{"id":74714,"date":"2025-05-27T10:33:03","date_gmt":"2025-05-27T14:33:03","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%ce%bf-%cf%80%ce%b1%cf%84%ce%ad%cf%81%ce%b1%cf%82-charles-balnaves-%ce%bf%ce%bd%ce%bf%ce%bc%ce%ac%cf%83%cf%84%ce%b7%ce%ba%ce%b5-ecdga-community-champion\/"},"modified":"2025-05-27T10:33:03","modified_gmt":"2025-05-27T14:33:03","slug":"%ce%bf-%cf%80%ce%b1%cf%84%ce%ad%cf%81%ce%b1%cf%82-charles-balnaves-%ce%bf%ce%bd%ce%bf%ce%bc%ce%ac%cf%83%cf%84%ce%b7%ce%ba%ce%b5-ecdga-community-champion","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/%ce%bf-%cf%80%ce%b1%cf%84%ce%ad%cf%81%ce%b1%cf%82-charles-balnaves-%ce%bf%ce%bd%ce%bf%ce%bc%ce%ac%cf%83%cf%84%ce%b7%ce%ba%ce%b5-ecdga-community-champion\/","title":{"rendered":"\u039f \u03c0\u03b1\u03c4\u03ad\u03c1\u03b1\u03c2 Charles Balnaves \u03bf\u03bd\u03bf\u03bc\u03ac\u03c3\u03c4\u03b7\u03ba\u03b5 ECDGA Community Champion"},"content":{"rendered":"<p>\u039a\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03bf\u03c5 2025 Patient and Family Gathering \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7, \u03bf \u03c0\u03b1\u03c4\u03ad\u03c1\u03b1\u03c2 Charles Balnaves \u03b1\u03bd\u03b1\u03b3\u03bd\u03c9\u03c1\u03af\u03c3\u03c4\u03b7\u03ba\u03b5 \u03c9\u03c2 \u03bf \u03a0\u03c1\u03c9\u03c4\u03b1\u03b8\u03bb\u03b7\u03c4\u03ae\u03c2 \u03c4\u03b7\u03c2 \u039a\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 ECDGA. \u0397 \u03c4\u03b9\u03bc\u03ae \u03b1\u03c5\u03c4\u03ae \u03b1\u03c0\u03bf\u03bd\u03ad\u03bc\u03b5\u03c4\u03b1\u03b9 \u03c3\u03b5 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b5\u03bd\u03c3\u03b1\u03c1\u03ba\u03ce\u03bd\u03bf\u03c5\u03bd \u03c4\u03bf \u03c0\u03bd\u03b5\u03cd\u03bc\u03b1 \u03c4\u03b7\u03c2 \u03c3\u03c5\u03bc\u03c0\u03cc\u03bd\u03b9\u03b1\u03c2, \u03c4\u03b7\u03c2 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03c5\u03c0\u03b5\u03c1\u03ac\u03c3\u03c0\u03b9\u03c3\u03b7\u03c2 \u03b5\u03bd\u03c4\u03cc\u03c2 \u03c4\u03bf\u03c5 Erdheim-Chester \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03c4\u03b7\u03c2 \u03bd\u03cc\u03c3\u03bf\u03c5. <\/p>\n<p>\u0397 \u03b1\u03c4\u03b1\u03bb\u03ac\u03bd\u03c4\u03b5\u03c5\u03c4\u03b7 \u03b4\u03ad\u03c3\u03bc\u03b5\u03c5\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c0\u03b1\u03c4\u03ad\u03c1\u03b1 \u03a4\u03c3\u03b1\u03c1\u03bb\u03c2 \u03bd\u03b1 \u03b1\u03bd\u03b1\u03c3\u03b7\u03ba\u03ce\u03bd\u03b5\u03b9 \u03c4\u03bf\u03c5\u03c2 \u03ac\u03bb\u03bb\u03bf\u03c5\u03c2, \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c3\u03c6\u03ad\u03c1\u03b5\u03b9 \u03c0\u03b1\u03c1\u03b7\u03b3\u03bf\u03c1\u03b9\u03ac \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c9\u03b8\u03b5\u03af \u03c4\u03b7 \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03b7, \u03ad\u03c7\u03b5\u03b9 \u03b5\u03c0\u03b7\u03c1\u03b5\u03ac\u03c3\u03b5\u03b9 \u03b4\u03b9\u03b1\u03c7\u03c1\u03bf\u03bd\u03b9\u03ba\u03ac \u03c4\u03b9\u03c2 \u03b6\u03c9\u03ad\u03c2 \u03c0\u03bf\u03bb\u03bb\u03ce\u03bd \u03b1\u03bd\u03b8\u03c1\u03ce\u03c0\u03c9\u03bd \u03c0\u03bf\u03c5 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03b6\u03bf\u03c5\u03bd \u03c4\u03b9\u03c2 \u03c0\u03c1\u03bf\u03ba\u03bb\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c4\u03bf\u03c5 ECD. \u0395\u03af\u03bc\u03b1\u03c3\u03c4\u03b5 \u03c5\u03c0\u03b5\u03c1\u03ae\u03c6\u03b1\u03bd\u03bf\u03b9 \u03c0\u03bf\u03c5 \u03b3\u03b9\u03bf\u03c1\u03c4\u03ac\u03b6\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03b1\u03c6\u03bf\u03c3\u03af\u03c9\u03c3\u03ae \u03c4\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03ac \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b5\u03c7\u03af\u03b6\u03b5\u03b9 \u03bd\u03b1 \u03ba\u03ac\u03bd\u03b5\u03b9. <\/p>\n<p>\u039c\u03ac\u03b8\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b1\u03c0\u03bf\u03c3\u03c4\u03bf\u03bb\u03ae \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03ac \u03bc\u03b1\u03c2 \u03c3\u03c4\u03bf <a href=\"http:\/\/www.erdheim-chester.org\/\">www.erdheim-chester.org.<\/a><\/p>\n<p><em>\u03a4\u03bf Erdheim-Chester Disease Global Alliance (ECDGA) \u03b4\u03b5\u03bd \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03b9 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ad\u03c2, \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ae \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2. \u038c\u03bb\u03bf \u03c4\u03bf \u03c0\u03b5\u03c1\u03b9\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03c0\u03c1\u03bf\u03bf\u03c1\u03af\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bc\u03cc\u03bd\u03bf \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c3\u03ba\u03bf\u03c0\u03bf\u03cd\u03c2. \u03a0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03c5\u03c4\u03b5\u03af\u03c4\u03b5 \u03ad\u03bd\u03b1\u03bd \u03c0\u03ac\u03c1\u03bf\u03c7\u03bf \u03c5\u03b3\u03b5\u03b9\u03bf\u03bd\u03bf\u03bc\u03b9\u03ba\u03ae\u03c2 \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7\u03c2 \u03b3\u03b9\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03b1\u03bd\u03b7\u03c3\u03c5\u03c7\u03af\u03b5\u03c2.  <\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u039a\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03bf\u03c5 2025 Patient and Family Gathering \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7, \u03bf \u03c0\u03b1\u03c4\u03ad\u03c1\u03b1\u03c2 Charles Balnaves \u03b1\u03bd\u03b1\u03b3\u03bd\u03c9\u03c1\u03af\u03c3\u03c4\u03b7\u03ba\u03b5 \u03c9\u03c2 \u03bf \u03a0\u03c1\u03c9\u03c4\u03b1\u03b8\u03bb\u03b7\u03c4\u03ae\u03c2 \u03c4\u03b7\u03c2 \u039a\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 ECDGA. \u0397 \u03c4\u03b9\u03bc\u03ae \u03b1\u03c5\u03c4\u03ae \u03b1\u03c0\u03bf\u03bd\u03ad\u03bc\u03b5\u03c4\u03b1\u03b9 \u03c3\u03b5 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b5\u03bd\u03c3\u03b1\u03c1\u03ba\u03ce\u03bd\u03bf\u03c5\u03bd [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":74736,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[2287],"tags":[2428,2916,545,2694,538,2289,2917,2521,2519,2918,2617,2805,2527,2919,2434],"class_list":["post-74714","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-2287","tag-barcelona2025-el","tag-communitychampion-el","tag-ecdga-el","tag-ecdhope-el","tag-ecdsupport-el","tag-erdheimchester-el","tag-fathercharlesbalnaves-el","tag-globalsupport-el","tag-patientfamilygathering-el","tag-rarediseasecommunity-el","tag-supportandscience-el","tag--ecdr","tag-2527","tag-2919","tag-ecdga"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/74714","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=74714"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/74714\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/74736"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=74714"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=74714"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=74714"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}