{"id":94595,"date":"2025-09-11T08:29:59","date_gmt":"2025-09-11T13:29:59","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=94595"},"modified":"2025-09-11T17:02:16","modified_gmt":"2025-09-11T22:02:16","slug":"%ce%b6%ce%ae%cf%83%cf%84%ce%b5-%cf%84%ce%b7%ce%bd-%ce%b5%ce%bc%cf%80%ce%b5%ce%b9%cf%81%ce%af%ce%b1-%cf%84%ce%b7%cf%82-%ce%b5%ce%ba%ce%b4%ce%ae%ce%bb%cf%89%cf%83%ce%b7%cf%82-erdheim-chester-disea","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/experience-the-erdheim-chester-disease-2025-gathering-now-on-demand\/","title":{"rendered":"\u0396\u03ae\u03c3\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b1 \u03c4\u03b7\u03c2 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester 2025 \u2014 \u03a4\u03ce\u03c1\u03b1 \u03b4\u03b9\u03b1\u03b8\u03ad\u03c3\u03b9\u03bc\u03b7 \u03ba\u03b1\u03c4\u03ac \u03c0\u03b1\u03c1\u03b1\u03b3\u03b3\u03b5\u03bb\u03af\u03b1"},"content":{"rendered":"<p class=\"p1\"><span class=\"s1\">\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA) \u03b5\u03af\u03bd\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c5\u03c7\u03ac\u03c1\u03b9\u03c3\u03c4\u03b7 \u03b8\u03ad\u03c3\u03b7 \u03bd\u03b1 \u03b1\u03bd\u03b1\u03ba\u03bf\u03b9\u03bd\u03ce\u03c3\u03b5\u03b9 \u03cc\u03c4\u03b9 <\/span><b>every session from our 2025 Patient &amp; Family Gathering and Medical Symposium\u2014held May 26\u201327 in vibrant Barcelona\u2014is now available to watch online.<\/b><b><\/b><\/p>\n<p class=\"p3\">\u0395\u03af\u03c4\u03b5 \u03ae\u03c3\u03b1\u03c3\u03c4\u03b1\u03bd \u03bc\u03b1\u03b6\u03af \u03bc\u03b1\u03c2 \u03b1\u03c0\u03cc \u03ba\u03bf\u03bd\u03c4\u03ac \u03b5\u03af\u03c4\u03b5 \u03bc\u03b1\u03c2 \u03c0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03b5\u03af\u03c4\u03b5 \u03b1\u03c0\u03cc \u03bf\u03c0\u03bf\u03c5\u03b4\u03ae\u03c0\u03bf\u03c4\u03b5 \u03c3\u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf, \u03b1\u03c5\u03c4\u03ad\u03c2 \u03bf\u03b9 \u03c3\u03c5\u03bb\u03bb\u03bf\u03b3\u03ad\u03c2 \u03b2\u03af\u03bd\u03c4\u03b5\u03bf \u03c0\u03bf\u03c5 \u03ba\u03b1\u03bb\u03cd\u03c0\u03c4\u03bf\u03c5\u03bd \u03bf\u03bb\u03cc\u03ba\u03bb\u03b7\u03c1\u03b7 \u03c4\u03b7\u03bd \u03b7\u03bc\u03ad\u03c1\u03b1 \u03bc\u03b5\u03c4\u03b1\u03c6\u03ad\u03c1\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03af\u03b4\u03b9\u03b1 \u03b3\u03bd\u03ce\u03c3\u03b7, \u03b5\u03bb\u03c0\u03af\u03b4\u03b1 \u03ba\u03b1\u03b9 \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03b7 \u03ba\u03b1\u03c4\u03b5\u03c5\u03b8\u03b5\u03af\u03b1\u03bd \u03c3\u03c4\u03b7\u03bd \u03bf\u03b8\u03cc\u03bd\u03b7 \u03c3\u03b1\u03c2.<\/p>\n<p>&nbsp;<\/p>\n<h3><b>1\u03b7 \u0397\u03bc\u03ad\u03c1\u03b1: \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u2013 \u039c\u03b9\u03b1 \u03b7\u03bc\u03ad\u03c1\u03b1 \u03b3\u03bd\u03ce\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2<\/b><\/h3>\n<p class=\"p3\">\u03a3\u03c4\u03b9\u03c2 26 \u039c\u03b1\u0390\u03bf\u03c5, \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03b9\u03b4\u03b9\u03ba\u03bf\u03af \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03b8\u03b7\u03ba\u03b1\u03bd \u03c3\u03c4\u03bf \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03b9\u03b1\u03ba\u03cc \u039d\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf Bellvitge \u03b3\u03b9\u03b1 \u03bc\u03b9\u03b1 \u03b7\u03bc\u03ad\u03c1\u03b1 \u03b3\u03b5\u03bc\u03ac\u03c4\u03b7 \u03b3\u03bd\u03ce\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03b5\u03bd\u03b8\u03ac\u03c1\u03c1\u03c5\u03bd\u03c3\u03b7. \u03a4\u03bf \u03c0\u03c1\u03cc\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1 \u03c0\u03b5\u03c1\u03b9\u03b5\u03bb\u03ac\u03bc\u03b2\u03b1\u03bd\u03b5:<\/p>\n<ul>\n<li>\n<p class=\"p1\"><span class=\"s1\"><b>\u0395\u03c0\u03b9\u03c3\u03c4\u03ae\u03bc\u03b7 \u03b1\u03b9\u03c7\u03bc\u03ae\u03c2:<\/b><\/span> \u0395\u03bd\u03b7\u03bc\u03b5\u03c1\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7 \u03b2\u03b9\u03bf\u03bb\u03bf\u03b3\u03af\u03b1 \u03c4\u03b7\u03c2 \u03bd\u03cc\u03c3\u03bf\u03c5 Erdheim-Chester, \u03c4\u03b9\u03c2 \u03c4\u03c1\u03ad\u03c7\u03bf\u03c5\u03c3\u03b5\u03c2 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b5\u03be\u03b5\u03bb\u03af\u03be\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03c0\u03c1\u03cc\u03c3\u03c6\u03b1\u03c4\u03b5\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03c5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b5\u03c0\u03b9\u03bb\u03bf\u03b3\u03ad\u03c2 \u2014 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c3\u03c4\u03bf\u03c7\u03b5\u03c5\u03bc\u03ad\u03bd\u03b5\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2 \u03ad\u03c9\u03c2 \u03c4\u03b9\u03c2 \u03bd\u03ad\u03b5\u03c2 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b4\u03bf\u03ba\u03b9\u03bc\u03ad\u03c2.<\/p>\n<\/li>\n<li>\n<p class=\"p1\"><span class=\"s1\"><b>\u0396\u03ce\u03bd\u03c4\u03b1\u03c2 \u03bc\u03b5 \u03c4\u03b7\u03bd ECD:<\/b><\/span> \u0391\u03bd\u03b1\u03bb\u03c5\u03c4\u03b9\u03ba\u03ae \u03b5\u03be\u03ad\u03c4\u03b1\u03c3\u03b7 \u03c4\u03c9\u03bd \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ce\u03bd \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03c9\u03bd, \u03c4\u03b7\u03c2 \u03b5\u03bc\u03c0\u03bb\u03bf\u03ba\u03ae\u03c2 \u03c4\u03bf\u03c5 \u03b5\u03b3\u03ba\u03b5\u03c6\u03ac\u03bb\u03bf\u03c5, \u03c4\u03c9\u03bd \u03bf\u03c6\u03b8\u03b1\u03bb\u03bc\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c4\u03c9\u03bd \u03bd\u03b5\u03c6\u03c1\u03ce\u03bd, \u03ba\u03b1\u03b8\u03ce\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03c9\u03bd \u03c3\u03c4\u03c1\u03b1\u03c4\u03b7\u03b3\u03b9\u03ba\u03ce\u03bd \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03c0\u03b1\u03c1\u03b5\u03bd\u03b5\u03c1\u03b3\u03b5\u03b9\u03ce\u03bd.<\/p>\n<\/li>\n<li>\n<p class=\"p1\"><span class=\"s1\"><b>\u039f\u03bb\u03b9\u03c3\u03c4\u03b9\u03ba\u03ae \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1:<\/b><\/span> \u03a3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2 \u03bc\u03b5 \u03b8\u03ad\u03bc\u03b1\u03c4\u03b1 \u03cc\u03c0\u03c9\u03c2 \u03b7 \u03c8\u03c5\u03c7\u03b9\u03ba\u03ae \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bd\u03b1\u03b9\u03c3\u03b8\u03b7\u03bc\u03b1\u03c4\u03b9\u03ba\u03ae \u03c5\u03b3\u03b5\u03af\u03b1, \u03b7 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c0\u03cc\u03bd\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2, \u03b7 \u03b4\u03b9\u03b1\u03c4\u03ae\u03c1\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c3\u03c9\u03bc\u03b1\u03c4\u03b9\u03ba\u03ae\u03c2 \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03b7 \u03c5\u03b3\u03b9\u03b5\u03b9\u03bd\u03ae \u03b4\u03b9\u03b1\u03c4\u03c1\u03bf\u03c6\u03ae, \u03bf\u03b9 \u03bf\u03c0\u03bf\u03af\u03b5\u03c2 \u03bf\u03bb\u03bf\u03ba\u03bb\u03b7\u03c1\u03ce\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03bc\u03b5 \u03c3\u03c5\u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd \u03ba\u03b1\u03b9 \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd \u03bc\u03b5 \u03c4\u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03b5\u03b9\u03b4\u03b9\u03ba\u03ce\u03bd.<\/p>\n<\/li>\n<\/ul>\n<p class=\"p3\">\u03a0\u03c1\u03bf\u03ba\u03b5\u03b9\u03bc\u03ad\u03bd\u03bf\u03c5 \u03bd\u03b1 \u03b4\u03b9\u03b1\u03c3\u03c6\u03b1\u03bb\u03b9\u03c3\u03c4\u03b5\u03af \u03b7 \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03c0\u03c1\u03bf\u03c3\u03b2\u03b1\u03c3\u03b9\u03bc\u03cc\u03c4\u03b7\u03c4\u03b1, <span class=\"s3\"><b>\u03cc\u03bb\u03b7 \u03b1\u03c5\u03c4\u03ae \u03b7 \u03bc\u03ad\u03c1\u03b1 \u03ad\u03c7\u03b5\u03b9 \u03bc\u03b5\u03c4\u03b1\u03c6\u03c1\u03b1\u03c3\u03c4\u03b5\u03af \u03c3\u03c4\u03b1 \u03b3\u03b1\u03bb\u03bb\u03b9\u03ba\u03ac, \u03c4\u03b1 \u03b9\u03c4\u03b1\u03bb\u03b9\u03ba\u03ac, \u03c4\u03b1 \u03b9\u03c3\u03c0\u03b1\u03bd\u03b9\u03ba\u03ac \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03b3\u03b5\u03c1\u03bc\u03b1\u03bd\u03b9\u03ba\u03ac<\/b><\/span>, \u03bc\u03b5 \u03bc\u03b9\u03b1 \u03be\u03b5\u03c7\u03c9\u03c1\u03b9\u03c3\u03c4\u03ae \u03bb\u03af\u03c3\u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03b1\u03c1\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03b3\u03b9\u03b1 \u03ba\u03ac\u03b8\u03b5 \u03b3\u03bb\u03ce\u03c3\u03c3\u03b1:<\/p>\n<ul>\n<li>\n<p class=\"p1\"><a href=\"https:\/\/www.youtube.com\/playlist?list=PLd9i5JBvapc4GfigO8mJrw6rtGHvGj9wi\" target=\"_blank\" rel=\"noopener\">\u039b\u03af\u03c3\u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03b1\u03c1\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03bc\u03b5 \u03b3\u03b1\u03bb\u03bb\u03b9\u03ba\u03ac \u03c4\u03c1\u03b1\u03b3\u03bf\u03cd\u03b4\u03b9\u03b1 \u2013 \u0394\u03b5\u03af\u03c4\u03b5 \u03b5\u03b4\u03ce<\/a><\/p>\n<\/li>\n<li>\n<p class=\"p1\"><a href=\"https:\/\/www.youtube.com\/playlist?list=PLd9i5JBvapc5XI6vrpQbiHo2eZmClrBuf\" target=\"_blank\" rel=\"noopener\">\u039b\u03af\u03c3\u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03b1\u03c1\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03bc\u03b5 \u03b9\u03c4\u03b1\u03bb\u03b9\u03ba\u03ac \u03c4\u03c1\u03b1\u03b3\u03bf\u03cd\u03b4\u03b9\u03b1 \u2013 \u0394\u03b5\u03af\u03c4\u03b5 \u03b5\u03b4\u03ce<\/a><\/p>\n<\/li>\n<li>\n<p class=\"p1\"><a href=\"https:\/\/www.youtube.com\/playlist?list=PLd9i5JBvapc7y82n4XnkXWNXg57w8TFj6\" target=\"_blank\" rel=\"noopener\">\u039b\u03af\u03c3\u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03b1\u03c1\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03c3\u03c4\u03b1 \u03b9\u03c3\u03c0\u03b1\u03bd\u03b9\u03ba\u03ac \u2013 \u0394\u03b5\u03af\u03c4\u03b5 \u03b5\u03b4\u03ce<\/a><\/p>\n<\/li>\n<li>\n<p class=\"p1\"><a href=\"https:\/\/www.youtube.com\/playlist?list=PLd9i5JBvapc7xwWCZ7Iw05Hb8ZckDpjV2\" target=\"_blank\" rel=\"noopener\">\u039b\u03af\u03c3\u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03b1\u03c1\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03bc\u03b5 \u03b3\u03b5\u03c1\u03bc\u03b1\u03bd\u03b9\u03ba\u03ac \u03c4\u03c1\u03b1\u03b3\u03bf\u03cd\u03b4\u03b9\u03b1 \u2013 \u0394\u03b5\u03af\u03c4\u03b5 \u03b5\u03b4\u03ce<\/a><\/p>\n<\/li>\n<li><a href=\"https:\/\/www.youtube.com\/playlist?list=PLd9i5JBvapc57Hots4EuW9Q6nff5yh5_z\" target=\"_blank\" rel=\"noopener\">\u039b\u03af\u03c3\u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03b1\u03c1\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03c3\u03c4\u03b1 \u03b1\u03b3\u03b3\u03bb\u03b9\u03ba\u03ac \u2013 \u0394\u03b5\u03af\u03c4\u03b5 \u03b5\u03b4\u03ce<\/a><\/li>\n<\/ul>\n<h3><b>2\u03b7 \u03b7\u03bc\u03ad\u03c1\u03b1: \u0399\u03b1\u03c4\u03c1\u03b9\u03ba\u03cc \u03c3\u03c5\u03bc\u03c0\u03cc\u03c3\u03b9\u03bf \u2013 \u03a0\u03c1\u03bf\u03ce\u03b8\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7\u03c2<\/b><\/h3>\n<p class=\"p3\">On May 27, leading clinicians and researchers gathered for a focused Medical Symposium, sharing the most up-to-date insights into ECD biology, treatment innovation, and clinical best practices.<\/p>\n<p class=\"p3\">\u0391\u03c5\u03c4\u03cc \u03c4\u03bf \u03c0\u03b5\u03c1\u03b9\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03b5\u03af\u03bd\u03b1\u03b9 \u03b4\u03b9\u03b1\u03b8\u03ad\u03c3\u03b9\u03bc\u03bf \u03c3\u03c4\u03b1 \u03b1\u03b3\u03b3\u03bb\u03b9\u03ba\u03ac:<\/p>\n<ul>\n<li>\n<p class=\"p1\"><a href=\"https:\/\/www.youtube.com\/playlist?list=PLd9i5JBvapc5tBxKVSA9-3MLe2pmvk6VI\" target=\"_blank\" rel=\"noopener\">\u039b\u03af\u03c3\u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03b1\u03c1\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03c4\u03bf\u03c5 \u0399\u03b1\u03c4\u03c1\u03b9\u03ba\u03bf\u03cd \u03a3\u03c5\u03bc\u03c0\u03bf\u03c3\u03af\u03bf\u03c5 \u2013 \u03a0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03ae\u03c3\u03c4\u03b5 \u03b5\u03b4\u03ce<\/a><\/p>\n<\/li>\n<\/ul>\n<h3><b>\u0393\u03b9\u03b1\u03c4\u03af \u03bd\u03b1 \u03c4\u03bf \u03b4\u03b5\u03af\u03c4\u03b5;<\/b><\/h3>\n<p>\u0391\u03c5\u03c4\u03ad\u03c2 \u03bf\u03b9 \u03b7\u03c7\u03bf\u03b3\u03c1\u03b1\u03c6\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b1\u03c0\u03bf\u03c4\u03c5\u03c0\u03ce\u03bd\u03bf\u03c5\u03bd \u03c0\u03bb\u03ae\u03c1\u03c9\u03c2 \u03c4\u03bf \u03c0\u03bd\u03b5\u03cd\u03bc\u03b1 \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2 \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7 \u2014 \u03bc\u03b9\u03b1 \u03bc\u03bf\u03bd\u03b1\u03b4\u03b9\u03ba\u03ae \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03bd\u03b1 \u03bc\u03ac\u03b8\u03b5\u03c4\u03b5 \u03b1\u03c0\u03b5\u03c5\u03b8\u03b5\u03af\u03b1\u03c2 \u03b1\u03c0\u03cc \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03bf\u03c5\u03c2 \u03b5\u03b9\u03b4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b1\u03ba\u03bf\u03cd\u03c3\u03b5\u03c4\u03b5 \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b5\u03c2 \u03b1\u03c0\u03cc \u03c0\u03c1\u03ce\u03c4\u03bf \u03c7\u03ad\u03c1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03c9\u03bd \u03b1\u03c4\u03cc\u03bc\u03c9\u03bd \u03bc\u03b5 ECD. \u0395\u03af\u03c4\u03b5 \u03b5\u03af\u03c3\u03c4\u03b5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ae\u03c2, \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ae\u03c2 \u03b5\u03af\u03c4\u03b5 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b1\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2, \u03b1\u03c5\u03c4\u03ad\u03c2 \u03bf\u03b9 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2 \u03c0\u03c1\u03bf\u03c3\u03c6\u03ad\u03c1\u03bf\u03c5\u03bd \u03c0\u03c1\u03b1\u03ba\u03c4\u03b9\u03ba\u03ad\u03c2 \u03bf\u03b4\u03b7\u03b3\u03af\u03b5\u03c2, \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03c0\u03c1\u03cc\u03c3\u03c6\u03b1\u03c4\u03b5\u03c2 \u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03bf\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b5\u03be\u03b5\u03bb\u03af\u03be\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03bc\u03b9\u03b1 \u03b4\u03b9\u03b1\u03c1\u03ba\u03ae \u03b1\u03af\u03c3\u03b8\u03b7\u03c3\u03b7 \u03b5\u03bb\u03c0\u03af\u03b4\u03b1\u03c2.<\/p>\n<p><b>Join us on this journey of understanding and connection.<\/b><b><\/b><\/p>\n<p>Click the links above to explore the videos and share them with friends, family, and your medical team. Together, we continue to push forward\u2014toward better treatments, stronger community support, and brighter days ahead.<\/p>\n<p><em>\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA) \u03b4\u03b5\u03bd \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03b9 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ad\u03c2, \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ae\u00a0<a href=\"https:\/\/www.erdheim-chester.org\/el\/%ce%b8%ce%b5%cf%81%ce%b1%cf%80%ce%b5%ce%af%ce%b5%cf%82\/\">\u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2<\/a>. \u038c\u03bb\u03bf \u03c4\u03bf \u03c0\u03b5\u03c1\u03b9\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03c4\u03b1\u03b9 \u03b1\u03c0\u03bf\u03ba\u03bb\u03b5\u03b9\u03c3\u03c4\u03b9\u03ba\u03ac \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c3\u03ba\u03bf\u03c0\u03bf\u03cd\u03c2. \u0393\u03b9\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ac \u03b6\u03b7\u03c4\u03ae\u03bc\u03b1\u03c4\u03b1, \u03c0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03c5\u03c4\u03b5\u03af\u03c4\u03b5 \u03ad\u03bd\u03b1\u03bd \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b1 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to share that every session from our 2025 Patient &amp; Family Gathering and Medical Symposium\u2014held May 26\u201327 in vibrant Barcelona\u2014is now available [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":95056,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[2397,4692,387,374,4691,2261,4693,4258,2398,2395,4694,2491,4690,3844,2881],"class_list":["post-94595","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-barcelona2025","tag-chronicillnesscommunity","tag-ecdga","tag-erdheimchesterdisease","tag-familycaregivers","tag-globalhealth","tag-hopeforpatients","tag-medicalinnovation","tag-medicalresearch","tag-medicalsymposium","tag-ondemandvideos","tag-patientfamilygathering","tag-patientsupport","tag-rarediseaseawareness","tag-rarediseasecommunity"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/94595","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=94595"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/94595\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/95056"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=94595"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=94595"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=94595"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}