{"id":24028,"date":"2014-11-19T08:51:39","date_gmt":"2014-11-19T14:51:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/inicio\/"},"modified":"2026-06-15T16:15:15","modified_gmt":"2026-06-15T21:15:15","slug":"inicio","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/es\/","title":{"rendered":"Inicio"},"content":{"rendered":"

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Del 1 al 30 de junio de 2026<\/strong><\/p>\n

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\u00a1Marca la diferencia!<\/p>\n

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Reunirse como comunidad.<\/p>\n

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ECD Alianza Global – \u00a1Prestando apoyo!<\/p>\n

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\u00danete al movimiento y consigue avances.<\/p>\n

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Inf\u00f3rmate sobre los Centros de Atenci\u00f3n<\/p>\n

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Eventos<\/span><\/h2>\n

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Noticias<\/span><\/h2>\n

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make_equal=\u00bbon\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb width=\u00bb88%\u00bb custom_margin=\u00bb-180px||||false|false\u00bb custom_margin_tablet=\u00bb-120px||||false|false\u00bb custom_margin_phone=\u00bb-120px||||false|false\u00bb custom_margin_last_edited=\u00bbon|phone\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb1_3″ module_class=\u00bbblurb-grids\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_enable_color=\u00bboff\u00bb custom_padding=\u00bb||20px||false|false\u00bb border_radii=\u00bbon|6px|6px|6px|6px\u00bb border_width_all=\u00bb6px\u00bb border_color_all=\u00bb#FFFFFF\u00bb box_shadow_style=\u00bbpreset3″ global_colors_info=\u00bb{}\u00bb][et_pb_blurb title=\u00bbInformaci\u00f3n al paciente\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Patient-Information-Erdheim-Chester-Global-Alliance.jpg\u00bb content_max_width=\u00bb100%\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_level=\u00bbh3″ header_line_height=\u00bb2em\u00bb background_color=\u00bb#35A4BB\u00bb background_enable_image=\u00bboff\u00bb text_orientation=\u00bbcenter\u00bb background_layout=\u00bbdark\u00bb custom_margin=\u00bb||0px||false|false\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbECD Visi\u00f3n general\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/acerca-de-ecd\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/acerca-de-ecd\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbCentros de atenci\u00f3n\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/centros-de-atencion\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-30.png\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/centros-de-atencion\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbRecursos para pacientes\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-29.png\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbSolicitar folleto\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/solicitar-un-folleto\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-32.png\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.6″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/solicitar-un-folleto\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_color=\u00bb#FFFFFF\u00bb min_height=\u00bb245px\u00bb custom_padding=\u00bb20px|10px||10px|false|true\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Nuestro objetivo es capacitar a los afectados por Erdheim-Chester la enfermedad con conocimientos y apoyo. Aqu\u00ed encontrar\u00e1s informaci\u00f3n fiable sobre ECD, opciones de tratamiento, manejo de los s\u00edntomas y conexi\u00f3n con especialistas. Explora los recursos adaptados para ayudar a pacientes y familiares a recorrer su camino con confianza y esperanza. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=\u00bb1_3″ module_class=\u00bbblurb-grids\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_enable_color=\u00bboff\u00bb custom_padding=\u00bb||20px||false|false\u00bb border_radii=\u00bbon|6px|6px|6px|6px\u00bb border_width_all=\u00bb6px\u00bb border_color_all=\u00bb#FFFFFF\u00bb box_shadow_style=\u00bbpreset3″ global_colors_info=\u00bb{}\u00bb][et_pb_blurb title=\u00bbInformaci\u00f3n sobre la familia\/cuidador\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/apoyo-al-cuidador\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_pexels-kampus-7551607-1.jpg\u00bb content_max_width=\u00bb100%\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_level=\u00bbh3″ header_line_height=\u00bb2em\u00bb background_color=\u00bb#35A4BB\u00bb background_enable_image=\u00bboff\u00bb text_orientation=\u00bbcenter\u00bb background_layout=\u00bbdark\u00bb custom_margin=\u00bb||0px||false|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/apoyo-al-cuidador\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbECD Visi\u00f3n general\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/acerca-de-ecd\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/acerca-de-ecd\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbRecursos para familias y cuidadores\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos-para-cuidadores\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-25-1.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos-para-cuidadores\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbConexi\u00f3n con cuidadores\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/contacto-con-el-cuidador\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-6.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/contacto-con-el-cuidador\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbSolicitar folleto\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/solicitar-un-folleto\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-32.png\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/solicitar-un-folleto\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_color=\u00bb#FFFFFF\u00bb min_height=\u00bb245px\u00bb custom_padding=\u00bb20px|10px||10px|false|true\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Cuidar a alguien con Erdheim-Chester enfermedad puede ser un reto, pero no est\u00e1s solo. Nuestros recursos est\u00e1n dise\u00f1ados para proporcionar orientaci\u00f3n, apoyo emocional y herramientas pr\u00e1cticas que ayuden a los cuidadores a recorrer este camino. Inf\u00f3rmate en ECD, conecta con redes de apoyo y descubre estrategias para cuidar de tu ser querido al tiempo que cuidas de ti mismo. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=\u00bb1_3″ module_class=\u00bbblurb-grids\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_enable_color=\u00bboff\u00bb custom_padding=\u00bb||20px||false|false\u00bb border_radii=\u00bbon|6px|6px|6px|6px\u00bb border_width_all=\u00bb6px\u00bb border_color_all=\u00bb#FFFFFF\u00bb box_shadow_style=\u00bbpreset3″ global_colors_info=\u00bb{}\u00bb][et_pb_blurb title=\u00bbProfesionales m\u00e9dicos\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos-medicos\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Medical-Professionals-Erdheim-Chester-Disease-Global-Alliance.jpg\u00bb content_max_width=\u00bb100%\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_level=\u00bbh3″ header_line_height=\u00bb2em\u00bb background_color=\u00bb#35A4BB\u00bb background_enable_image=\u00bboff\u00bb text_orientation=\u00bbcenter\u00bb background_layout=\u00bbdark\u00bb custom_margin=\u00bb||0px||false|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos-medicos\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbECD Visi\u00f3n general\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/acerca-de-ecd\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/acerca-de-ecd\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbCentros de atenci\u00f3n\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/centros-de-atencion\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-30.png\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/centros-de-atencion\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbRecursos m\u00e9dicos\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos-medicos\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-2.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos-medicos\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbEstudios y ensayos\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/estudios-y-ensayos\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/estudios-y-ensayos\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_color=\u00bb#FFFFFF\u00bb min_height=\u00bb245px\u00bb custom_padding=\u00bb20px|10px||10px|false|true\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Encuentra herramientas e informaci\u00f3n para apoyar tu trabajo con los pacientes de ECD. Accede a directrices cl\u00ednicas actualizadas, informaci\u00f3n sobre especialidades m\u00e9dicas y oportunidades de financiaci\u00f3n de la investigaci\u00f3n. Nuestros recursos est\u00e1n pensados para capacitar a los profesionales sanitarios para que ofrezcan la mejor atenci\u00f3n posible y mejores resultados a quienes viven con Erdheim-Chester enfermedad. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00bb1_3,1_3,1_3″ use_custom_gutter=\u00bbon\u00bb gutter_width=\u00bb2″ make_equal=\u00bbon\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb width=\u00bb88%\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb1_3″ module_class=\u00bbblurb-grids\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_enable_color=\u00bboff\u00bb custom_padding=\u00bb||20px||false|false\u00bb border_radii=\u00bbon|6px|6px|6px|6px\u00bb border_width_all=\u00bb6px\u00bb border_color_all=\u00bb#FFFFFF\u00bb box_shadow_style=\u00bbpreset3″ global_colors_info=\u00bb{}\u00bb][et_pb_blurb title=\u00bbFinanciaci\u00f3n e investigaci\u00f3n\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/apoyo-al-cuidador\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Grant-Research-Erdheim-Chester-Disease-Global-Alliance.jpg\u00bb content_max_width=\u00bb100%\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_level=\u00bbh3″ header_line_height=\u00bb2em\u00bb background_color=\u00bb#35A4BB\u00bb background_enable_image=\u00bboff\u00bb text_orientation=\u00bbcenter\u00bb background_layout=\u00bbdark\u00bb custom_margin=\u00bb||0px||false|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/apoyo-al-cuidador\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbFinanciaci\u00f3n de la investigaci\u00f3n\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/financiacion-e-investigacion\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/How-to-Fundraise-1.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/financiacion-e-investigacion\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbSubvenciones anteriores concedidas\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/financiacion-e-investigacion\/#past-awards\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb 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custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/estudios-y-ensayos\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbRegistros y encuestas\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/registros-y-encuestas\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-22-1.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/registros-y-encuestas\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_color=\u00bb#FFFFFF\u00bb min_height=\u00bb346px\u00bb custom_padding=\u00bb20px|10px||10px|false|true\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Descubre las oportunidades de financiaci\u00f3n para apoyar la investigaci\u00f3n y las iniciativas para saber m\u00e1s sobre Erdheim-Chester enfermedades para mejorar los resultados de pacientes y cuidadores. Explora los estudios cl\u00ednicos abiertos para pacientes de ECD. <\/p>\n

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Juntos, estamos teniendo un impacto real en la lucha contra la Erdheim-Chester las enfermedades. Explora los logros conseguidos gracias a la dedicaci\u00f3n y generosidad de nuestra comunidad, desde el avance de la investigaci\u00f3n y la mejora de la atenci\u00f3n a los pacientes hasta el fomento de las conexiones y el apoyo globales. Comprueba c\u00f3mo tu implicaci\u00f3n impulsa cambios significativos e inspira esperanza a los afectados por ECD. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=\u00bb1_3″ module_class=\u00bbblurb-grids\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_enable_color=\u00bboff\u00bb custom_padding=\u00bb||20px||false|false\u00bb border_radii=\u00bbon|6px|6px|6px|6px\u00bb border_width_all=\u00bb6px\u00bb border_color_all=\u00bb#FFFFFF\u00bb box_shadow_style=\u00bbpreset3″ global_colors_info=\u00bb{}\u00bb][et_pb_blurb title=\u00bbPremios\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos-medicos\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_AdobeStock_253395317.jpeg\u00bb content_max_width=\u00bb100%\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_level=\u00bbh3″ header_line_height=\u00bb2em\u00bb background_color=\u00bb#35A4BB\u00bb background_enable_image=\u00bboff\u00bb text_orientation=\u00bbcenter\u00bb background_layout=\u00bbdark\u00bb custom_margin=\u00bb||0px||false|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/recursos-medicos\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbOportunidades de subvenci\u00f3n\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/financiacion-e-investigacion\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-12.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/financiacion-e-investigacion\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbAyudas concedidas en el pasado\u00bb url=\u00bb@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ2MjQwIn19@\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-13.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _dynamic_attributes=\u00bburl,link_option_url\u00bb _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bb@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ2MjQwIn19@\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbNominar para un premio\u00bb url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/premios-comunitarios\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-14.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bbhttps:\/\/www.erdheim-chester.org\/es\/premios-comunitarios\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00bbPremios anteriores\u00bb url=\u00bb\/past-awards\/\u00bb image=\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-15.svg\u00bb image_icon_width=\u00bb50px\u00bb content_max_width=\u00bb100%\u00bb module_class=\u00bbsmall-blurb\u00bb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb header_font=\u00bb|300|||||||\u00bb header_font_size=\u00bb14px\u00bb background_color=\u00bb#F2F2F2″ image_icon_custom_margin=\u00bb||0px||false|false\u00bb image_icon_custom_padding=\u00bb||0px||false|false\u00bb text_orientation=\u00bbcenter\u00bb custom_padding=\u00bb20px||20px||true|false\u00bb link_option_url=\u00bb\/past-awards\/\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_blurb][et_pb_blurb _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_color=\u00bb#FFFFFF\u00bb min_height=\u00bb346px\u00bb height=\u00bb346px\u00bb custom_padding=\u00bb20px|10px||10px|false|true\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

La Alianza Global ECD lleva financiando Erdheim-Chester la investigaci\u00f3n de enfermedades desde que se le concedi\u00f3 por primera vez el estatus 501(c)3 en 2010 (con car\u00e1cter retroactivo desde 2009). La organizaci\u00f3n suele conceder anualmente una beca para j\u00f3venes investigadores por un importe de entre 50.000 y 60.000 d\u00f3lares. En la medida de lo posible, la organizaci\u00f3n tambi\u00e9n financia proyectos de mayor envergadura, como la creaci\u00f3n del Registro de Pacientes ECD, estudios de supervivencia y una investigaci\u00f3n sobre el origen de ECD. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00bb1″ _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb background_color=\u00bbrgba(10,22,64,0.9)\u00bb background_enable_image=\u00bboff\u00bb background_blend=\u00bbmultiply\u00bb custom_padding=\u00bb10px||10px||true|false\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_row _builder_version=\u00bb4.27.0″ _module_preset=\u00bbdefault\u00bb width=\u00bb88%\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb4_4″ _builder_version=\u00bb4.27.0″ _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_text _builder_version=\u00bb4.27.0″ _module_preset=\u00bbdefault\u00bb header_2_font=\u00bb|600|||||||\u00bb header_2_font_size=\u00bb50px\u00bb background_layout=\u00bbdark\u00bb custom_margin=\u00bb||10px||false|false\u00bb header_2_font_size_tablet=\u00bb50px\u00bb header_2_font_size_phone=\u00bb36px\u00bb header_2_font_size_last_edited=\u00bbon|phone\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Anuncios<\/span><\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=\u00bb4.27.4″ _module_preset=\u00bbdefault\u00bb text_font=\u00bb||||||||\u00bb background_layout=\u00bbdark\u00bb custom_margin=\u00bb||-23px||false|false\u00bb custom_padding=\u00bb25px||||false|false\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Una red de Centros de Atenci\u00f3n de ECD est\u00e1 disponible para ayudar a los pacientes a encontrar m\u00e9dicos expertos que confirmen el diagn\u00f3stico y proporcionen tratamientos y cuidados continuos. Estas instituciones se comprometen a contar con un equipo de especialistas para ofrecer la mejor atenci\u00f3n a los pacientes con ECD. Adem\u00e1s, hay ensayos\/estudios de ECD en curso que actualmente est\u00e1n aceptando pacientes con ECD. P\u00f3ngase en contacto con nuestro Navegador de Pacientes<\/a> para obtener m\u00e1s informaci\u00f3n. <\/p>\n

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Ponte en contacto<\/span><\/h2>\n

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