{"id":67620,"date":"2025-01-02T20:24:39","date_gmt":"2025-01-03T01:24:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%ce%b8%ce%b1%cf%8d%ce%bc%ce%b1-%cf%83%cf%84%ce%bf-%cf%87%cf%89%cf%81%ce%ac%cf%86%ce%b9-%cf%84%ce%bf%cf%85-%ce%ba%ce%b1%ce%bb%ce%b1%ce%bc%cf%80%ce%bf%ce%ba%ce%b9%ce%bf%cf%8d\/"},"modified":"2025-01-02T20:24:39","modified_gmt":"2025-01-03T01:24:39","slug":"%ce%b8%ce%b1%cf%8d%ce%bc%ce%b1-%cf%83%cf%84%ce%bf-%cf%87%cf%89%cf%81%ce%ac%cf%86%ce%b9-%cf%84%ce%bf%cf%85-%ce%ba%ce%b1%ce%bb%ce%b1%ce%bc%cf%80%ce%bf%ce%ba%ce%b9%ce%bf%cf%8d","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/%ce%b8%ce%b1%cf%8d%ce%bc%ce%b1-%cf%83%cf%84%ce%bf-%cf%87%cf%89%cf%81%ce%ac%cf%86%ce%b9-%cf%84%ce%bf%cf%85-%ce%ba%ce%b1%ce%bb%ce%b1%ce%bc%cf%80%ce%bf%ce%ba%ce%b9%ce%bf%cf%8d\/","title":{"rendered":"\u0398\u03b1\u03cd\u03bc\u03b1 \u03c3\u03c4\u03bf \u03c7\u03c9\u03c1\u03ac\u03c6\u03b9 \u03c4\u03bf\u03c5 \u03ba\u03b1\u03bb\u03b1\u03bc\u03c0\u03bf\u03ba\u03b9\u03bf\u03cd"},"content":{"rendered":"<p>\u038c\u03c4\u03b1\u03bd \u03b7 \u03b5\u03bb\u03c0\u03af\u03b4\u03b1 \u03ae\u03c4\u03b1\u03bd \u03b1\u03bd\u03b5\u03c0\u03b1\u03c1\u03ba\u03ae\u03c2, \u03b1\u03c5\u03c4\u03cc Erdheim-Chester \u03b1\u03c3\u03b8\u03b5\u03bd\u03ae\u03c2 \u03bc\u03b5 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1 \u03b2\u03c1\u03ae\u03ba\u03b5 \u03bc\u03b9\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae \u03bf\u03bc\u03ac\u03b4\u03b1 \u03c0\u03bf\u03c5 \u03be\u03b5\u03c0\u03ad\u03c1\u03b1\u03c3\u03b5 \u03ba\u03ac\u03b8\u03b5 \u03cc\u03c1\u03b9\u03bf, \u03b4\u03af\u03bd\u03bf\u03bd\u03c4\u03ac\u03c2 \u03c4\u03bf\u03c5 \u03c4\u03b7\u03bd \u03b5\u03bb\u03c0\u03af\u03b4\u03b1 \u03c0\u03bf\u03c5 \u03c7\u03c1\u03b5\u03b9\u03b1\u03b6\u03cc\u03c4\u03b1\u03bd \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b1\u03c0\u03bf\u03ba\u03c4\u03ae\u03c3\u03b5\u03b9 \u03bc\u03b9\u03b1 \u03b6\u03c9\u03ae \u03c0\u03bf\u03c5 \u03b8\u03b1 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03c3\u03b5 \u03bd\u03b1 \u03b1\u03b3\u03ba\u03b1\u03bb\u03b9\u03ac\u03c3\u03b5\u03b9.<\/p>\n<p>\u0391\u03c0\u03cc \u03c4\u03bf\u03bd Adam Green<\/p>\n<p>\u03a4\u03bf\u03bd \u0399\u03bf\u03cd\u03bb\u03b9\u03bf \u03c4\u03bf\u03c5 2017, \u03ad\u03bb\u03b1\u03b2\u03b1 \u03ad\u03bd\u03b1 \u03c4\u03b7\u03bb\u03b5\u03c6\u03ce\u03bd\u03b7\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b8\u03b1 \u03ac\u03bb\u03bb\u03b1\u03b6\u03b5 \u03c4\u03b7 \u03b6\u03c9\u03ae \u03bc\u03bf\u03c5.<\/p>\n<p>\u0395\u03af\u03c7\u03b1 \u03c0\u03b5\u03c1\u03ac\u03c3\u03b5\u03b9 \u03c4\u03b1 \u03c0\u03c1\u03bf\u03b7\u03b3\u03bf\u03cd\u03bc\u03b5\u03bd\u03b1 \u03c4\u03c1\u03af\u03b1 \u03c7\u03c1\u03cc\u03bd\u03b9\u03b1 \u03b3\u03c5\u03c1\u03bd\u03ce\u03bd\u03c4\u03b1\u03c2 \u03b1\u03c0\u03cc \u03b5\u03b9\u03b4\u03b9\u03ba\u03cc \u03c3\u03b5 \u03b5\u03b9\u03b4\u03b9\u03ba\u03cc- \u03ba\u03b1\u03b8\u03cc\u03bc\u03bf\u03c5\u03bd \u03c3\u03b5 \u03b1\u03af\u03b8\u03bf\u03c5\u03c3\u03b5\u03c2 \u03b5\u03be\u03ad\u03c4\u03b1\u03c3\u03b7\u03c2 \u03bc\u03b5 <strong>\u03ad\u03bd\u03b1\u03bd \u03b1\u03c3\u03c5\u03bd\u03ae\u03b8\u03b9\u03c3\u03c4\u03bf \u03b1\u03c3\u03c4\u03b5\u03c1\u03b9\u03c3\u03bc\u03cc \u03c3\u03c5\u03bc\u03c0\u03c4\u03c9\u03bc\u03ac\u03c4\u03c9\u03bd \u03ba\u03b1\u03b9 \u03bc\u03b7 \u03c6\u03c5\u03c3\u03b9\u03bf\u03bb\u03bf\u03b3\u03b9\u03ba\u03ac \u03b5\u03c1\u03b3\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03b1\u03ba\u03ac<\/strong> \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bc\u03b1\u03c4\u03b1, \u03b5\u03bd\u03ce \u03bf\u03b9 \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03af \u03ad\u03be\u03c5\u03bd\u03b1\u03bd \u03c4\u03bf \u03ba\u03b5\u03c6\u03ac\u03bb\u03b9 \u03c4\u03bf\u03c5\u03c2. \u039c\u03bf\u03c5 \u03ad\u03ba\u03b1\u03bd\u03b1\u03bd \u03bc\u03b5\u03c1\u03b9\u03ba\u03ad\u03c2 \u03c3\u03ba\u03ad\u03c8\u03b5\u03b9\u03c2 \u03b5\u03bd\u03ce \u03ba\u03c1\u03b1\u03c4\u03bf\u03cd\u03c3\u03b1\u03bd \u03c4\u03b9\u03c2 \u03c3\u03b7\u03bc\u03b5\u03b9\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c4\u03bf\u03c5\u03c2, \u03bc\u03b5\u03c4\u03ac \u03bc\u03bf\u03c5 \u03ad\u03b4\u03b9\u03bd\u03b1\u03bd \u03c4\u03bf \u03c7\u03ad\u03c1\u03b9 \u03ba\u03b1\u03b9 \u03bc\u03b5 \u03c0\u03b1\u03c1\u03ad\u03c0\u03b5\u03bc\u03c0\u03b1\u03bd \u03c3\u03b5 \u03ac\u03bb\u03bb\u03bf\u03bd \u03b5\u03b9\u03b4\u03b9\u03ba\u03cc. \u038a\u03c3\u03c9\u03c2 \u03b5\u03ba\u03b5\u03af\u03bd\u03bf\u03b9 \u03bd\u03b1 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03c3\u03b1\u03bd \u03bd\u03b1 \u03bc\u03bf\u03c5 \u03b4\u03ce\u03c3\u03bf\u03c5\u03bd \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2.  <\/p>\n<p>\u039f \u0386\u03bd\u03c4\u03b1\u03bc \u03c3\u03c5\u03bd\u03b1\u03bd\u03c4\u03ac\u03c4\u03b1\u03b9 \u03bc\u03b5 \u03bc\u03b9\u03b1 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03b3\u03b9\u03b1\u03c4\u03c1\u03ce\u03bd \u03c0\u03bf\u03c5 \u03b5\u03c0\u03b5\u03be\u03b5\u03c1\u03b3\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03c4\u03bf \u03c3\u03c7\u03ad\u03b4\u03b9\u03bf \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1\u03c2 \u03c4\u03bf\u03c5.<\/p>\n<p>\u03a4\u03c1\u03af\u03b1 \u03c7\u03c1\u03cc\u03bd\u03b9\u03b1 \u03b1\u03bd\u03b1\u03b6\u03ae\u03c4\u03b7\u03c3\u03b7\u03c2 \u03b1\u03c5\u03c4\u03ce\u03bd \u03c4\u03c9\u03bd \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd \u03bc\u03b5 \u03bf\u03b4\u03ae\u03b3\u03b7\u03c3\u03b1\u03bd \u03c3\u03c4\u03b7\u03bd \u039a\u03bb\u03b9\u03bd\u03b9\u03ba\u03ae \u039c\u03ac\u03b3\u03b9\u03bf \u03c3\u03c4\u03bf \u03a1\u03cc\u03c4\u03c3\u03b5\u03c3\u03c4\u03b5\u03c1 \u03c4\u03b7\u03c2 \u039c\u03b9\u03bd\u03b5\u03c3\u03cc\u03c4\u03b1. \u03a4\u03bf \u201c\u03b8\u03b1\u03cd\u03bc\u03b1 \u03c3\u03c4\u03bf \u03c7\u03c9\u03c1\u03ac\u03c6\u03b9 \u03c4\u03bf\u03c5 \u03ba\u03b1\u03bb\u03b1\u03bc\u03c0\u03bf\u03ba\u03b9\u03bf\u03cd\u201d. \u0388\u03bd\u03b1 \u03bc\u03ad\u03c1\u03bf\u03c2 \u03cc\u03c0\u03bf\u03c5 \u03ac\u03bd\u03b8\u03c1\u03c9\u03c0\u03bf\u03b9 \u03b1\u03c0\u03cc \u03ba\u03ac\u03b8\u03b5 \u03c7\u03ce\u03c1\u03b1 \u03c4\u03bf\u03c5 \u03c0\u03bb\u03b1\u03bd\u03ae\u03c4\u03b7 \u03ad\u03c1\u03c7\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03bd\u03b1\u03b6\u03b7\u03c4\u03ce\u03bd\u03c4\u03b1\u03c2 \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2. \u039a\u03b1\u03b9 \u03c4\u03bf 2017 \u03ae\u03c4\u03b1\u03bd \u03b7 \u039a\u03bb\u03b9\u03bd\u03b9\u03ba\u03ae \u039c\u03ac\u03b3\u03b9\u03bf \u03c0\u03bf\u03c5 \u03bc\u03bf\u03c5 \u03c4\u03b7\u03bb\u03b5\u03c6\u03ce\u03bd\u03b7\u03c3\u03b5 \u03c3\u03c4\u03bf \u03c4\u03b7\u03bb\u03ad\u03c6\u03c9\u03bd\u03cc \u03bc\u03bf\u03c5. \u0395\u03c0\u03b9\u03c4\u03ad\u03bb\u03bf\u03c5\u03c2, \u03b5\u03af\u03c7\u03b1\u03bd \u03ba\u03ac\u03c0\u03bf\u03b9\u03b5\u03c2 \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03bc\u03ad\u03bd\u03b1.    <\/p>\n<p><strong>\u0394\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03c4\u03b7\u03ba\u03b1 \u03bc\u03b5 \u03bc\u03b9\u03b1 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03bc\u03bf\u03c1\u03c6\u03ae \u03ba\u03b1\u03c1\u03ba\u03af\u03bd\u03bf\u03c5 \u03c0\u03bf\u03c5 \u03bf\u03bd\u03bf\u03bc\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 Erdheim-Chester Disease, \u03ae ECD \u03b3\u03b9\u03b1 \u03c3\u03c5\u03bd\u03c4\u03bf\u03bc\u03af\u03b1.<\/strong>  \u03a0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03ba\u03b1\u03c1\u03ba\u03af\u03bd\u03bf \u03c4\u03bf\u03c5 \u03b1\u03af\u03bc\u03b1\u03c4\u03bf\u03c2, \u03ba\u03b1\u03b9 \u03b5\u03bd\u03ce \u03cc\u03bb\u03bf\u03b9 \u03bf\u03b9 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03c4\u03bf\u03c5 ECD \u03c4\u03b5\u03af\u03bd\u03bf\u03c5\u03bd \u03bd\u03b1 \u03bc\u03bf\u03b9\u03c1\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ba\u03ac\u03c0\u03bf\u03b9\u03b1 \u03ba\u03bf\u03b9\u03bd\u03ac \u03c3\u03c5\u03bc\u03c0\u03c4\u03ce\u03bc\u03b1\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c3\u03c4\u03b9\u03c2 \u03b1\u03c0\u03b5\u03b9\u03ba\u03bf\u03bd\u03b9\u03c3\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b5\u03be\u03b5\u03c4\u03ac\u03c3\u03b5\u03b9\u03c2 \u03ba.\u03bb\u03c0., \u03b7 \u03c3\u03bf\u03b2\u03b1\u03c1\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 \u03bd\u03cc\u03c3\u03bf\u03c5 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03ba\u03c5\u03bc\u03b1\u03af\u03bd\u03b5\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03ba\u03b1\u03bb\u03bf\u03ae\u03b8\u03b7 \u03ad\u03c9\u03c2 \u03b1\u03c0\u03b5\u03b9\u03bb\u03b7\u03c4\u03b9\u03ba\u03ae \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b6\u03c9\u03ae.<\/p>\n<p><strong>\u0398\u03b5\u03c9\u03c1\u03ce \u03c4\u03bf\u03bd \u03b5\u03b1\u03c5\u03c4\u03cc \u03bc\u03bf\u03c5 \u03c4\u03c5\u03c7\u03b5\u03c1\u03cc \u03c0\u03bf\u03c5 \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03c4\u03b7\u03ba\u03b1 \u03cc\u03c4\u03b1\u03bd \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03c4\u03b7\u03ba\u03b1.<\/strong>  \u03a4\u03bf 2008, \u03b7 Kathy Brewer \u03af\u03b4\u03c1\u03c5\u03c3\u03b5 \u03c4\u03bf Erdheim-Chester Disease Global Alliance (ECDGA). \u0395\u03af\u03c7\u03b5 \u03c7\u03ac\u03c3\u03b5\u03b9 \u03c4\u03bf\u03bd \u03c3\u03cd\u03b6\u03c5\u03b3\u03cc \u03c4\u03b7\u03c2 \u03c4\u03bf\u03bd \u03c0\u03c1\u03bf\u03b7\u03b3\u03bf\u03cd\u03bc\u03b5\u03bd\u03bf \u03c7\u03c1\u03cc\u03bd\u03bf \u03bc\u03b5\u03c4\u03ac \u03b1\u03c0\u03cc \u03bc\u03b1\u03ba\u03c1\u03bf\u03c7\u03c1\u03cc\u03bd\u03b9\u03b1 \u03bc\u03ac\u03c7\u03b7 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03ad\u03b3\u03b9\u03bd\u03b5 \u03bc\u03cc\u03bd\u03bf \u03bc\u03b5\u03c4\u03ac \u03c4\u03b7 \u03bd\u03b5\u03ba\u03c1\u03bf\u03c8\u03af\u03b1. \u0391\u03bd\u03b1\u03ba\u03b1\u03bb\u03cd\u03c6\u03b8\u03b7\u03ba\u03b5 \u03cc\u03c4\u03b9 \u03c4\u03bf ECD \u03ae\u03c4\u03b1\u03bd \u03b7 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1 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ECDGA \u03cc\u03c7\u03b9 \u03bc\u03cc\u03bd\u03bf \u03ad\u03c6\u03b5\u03c1\u03b5 \u03b1\u03c5\u03be\u03b7\u03bc\u03ad\u03bd\u03b7 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1, \u03b1\u03bb\u03bb\u03ac \u03b7 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03ae \u03c4\u03b7\u03c2 \u03bf\u03b4\u03ae\u03b3\u03b7\u03c3\u03b5 \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03c3\u03b5 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03c1\u03bf\u03cc\u03b4\u03bf\u03c5\u03c2 \u03c3\u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c4\u03c1\u03cc\u03c0\u03bf\u03c5 \u03bb\u03b5\u03b9\u03c4\u03bf\u03c5\u03c1\u03b3\u03af\u03b1\u03c2 \u03c4\u03b7\u03c2 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