{"id":153,"date":"2014-11-25T11:52:37","date_gmt":"2014-11-25T11:52:37","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?page_id=153"},"modified":"2026-07-08T16:04:09","modified_gmt":"2026-07-08T21:04:09","slug":"boardstaff","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/es\/boardstaff\/","title":{"rendered":"Board\/Staff"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png&#8221; background_position=&#8221;bottom_center&#8221; background_vertical_offset=&#8221;20%&#8221; custom_padding=&#8221;15px||15px||true|false&#8221; background_last_edited=&#8221;on|desktop&#8221; background_position_tablet=&#8221;bottom_right&#8221; background_position_phone=&#8221;center_right&#8221; global_module=&#8221;28071&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;title&#8221; _module_preset=&#8221;default&#8221; title_font=&#8221;&#8211;et_global_heading_font|300|||||||&#8221; title_text_color=&#8221;#FFFFFF&#8221; title_font_size=&#8221;40px&#8221; custom_margin=&#8221;||3px|||&#8221; title_font_size_tablet=&#8221;&#8221; title_font_size_phone=&#8221;25px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_button button_url=&#8221;\/contact-us\/&#8221; button_text=&#8221;Contact Us&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;15px&#8221; button_text_color=&#8221;#C02E43&#8243; button_bg_color=&#8221;rgba(10,22,64,0.53)&#8221; button_border_width=&#8221;0px&#8221; button_icon=&#8221;&#xe60f;||divi||400&#8243; button_icon_color=&#8221;#C02E43&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; filter_opacity__hover_enabled=&#8221;on|hover&#8221; filter_opacity__hover=&#8221;70%&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>ECD Global Alliance Board of Directors<\/h2>\n<p>[\/et_pb_text][dpdfg_filtergrid custom_query=&#8221;advanced&#8221; multiple_cpt=&#8221;members&#8221; use_taxonomy_terms=&#8221;on&#8221; multiple_taxonomies=&#8221;member_categories&#8221; include_terms=&#8221;247&#8243; post_number=&#8221;100&#8243; order=&#8221;ASC&#8221; orderby=&#8221;meta_value&#8221; meta_key=&#8221;last_name&#8221; thumbnail_size=&#8221;dfg_full&#8221; use_overlay=&#8221;off&#8221; show_post_meta=&#8221;off&#8221; show_content=&#8221;on&#8221; strip_html=&#8221;off&#8221; show_filters=&#8221;off&#8221; show_pagination=&#8221;off&#8221; column_gutter=&#8221;4em&#8221; _builder_version=&#8221;4.27.7&#8243; _module_preset=&#8221;default&#8221; dpdfg_entry_title_text_align=&#8221;center&#8221; dpdfg_entry_summary_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_color=&#8221;#0A1640&#8243; read_more_button_alignment=&#8221;left&#8221; hover_enabled=&#8221;0&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>ECD Global Alliance\u00a0Staff<\/h2>\n<p>[\/et_pb_text][dpdfg_filtergrid custom_query=&#8221;advanced&#8221; multiple_cpt=&#8221;members&#8221; use_taxonomy_terms=&#8221;on&#8221; multiple_taxonomies=&#8221;member_categories&#8221; include_terms=&#8221;248&#8243; post_number=&#8221;100&#8243; thumbnail_size=&#8221;dfg_full&#8221; use_overlay=&#8221;off&#8221; show_post_meta=&#8221;off&#8221; show_custom_fields=&#8221;on&#8221; custom_fields=&#8221;%91{%22name%22:%22Job title%22,%22label%22:%22%22}%93&#8243; show_filters=&#8221;off&#8221; show_pagination=&#8221;off&#8221; column_gutter=&#8221;4em&#8221; _builder_version=&#8221;4.27.7&#8243; _module_preset=&#8221;default&#8221; dpdfg_entry_title_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_color=&#8221;#0A1640&#8243; read_more_button_alignment=&#8221;left&#8221; hover_enabled=&#8221;0&#8243; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#F2F2F2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>ECD Global Alliance Past Board of Directors<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>Carol Smith (2009)\n<ul>\n<li>Secretary 2009 -2009<\/li>\n<\/ul>\n<\/li>\n<li>Charles Balnaves (2009)\n<ul>\n<li>Vice President 2009 \u2013 2009<\/li>\n<\/ul>\n<\/li>\n<li>Ralph Stallard (2019 \u2013 2012)\n<ul>\n<li>Treasurer 2009 \u2013 2012<\/li>\n<\/ul>\n<\/li>\n<li>Brian Lestage (2009 \u2013 2012)<\/li>\n<li>Rachel Mitchell (2010 \u2013 2019)\n<ul>\n<li>Treasurer 2012 \u2013 2019)<\/li>\n<\/ul>\n<\/li>\n<li>Linda Adams, PhD (2010 \u2013 2023)<\/li>\n<li>Pam Fleming (2012 \u2013 2019)<\/li>\n<li>Glenn Padnick (2011 \u2013 2022)<\/li>\n<li>Jean Campbell (2015 \u2013 2023)<\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>ECD Global Alliance Board of Directors<div class=\"et_pb_module dpdfg_filtergrid dpdfg_filtergrid_0\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_module_inner\">\n\t\t\t\t\t<!-- DPDFG Start Main Container --><div class=\"dp-dfg-container dp-dfg-layout-grid dp-dfg-skin-default dp-dfg-skin-top-filters\" data-active-filter=\"all\" data-page=\"1\" data-found-posts=\"12256\" data-post-number=\"0\" data-default-filter=\"All\" data-link-filter=\"\" data-cache=\"off\" data-ratio=\"0\" data-show-thumb=\"on\" data-action=\"link\" data-new-window=\"off\" data-filters=\"off\" data-date-filters=\"off\" data-multifilter=\"off|OR\" data-multilevel=\"off|AND|off\" data-sorting=\"off\" data-order=\"&#8221;ASC&#8221;\" data-orderby=\"&#8221;meta_value&#8221;\" data-initorderby=\"&#8221;meta_value&#8221;\" data-url-navigation=\"off\" data-url-history=\"on|reload\" data-ajax-filters=\"off\" data-doing-ajax=\"off\" data-module=\"dpdfg_filtergrid_0\" data-search=\"off\" data-search-position=\"above\" data-terms-tags=\"on\" data-pagination=\"&#8221;off&#8221;\" data-filter-method=\"default\" data-third-party=\"\" data-lightbox=\"on|||\" data-video-preview=\"off\" data-no-init=\"off\" data-st=\"on\" data-no-results=\"off\"><div class=\"dp-dfg-items\"><article id=\"post-174068\" class=\"dp-dfg-item post-174068 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-erdheimchester tag-raredisease\"     data-position=\"0\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/staying-hydrated-a-simple-way-to-support-your-well-being\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/07\/Staying-hydrated-graphic-sized-and-branded.png\" alt=\"Staying Hydrated: A Simple Way to Support Your Well-Being\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Staying Hydrated: A Simple Way to Support Your Well-Being<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Living with Erdheim-Chester Disease (ECD) often means paying close attention to your health. Between appointments, ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-172573\" class=\"dp-dfg-item post-172573 post type-post status-publish format-standard has-post-thumbnail hentry category-past-awards tag-6152\"     data-position=\"1\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/advanced-proteomic-profiling-of-histiocytic-neoplasms-uncovering-biomarkers-and-mechanistic-insights-for-enhanced-diagnosis-and-therapeutic-strategies\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/07\/Oshrat-Hershkovitz-Rokah-banner.jpg\" alt=\"Advanced Proteomic Profiling of Histiocytic Neoplasms: Uncovering Biomarkers and Mechanistic Insights for Enhanced Diagnosis and Therapeutic Strategies\" width=\"1200\" height=\"600\" data-ratio=\"0.5\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Advanced Proteomic Profiling of Histiocytic Neoplasms: Uncovering Biomarkers and Mechanistic Insights for Enhanced Diagnosis and Therapeutic Strategies<\/h2><\/div><div class=\"dp-dfg-content entry-summary\"><h4><strong><\/strong><\/h4>\r\n<h4><strong>Year Awarded:<\/strong> 2026\r\n<strong>Amount:<\/strong> ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-166978\" class=\"dp-dfg-item post-166978 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-erdheimchester tag-raredisease\"     data-position=\"2\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/thank-you-for-going-above-and-beyond-2\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/07\/Thank-You-sized-and-branded.png\" alt=\"Thank You for Going Above and Beyond!\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Thank You for Going Above and Beyond!<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Our hearts are full.\r\n\r\nBecause of your incredible generosity, enthusiasm, and support, the <strong>ECDGA Virtual ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-166977\" class=\"dp-dfg-item post-166977 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-erdheimchester tag-raredisease\"     data-position=\"3\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/thank-you-for-going-above-and-beyond\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/07\/Thank-You-sized-and-branded.png\" alt=\"Thank You for Going Above and Beyond!\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Thank You for Going Above and Beyond!<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">We are incredibly grateful to everyone who made this year's <strong>ECDGA Virtual Fun Run, Walk, or Roll<\/strong> ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-164669\" class=\"dp-dfg-item post-164669 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-erdheimchester tag-raredisease\"     data-position=\"4\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/today-is-the-last-day-to-support-tha-ecdga-virtual-fun-run-walk-or-roll\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/June-30-image-sized.png\" alt=\"Today is the Last Day to Support tha ECDGA Virtual Fun Run, Walk, or Roll\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Today is the Last Day to Support tha ECDGA Virtual Fun Run, Walk, or Roll<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">As our ECDGA Virtual Fun Run, Walk, or Roll comes to a close, we invite you to be part of something bigger than a ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-163151\" class=\"dp-dfg-item post-163151 post type-post status-publish format-standard has-post-thumbnail hentry category-news\"     data-position=\"5\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/tomorrow-is-the-final-day\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/June-28-sized-and-branded.png\" alt=\"Tomorrow is the final day.\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Tomorrow is the final day.<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">By midnight tomorrow, our <strong>$10,000 Matching Challenge<\/strong> comes to an end, and we need just ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-163113\" class=\"dp-dfg-item post-163113 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-erdheimchester tag-raredisease\"     data-position=\"6\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/only-48-hours-left-to-double-your-impact\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/June-28-sized-and-branded.png\" alt=\"Only 48 Hours Left to Double Your Impact!\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Only 48 Hours Left to Double Your Impact!<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Time is running out! There are just <strong>2 days remaining<\/strong> to take advantage of our <strong>$10,000 ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-163074\" class=\"dp-dfg-item post-163074 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-doubleyourimpact tag-ecdga tag-erdheimchesterdisease tag-everydollarcounts tag-raredisease tag-teamrockymountainhigh tag-togetherforecd tag-virtualfunrun tag-walkorroll\"     data-position=\"7\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/team-spotlight-team-rocky-mountain-high\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/June-27-branded-and-sized.png\" alt=\"Team Spotlight: Team Rocky Mountain High!\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Team Spotlight: Team Rocky Mountain High!<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Give a huge round of applause to <strong>Team Rocky Mountain High Captains, (Bob and Janet Froetscher)<\/strong>, ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-161599\" class=\"dp-dfg-item post-161599 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-erdheimchester tag-raredisease\"     data-position=\"8\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/erdheim-chester-disease-and-sun-exposure-what-patients-should-know\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Sun-Image.png\" alt=\"Erdheim-Chester Disease and Sun Exposure: What Patients Should Know\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Erdheim-Chester Disease and Sun Exposure: What Patients Should Know<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">For many people, sunshine means outdoor activities, vacations, and time spent with family and friends. For ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-162802\" class=\"dp-dfg-item post-162802 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-erdheimchester tag-funrun tag-raredisease\"     data-position=\"9\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/es\/a-message-to-our-community\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/c3eec946975a48c727919aadfa2af7408434603b8a708e667c27c3b183340801.png\" alt=\"A Message to Our Community\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">A Message to Our Community<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">When someone hears the words \"You have Erdheim-Chester Disease,\" they often have more questions than ...<\/div><\/article><!-- DPDFG End Post Item Container --><\/div><div class=\"dp-dfg-announcer screen-reader-text\" aria-live=\"polite\" aria-atomic=\"true\"><\/div><\/div><!-- DPDFG End Main Container --><div class=\"dp-dfg-data dp-dfg-hide\"><div class=\"dp-dfg-ajax-data\" 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class=\"dp-dfg-no-results-data\"><div class=\"dp-dfg-no-results\">No results found.<\/div><\/div><div class=\"dp-dfg-loader-data\"><\/div><\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div><\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<h2>ECD Global Alliance Board of Directors<\/h2>\r\n<ul class=\"staff-list\">\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Kathy Brewer, President<\/strong>\r\n715 Davella Dr.\r\nDeRidder, LA 70634\r\n337-515-6987\r\n\r\nMasters in Engineering (1983), B.S. in Mechanical Engineering (1981). Kathy worked in the aerospace industry for 15 years, where she spent 10 years as an engineering software development manager. Since 1998 she has been involved in non-profit work and various contract work, and is currently a partner in a management consulting firm. She lost her beloved husband, F. Gary Brewer, to Erdheim-Chester Disease in 2007. He remained undiagnosed throughout his life, with the diagnosis of ECD occurring as the result of an autopsy.\r\n\r\n<\/div><\/li>\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Pamela Fleming<\/strong>\r\n149 Sagamore Pkwy\r\nLaPorte, IN 46350\r\npkf99@netscape.com\r\n219-326-8008\r\n\r\nGraduated from Oklahoma State University, 1960. Pam learned to fly and became a flight instructor in 1967. She worked with her husband in a small business for over 30 years that grew to employ more than 300 employees. Her duties included office management, finances and computer programming. She is presently partly retired, with oversight over operations. Pam has three children. She was diagnosed with ECD in 2003.\r\n\r\n<\/div><\/li>\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Rachel Mitchell, Treasurer<\/strong>\r\nLaurel, MD\r\n\r\nMasters in Business Administration with focus in Healthcare Management (2004), B.S. in Accounting, minor in music (1997). Ms. Rachel Mitchell is currently employed by the Department of Veterans Affairs (VA) as the Chief Financial Officer for the VA Capitol Healthcare Network located in the DC\/ Baltimore area. She has worked at various medical centers throughout the country over her past 13 years of service with VA including Des Moines, IA, Pittsburgh, PA, and Mountain Home, TN. In her free time, Ms. Mitchell enjoys crafting, spending time with family and friends, traveling and spoiling her nieces. Rachel lost her sister-in-law to ECD in 2010.\r\n\r\n<\/div><\/li>\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Glenn Padnick<\/strong>\r\n\r\nGlenn Padnick is a retired television executive. He was a co-founder of Castle Rock Entertainment, where he helped develop and produce the TV series Seinfeld. Before that, he was president of Embassy Television, where he helped develop and produce, among others, Who\u2019s the Boss, 227 and Married\u2026With Children. He is a graduate of Harvard College and Harvard Law School. He is married to Dr. Eleanor Padnick, a dentist. They have three children. He was diagnosed with Erdheim-Chester Disease in 2001.\r\n\r\n<\/div><\/li>\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Juvianee Estrada-Veras, MD<\/strong>\r\nMedical Biochemical Genetics\r\nNational Human Genome Research\r\nInstitute\r\nNational Institutes of Health\r\n10 Center Drive, Bldg 10, CRC- Room 3-2551\r\nBethesda, MD 20892-1851\r\n301-594-2952\r\nestradaverasji@mail.nih.gov\r\njuvianee.i.estradaveras.ctr@mail.mil\r\n\r\nDr. Estrada-Veras interests are the diagnosis and treatment of inborn errors of metabolism in children as well as other genetic disorders. Current research interest include inborn errors of metabolism and non-Langerhans cell histiocytic disorders especially Erdheim-Chester disease. Dr. Estrada-Veras is a collaborator with the NIH study, \u201cClinical and Basic Investigation into Erdheim-Chester Disease\u201d and \u201cDabrafenib and Trametinib Trial for Treating Patients With Erdheim-Chester Disease and BRAF Mutation.\u201d\r\n\r\n<\/div><\/li>\r\n<\/ul>\r\n\u00a0\r\n\r\n\u00a0\r\n<h2>ECD Global Alliance\u00a0Staff<\/h2>\r\n<ul class=\"staff-list\">\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Jessica Corkran\r\n<\/strong>Executive Director\r\nJessica.Corkran@Erdheim-Chester.org\r\n\r\nJessica holds a Bachelor of Science in Management and Marketing.\u00a0 She joined ECDGA in 2014 with an extensive background in management and finance.\u00a0 She is devoted to bettering the lives of those affected by ECD.\u00a0 When Jessica is not active with the ECDGA, she and her husband love spending time with their two wonderful children.\r\n\r\n<\/div><\/li>\r\n<\/ul>","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-153","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/pages\/153","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/comments?post=153"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/pages\/153\/revisions"}],"predecessor-version":[{"id":173961,"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/pages\/153\/revisions\/173961"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/es\/wp-json\/wp\/v2\/media?parent=153"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}