{"id":102051,"date":"2018-04-01T18:10:48","date_gmt":"2018-04-01T23:10:48","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/6o-simposio-medico-anual-de-ecd-orlando-fl\/"},"modified":"2026-06-12T09:24:29","modified_gmt":"2026-06-12T14:24:29","slug":"6o-simposio-medico-anual-de-ecd-orlando-fl","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/es\/6o-simposio-medico-anual-de-ecd-orlando-fl\/","title":{"rendered":"6\u00ba Simposio M\u00e9dico Anual de ECD Orlando, FL"},"content":{"rendered":"

[et_pb_section fb_built=\u00bb1″ _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_padding=\u00bb20px||0px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_row _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb||10px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_heading title=\u00bb6\u00ba Simposio M\u00e9dico Anual de ECD Orlando, FL\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||0px||false|false\u00bb custom_padding=\u00bb||0px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=\u00bbsingle-line-buttons \u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb0px||0px||false|false\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_button button_text=\u00bbXavier Solanich, MD, PHD\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000″ button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb 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button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb||divi||400″ button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][et_pb_button button_text=\u00bb1 de abril de 2018″ _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb16px\u00bb button_text_color=\u00bb#000000″ button_bg_color=\u00bbRGBA(255,255,255,0)\u00bb button_border_radius=\u00bb0px\u00bb button_icon=\u00bb||fa||400″ button_icon_color=\u00bb#35A4BB\u00bb button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb 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Foto de grupo del Simposio M\u00e9dico de Orlando 2018<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00bb1″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb custom_padding=\u00bb0px||||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_row _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb||0px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||15px||false|false\u00bb border_width_bottom=\u00bb2px\u00bb border_color_bottom=\u00bb#35A4BB\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n

Resumen del Simposio<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]Aproximadamente 44 profesionales m\u00e9dicos de seis pa\u00edses asistieron al Simposio M\u00e9dico Anual de ECD en 2018. Se presentaron diez res\u00famenes orales, junto con seis presentaciones de p\u00f3ster adicionales. Como ponente invitado, Matthew Collin, imparti\u00f3 una charla titulada \u201cEnfermedad de Erdheim-Chester: C\u00e1ncer, pero no como lo conocemos.\u201d Una recepci\u00f3n vespertina proporcion\u00f3 tiempo para debates que fomentaron colaboraciones actuales y futuras entre este grupo de m\u00e9dicos y cient\u00edficos altamente cualificados, todos interesados en aprender m\u00e1s sobre la Enfermedad de Erdheim-Chester. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb||0px||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.5″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb custom_margin=\u00bb||15px||false|false\u00bb border_width_bottom=\u00bb2px\u00bb border_color_bottom=\u00bb#35A4BB\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n

Experiencias de los asistentes<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00bb1_2,1_2″ _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb width=\u00bb65%\u00bb width_tablet=\u00bb80%\u00bb width_phone=\u00bb80%\u00bb width_last_edited=\u00bbon|phone\u00bb custom_padding=\u00bb0px||||false|false\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_column type=\u00bb1_2″ _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_text _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n

\u201c[La Alianza Global de ECD] me ha ayudado a m\u00ed y a mis pacientes al] reunir a expertos para lograr un progreso colaborativo.\u201d <\/em><\/p>\n

\u2013 Ronald S. Go, MD, asistente en 2018<\/strong><\/p>\n

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Programas con la Agenda del Simposio<\/h2>\n

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Presentaciones<\/h2>\n

[\/et_pb_text][et_pb_text module_class=\u00bbevent-table\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Julio Hajdenberg, MD<\/td>Welcome Address<\/td>Not Available<\/td>\n<\/tr>\n
Matthew Collin, MD, PhD<\/td>Erdheim Chester Disease: Cancer, but not as we know it.<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Patient-reported outcomes in adults with Erdheim-Chester Disease: Early findings from the ECD Registry<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Novel Activating Mutations in CSF1R and Additional Receptor Tyrosine Kinases in Histiocytic Neoplasms<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Ran Weissman, M.Sc<\/td>The role of microRNAs in the Pathogenesis of Erdheim-Chester Disease and their Potential Use as Biomarkers for Diagnosis and Prognosis of the Disease<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD<\/td>Slide deck not available<\/td>Imaging aspect of cardiac involvement in Erdheim-Chester disease: cardiac CT and MRI of 188 patients<\/a><\/td>\n<\/tr>\n
Gaurav Goyal, MD<\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>\n<\/tr>\n
Ana\u00efs Roeser, MD<\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Efficacy of Dual BRAF\/MAP2K1 Blockade in BRAF mutant Erdheim Chester Disease Patients<\/td>No Videos available<\/td>\n<\/tr>\n
Skand Shekhar, MD<\/td>Hypothyroidism in Erdheim-Chester Disease: Experience from the National Institutes of Health<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Gordon Ruan, MD<\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Panel Discussion: TOXICITY OF ECD THERAPIES<\/td>No Videos available<\/td>\n<\/tr>\n
Julio Hajdenberg, MD<\/td>Panel Discussion: COMPLEX CASE STUDIES<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Kathleen Brewer<\/td>ECDGA Announcements<\/a><\/td>No Videos available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Fotograf\u00edas<\/h2>\n

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Simposio m\u00e9dico<\/h3>\n

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Reuni\u00f3n m\u00e9dica<\/h3>\n

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Foto de grupo del Simposio M\u00e9dico de Orlando 2018 Resumen del SimposioAproximadamente 44 profesionales m\u00e9dicos de seis pa\u00edses asistieron al Simposio M\u00e9dico Anual de ECD en 2018. Se presentaron diez […]<\/p>\n","protected":false},"author":20,"featured_media":77386,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4818],"tags":[],"class_list":["post-102051","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-simposio-medico"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102051","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=102051"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/posts\/102051\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/77386"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=102051"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/categories?post=102051"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/tags?post=102051"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}