{"id":83922,"date":"2025-07-31T08:37:28","date_gmt":"2025-07-31T12:37:28","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%cf%80%ce%b1%cf%81%ce%b1%ce%ba%ce%bf%ce%bb%ce%bf%cf%85%ce%b8%ce%ae%cf%83%cf%84%ce%b5-%cf%84%ce%b9%cf%82-%cf%83%cf%85%ce%bd%ce%b5%ce%b4%cf%81%ce%af%ce%b5%cf%82-%cf%83%cf%85%ce%b3%ce%ba%ce%ad%ce%bd\/"},"modified":"2025-08-23T18:07:04","modified_gmt":"2025-08-23T22:07:04","slug":"%cf%80%ce%b1%cf%81%ce%b1%ce%ba%ce%bf%ce%bb%ce%bf%cf%85%ce%b8%ce%ae%cf%83%cf%84%ce%b5-%cf%84%ce%b9%cf%82-%cf%83%cf%85%ce%bd%ce%b5%ce%b4%cf%81%ce%af%ce%b5%cf%82-%cf%83%cf%85%ce%b3%ce%ba%ce%ad%ce%bd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/%cf%80%ce%b1%cf%81%ce%b1%ce%ba%ce%bf%ce%bb%ce%bf%cf%85%ce%b8%ce%ae%cf%83%cf%84%ce%b5-%cf%84%ce%b9%cf%82-%cf%83%cf%85%ce%bd%ce%b5%ce%b4%cf%81%ce%af%ce%b5%cf%82-%cf%83%cf%85%ce%b3%ce%ba%ce%ad%ce%bd\/","title":{"rendered":"\u03a0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03ae\u03c3\u03c4\u03b5 \u03c4\u03b9\u03c2 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03c4\u03bf\u03c5 2025 \u03c4\u03ce\u03c1\u03b1 \u03c3\u03c4\u03bf YouTube"},"content":{"rendered":"<p>\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 ECD (ECDGA) \u03b1\u03bd\u03b1\u03ba\u03bf\u03b9\u03bd\u03ce\u03bd\u03b5\u03b9 \u03bc\u03b5 \u03c5\u03c0\u03b5\u03c1\u03b7\u03c6\u03ac\u03bd\u03b5\u03b9\u03b1 \u03c4\u03b7\u03bd \u03ba\u03c5\u03ba\u03bb\u03bf\u03c6\u03bf\u03c1\u03af\u03b1 \u03c4\u03c9\u03bd \u03c0\u03bb\u03ae\u03c1\u03c9\u03bd \u03b2\u03b9\u03bd\u03c4\u03b5\u03bf\u03c3\u03ba\u03bf\u03c0\u03ae\u03c3\u03b5\u03c9\u03bd \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd 2025 \u0395\u03c4\u03ae\u03c3\u03b9\u03b1 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7.<\/p>\n<p>\u0391\u03bd \u03b4\u03b5\u03bd \u03bc\u03c0\u03bf\u03c1\u03ad\u03c3\u03b1\u03c4\u03b5 \u03bd\u03b1 \u03c0\u03b1\u03c1\u03b5\u03c5\u03c1\u03b5\u03b8\u03b5\u03af\u03c4\u03b5 \u03b1\u03c5\u03c4\u03bf\u03c0\u03c1\u03bf\u03c3\u03ce\u03c0\u03c9\u03c2 \u03ae \u03b1\u03bd \u03b8\u03b1 \u03b8\u03ad\u03bb\u03b1\u03c4\u03b5 \u03bd\u03b1 \u03be\u03b1\u03bd\u03b1\u03b4\u03b5\u03af\u03c4\u03b5 \u03c4\u03b9\u03c2 \u03b1\u03c0\u03af\u03c3\u03c4\u03b5\u03c5\u03c4\u03b5\u03c2 \u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c5 \u03bc\u03bf\u03b9\u03c1\u03ac\u03c3\u03c4\u03b7\u03ba\u03b1\u03bd \u03bf\u03b9 \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03bf\u03b9 \u03b5\u03b9\u03b4\u03b9\u03ba\u03bf\u03af \u03c3\u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester (ECD), \u03c4\u03ce\u03c1\u03b1 \u03ad\u03c7\u03b5\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03bd\u03b1 \u03c0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03ae\u03c3\u03b5\u03c4\u03b5 \u03ba\u03ac\u03b8\u03b5 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03ac\u03bd\u03b5\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c3\u03c0\u03b9\u03c4\u03b9\u03bf\u03cd \u03c3\u03b1\u03c2.<\/p>\n<p>\u03a4\u03bf \u03c6\u03b5\u03c4\u03b9\u03bd\u03cc Gathering, \u03c4\u03bf 10\u03bf \u03b5\u03c4\u03ae\u03c3\u03b9\u03bf, \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03ae\u03b8\u03b7\u03ba\u03b5 \u03c3\u03c4\u03bf \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03b9\u03b1\u03ba\u03cc \u039d\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf Bellvitge \u03ba\u03b1\u03b9 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2, \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2 \u03b1\u03c0\u03cc \u03cc\u03bb\u03bf \u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf. \u039c\u03b5 \u03bc\u03b9\u03b1 \u03bf\u03bb\u03cc\u03ba\u03bb\u03b7\u03c1\u03b7 \u03b7\u03bc\u03ad\u03c1\u03b1 \u03b5\u03ba\u03c0\u03b1\u03b9\u03b4\u03b5\u03c5\u03c4\u03b9\u03ba\u03ce\u03bd \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03b9\u03ac\u03c3\u03b5\u03c9\u03bd, \u03c0\u03ac\u03bd\u03b5\u03bb \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd \u03ba\u03b1\u03b9 \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03b9\u03ce\u03bd \u03bc\u03b5 \u03b5\u03c0\u03af\u03ba\u03b5\u03bd\u03c4\u03c1\u03bf \u03c4\u03b7\u03bd \u03b5\u03c5\u03b5\u03be\u03af\u03b1, \u03b7 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7 \u03c0\u03c1\u03bf\u03c3\u03ad\u03c6\u03b5\u03c1\u03b5 \u03bc\u03b9\u03b1 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03bf\u03c5\u03c3\u03b9\u03b1\u03c3\u03c4\u03b9\u03ba\u03ae \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03b3\u03b9\u03b1 \u03bc\u03ac\u03b8\u03b7\u03c3\u03b7, \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7. <\/p>\n<p><a href=\"https:\/\/www.youtube.com\/playlist?list=PLd9i5JBvapc57Hots4EuW9Q6nff5yh5_z\" target=\"_blank\" rel=\"noopener\"><strong>\u0394\u03b9\u03b1\u03b8\u03ad\u03c3\u03b9\u03bc\u03bf \u03c4\u03ce\u03c1\u03b1 \u03c3\u03c4\u03bf YouTube: \u03a0\u03bb\u03ae\u03c1\u03b7\u03c2 \u03bb\u03af\u03c3\u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03b1\u03c1\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03c4\u03c9\u03bd \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03b9\u03ce\u03bd<\/strong><\/a><\/p>\n<p><iframe loading=\"lazy\" title=\"2025 ECDGA Patient &amp; Family Gathering \u2013 Barcelona - Full Video Series\" width=\"1080\" height=\"608\" src=\"https:\/\/www.youtube.com\/embed\/videoseries?list=PLd9i5JBvapc57Hots4EuW9Q6nff5yh5_z\"  allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>\u039c\u03c0\u03bf\u03c1\u03b5\u03af\u03c4\u03b5 \u03c4\u03ce\u03c1\u03b1 \u03bd\u03b1 \u03b4\u03b5\u03af\u03c4\u03b5 \u03ba\u03ac\u03b8\u03b5 \u03bc\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c0\u03b1\u03c1\u03b1\u03ba\u03ac\u03c4\u03c9 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2 \u03c3\u03c4\u03bf \u03ba\u03b1\u03bd\u03ac\u03bb\u03b9 \u03bc\u03b1\u03c2 \u03c3\u03c4\u03bf YouTube:<\/p>\n<p><strong>\u03a0\u03c1\u03c9\u03b9\u03bd\u03ad\u03c2 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2<\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/youtu.be\/mQ5ftgSi97g\" target=\"_blank\" rel=\"noopener\">\u039a\u03b1\u03bb\u03ce\u03c2 \u03ae\u03c1\u03b8\u03b1\u03c4\u03b5 \u03c3\u03c4\u03bf Bellvitge &amp; \u03c3\u03c4\u03b7 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/OvWfgzVPepk\" target=\"_blank\" rel=\"noopener\">\u0395\u03c0\u03b9\u03c3\u03ba\u03cc\u03c0\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03c3\u03b7\u03c2 \u03b5\u03bd\u03b7\u03bb\u03af\u03ba\u03c9\u03bd<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/0COr_7WA96U\" target=\"_blank\" rel=\"noopener\">\u0392\u03b9\u03bf\u03bb\u03bf\u03b3\u03af\u03b1 \u03c4\u03b7\u03c2 ECD &amp; \u03c4\u03c1\u03ad\u03c7\u03bf\u03c5\u03c3\u03b1 \u03b2\u03b1\u03c3\u03b9\u03ba\u03ae \u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03bf\u03bd\u03b9\u03ba\u03ae \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/qIhJ7sIcL3c\" target=\"_blank\" rel=\"noopener\">\u0395\u03c0\u03b9\u03bb\u03bf\u03b3\u03ad\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1\u03c2 ECD (\u03c4\u03c1\u03ad\u03c7\u03bf\u03c5\u03c3\u03b5\u03c2 &amp; \u03c3\u03c4\u03bf\u03bd \u03bf\u03c1\u03af\u03b6\u03bf\u03bd\u03c4\u03b1)<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/05HQbwpm-uQ\" target=\"_blank\" rel=\"noopener\">\u03a0\u03b1\u03c1\u03b5\u03bd\u03ad\u03c1\u03b3\u03b5\u03b9\u03b5\u03c2 \u03c4\u03b7\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1\u03c2 ECD<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/_9Mq8Dke4do\" target=\"_blank\" rel=\"noopener\">\u039a\u03bb\u03b9\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03b9\u03c2 ECD<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/cdsPkiAMUDU\" target=\"_blank\" rel=\"noopener\">\u0395\u03bc\u03c0\u03bb\u03bf\u03ba\u03ae \u03b5\u03b3\u03ba\u03b5\u03c6\u03ac\u03bb\u03bf\u03c5\/\u03bc\u03b1\u03c4\u03b9\u03ce\u03bd<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/SkS29iwjFQc\" target=\"_blank\" rel=\"noopener\">\u03a3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c4\u03c9\u03bd \u03bd\u03b5\u03c6\u03c1\u03ce\u03bd\/\u03bf\u03c5\u03c1\u03bf\u03bb\u03bf\u03b3\u03af\u03b1\u03c2<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/y_zMyEbpEQI\" target=\"_blank\" rel=\"noopener\">\u03a3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03ac\u03bb\u03bb\u03c9\u03bd \u03bf\u03c1\u03b3\u03ac\u03bd\u03c9\u03bd<\/a><\/li>\n<\/ul>\n<p><strong>\u0391\u03c0\u03bf\u03b3\u03b5\u03c5\u03bc\u03b1\u03c4\u03b9\u03bd\u03ad\u03c2 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2<\/strong><\/p>\n<ul>\n<li><a href=\"https:\/\/youtu.be\/bvHQLAypDyM\" target=\"_blank\" rel=\"noopener\">ECD &amp; \u03c3\u03c5\u03bd\u03bf\u03b4\u03ac \u03bd\u03bf\u03c3\u03ae\u03bc\u03b1\u03c4\u03b1<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/mrum57UHyxE\" target=\"_blank\" rel=\"noopener\">\u03a0\u03ac\u03bd\u03b5\u03bb \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd \u03ba\u03b1\u03b9 \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03bf\u03b3\u03bd\u03c9\u03bc\u03cc\u03bd\u03c9\u03bd ECD<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/XfM6cJdnfmU\" target=\"_blank\" rel=\"noopener\">\u03a8\u03c5\u03c7\u03b9\u03ba\u03ae \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bd\u03b1\u03b9\u03c3\u03b8\u03b7\u03bc\u03b1\u03c4\u03b9\u03ba\u03ae \u03c5\u03b3\u03b5\u03af\u03b1 \u03b3\u03b9\u03b1 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/ExBqDMOFGBI\" target=\"_blank\" rel=\"noopener\">\u0394\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c0\u03cc\u03bd\u03bf\u03c5 &amp; \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/S1WbWCjadvs\" target=\"_blank\" rel=\"noopener\">\u03a0\u03b1\u03c1\u03b1\u03bc\u03ad\u03bd\u03bf\u03bd\u03c4\u03b1\u03c2 \u03b5\u03bd\u03b5\u03c1\u03b3\u03ae<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/NpukpY6SzKY\" target=\"_blank\" rel=\"noopener\">\u03a5\u03b3\u03b9\u03b5\u03b9\u03bd\u03ae \u03b4\u03b9\u03b1\u03c4\u03c1\u03bf\u03c6\u03ae<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/kXl9OU3F1e0\" target=\"_blank\" rel=\"noopener\">\u0394\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u0395\u03c0\u03b9\u03b2\u03af\u03c9\u03c3\u03b7\u03c2 ECD: \u0395\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/K6u3i0nQ7Js\" target=\"_blank\" rel=\"noopener\">\u03a0\u03b1\u03c1\u03b1\u03c4\u03b7\u03c1\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03b1\u03be\u03b9\u03bf\u03bb\u03cc\u03b3\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 ECDGA<\/a><\/li>\n<\/ul>\n<p>\u0395\u03af\u03c4\u03b5 \u03b1\u03bd\u03b1\u03b6\u03b7\u03c4\u03ac\u03c4\u03b5 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2, \u03ba\u03b1\u03b8\u03bf\u03b4\u03ae\u03b3\u03b7\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03ba\u03b1\u03b8\u03b7\u03bc\u03b5\u03c1\u03b9\u03bd\u03ae \u03b6\u03c9\u03ae, \u03b5\u03af\u03c4\u03b5 \u03bc\u03b9\u03b1 \u03c0\u03b9\u03bf \u03b2\u03b1\u03b8\u03b9\u03ac \u03b1\u03af\u03c3\u03b8\u03b7\u03c3\u03b7 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2, \u03b1\u03c5\u03c4\u03ac \u03c4\u03b1 \u03b2\u03af\u03bd\u03c4\u03b5\u03bf \u03c0\u03c1\u03bf\u03c3\u03c6\u03ad\u03c1\u03bf\u03c5\u03bd \u03b6\u03c9\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03b9\u03bb\u03b9\u03ba\u03c1\u03b9\u03bd\u03ae \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7 \u03b1\u03c0\u03cc \u03b5\u03ba\u03b5\u03af\u03bd\u03bf\u03c5\u03c2 \u03c0\u03bf\u03c5 \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03bf\u03cd\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b1 \u03c4\u03b7\u03bd ECD.<\/p>\n<p><strong>\u0393\u03b9\u03b1\u03c4\u03af \u03b1\u03c5\u03c4\u03ac \u03c4\u03b1 \u03b2\u03af\u03bd\u03c4\u03b5\u03bf \u03ad\u03c7\u03bf\u03c5\u03bd \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1<\/strong><\/p>\n<p>\u0397 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03ba\u03ac\u03c4\u03b9 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03bf \u03b1\u03c0\u03cc \u03bc\u03b9\u03b1 \u03b1\u03c0\u03bb\u03ae \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7 &#8211; \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03b9\u03b1 \u03b3\u03c1\u03b1\u03bc\u03bc\u03ae \u03b6\u03c9\u03ae\u03c2. \u039a\u03ac\u03b8\u03b5 \u03c7\u03c1\u03cc\u03bd\u03bf, \u03bc\u03b1\u03c2 \u03c5\u03c0\u03b5\u03bd\u03b8\u03c5\u03bc\u03af\u03b6\u03b5\u03b9 \u03cc\u03c4\u03b9 \u03ba\u03b1\u03bd\u03b5\u03af\u03c2 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03b6\u03b5\u03b9 ECD \u03b4\u03b5\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03cc\u03bd\u03bf\u03c2 \u03c4\u03bf\u03c5. \u039c\u03b5 \u03c4\u03b7\u03bd \u03c0\u03c1\u03bf\u03b2\u03bf\u03bb\u03ae \u03b1\u03c5\u03c4\u03ce\u03bd \u03c4\u03c9\u03bd \u03b2\u03af\u03bd\u03c4\u03b5\u03bf \u03c3\u03c4\u03bf \u03b4\u03b9\u03b1\u03b4\u03af\u03ba\u03c4\u03c5\u03bf, \u03ba\u03b1\u03b8\u03b9\u03c3\u03c4\u03bf\u03cd\u03bc\u03b5 \u03c4\u03b9\u03c2 \u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c4\u03c9\u03bd \u03b5\u03b9\u03b4\u03b9\u03ba\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03c3\u03c5\u03bc\u03c0\u03bf\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1 \u03c0\u03c1\u03bf\u03c3\u03b9\u03c4\u03ad\u03c2 \u03c3\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2, \u03b1\u03bd\u03b5\u03be\u03ac\u03c1\u03c4\u03b7\u03c4\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b7 \u03b3\u03b5\u03c9\u03b3\u03c1\u03b1\u03c6\u03af\u03b1.  <\/p>\n<p>\u0395\u03ba\u03c6\u03c1\u03ac\u03b6\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03b5\u03b9\u03bb\u03b9\u03ba\u03c1\u03b9\u03bd\u03ae \u03bc\u03b1\u03c2 \u03b5\u03c5\u03b3\u03bd\u03c9\u03bc\u03bf\u03c3\u03cd\u03bd\u03b7 \u03c3\u03c4\u03bf\u03c5\u03c2 \u03b5\u03b9\u03c3\u03b7\u03b3\u03b7\u03c4\u03ad\u03c2, \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03c3\u03c4\u03bf \u03c0\u03ac\u03bd\u03b5\u03bb, \u03c4\u03bf\u03c5\u03c2 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b1\u03c0\u03af\u03c3\u03c4\u03b5\u03c5\u03c4\u03b7 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 ECD \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03b1\u03c5\u03c4\u03bf\u03cd \u03c4\u03bf\u03c5 \u03b3\u03b5\u03b3\u03bf\u03bd\u03cc\u03c4\u03bf\u03c2. \u0399\u03b4\u03b9\u03b1\u03af\u03c4\u03b5\u03c1\u03b5\u03c2 \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03af\u03b5\u03c2 \u03c3\u03c4\u03bf\u03bd Dr. Xavier Solanich \u03ba\u03b1\u03b9 \u03c4\u03bf \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03b9\u03b1\u03ba\u03cc \u039d\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf Bellvitge \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b5\u03c5\u03b3\u03b5\u03bd\u03b9\u03ba\u03ae \u03c6\u03b9\u03bb\u03bf\u03be\u03b5\u03bd\u03af\u03b1 \u03c4\u03b7\u03c2 \u03c6\u03b5\u03c4\u03b9\u03bd\u03ae\u03c2 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7\u03c2 \ufffc. <\/p>\n<p><strong>\u0392\u03bf\u03b7\u03b8\u03ae\u03c3\u03c4\u03b5 \u03bc\u03b1\u03c2 \u03bd\u03b1 \u03b4\u03b9\u03b1\u03b4\u03ce\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7 \u03bb\u03ad\u03be\u03b7<\/strong><\/p>\n<p>\u039c\u03bf\u03b9\u03c1\u03b1\u03c3\u03c4\u03b5\u03af\u03c4\u03b5 \u03c4\u03b1 \u03b2\u03af\u03bd\u03c4\u03b5\u03bf \u03bc\u03b5 \u03ac\u03bb\u03bb\u03bf\u03c5\u03c2 \u03c0\u03bf\u03c5 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b5\u03c0\u03c9\u03c6\u03b5\u03bb\u03b7\u03b8\u03bf\u03cd\u03bd. \u0395\u03af\u03c4\u03b5 \u03b5\u03af\u03c3\u03c4\u03b5 \u03bd\u03b5\u03bf\u03b4\u03b9\u03b1\u03b3\u03bd\u03c9\u03c3\u03b8\u03b5\u03af\u03c2, \u03b5\u03af\u03c4\u03b5 \u03bc\u03b1\u03ba\u03c1\u03bf\u03c7\u03c1\u03cc\u03bd\u03b9\u03bf\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ae\u03c2, \u03b5\u03af\u03c4\u03b5 \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ae\u03c2, \u03b5\u03af\u03c4\u03b5 \u03c0\u03ac\u03c1\u03bf\u03c7\u03bf\u03c2 \u03c5\u03b3\u03b5\u03b9\u03bf\u03bd\u03bf\u03bc\u03b9\u03ba\u03ae\u03c2 \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7\u03c2 &#8211; \u03b1\u03c5\u03c4\u03ad\u03c2 \u03bf\u03b9 \u03c0\u03b7\u03b3\u03ad\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03b5\u03c3\u03ac\u03c2. <\/p>\n<p>\u03a0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03ae\u03c3\u03c4\u03b5 \u03c4\u03b7\u03bd \u03c0\u03bb\u03ae\u03c1\u03b7 \u03bb\u03af\u03c3\u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03b1\u03c1\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03c3\u03c4\u03bf YouTube<\/p>\n<p>\u039c\u03b1\u03b6\u03af, \u03ba\u03ac\u03bd\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03cc\u03c1\u03b7\u03c3\u03b7, \u03c4\u03b7 \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b5\u03bb\u03c0\u03af\u03b4\u03b1 \u03c0\u03b9\u03bf \u03c0\u03c1\u03bf\u03c3\u03b9\u03c4\u03ad\u03c2 \u03b1\u03c0\u03cc \u03c0\u03bf\u03c4\u03ad.<\/p>\n<p><strong>\u03a3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 ECD<\/strong><\/p>\n<p>\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA) \u03b5\u03af\u03bd\u03b1\u03b9 \u03ad\u03bd\u03b1\u03c2 \u03bc\u03b7 \u03ba\u03b5\u03c1\u03b4\u03bf\u03c3\u03ba\u03bf\u03c0\u03b9\u03ba\u03cc\u03c2 \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03cc\u03c2 501(c)(3) \u03b1\u03c6\u03b9\u03b5\u03c1\u03c9\u03bc\u03ad\u03bd\u03bf\u03c2 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7, \u03c4\u03b7\u03bd \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7, \u03c4\u03b7\u03bd \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester. \u0391\u03c0\u03cc \u03c4\u03bf 2008, \u03ad\u03c7\u03bf\u03c5\u03bc\u03b5 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03be\u03b5\u03b9 \u03c0\u03ac\u03bd\u03c9 \u03b1\u03c0\u03cc 1.050 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03c3\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03b1\u03c0\u03cc 75 \u03c7\u03ce\u03c1\u03b5\u03c2. <\/p>\n<blockquote><p>&#8220;\u038c\u03bb\u03bf\u03b9 \u03b1\u03be\u03af\u03b6\u03bf\u03c5\u03bd \u03bc\u03b9\u03b1 \u03c3\u03b1\u03bd\u03af\u03b4\u03b1 \u03c3\u03c9\u03c4\u03b7\u03c1\u03af\u03b1\u03c2. \u039a\u03b1\u03bd\u03b5\u03af\u03c2 \u03b4\u03b5\u03bd \u03c0\u03c1\u03ad\u03c0\u03b5\u03b9 \u03bd\u03b1 \u03b1\u03b9\u03c3\u03b8\u03ac\u03bd\u03b5\u03c4\u03b1\u03b9 \u03bc\u03cc\u03bd\u03bf\u03c2.&#8221;<br \/>\nKathy Brewer, \u0399\u03b4\u03c1\u03cd\u03c4\u03c1\u03b9\u03b1 \u03c4\u03b7\u03c2 ECDGA<\/p><\/blockquote>\n<p><em>\u03a4\u03bf Erdheim-Chester Disease Global Alliance (ECDGA) \u03b4\u03b5\u03bd \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03b9 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ad\u03c2, \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ae \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2. \u038c\u03bb\u03bf \u03c4\u03bf \u03c0\u03b5\u03c1\u03b9\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03c0\u03c1\u03bf\u03bf\u03c1\u03af\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bc\u03cc\u03bd\u03bf \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c3\u03ba\u03bf\u03c0\u03bf\u03cd\u03c2. \u03a0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03c5\u03c4\u03b5\u03af\u03c4\u03b5 \u03ad\u03bd\u03b1\u03bd \u03c0\u03ac\u03c1\u03bf\u03c7\u03bf \u03c5\u03b3\u03b5\u03b9\u03bf\u03bd\u03bf\u03bc\u03b9\u03ba\u03ae\u03c2 \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7\u03c2 \u03b3\u03b9\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03b1\u03bd\u03b7\u03c3\u03c5\u03c7\u03af\u03b5\u03c2.  <\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 ECD (ECDGA) \u03b1\u03bd\u03b1\u03ba\u03bf\u03b9\u03bd\u03ce\u03bd\u03b5\u03b9 \u03bc\u03b5 \u03c5\u03c0\u03b5\u03c1\u03b7\u03c6\u03ac\u03bd\u03b5\u03b9\u03b1 \u03c4\u03b7\u03bd \u03ba\u03c5\u03ba\u03bb\u03bf\u03c6\u03bf\u03c1\u03af\u03b1 \u03c4\u03c9\u03bd \u03c0\u03bb\u03ae\u03c1\u03c9\u03bd \u03b2\u03b9\u03bd\u03c4\u03b5\u03bf\u03c3\u03ba\u03bf\u03c0\u03ae\u03c3\u03b5\u03c9\u03bd \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd 2025 \u0395\u03c4\u03ae\u03c3\u03b9\u03b1 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7. \u0391\u03bd \u03b4\u03b5\u03bd \u03bc\u03c0\u03bf\u03c1\u03ad\u03c3\u03b1\u03c4\u03b5 \u03bd\u03b1 \u03c0\u03b1\u03c1\u03b5\u03c5\u03c1\u03b5\u03b8\u03b5\u03af\u03c4\u03b5 \u03b1\u03c5\u03c4\u03bf\u03c0\u03c1\u03bf\u03c3\u03ce\u03c0\u03c9\u03c2 \u03ae [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":83929,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":{"disabled":true},"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[424],"tags":[4178,545,536,4184,2289,4182,3650,3364,537,3870,2527,532],"class_list":["post-83922","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ecdga-","tag-communitypower-el","tag-ecdga-el","tag-ecd","tag-endrare-el","tag-erdheimchester-el","tag-globalimpact-el","tag-hopeinmotion-el","tag-patientadvocacy-el","tag-rarebutstrong-el","tag-rarediseaseawareness-el","tag-2527","tag--erdheimchester"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/83922","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=83922"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/83922\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/83929"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=83922"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=83922"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=83922"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}