{"id":326,"date":"2015-01-19T17:12:54","date_gmt":"2015-01-19T17:12:54","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?page_id=326"},"modified":"2026-02-13T13:12:11","modified_gmt":"2026-02-13T19:12:11","slug":"social-connections","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/es\/social-connections\/","title":{"rendered":"Connect With Others"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”0px||0px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_dmb_breadcrumbs _builder_version=”4.27.4″ _module_preset=”default” body_text_color=”#FFFFFF” body_font_size=”12px” link_text_color=”#35A4BB” custom_margin=”||5px||false|false” custom_padding=”||0px||false|false” body_font_size_tablet=”12px” body_font_size_phone=”10px” body_font_size_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_dmb_breadcrumbs][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”\/contact-us\/” button_text=”Contact Us” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row column_structure=”2_3,1_3″ admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”2_3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”]<\/p>\n

Connect Through Social Media<\/h2>\n

[\/et_pb_text][et_pb_blurb title=”Instagram” url=”https:\/\/www.instagram.com\/erdheim_chester\/?hl=en” url_new_window=”on” use_icon=”on” font_icon=”||divi||400″ icon_color=”#C02E43″ icon_placement=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

Instagram\u00a0is a social networking app made for sharing photos and videos from a smartphone. Similar to Facebook or Twitter, everyone who creates an\u00a0Instagram\u00a0account has a profile and a news feed. When you post a photo or video on\u00a0Instagram, it will be displayed on your profile.
ECDGA handle: @erdheim_chester \u00a0 Hashtag suggestions: #ECDAwareness #ErdheimChester #ErdheimChesterDisease<\/p>\n

[\/et_pb_blurb][et_pb_blurb title=” Chat Sessions” url=”https:\/\/www.erdheim-chester.org\/community-chats\/” url_new_window=”on” use_icon=”on” font_icon=”||fa||900″ icon_color=”#C02E43″ icon_placement=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

Members join the chat session that suits their role to discuss various topics. \u00a0These online sessions are a great way to get to know your fellow ECD families, ask questions, share your story, and find companionship.<\/p>\n

[\/et_pb_blurb][et_pb_blurb title=” LinkedIn” url=”https:\/\/www.linkedin.com\/company\/erdheim-chester-disease-global-alliance-npo” url_new_window=”on” use_icon=”on” font_icon=”||divi||400″ icon_color=”#C02E43″ icon_placement=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

This account is a source for medical professionals, rare disease advocates, and other stakeholders to stay connected on medical news related to ECD. To follow the ECDGA page, you must be a member of LinkedIn.<\/p>\n

[\/et_pb_blurb][et_pb_blurb title=” ECDGA Public Facebook Page” url=”https:\/\/www.facebook.com\/ErdheimChesterDisease” url_new_window=”on” use_icon=”on” font_icon=”||divi||400″ icon_color=”#C02E43″ icon_placement=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

This is a public page, accessible by anyone. The ECDGA makes posts and anyone can respond or react to those posts.\u00a0 The ECDGA publishes topics about things happening with the organization or organization initiatives.<\/p>\n

[\/et_pb_blurb][et_pb_blurb title=” ECDGA Private Facebook Group” url=”https:\/\/www.facebook.com\/groups\/784637751599933″ url_new_window=”on” use_icon=”on” font_icon=”||divi||400″ icon_color=”#C02E43″ icon_placement=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

To prevent solicitors, this is a closed group for patients, family, and close friends. Individuals must be approved by the administration\u00a0to become a member of this group who will verify that they know a registered member of the ECDGA. Once a member, you can invite others to join as members of the group.\u00a0 The purpose of this group is to allow sharing among those affected by ECD.<\/p>\n

[\/et_pb_blurb][et_pb_blurb title=” Facebook Page (Spanish)” url=”https:\/\/www.facebook.com\/groups\/725082820904214\/” url_new_window=”on” use_icon=”on” font_icon=”||divi||400″ icon_color=”#C02E43″ icon_placement=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

This is a closed group, much like the private Facebook group described above, but specifically for Spanish speaking members.<\/p>\n

[\/et_pb_blurb][et_pb_blurb title=” Facebook Page (French)” url=”https:\/\/www.facebook.com\/groups\/276715579179146\/” url_new_window=”on” use_icon=”on” font_icon=”||divi||400″ icon_color=”#C02E43″ icon_placement=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

This is a public group, but a Facebook user must still join before posting. However, the public can see posts without joining.\u00a0 This\u00a0group is not regulated or monitored directly by the ECDGA.<\/p>\n

[\/et_pb_blurb][et_pb_blurb title=” YouTube” url=”https:\/\/www.youtube.com\/@ECDGA\/playlists” url_new_window=”on” use_icon=”on” font_icon=”||divi||400″ icon_color=”#C02E43″ icon_placement=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

Find videos created by the ECDGA and others on this channel. \u00a0Be sure to share, comment on, or like your favorites!<\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2015\/01\/shutterstock_112481411.png” title_text=”shutterstock_112481411″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

[et_pb_dmb_breadcrumbs _builder_version=”4.27.4″ _module_preset=”default” body_text_color=”#FFFFFF” body_font_size=”12px” link_text_color=”#35A4BB” custom_margin=”||5px||false|false” custom_padding=”||0px||false|false” body_font_size_tablet=”12px” body_font_size_phone=”10px” body_font_size_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_dmb_breadcrumbs]Connect Through Social MediaInstagram\u00a0is a social networking app made for sharing photos and videos from a smartphone. Similar to […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"

\"\"Connect Through Social Media<\/h2>\r\n