{"id":102076,"date":"2016-04-01T18:13:58","date_gmt":"2016-04-01T23:13:58","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/4o-simposio-medico-anual-de-ecd-paris-francia\/"},"modified":"2026-06-03T06:48:26","modified_gmt":"2026-06-03T11:48:26","slug":"4o-simposio-medico-anual-de-ecd-paris-francia","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/4o-simposio-medico-anual-de-ecd-paris-francia\/","title":{"rendered":"4\u00ba Simposio M\u00e9dico Anual de ECD Par\u00eds, Francia"},"content":{"rendered":"

[et_pb_section fb_built=\u00bb1″ _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_padding=\u00bb20px||0px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_row _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb||10px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_heading title=\u00bb4\u00ba Simposio M\u00e9dico Anual de ECD Par\u00eds, Francia\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||0px||false|false\u00bb custom_padding=\u00bb||0px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=\u00bbsingle-line-buttons \u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb0px||0px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_button button_text=\u00bbXavier Solanich, MD, PHD\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000″ button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb||fa||400″ button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][et_pb_button button_text=\u00bbBoulevard de l'H\u00f4pita\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000″ button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb||fa||900″ button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][et_pb_button button_text=\u00bbPar\u00eds, Francia\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000″ button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb||divi||400″ button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][et_pb_button button_text=\u00bb1 de abril de 2016″ _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000″ button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb||fa||400″ button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb0px||||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_image src=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/2016-Medical-Symposium-Group-Photo-Small.jpg\u00bb title_text=\u00bb2016-simposio-m\u00e9dico-foto-de-grupo-peque\u00f1a\u00bb align=\u00bbcenter\u00bb force_fullwidth=\u00bbon\u00bb module_class=\u00bbevent-image\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb border_radii=\u00bbon|10px|10px|10px|10px\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_image][et_pb_text _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb text_font_size=\u00bb14px\u00bb text_line_height=\u00bb-0.1em\u00bb text_orientation=\u00bbcenter\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n

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Foto de grupo del Simposio M\u00e9dico de Par\u00eds 2016<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00bb1″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb custom_padding=\u00bb0px||||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_row _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb10px||||false|false\u00bb global_colors_info=\u00bb{}\u00bb width__hover_enabled=\u00bboff|desktop\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||15px||false|false\u00bb border_width_bottom=\u00bb2px\u00bb border_color_bottom=\u00bb#35A4BB\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n

Resumen del Simposio<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]La Alianza Global para la Enfermedad de Erdheim-Chester se complace en ofrecer el siguiente resumen de las ponencias presentadas en el 4.\u00ba Simposio M\u00e9dico Internacional Anual de ECD de este a\u00f1o, celebrado el 15 de septiembre de 2016 en el H\u00f4pital Piti\u00e9-Salp\u00eatri\u00e8re de Par\u00eds, Francia. La reuni\u00f3n permiti\u00f3 a los profesionales m\u00e9dicos colaborar en la investigaci\u00f3n de la ECD, compartir hallazgos m\u00e9dicos y debatir sobre la atenci\u00f3n al paciente. Agradecemos al coanfitri\u00f3n de este a\u00f1o, el profesor Julien Haroche, MD, PhD; a todos los ponentes que compartieron sus datos y experiencia durante las mesas redondas; a todos los asistentes interesados en aprender m\u00e1s sobre la ECD; y a todos los que participaron en la planificaci\u00f3n y el \u00e9xito de este evento. Un agradecimiento especial a los voluntarios que elaboraron este resumen para la comunidad y para los profesionales que no pudieron asistir.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb0px||0px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||15px||false|false\u00bb border_width_bottom=\u00bb2px\u00bb border_color_bottom=\u00bb#14b8a6″ global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n

Programas con la Agenda del Simposio<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row module_class=\u00bbsingle-line-buttons \u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb||0px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_image src=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/03\/Picture1.png\u00bb title_text=\u00bbImagen1″ url=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/01\/2016-Medical-Symposium-summary_final-web-version.pdf\u00bb url_new_window=\u00bbon\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb||0px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||15px||false|false\u00bb border_width_bottom=\u00bb2px\u00bb border_color_bottom=\u00bb#35A4BB\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n

Presentaciones<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n

Las siguientes presentaciones se impartieron en la reuni\u00f3n de 2016. Visite el canal de YouTube de la ECD Global Alliance<\/a> para ver todos los v\u00eddeos<\/a> relacionados con la ECD publicados. <\/p>\n

[\/et_pb_text][et_pb_text module_class=\u00bbevent-table\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>Videos<\/th>\n<\/tr>\n<\/thead>\n
Corrado Campochiaro, MD<\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>\n<\/tr>\n
Giulio Cavalli, MD<\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Carine Courtillot, MD<\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>\n<\/tr>\n
Marina Ferrarini, MD<\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>\n<\/tr>\n
Ronald Go, MD<\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Javier Martin, MD, PhD<\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>\n<\/tr>\n
Kenneth McClain, MD, PhD<\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>\n<\/tr>\n
Augusto Vaglio, MD, PhD<\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Foto de grupo del Simposio M\u00e9dico de Par\u00eds 2016 Resumen del SimposioLa Alianza Global para la Enfermedad de Erdheim-Chester se complace en ofrecer el siguiente resumen de las ponencias presentadas […]<\/p>\n","protected":false},"author":20,"featured_media":135370,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4818],"tags":[],"class_list":["post-102076","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-simposio-medico"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102076","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=102076"}],"version-history":[{"count":25,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102076\/revisions"}],"predecessor-version":[{"id":136766,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102076\/revisions\/136766"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/135370"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=102076"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=102076"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=102076"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}