{"id":52831,"date":"2015-07-04T15:49:08","date_gmt":"2015-07-04T20:49:08","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/historias-de-pacientes\/"},"modified":"2025-09-27T09:51:49","modified_gmt":"2025-09-27T14:51:49","slug":"historias-de-pacientes","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/es\/historias-de-pacientes\/","title":{"rendered":"Historias de pacientes"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00bb1&#8243; _builder_version=\u00bb4.27.4&#8243; _module_preset=\u00bbdefault\u00bb background_image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png\u00bb background_position=\u00bbbottom_center\u00bb background_vertical_offset=\u00bb20%\u00bb custom_padding=\u00bb0px||0px||true|false\u00bb background_last_edited=\u00bbon|desktop\u00bb background_position_tablet=\u00bbbottom_right\u00bb background_position_phone=\u00bbcenter_right\u00bb global_module=\u00bb28071&#8243; global_colors_info=\u00bb{}\u00bb][et_pb_row _builder_version=\u00bb4.27.4&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.27.4&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_dmb_breadcrumbs _builder_version=\u00bb4.27.4&#8243; _module_preset=\u00bbdefault\u00bb body_text_color=\u00bb#FFFFFF\u00bb body_font_size=\u00bb12px\u00bb link_text_color=\u00bb#35A4BB\u00bb custom_margin=\u00bb||5px||false|false\u00bb custom_padding=\u00bb||0px||false|false\u00bb body_font_size_tablet=\u00bb12px\u00bb body_font_size_phone=\u00bb10px\u00bb body_font_size_last_edited=\u00bbon|desktop\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_dmb_breadcrumbs][et_pb_heading title=\u00bb@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@\u00bb _builder_version=\u00bb4.27.4&#8243; _dynamic_attributes=\u00bbtitle\u00bb _module_preset=\u00bbdefault\u00bb title_font=\u00bb&#8211;et_global_heading_font|300|||||||\u00bb title_text_color=\u00bb#FFFFFF\u00bb title_font_size=\u00bb40px\u00bb custom_margin=\u00bb||3px|||\u00bb title_font_size_tablet=\u00bb\u00bb title_font_size_phone=\u00bb25px\u00bb title_font_size_last_edited=\u00bbon|phone\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_heading][et_pb_button button_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/contacta-con-nosotros\/\u00bb button_text=\u00bbContacta con nosotros\u00bb _builder_version=\u00bb4.27.4&#8243; _module_preset=\u00bbdefault\u00bb custom_button=\u00bbon\u00bb button_text_size=\u00bb15px\u00bb button_text_color=\u00bb#C02E43&#8243; button_bg_color=\u00bbrgba(10,22,64,0.53)\u00bb button_border_width=\u00bb0px\u00bb button_icon=\u00bb&#xe60f;||divi||400&#8243; button_icon_color=\u00bb#C02E43&#8243; button_icon_placement=\u00bbleft\u00bb button_on_hover=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb filter_opacity__hover_enabled=\u00bbon|hover\u00bb filter_opacity__hover=\u00bb70%\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00bb1&#8243; _builder_version=\u00bb4.27.4&#8243; _module_preset=\u00bbdefault\u00bb custom_padding=\u00bb||3px|||\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_row column_structure=\u00bb1_2,1_4,1_4&#8243; use_custom_gutter=\u00bbon\u00bb gutter_width=\u00bb2&#8243; _builder_version=\u00bb4.27.4&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb1_2&#8243; _builder_version=\u00bb4.27.4&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_text _builder_version=\u00bb4.27.4&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n<h1>Voces de ECD<\/h1>\n<h3>Escritos sobre los Miembros y la Organizaci\u00f3n<\/h3>\n<p>Los miembros de la Alianza Mundial ECD se dedican a ayudar a concienciar sobre Erdheim-Chester la enfermedad. Los siguientes enlaces proporcionan acceso a art\u00edculos de noticias y v\u00eddeos sobre los pacientes de ECD y sus familias. Si deseas compartir una historia impresa o televisada sobre ECD, ponte en contacto con nosotros sobre la publicaci\u00f3n para que la incluyamos aqu\u00ed.  <\/p>\n<p>Por favor, ten en cuenta que se agradecen todos los art\u00edculos e informaci\u00f3n compartidos sobre ECD en los siguientes sitios y dentro de los art\u00edculos asociados. Sin embargo, a veces algunos de los hechos relativos a ECD pueden ser malinterpretados. 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