<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Hannah-Shmouni-_-Endocrine.pdf\" target=\"_blank\">Endocrine Dysfunction in ECD<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=2W5u9XmJqBM\" target=\"_blank\">Endocrine Dysfunction - Fady Hannah-Shmouni<\/a><\/td>\n<\/tr>\n<tr class=\"row-8\">\n\t<td class=\"column-1\">Patty Bobryk, MHS, PT, MSCS, ATP<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/BOBRYK_ECD-and-Exercise.pdf\" target=\"_blank\">ECD and Exercise<\/a><\/td><td class=\"column-3\"><\/td>\n<\/tr>\n<tr class=\"row-9\">\n\t<td class=\"column-1\">Colleen Scordato, DPT, Cert. MDT<\/td><td class=\"column-2\">Physical Therapy<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=0rhNtEm8q04\" target=\"_blank\">Physical Therapy - Colleen Scordato<\/a><\/td>\n<\/tr>\n<tr class=\"row-10\">\n\t<td class=\"column-1\">Rebecca Donnenberg<\/td><td class=\"column-2\">Nutrition for ECD Patients<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=IuTOx3Ww59Y\" target=\"_blank\">Nutrition for ECD Patients - Rebecca Donnenberg<\/a><\/td>\n<\/tr>\n<tr class=\"row-11\">\n\t<td class=\"column-1\">Eli L. Diamond, MD<\/td><td class=\"column-2\">ECD Registry Update<\/td><td class=\"column-3\"><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb||0px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.27.5&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||15px||false|false\u00bb border_width_bottom=\u00bb2px\u00bb border_color_bottom=\u00bb#35A4BB\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n<h2>Fotograf\u00edas<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb20px||20px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n<h3>Fotos de la recepci\u00f3n<\/h3>\n<p>Las siguientes fotos se tomaron durante la Recepci\u00f3n de la Reuni\u00f3n de Pacientes y Familias de ECD con profesionales m\u00e9dicos y familias de ECD el 15 de noviembre de 2018 en el Centro M\u00e9dico Regional de Orlando Health. Gracias a todos los participantes por asistir y comprometerse con la comunidad. Puedes encontrar m\u00e1s fotos en Facebook con la etiqueta #ECDGA18 o directamente en nuestra <a href=\"https:\/\/www.facebook.com\/ErdheimChesterDisease\" target=\"_blank\" rel=\"noopener\">p\u00e1gina de FacebookECDGA <\/a>.  <\/p>\n<p>[\/et_pb_text][et_pb_gallery gallery_ids=\u00bb35547,35559,35571,35583,35595,35607,35619,35631,35643,35655,35667,35679,35691,35703,35715,35727,35739,35751,35763,35775,35787,35799,35811,35823,35835,35847,35859,35871,35883,35895,35907,35919,35931,35943,35955,35967,35979&#8243; posts_number=\u00bb100&#8243; orientation=\u00bbportrait\u00bb show_title_and_caption=\u00bboff\u00bb module_class=\u00bbevent-gallery\u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb db_images_per_row=\u00bb5&#8243; db_image_max_width=\u00bb95%\u00bb db_image_max_height=\u00bb88px\u00bb db_image_row_spacing=\u00bb1%\u00bb dbdb_version=\u00bb5.1.1&#8243; db_image_object_fit=\u00bbcover\u00bb border_radii_image=\u00bbon|8px|8px|8px|8px\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_gallery][et_pb_text _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb20px||20px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n<h3>Fotos de la Reuni\u00f3n de Pacientes<\/h3>\n<p>Las siguientes fotos fueron tomadas durante la reuni\u00f3n ECD Patient &#038; Family Gathering el 16 de noviembre de 2018 en el Orlando Health &#8211; Orlando Regional Medical Center. Gracias a todos los asistentes por participar durante la reuni\u00f3n y los momentos sociales, permitiendo un gran apoyo y conexiones dentro de esta comunidad. Puedes encontrar m\u00e1s fotos en Facebook con la etiqueta #ECDGA18 o directamente en nuestra <a href=\"https:\/\/www.facebook.com\/ErdheimChesterDisease\">p\u00e1gina de FacebookECDGA <\/a>. Por favor, \u00a1vuelve a unirte a nosotros el 12 de julio de 2019 en Mil\u00e1n, Italia!   <\/p>\n<p>[\/et_pb_text][et_pb_gallery gallery_ids=\u00bb35991,36003,36015,36027,36039,36051,36063,36075,36087,36099,36111,36123,36135,36147,36159,36171,36183,36195,36207,36219,36231,36243,36255,36267,36279,36291,36303,36315,36327,36339,36351,36363,36375,36387,36399,36411,36423,36435,36447,36459,36471,36483,36495,36507,36519,36531,36543,36555,36567,36579,36591,36603,36615,36627,36639,36651,36663,36675,36687,36699,36711,36723,36735,36747,36759,36771,36783,36795,36807,36819,36831,36843,36855,36867,36879,36891,36903,36915,36927,36939,36951,36963,36975,36987,36999,37011,37023,37035,37047,37059,37071,37083,37095,37107,37119,37131,37143,37155,37167,37179,37191,37203,37215,37227,37239,37251,37263,37275,37287,37299,37311,37323,37335,37347,37359,37371,37383,37395,37407,37419,37431,37443,37455,37467,37479,37491,37503,37515,37527,37539&#8243; posts_number=\u00bb100&#8243; orientation=\u00bbportrait\u00bb show_title_and_caption=\u00bboff\u00bb module_class=\u00bbevent-gallery\u00bb _builder_version=\u00bb4.27.6&#8243; _module_preset=\u00bbdefault\u00bb db_images_per_row=\u00bb5&#8243; db_image_max_width=\u00bb95%\u00bb db_image_max_height=\u00bb88px\u00bb db_image_row_spacing=\u00bb1%\u00bb dbdb_version=\u00bb5.1.1&#8243; db_image_object_fit=\u00bbcover\u00bb border_radii_image=\u00bbon|8px|8px|8px|8px\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_gallery][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Fotograf\u00eda de grupo del Encuentro Internacional de Pacientes y Familias con ECD en Orlando 2018 Resumen del Encuentro de Pacientes y FamiliasEl Encuentro de Pacientes y Familias (PFG) de 2018 [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":77374,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4860],"tags":[],"class_list":["post-102341","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-reunion-de-pacientes-y-familiares"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102341","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=102341"}],"version-history":[{"count":7,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102341\/revisions"}],"predecessor-version":[{"id":161237,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102341\/revisions\/161237"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/77374"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=102341"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=102341"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=102341"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}