{"id":98,"date":"2014-11-20T17:18:16","date_gmt":"2014-11-20T17:18:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?page_id=98"},"modified":"2025-09-16T01:47:41","modified_gmt":"2025-09-16T06:47:41","slug":"host-fundraisers","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/es\/host-fundraisers\/","title":{"rendered":"Organizar recaudaciones de fondos"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png&#8221; background_position=&#8221;bottom_center&#8221; background_vertical_offset=&#8221;20%&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; background_last_edited=&#8221;on|desktop&#8221; background_position_tablet=&#8221;bottom_right&#8221; background_position_phone=&#8221;center_right&#8221; global_module=&#8221;28071&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_dmb_breadcrumbs _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; body_text_color=&#8221;#FFFFFF&#8221; body_font_size=&#8221;12px&#8221; link_text_color=&#8221;#35A4BB&#8221; custom_margin=&#8221;||5px||false|false&#8221; custom_padding=&#8221;||0px||false|false&#8221; body_font_size_tablet=&#8221;12px&#8221; body_font_size_phone=&#8221;10px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_dmb_breadcrumbs][et_pb_heading title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;title&#8221; _module_preset=&#8221;default&#8221; title_font=&#8221;&#8211;et_global_heading_font|300|||||||&#8221; title_text_color=&#8221;#FFFFFF&#8221; title_font_size=&#8221;40px&#8221; custom_margin=&#8221;||3px|||&#8221; title_font_size_tablet=&#8221;&#8221; title_font_size_phone=&#8221;25px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_button button_url=&#8221;\/contact-us\/&#8221; button_text=&#8221;Contact Us&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;15px&#8221; button_text_color=&#8221;#C02E43&#8243; button_bg_color=&#8221;rgba(10,22,64,0.53)&#8221; button_border_width=&#8221;0px&#8221; button_icon=&#8221;&#xe60f;||divi||400&#8243; button_icon_color=&#8221;#C02E43&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; filter_opacity__hover_enabled=&#8221;on|hover&#8221; filter_opacity__hover=&#8221;70%&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Anyone can host a fundraiser to benefit the ECD Global Alliance. We do ask that you contact the organization during the earliest planning stages so that we might help in whatever way we can and ensure all requirements of fundraisers are met. \u00a0To help in knowing what to consider when planning a fundraiser, we ask that you look at the <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/10\/ECD_Global_Alliance_fundraising_policy_2019.pdf\">ECDGA Fundraising Policy<\/a> found in the policy section below.<\/p>\n<p>[\/et_pb_text][et_pb_toggle title=&#8221;FUNdraising Ideas&#8221; open_toggle_text_color=&#8221;#FFFFFF&#8221; open_toggle_background_color=&#8221;#f2f2f2&#8243; closed_toggle_background_color=&#8221;#35A4BB&#8221; icon_color=&#8221;#FFFFFF&#8221; toggle_icon=&#8221;&#x22;||divi||400&#8243; open_icon_color=&#8221;#C02E43&#8243; open_toggle_icon=&#8221;&#x21;||divi||400&#8243; module_class=&#8221;custom-toggle&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_text_color=&#8221;#FFFFFF&#8221; title_font=&#8221;|600|||||||&#8221; hover_enabled=&#8221;0&#8243; border_radii=&#8221;on|4px|4px|4px|4px&#8221; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p>Ideas for fundraisers are limited only by imagination. Below are some creative ways to raise funds for your community. See the resource menu below for helpful website sources to get you started!<\/p>\n\n<table id=\"tablepress-3\" class=\"tablepress tablepress-id-3\">\n<tbody class=\"row-striping row-hover\">\n<tr class=\"row-1\">\n\t<td class=\"column-1\">Year-End personal letter campaign \u2013 see resources below<\/td><td class=\"column-2\">Athletic events such as a walk, run, triathlon, bike ride, golf tournament, etc.<\/td><td class=\"column-3\">Motorcycle ride event<\/td>\n<\/tr>\n<tr class=\"row-2\">\n\t<td class=\"column-1\">Wine &amp; cheese gathering<\/td><td class=\"column-2\">A concert, dance, or entertainment, etc.<\/td><td class=\"column-3\">Dinner or banquet<\/td>\n<\/tr>\n<tr class=\"row-3\">\n\t<td class=\"column-1\">Personal solicitations from family and friends<\/td><td class=\"column-2\">Proceeds from the sale of products such as cards, books, baked goods, handmade items, community donated items, etc.<\/td><td class=\"column-3\">Silent or live auctions<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<!-- #tablepress-3 from cache -->\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;Resources&#8221; open_toggle_text_color=&#8221;#FFFFFF&#8221; open_toggle_background_color=&#8221;#f2f2f2&#8243; closed_toggle_background_color=&#8221;#35A4BB&#8221; icon_color=&#8221;#FFFFFF&#8221; toggle_icon=&#8221;&#x22;||divi||400&#8243; open_icon_color=&#8221;#C02E43&#8243; open_toggle_icon=&#8221;&#x21;||divi||400&#8243; module_class=&#8221;custom-toggle&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_text_color=&#8221;#FFFFFF&#8221; title_font=&#8221;|600|||||||&#8221; hover_enabled=&#8221;0&#8243; border_radii=&#8221;on|4px|4px|4px|4px&#8221; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n\n<table id=\"tablepress-4\" class=\"tablepress tablepress-id-4\">\n<thead>\n<tr class=\"row-1\">\n\t<th class=\"column-1\">Resource link<\/th><th class=\"column-2\">Resources description<\/th>\n<\/tr>\n<\/thead>\n<tbody class=\"row-striping row-hover\">\n<tr class=\"row-2\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/01\/2017-Fun-Run-How-To-Guide_Final.pdf\" target=\"_blank\">How-To Guide for Hosting a Fun Run<\/a><\/td><td class=\"column-2\">This guide was created by the ECDGA to provide step-by-step instructions to guide someone who has never hosted a fun run before.  However, it is adaptable for any type of fundraiser planning.<\/td>\n<\/tr>\n<tr class=\"row-3\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/10\/2019-General-Fact-Flyer-FINAL.pdf\" target=\"_blank\">General Fact Flyer<\/a><\/td><td class=\"column-2\">This overview of ECD can help provide the facts about the disease to build your campaign or to pass along for awareness.<\/td>\n<\/tr>\n<tr class=\"row-4\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Year-End-Giving-Letter-Template.docx\" target=\"_blank\">Year-End Giving Letter Template<\/a><\/td><td class=\"column-2\">During the holiday season or any time of year, we encourage members to reach out to their family, friends, and community to consider the ECDGA for their year-end giving.  Use this template to help write a personal letter to your loved ones or to give you ideas to start your own.<\/td>\n<\/tr>\n<tr class=\"row-5\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.youcaring.com\/blog\/2018\/build-fundraising-team\" target=\"_blank\">How to Build a Winning Fundraising Team<\/a><\/td><td class=\"column-2\">Don\u2019t do it alone!  Lighten your load by recruiting close friends and family to take a role in the planning.<\/td>\n<\/tr>\n<tr class=\"row-6\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.gofundme.com\/c\/blog\/facebook-fundraising\" target=\"_blank\">Facebook Fundraising 101<\/a><\/td><td class=\"column-2\">Learn how to navigate Facebook for fundraising.  Social pages can be a great tool for getting the message out about your cause.<\/td>\n<\/tr>\n<tr class=\"row-7\">\n\t<td class=\"column-1\"><a href=\"https:\/\/thefundraisingauthority.com\/fundraising-basics\/fundraising-event\/\" target=\"_blank\">10 Steps to a Successful Fundraising Event<\/a><\/td><td class=\"column-2\">These basic steps to fundraising may help you see the big picture and focus on what a successful fundraiser may involve.<\/td>\n<\/tr>\n<tr class=\"row-8\">\n\t<td class=\"column-1\"><a href=\"https:\/\/fundraisingcoach.com\/free-articles\/do-it-yourself-fundraising\/\" target=\"_blank\">How to Ask for Money<\/a><\/td><td class=\"column-2\">Let\u2019s face it, no one likes to ask for money.  But this is often all it takes!  When you have passion for your cause, it will show to your contributors.<\/td>\n<\/tr>\n<tr class=\"row-9\">\n\t<td class=\"column-1\"><a href=\"https:\/\/blog.fundly.com\/small-group-fundraising-ideas\/\" target=\"_blank\">Fundly \u2013 Fundraising for small groups<\/a><\/td><td class=\"column-2\">This awesome website provides many fundraising ideas, which are all categorized by Top Picks, Group Type, etc. It also provides success stories, the ability to launch a fundraiser with a step-by-step guide, and tons of other resources.<\/td>\n<\/tr>\n<tr class=\"row-10\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.pinterest.com\/search\/pins\/?rs=ac&amp;len=2&amp;q=fundraising%20ideas&amp;eq=fundraising&amp;etslf=10263&amp;term_meta[]=fundraising%7Cautocomplete%7Cundefined&amp;term_meta[]=ideas%7Cautocomplete%7Cundefined\" target=\"_blank\">Pinterest \u2013 Fundraising Pins<\/a><\/td><td class=\"column-2\">Pinterest rocks for fundraising ideas.  Anything from huge events to easy quick fundraisers with little to no effort!<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<!-- #tablepress-4 from cache -->\n<p>[\/et_pb_toggle][et_pb_toggle title=&#8221;ECDGA Fundraising Policies &#038; Forms&#8221; open_toggle_text_color=&#8221;#FFFFFF&#8221; open_toggle_background_color=&#8221;#f2f2f2&#8243; closed_toggle_background_color=&#8221;#35A4BB&#8221; icon_color=&#8221;#FFFFFF&#8221; toggle_icon=&#8221;&#x22;||divi||400&#8243; open_icon_color=&#8221;#C02E43&#8243; open_toggle_icon=&#8221;&#x21;||divi||400&#8243; module_class=&#8221;custom-toggle&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; title_text_color=&#8221;#FFFFFF&#8221; title_font=&#8221;|600|||||||&#8221; border_radii=&#8221;on|4px|4px|4px|4px&#8221; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Getting started on the planning for your event?\u00a0 Please let us know the details by submitting our Fundraising Policy form below.\u00a0 This will help us learn about your activity to help you advertise and list your event in our Community Fundraiser section.\u00a0 If you need more assistance with your event from our team, please send your inquiry and we will do our best to assist you.\u00a0 We want you to have a successful fundraising experience!<\/p>\n<p><strong><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/08\/ECD_Global_Alliance_fundraising_policy_2018.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">ECDGA Fundraising Policy<\/a><\/strong><br \/>List of items that must be considered when doing a fundraiser, along with a form to use to register a fundraiser with the ECD Global Alliance Board of Directors.<\/p>\n<p><strong><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/08\/ECD_Photo_Release_Form-2018.pdf\" target=\"_blank\" rel=\"noopener\">Photo Release Form<\/a><\/strong><br \/>A form that must be signed by anyone identifiable in a picture to be used in an ECD Global Alliance product, (i.e., website, social media, printed news, etc.).\u00a0 Please submit this with photos from your event that you would like us to use for promotion and inspiring community news.<\/p>\n<p><strong>Logo Usage<\/strong><br \/>The ECDGA does not currently have a copyright of our logo to prevent limitations on awareness activities.\u00a0 However, we ask that you use our logo responsibly and professionally to uphold the reputation of our community.\u00a0 Please contact us for the logo file formats needed, we are happy to share!<\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/10\/IMG_3695.jpg&#8221; title_text=&#8221;IMG_3695&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;rgba(200,200,200,0.18)&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Community Fundraisers<\/h2>\n<p>The ECDGA is extremely grateful to all members that have dedicated their time, energy, and resources to raising awareness of ECD and funds\u00a0for the organization.\u00a0 <strong>Get your network interested in fundraising for your support group by sharing this <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/08\/2018-Fundraising-Infographic.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">Fundraising Infographic<\/a>!<\/strong><\/p>\n<p>[\/et_pb_text][dpdfg_filtergrid include_categories=&#8221;250&#8243; thumbnail_size=&#8221;dfg_full&#8221; use_overlay=&#8221;off&#8221; show_post_meta=&#8221;off&#8221; show_content=&#8221;on&#8221; show_filters=&#8221;off&#8221; show_pagination=&#8221;off&#8221; module_class=&#8221;blog-grid&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[et_pb_dmb_breadcrumbs _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; body_text_color=&#8221;#FFFFFF&#8221; body_font_size=&#8221;12px&#8221; link_text_color=&#8221;#35A4BB&#8221; custom_margin=&#8221;||5px||false|false&#8221; custom_padding=&#8221;||0px||false|false&#8221; body_font_size_tablet=&#8221;12px&#8221; body_font_size_phone=&#8221;10px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_dmb_breadcrumbs]Anyone can host a fundraiser to benefit the ECD Global Alliance. We do ask that you contact the organization [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":4223,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<h1><img class=\"alignright size-medium wp-image-4853\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/10\/IMG_3695-300x225.jpg\" alt=\"\" width=\"300\" height=\"225\">Current Matching Fundraiser by the ECD Global Alliance<\/h1>\r\nAs we reflect on the trials and triumphs of our community members, we can\u2019t help but remember the supporters that come through for those fighting every single day.\u00a0 Being a donor is not just about supporting a loved one you are fighting for, but also the future of all families faced with Erdheim-Chester Disease.\u00a0 Your gifts make a big difference in the lives of hundreds of families worldwide.\r\n<a href=\"https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance\/\" target=\"_blank\" role=\"button\" style=\"background:rgb(47, 146, 167);padding:10px;margin:10px 0px;text-align:center;text-decoration:none;font-size:12pt;color:rgb(255, 255, 255);font-family:Tahoma, Geneva, sans-serif;display:inline-block;\" rel=\"noopener\">Donate Now!<\/a>\r\n\r\nWith you by our side, we are optimistic about the future for ECD patients like Noah!\r\n\r\nhttps:\/\/www.erdheim-chester.org\/news\/noah-finds-courage-purpose\/\r\n\r\nLearn more about the families we serve here:\u00a0<a title=\"Voices of ECD\" href=\"https:\/\/www.erdheim-chester.org\/news-printed-stories\/\">Voices of ECD<\/a>\r\n<h3 class=\"title style-scope ytd-video-primary-info-renderer\">\u00a0<\/h3>\r\nAnyone can host a fundraiser to benefit the ECD Global Alliance. We do ask that you contact the organization during the earliest planning stages so that we might help in whatever way we can and ensure all requirements of fundraisers are met. \u00a0To help in knowing what to consider when planning a fundraiser, we ask that you look at the <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/10\/ECD_Global_Alliance_fundraising_policy_2019.pdf\">ECDGA Fundraising Policy<\/a>\u00a0found in the policy section below. \u00a0Additional resources can be found on the <a href=\"https:\/\/www.erdheim-chester.org\/resources\/\" target=\"_blank\" rel=\"noopener noreferrer\">resources<\/a> page.\r\n\r\n[accordion autoclose=false clicktoclose=true tag=h4]\r\n\r\n[accordion-item title=\"FUNdraising Ideas\"]\r\n\r\nIdeas for fundraisers are limited only by imagination.\u00a0 Below are some creative ways to raise funds for your community.\u00a0 See the resource menu below for helpful website sources to get you started!\r\n<table style=\"width: 100%; height: 235px;\" width=\"100%\" cellpadding=\"10\">\r\n<tbody>\r\n<tr style=\"height: 70px;\">\r\n<td style=\"height: 70px;\" width=\"240\">Year-End personal letter campaign - see resources below<\/td>\r\n<td style=\"height: 70px;\" width=\"240\">Athletic events such as a walk, run, triathlon, bike ride, golf tournament, etc.<\/td>\r\n<td style=\"height: 70px;\" width=\"239\">Motorcycle ride event<\/td>\r\n<\/tr>\r\n<tr style=\"height: 47px;\">\r\n<td style=\"height: 47px;\" width=\"240\">Wine & cheese gathering<\/td>\r\n<td style=\"height: 47px;\" width=\"240\">A concert, dance, or entertainment, etc.<\/td>\r\n<td style=\"height: 47px;\" width=\"239\">Dinner or banquet<\/td>\r\n<\/tr>\r\n<tr style=\"height: 118px;\">\r\n<td style=\"height: 118px;\" width=\"240\">Personal solicitations from family and friends<\/td>\r\n<td style=\"height: 118px;\" width=\"240\">Proceeds from the sale of products such as cards, books, baked goods, handmade items, community donated items, etc.<\/td>\r\n<td style=\"height: 118px;\" width=\"239\">Silent or live auctions<\/td>\r\n<\/tr>\r\n<\/tbody>\r\n<\/table>\r\n[\/accordion-item][accordion-item title=\"Resources\"]<a href=\"https:\/\/www.erdheim-chester.org\/DataFiles\/PoliciesAndForms\/ECD_Global_Alliance_fundraising_policy_2011_1_1.pdf\">\r\n<\/a>\r\n<table cellspacing=\"5\" cellpadding=\"6\">\r\n<tbody>\r\n<tr>\r\n<td width=\"243\"><strong>Resource link<\/strong><\/td>\r\n<td width=\"528\"><strong>Resources description<\/strong><\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/01\/2017-Fun-Run-How-To-Guide_Final.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">How-To Guide for Hosting a Fun Run<\/a><\/td>\r\n<td width=\"528\">This guide was created by the ECDGA to provide step-by-step instructions to guide someone who has never hosted a fun run before.\u00a0 However, it is adaptable for any type of fundraiser planning.<\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/10\/2019-General-Fact-Flyer-FINAL.pdf\">General Fact Flyer<\/a><\/td>\r\n<td width=\"524\">This overview of ECD can help provide the facts about the disease to build your campaign or to pass along for awareness.<\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/11\/2017-campaign-letter-new-request.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">Year-End Giving Letter Template<\/a><\/td>\r\n<td width=\"524\">During the\u00a0holiday season or any time of year, we encourage members to reach out to their family, friends, and community to consider the ECDGA for their year-end giving. \u00a0Use this template to help write a personal letter to your loved ones or to give you ideas to start your own.<\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"https:\/\/www.youcaring.com\/blog\/2018\/build-fundraising-team\" target=\"_blank\" rel=\"noopener noreferrer\">How to Build a Winning Fundraising Team<\/a><\/td>\r\n<td width=\"528\">Don\u2019t do it alone!\u00a0 Lighten your load by recruiting close friends and family to take a role in the planning.<\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"https:\/\/www.youcaring.com\/blog\/2016\/how-to-start-a-facebook-page-for-your-fundraiser\" target=\"_blank\" rel=\"noopener noreferrer\">Facebook Fundraising 101<\/a><\/td>\r\n<td width=\"528\">Learn how to navigate Facebook for fundraising.\u00a0 Social pages can be a great tool for getting the message out about your cause.<\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"http:\/\/www.thefundraisingauthority.com\/fundraising-basics\/fundraising-event\/\" target=\"_blank\" rel=\"noopener noreferrer\">10 Steps to a Successful Fundraising Event<\/a><\/td>\r\n<td width=\"528\">These basic steps to fundraising may help you see the big picture and focus on what a successful fundraiser may involve.<\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"https:\/\/fundraisingcoach.com\/free-articles\/do-it-yourself-fundraising\/\" target=\"_blank\" rel=\"noopener noreferrer\">How to Ask for Money<\/a><\/td>\r\n<td width=\"528\">Let\u2019s face it, no one likes to ask for money.\u00a0 But this is often all it takes!\u00a0 When you have passion for your cause, it will show to your contributors.<\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"https:\/\/www.formstack.com\/templates\/nonprofit\" target=\"_blank\" rel=\"noopener noreferrer\">Templates for your Event<\/a><\/td>\r\n<td width=\"528\">Using online templates helps reduce the time spent organizing documents necessary to promote and execute your event.<\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"https:\/\/blog.fundly.com\/small-group-fundraising-ideas\/\" target=\"_blank\" rel=\"noopener noreferrer\">Fundly - Fundraising for small groups<\/a><\/td>\r\n<td width=\"528\">This awesome website provides many fundraising ideas, which are all categorized by Top Picks, Group Type, etc. It also provides success stories, the ability to launch a fundraiser with a step-by-step guide, and tons of other resources.<\/td>\r\n<\/tr>\r\n<tr>\r\n<td width=\"243\"><a href=\"https:\/\/www.pinterest.com\/search\/pins\/?rs=ac&len=2&q=fundraising%20ideas&eq=fundraising&etslf=10263&term_meta[]=fundraising%7Cautocomplete%7Cundefined&term_meta[]=ideas%7Cautocomplete%7Cundefined\" target=\"_blank\" rel=\"noopener noreferrer\">Pinterest - Fundraising Pins<\/a><\/td>\r\n<td width=\"528\">\u00a0Pinterest rocks for fundraising ideas.\u00a0 Anything from huge events to easy quick fundraisers with little to no effort!<\/td>\r\n<\/tr>\r\n<\/tbody>\r\n<\/table>\r\n[\/accordion-item][accordion-item title=\"ECDGA Fundraising Policies & Forms\"]\r\n\r\nGetting started on the planning for your event?\u00a0 Please let us know the details by submitting our Fundraising Policy form below.\u00a0 This will help us learn about your activity to help you advertise and list your event in our Community Fundraiser section.\u00a0 If you need more assistance with your event from our team, please send your inquiry and we will do our best to assist you.\u00a0 We want you to have a successful fundraising experience!\r\n\r\n<a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/08\/ECD_Global_Alliance_fundraising_policy_2018.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">ECDGA Fundraising Policy<\/a>\r\nList of items that must be considered when doing a fundraiser, along with a form to use to register a fundraiser with the ECD Global Alliance Board of Directors.\r\n\r\n<a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/08\/ECD_Photo_Release_Form-2018.pdf\">Photo Release Form<\/a>\r\nA form that must be signed by anyone identifiable in a picture to be used in an ECD Global Alliance product, (i.e., website, social media, printed news, etc.).\u00a0 Please submit this with photos from your event that you would like us to use for promotion and inspiring community news.\r\n\r\nLogo Usage\r\nThe ECDGA does not currently have a copyright of our logo to prevent limitations on awareness activities.\u00a0 However, we ask that you use our logo responsibly and professionally to uphold the reputation of our community.\u00a0 Please contact us for the logo file formats needed, we are happy to share!\r\n\r\n[\/accordion-item]\r\n\r\n[\/accordion]\r\n<h2>\u00a0<\/h2>\r\n<h2>Community Fundraisers<\/h2>\r\nThe ECDGA is extremely grateful to all members that have dedicated their time, energy, and resources to raising awareness of ECD and funds\u00a0for the organization.\u00a0 <strong>Get your network interested in fundraising for your support group by sharing this <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/08\/2018-Fundraising-Infographic.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">Fundraising Infographic<\/a>!<\/strong>\r\n<h3><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/5-K-Fundraiser-cover-2021.png\"><img class=\"size-medium wp-image-19635 alignleft\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/5-K-Fundraiser-cover-2021-300x157.png\" alt=\"\" width=\"300\" height=\"157\"><\/a><\/h3>\r\n<strong>\r\nVirtual ECD Walk\/Run 2021\r\n<\/strong>Thank you to Alexa Lofaro for hosting and the 100+ community members that participated in this virtual walk\/run event! This was a volunteer-led event created to raise research funds for the advancement of ECD patient care and treatments. Approximately $25,000 was raised!\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n<img class=\"alignleft size-thumbnail wp-image-4852\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/10\/IMG_3692-150x150.jpg\" alt=\"\" width=\"150\" height=\"150\">\r\n\r\n<strong>\r\nWaisted Paint Fundraiser<\/strong>\r\nThe ECDGA held a small, local fundraiser in Louisiana. The event was a painting party where 44 attendees selected one of three pictures to paint.\u00a0 All supplies and painting help was provided for a fee of $30.\u00a0 There were items donated for a silent auction and door prizes.\u00a0 The folks who participated indicated they had a good time.\u00a0 This modest fundraising effort brought in around $1,000 in donations. The ultimate goal was to show ECDGA members how easy it is to do a fundraiser.\u00a0 We are seeing evidence of this from the questions being asked by some of the ECDGA members.\u00a0\r\n\r\n\u00a0\r\n\r\n<strong><a href=\"https:\/\/www.erdheim-chester.org\/host-fundraisers\/chowdhury-online-fundraiser\/\" rel=\"attachment wp-att-4144\"><img class=\"alignleft size-thumbnail wp-image-4144\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/08\/Chowdhury-Online-Fundraiser-150x100.jpeg\" alt=\"\" width=\"150\" height=\"100\"><\/a><\/strong>\r\n\r\n<strong>\r\nOnline Fundraiser with Your ECD Story <\/strong>\r\nNew York ECD patient, Mohammad Chowdhury, reached out to his network by sharing his story about living with ECD and the work of the ECDGA.\u00a0 He was able to reach his goal of $5,000 in one month!\u00a0 He was pleased with the results, \"When I decided to let my friends and family know about my ECD diagnosis, I also decided to use the opportunity to ask them to support my fundraising for ECDGA.\u00a0 I have received very strong responses from the people I contacted, and I am very glad that I used the opportunity for this noble cause.\" [Mohammad used gofundme.com to see his fundraising through.\u00a0 The ECDGA also has personal page setup options on our website.\u00a0 It's easy to add your story and get your page published and shared with your friends! Please contact us for help!]\r\n\r\n\u00a0\r\n\r\n<strong><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2014\/11\/Iris-Vagnini-e1516640578131.jpg\" rel=\"attachment wp-att-3340\"><img class=\"alignleft size-thumbnail wp-image-3340\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2014\/11\/Iris-Vagnini-150x150.jpg\" alt=\"Iris Vagnini\" width=\"150\" height=\"150\"><\/a><\/strong>\r\n\r\n<strong>\r\n2018 Desktop Calendar Fundraiser<\/strong>\r\nA Florida fundraiser was held in December 2017 by patient Iris Vagnini.\u00a0 She used her creative hobby of taking exceptional photos in her garden to create a desk calendar to raise funds for the ECDGA.\u00a0\u00a0The advertisement and sales of this product created an opportunity to raise awareness of ECD and earned nearly $2,000 for the organization!\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n<strong>Gabby's Grill Restaurant, Prescott Valley, AZ\u00a0<a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2014\/11\/Adler-Fundraiser.jpg\" rel=\"attachment wp-att-3155\"><img class=\"size-thumbnail wp-image-3155 alignleft\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2014\/11\/Adler-Fundraiser-121x150.jpg\" alt=\"Adler Fundraiser\" width=\"121\" height=\"150\">\r\n<\/a><\/strong>This Arizona restaurant fundraiser was a success, raising over $2,000 while spreading awareness of Erdheim-Chester disease! The Gabby\u2019s Grill restaurant owners, Jim and Kelley Cabral, donated 25 percent of all receipts contributed during this one-night event. The honorary patient and her husband, Leslie and Rich Adler, also found support in their community with the Daily Courier & Tribune and KQNA radio. They were amply supported by their friends and family as well!\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n<strong><img class=\"alignleft size-thumbnail wp-image-1932\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2014\/11\/Culver-Fundraiser-116x150.jpg\" alt=\"Culver Fundraiser\" width=\"116\" height=\"150\">\r\nDine & Donate at Culver's Restaurant\r\n<\/strong>Culver's of Highland, Indiana held a fundraiser for ECD on Rare Disease Day 2016. \u00a0Interested patrons dined on this day during the designated time. By grabbing an event flyer at the restaurant from ECD patient Ashley, 10% of the cost of their meal went to\u00a0fund ECD research and patient support through the ECD\u00a0Global Alliance. \u00a0Many locals came out to show their support, increasing awareness of ECD and donating to our mission.\r\n\r\n<strong>A second Dine & Donate at Culver's Restaurant<\/strong> fundraiser was held on August 6, 2016. \u00a0More funds were donated to the ECDGA and awareness was raised among the community members that joined the ECD patient, Ashley M., for a bite to eat!\r\n\r\n\u00a0\r\n\r\n<strong>Be Brave with Hank<img class=\"size-thumbnail wp-image-1658 alignleft\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2015\/10\/Frazzini-Hank-150x100.jpg\" alt=\"Frazzini, Hank\" width=\"150\" height=\"100\"><\/strong><a href=\"https:\/\/www.facebook.com\/events\/213300669020921\/?ref=1&action_history=%5B%7B%22surface%22%3A%22permalink%22%2C%22mechanism%22%3A%22surface%22%2C%22extra_data%22%3A%5B%5D%7D%5D\"><strong>\r\n<\/strong><\/a>Running Vines Winery in Chesterton, IN hosted a fundraiser and awareness event in honor of ECD patient, Hank during Rare Disease Day weekend. They provided live music, food, and ECD awareness shirts and hoodies for purchase. \u00a0After advertising in the community and online, they had a terrific turnout. \u00a0In addition, the winery donated a percentage of all the wine sales to the ECDGA in Hank's honor. \u00a0Much ECD awareness was raised in addition to donations that were awarded to the ECDGA!\r\n\r\n\u00a0\r\n\r\n<strong>Matching Gift Donation<img class=\"wp-image-1682 alignleft\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2014\/11\/Matching-Grant-Gift-244x300.png\" alt=\"Matching Grant Gift\" width=\"128\" height=\"158\"><\/strong>\r\nThis challenge was presented anonymously by one of our members who pledged to match, dollar for dollar, every donation made from October 27 to December 31, 2015, up to $25K. We are very excited to report that $90K was raised for the ECD community!!\u00a0 The $25k matching donation helped raise the total to $115K!! \u00a0This allowed the organization to fund 3 ECD research grants in 2015! \u00a0Thank you for contributing to this success by sending in your donations and inviting friends and family to help!\u00a0 By working together we have proved that a small group of dedicated people can make big things happen.\u00a0 Your efforts also helped raise awareness of ECD in the process \u2013 great job!\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n<img class=\"alignleft size-thumbnail wp-image-1387\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2014\/11\/Rodgers-150x97.jpg\" alt=\"ECD Hope Park to Park 5k\" width=\"150\" height=\"97\"><strong>\r\nECD Angel of Hope 5K Run\r\n<\/strong>Bob and Phyllis Rodgers\u00a0hosted the ECD Angel of Hope Park-to-Park 5K Fun Run on Sept. 19 during ECD Awareness Week to raise funds and awareness of the rare disease. \u00a0They managed to raise awareness across the nation and $5,248 for the ECDGA!\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n<strong>Gurnal's Courage Quest<\/strong><strong><img class=\"size-thumbnail wp-image-1390 alignleft\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2014\/11\/Gurnal-Courage-Quest-100x150.jpg\" alt=\"Gurnal's Courage Quest\" width=\"100\" height=\"150\">\r\n<\/strong>This fundraiser was held during ECD Awareness Week. \u00a0The benefit was hosted by friends and family at a local restaurant. \u00a0Tickets to the event, which were $25, included 20 raffle tickets, a 50\/50 raffle ticket and there was also a silent auction for donated items. \u00a0This event raised over $10,000 for the ECDGA!\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n<strong>\r\nUNO's Doughraiser<a href=\"http:\/\/unodoughraisers.com\/\"><img class=\"alignleft size-thumbnail wp-image-1392\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2014\/11\/UNOs-doughraiser-84x150.jpg\" alt=\"UNOs doughraiser\" width=\"84\" height=\"150\"><\/a>\r\n<\/strong>Some businesses offer a way for non-profit's like the ECDGA to benefit from a percentage of their sales for a certain time frame. \u00a0Ask around in your local community or find online franchises willing to participate. \u00a0It's a great way for a business to get involved in their community and will help raise awareness of ECD. This event was created by Julie Jones for #GivingTuesday 2015. \u00a0She also set up a 50\/50 raffle at the door of the pizzeria and delivered lunches to her work which also counted toward UNO's gift. \u00a0Approximately $1,000 was raised and more people learned about ECD!\r\nClick the flyer to learn more.","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-98","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/pages\/98","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=98"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/pages\/98\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media\/4223"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=98"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}