\u038c\u03c4\u03b1\u03bd \u03c0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd Erdheim-Chester Disease (ECD), \u03ba\u03ac\u03b8\u03b5 \u03bc\u03af\u03bb\u03b9 \u03bc\u03b5\u03c4\u03c1\u03ac\u03b5\u03b9 – \u03ba\u03b1\u03b9 \u03ba\u03ac\u03b8\u03b5 \u03bc\u03ad\u03b8\u03bf\u03b4\u03bf\u03c2 \u03ba\u03af\u03bd\u03b7\u03c3\u03b7\u03c2 \u03ad\u03c7\u03b5\u03b9 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1. \u03a3\u03c4\u03bf 2024 ECDGA Fun Run, \u03bc\u03b9\u03b1 \u03b1\u03c0\u03af\u03c3\u03c4\u03b5\u03c5\u03c4\u03b7 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03bc\u03b1\u03c2 \u03c4\u03bf \u03c5\u03c0\u03b5\u03bd\u03b8\u03cd\u03bc\u03b9\u03c3\u03b5 \u03b1\u03c5\u03c4\u03cc \u03bc\u03b5 \u03c4\u03bf\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03bf \u03b4\u03c5\u03bd\u03b1\u03c4\u03cc \u03c4\u03c1\u03cc\u03c0\u03bf. <\/p>\n
\u0393\u03bd\u03c9\u03c1\u03af\u03c3\u03c4\u03b5 \u03c4\u03b7\u03bd \u03bf\u03bc\u03ac\u03b4\u03b1 Peddling Froetschers – \u03ad\u03bd\u03b1<\/strong>\u03b4\u03c5\u03bd\u03b1\u03bc\u03b9\u03ba\u03cc \u03b4\u03af\u03b4\u03c5\u03bc\u03bf \u03c0\u03bf\u03c5 \u03b1\u03bd\u03c4\u03ac\u03bb\u03bb\u03b1\u03be\u03b5 \u03c4\u03b1 \u03b1\u03b8\u03bb\u03b7\u03c4\u03b9\u03ba\u03ac \u03c0\u03b1\u03c0\u03bf\u03cd\u03c4\u03c3\u03b9\u03b1 \u03bc\u03b5 \u03c4\u03b9\u03c2 \u03b1\u03ba\u03c4\u03af\u03bd\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03ad\u03c6\u03b5\u03c1\u03b5 \u03bc\u03b9\u03b1 \u03b5\u03c0\u03b9\u03c0\u03bb\u03ad\u03bf\u03bd \u03c4\u03b1\u03c7\u03cd\u03c4\u03b7\u03c4\u03b1 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c4\u03ae\u03c3\u03b9\u03b1 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7. \u0395\u03c0\u03b9\u03bb\u03ad\u03b3\u03bf\u03bd\u03c4\u03b1\u03c2 \u03bd\u03b1 \u03b4\u03b9\u03b1\u03bd\u03cd\u03c3\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c0\u03bf\u03b4\u03ae\u03bb\u03b1\u03c4\u03bf \u03c4\u03bf Fun Run, \u03cc\u03c7\u03b9 \u03bc\u03cc\u03bd\u03bf \u03ad\u03ba\u03b1\u03bd\u03b1\u03bd \u03bc\u03b9\u03b1 \u03b5\u03bd\u03c4\u03c5\u03c0\u03c9\u03c3\u03b9\u03b1\u03ba\u03ae \u03b4\u03b9\u03b1\u03b4\u03c1\u03bf\u03bc\u03ae, \u03b1\u03bb\u03bb\u03ac \u03ba\u03b1\u03b9 \u03b1\u03c0\u03bf\u03c4\u03ad\u03bb\u03b5\u03c3\u03b1\u03bd \u03c0\u03b1\u03c1\u03ac\u03b4\u03b5\u03b9\u03b3\u03bc\u03b1 \u03c4\u03bf\u03c5 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03b9\u03ba\u03bf\u03cd \u03ba\u03b1\u03b9 \u03c7\u03c9\u03c1\u03af\u03c2 \u03b1\u03c0\u03bf\u03ba\u03bb\u03b5\u03b9\u03c3\u03bc\u03bf\u03cd\u03c2 \u03c0\u03bd\u03b5\u03cd\u03bc\u03b1\u03c4\u03bf\u03c2 \u03c0\u03bf\u03c5 \u03c7\u03b1\u03c1\u03b1\u03ba\u03c4\u03b7\u03c1\u03af\u03b6\u03b5\u03b9 \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03ac \u03bc\u03b1\u03c2. <\/p>\n \u03a4\u03bf Fun Run \u03b4\u03b5\u03bd \u03b5\u03af\u03c7\u03b5 \u03c0\u03bf\u03c4\u03ad \u03bd\u03b1 \u03ba\u03ac\u03bd\u03b5\u03b9 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03c4\u03b1\u03c7\u03cd\u03c4\u03b7\u03c4\u03b1 \u03ae \u03c4\u03b7\u03bd \u03b1\u03c0\u03cc\u03c3\u03c4\u03b1\u03c3\u03b7. \u0388\u03c7\u03b5\u03b9 \u03bd\u03b1 \u03ba\u03ac\u03bd\u03b5\u03b9 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b5\u03bc\u03c6\u03ac\u03bd\u03b9\u03c3\u03b7. \u0388\u03c7\u03b5\u03b9 \u03bd\u03b1 \u03ba\u03ac\u03bd\u03b5\u03b9 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03ba\u03af\u03bd\u03b7\u03c3\u03b7, \u03c4\u03b7\u03bd \u03c0\u03b1\u03c1\u03b1\u03ba\u03af\u03bd\u03b7\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03bc\u03bd\u03ae\u03bc\u03b7. \u0395\u03af\u03c4\u03b5 \u03c0\u03b5\u03c1\u03c0\u03b1\u03c4\u03ac\u03c4\u03b5 \u03bc\u03b5 \u03c6\u03af\u03bb\u03bf\u03c5\u03c2, \u03b5\u03af\u03c4\u03b5 \u03c4\u03c1\u03ad\u03c7\u03b5\u03c4\u03b5 \u03bc\u03b5 \u03b1\u03bd\u03b1\u03c0\u03b7\u03c1\u03b9\u03ba\u03cc \u03b1\u03bc\u03b1\u03be\u03af\u03b4\u03b9\u03bf, \u03b5\u03af\u03c4\u03b5 \u03c4\u03c1\u03ad\u03c7\u03b5\u03c4\u03b5 \u03bc\u03cc\u03bd\u03bf\u03b9 \u03c3\u03b1\u03c2, \u03b5\u03af\u03c4\u03b5 -\u03cc\u03c0\u03c9\u03c2 \u03bf\u03b9 Froetschers- \u03c0\u03b5\u03c1\u03c0\u03b1\u03c4\u03ac\u03c4\u03b5 \u03bc\u03ad\u03c3\u03b1 \u03b1\u03c0\u03cc \u03ad\u03bd\u03b1 \u03b5\u03ba\u03c0\u03bb\u03b7\u03ba\u03c4\u03b9\u03ba\u03cc \u03bf\u03c1\u03b5\u03b9\u03bd\u03cc \u03c4\u03bf\u03c0\u03af\u03bf, \u03ba\u03ac\u03b8\u03b5 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03c9\u03bd \u03bc\u03b1\u03c2 \u03c6\u03ad\u03c1\u03bd\u03b5\u03b9 \u03c0\u03b9\u03bf \u03ba\u03bf\u03bd\u03c4\u03ac \u03c3\u03c4\u03b7\u03bd \u03b1\u03c0\u03bf\u03c3\u03c4\u03bf\u03bb\u03ae \u03bc\u03b1\u03c2: \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7, \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7, \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester.<\/strong> <\/p>\n \u0397 \u03bf\u03bc\u03ac\u03b4\u03b1 Peddling Froetschers \u03b4\u03b5\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03ac\u03b3\u03bd\u03c9\u03c3\u03c4\u03b7 \u03c3\u03c4\u03b7\u03bd \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b1 ECDGA. \u0397 \u03c3\u03c5\u03bd\u03b5\u03c7\u03ae\u03c2 \u03b1\u03c6\u03bf\u03c3\u03af\u03c9\u03c3\u03ae \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03bf\u03b9\u03ba\u03bf\u03b4\u03cc\u03bc\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03b5\u03bd\u03c3\u03b1\u03c1\u03ba\u03ce\u03bd\u03b5\u03b9 \u03c4\u03b7\u03bd \u03b5\u03bb\u03c0\u03af\u03b4\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b1\u03bd\u03b8\u03b5\u03ba\u03c4\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c0\u03bf\u03c5 \u03bf\u03b4\u03b7\u03b3\u03bf\u03cd\u03bd \u03c4\u03b9\u03c2 \u03c0\u03c1\u03bf\u03c3\u03c0\u03ac\u03b8\u03b5\u03b9\u03ad\u03c2 \u03bc\u03b1\u03c2. \u0395\u03c0\u03b9\u03bb\u03ad\u03b3\u03bf\u03bd\u03c4\u03b1\u03c2 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c4\u03bf\u03bd \u03b4\u03b9\u03ba\u03cc \u03c4\u03bf\u03c5\u03c2 \u03c4\u03c1\u03cc\u03c0\u03bf, \u03b4\u03af\u03bd\u03bf\u03c5\u03bd \u03ad\u03bd\u03b1 \u03b9\u03c3\u03c7\u03c5\u03c1\u03cc \u03c0\u03b1\u03c1\u03ac\u03b4\u03b5\u03b9\u03b3\u03bc\u03b1: \u03cc\u03c4\u03b9 \u03b4\u03b5\u03bd \u03c5\u03c0\u03ac\u03c1\u03c7\u03b5\u03b9 \u201c\u03c3\u03c9\u03c3\u03c4\u03cc\u03c2 \u03c4\u03c1\u03cc\u03c0\u03bf\u03c2\u201d \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03c3\u03c4\u03bf Fun Run – \u03bc\u03cc\u03bd\u03bf \u03bf \u03b4\u03b9\u03ba\u03cc\u03c2 \u03c3\u03b1\u03c2 \u03c4\u03c1\u03cc\u03c0\u03bf\u03c2<\/em>. <\/p>\n \u0395\u03af\u03bc\u03b1\u03c3\u03c4\u03b5 \u03b1\u03c0\u03af\u03c3\u03c4\u03b5\u03c5\u03c4\u03b1 \u03b5\u03c5\u03b3\u03bd\u03ce\u03bc\u03bf\u03bd\u03b5\u03c2 \u03c3\u03c4\u03b7\u03bd \u03bf\u03bc\u03ac\u03b4\u03b1 Peddling Froetschers \u03b3\u03b9\u03b1 \u03c4\u03bf \u03c0\u03ac\u03b8\u03bf\u03c2, \u03c4\u03b7 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03c5\u03c0\u03b5\u03c1\u03ac\u03c3\u03c0\u03b9\u03c3\u03ae \u03c4\u03bf\u03c5\u03c2.<\/strong><\/p>\n \u039a\u03b1\u03b8\u03ce\u03c2 \u03c0\u03c1\u03bf\u03c3\u03b2\u03bb\u03ad\u03c0\u03bf\u03c5\u03bc\u03b5 \u03c3\u03c4\u03bf \u03c6\u03b5\u03c4\u03b9\u03bd\u03cc Fun Run, \u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 -\u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2, \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c6\u03af\u03bb\u03bf\u03c5\u03c2- \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03bc\u03b5 \u03cc\u03c0\u03bf\u03b9\u03bf\u03bd \u03c4\u03c1\u03cc\u03c0\u03bf \u03b1\u03b9\u03c3\u03b8\u03ac\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b1. \u0395\u03af\u03c4\u03b5 \u03ba\u03c5\u03bb\u03ac\u03c4\u03b5, \u03b5\u03af\u03c4\u03b5 \u03c0\u03b5\u03c1\u03c0\u03b1\u03c4\u03ac\u03c4\u03b5, \u03b5\u03af\u03c4\u03b5 \u03c3\u03c0\u03c1\u03b9\u03bd\u03c4\u03ac\u03c1\u03b5\u03c4\u03b5, \u03b5\u03af\u03c4\u03b5 \u03ba\u03ac\u03bd\u03b5\u03c4\u03b5 \u03c0\u03bf\u03b4\u03ae\u03bb\u03b1\u03c4\u03bf, \u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c3\u03b1\u03c2 \u03ad\u03c7\u03b5\u03b9 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1. \u039c\u03b1\u03b6\u03af, \u03b5\u03af\u03bc\u03b1\u03c3\u03c4\u03b5 \u03c0\u03b9\u03bf \u03b4\u03c5\u03bd\u03b1\u03c4\u03bf\u03af \u03ba\u03b1\u03b9 \u03bc\u03b1\u03b6\u03af, \u03c3\u03c5\u03bd\u03b5\u03c7\u03af\u03b6\u03bf\u03c5\u03bc\u03b5. <\/p>\n \u0395\u03af\u03c3\u03c4\u03b5 \u03ad\u03c4\u03bf\u03b9\u03bc\u03bf\u03b9 \u03bd\u03b1 \u03ba\u03ac\u03bd\u03b5\u03c4\u03b5 \u03c4\u03b1 \u03bc\u03af\u03bb\u03b9\u03b1 \u03c3\u03b1\u03c2 \u03bd\u03b1 \u03bc\u03b5\u03c4\u03c1\u03ac\u03bd\u03b5; \u039c\u03ac\u03b8\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03ba\u03b1\u03b9 \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af\u03c4\u03b5 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03c6\u03b5\u03c4\u03b9\u03bd\u03cc Fun Run: 2025 Fun Run<\/a> <\/p>\n \u03a4\u03bf Erdheim-Chester Disease Global Alliance (ECDGA) \u03b4\u03b5\u03bd \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03b9 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ad\u03c2, \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ae \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2. \u038c\u03bb\u03bf \u03c4\u03bf \u03c0\u03b5\u03c1\u03b9\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03c0\u03c1\u03bf\u03bf\u03c1\u03af\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bc\u03cc\u03bd\u03bf \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c3\u03ba\u03bf\u03c0\u03bf\u03cd\u03c2. \u03a0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03c5\u03c4\u03b5\u03af\u03c4\u03b5 \u03ad\u03bd\u03b1\u03bd \u03c0\u03ac\u03c1\u03bf\u03c7\u03bf \u03c5\u03b3\u03b5\u03b9\u03bf\u03bd\u03bf\u03bc\u03b9\u03ba\u03ae\u03c2 \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7\u03c2 \u03b3\u03b9\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03b1\u03bd\u03b7\u03c3\u03c5\u03c7\u03af\u03b5\u03c2. <\/em><\/p>\n","protected":false},"excerpt":{"rendered":" \u038c\u03c4\u03b1\u03bd \u03c0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd Erdheim-Chester Disease (ECD), \u03ba\u03ac\u03b8\u03b5 \u03bc\u03af\u03bb\u03b9 \u03bc\u03b5\u03c4\u03c1\u03ac\u03b5\u03b9 – \u03ba\u03b1\u03b9 \u03ba\u03ac\u03b8\u03b5 \u03bc\u03ad\u03b8\u03bf\u03b4\u03bf\u03c2 \u03ba\u03af\u03bd\u03b7\u03c3\u03b7\u03c2 \u03ad\u03c7\u03b5\u03b9 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1. \u03a3\u03c4\u03bf 2024 ECDGA Fun Run, \u03bc\u03b9\u03b1 \u03b1\u03c0\u03af\u03c3\u03c4\u03b5\u03c5\u03c4\u03b7 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03bc\u03b1\u03c2 \u03c4\u03bf 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