{"id":61899,"date":"2020-05-19T14:20:21","date_gmt":"2020-05-19T18:20:21","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%ce%b5%ce%be%ce%ac%cf%83%ce%ba%ce%b7%cf%83%ce%b7-%cf%84%ce%b7%cf%82-%ce%b1%cf%83%cf%86%ce%ac%ce%bb%ce%b5%ce%b9%ce%b1%cf%82-%cf%83%cf%84%ce%bf%ce%bd-%ce%ae%ce%bb%ce%b9%ce%bf-%ce%bc%ce%b5-ecd\/"},"modified":"2020-05-19T14:20:21","modified_gmt":"2020-05-19T18:20:21","slug":"%ce%b5%ce%be%ce%ac%cf%83%ce%ba%ce%b7%cf%83%ce%b7-%cf%84%ce%b7%cf%82-%ce%b1%cf%83%cf%86%ce%ac%ce%bb%ce%b5%ce%b9%ce%b1%cf%82-%cf%83%cf%84%ce%bf%ce%bd-%ce%ae%ce%bb%ce%b9%ce%bf-%ce%bc%ce%b5-ecd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/%ce%b5%ce%be%ce%ac%cf%83%ce%ba%ce%b7%cf%83%ce%b7-%cf%84%ce%b7%cf%82-%ce%b1%cf%83%cf%86%ce%ac%ce%bb%ce%b5%ce%b9%ce%b1%cf%82-%cf%83%cf%84%ce%bf%ce%bd-%ce%ae%ce%bb%ce%b9%ce%bf-%ce%bc%ce%b5-ecd\/","title":{"rendered":"\u0395\u03be\u03ac\u03c3\u03ba\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b1\u03c3\u03c6\u03ac\u03bb\u03b5\u03b9\u03b1\u03c2 \u03c3\u03c4\u03bf\u03bd \u03ae\u03bb\u03b9\u03bf \u03bc\u03b5 ECD"},"content":{"rendered":"

\u039a\u03b1\u03b8\u03ce\u03c2 \u03b7 \u03ac\u03bd\u03bf\u03b9\u03be\u03b7 \u03b1\u03c0\u03bf\u03bc\u03b1\u03ba\u03c1\u03cd\u03bd\u03b5\u03c4\u03b1\u03b9 \u03ba\u03b1\u03b9 \u03c4\u03bf \u03ba\u03b1\u03bb\u03bf\u03ba\u03b1\u03af\u03c1\u03b9 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c3\u03b5 \u03b1\u03c0\u03cc\u03c3\u03c4\u03b1\u03c3\u03b7 \u03b1\u03bd\u03b1\u03c0\u03bd\u03bf\u03ae\u03c2, \u03b7 \u03c6\u03c5\u03c3\u03b9\u03ba\u03ae \u03bc\u03b1\u03c2 \u03b5\u03c0\u03b9\u03b8\u03c5\u03bc\u03af\u03b1 \u03bd\u03b1 \u03b1\u03c0\u03bf\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03cd\u03c0\u03b1\u03b9\u03b8\u03c1\u03bf \u03b5\u03bd\u03c4\u03b5\u03af\u03bd\u03b5\u03c4\u03b1\u03b9. \u03a9\u03c3\u03c4\u03cc\u03c3\u03bf, \u03b1\u03ba\u03cc\u03bc\u03b7 \u03ba\u03b1\u03b9 \u03b7 \u03c0\u03b5\u03c1\u03b9\u03bf\u03c1\u03b9\u03c3\u03bc\u03ad\u03bd\u03b7 \u03ad\u03ba\u03b8\u03b5\u03c3\u03b7 \u03c3\u03c4\u03bf\u03bd \u03ae\u03bb\u03b9\u03bf \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03c0\u03b9\u03ba\u03af\u03bd\u03b4\u03c5\u03bd\u03b7 \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 ECD \u03c5\u03c0\u03cc \u03bf\u03c1\u03b9\u03c3\u03bc\u03ad\u03bd\u03b5\u03c2 \u03c3\u03c4\u03bf\u03c7\u03b5\u03c5\u03bc\u03ad\u03bd\u03b5\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2. \u0395\u03ac\u03bd \u03c5\u03c0\u03bf\u03b2\u03ac\u03bb\u03bb\u03b5\u03c3\u03c4\u03b5 \u03c3\u03b5 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03bc\u03b5 \u03b1\u03bd\u03b1\u03c3\u03c4\u03bf\u03bb\u03ad\u03b1 BRAF \u03ae MEK, \u03ae \u03b1\u03c0\u03bb\u03ce\u03c2 \u03b1\u03c0\u03bf\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03b5\u03c4\u03b5 \u03bd\u03b1 \u03b2\u03c1\u03af\u03c3\u03ba\u03b5\u03c3\u03c4\u03b5 \u03ad\u03be\u03c9 \u03c4\u03bf \u03ba\u03b1\u03bb\u03bf\u03ba\u03b1\u03af\u03c1\u03b9, \u03b2\u03b5\u03b2\u03b1\u03b9\u03c9\u03b8\u03b5\u03af\u03c4\u03b5 \u03cc\u03c4\u03b9 \u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03b5\u03c4\u03b5 \u03c4\u03b9\u03c2 \u03ba\u03b1\u03c4\u03ac\u03bb\u03bb\u03b7\u03bb\u03b5\u03c2 \u03c0\u03c1\u03bf\u03c6\u03c5\u03bb\u03ac\u03be\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b1\u03c3\u03c6\u03ac\u03bb\u03b5\u03b9\u03b1 \u03c3\u03c4\u03bf\u03bd \u03ae\u03bb\u03b9\u03bf. <\/p>\n

\u039f \u03b4\u03b5\u03c1\u03bc\u03b1\u03c4\u03bf\u03bb\u03cc\u03b3\u03bf\u03c2, St\u00e9phane Barete, MD, PhD, \u03c3\u03c4\u03bf ECD Care Center Piti\u00e9 -Salp\u00eatri\u00e8re Hospital \u03c3\u03c4\u03bf \u03a0\u03b1\u03c1\u03af\u03c3\u03b9, \u03bc\u03af\u03bb\u03b7\u03c3\u03b5 \u03bc\u03b5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03c3\u03c4\u03bf 2019 ECD Patient and Family Gathering \u03c3\u03c4\u03bf \u039c\u03b9\u03bb\u03ac\u03bd\u03bf \u03c4\u03b7\u03c2 \u0399\u03c4\u03b1\u03bb\u03af\u03b1\u03c2.
\n\u039f \u0394\u03c1 Barete \u03b5\u03be\u03b7\u03b3\u03b5\u03af: \u201c\u039c\u03b5 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03c5\u03c0\u03bf\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c3\u03b5 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03bc\u03b5 \u03b2\u03b5\u03bc\u03bf\u03c5\u03c1\u03b1\u03c6\u03b5\u03bd\u03af\u03bc\u03c0\u03b7, \u03c0\u03c1\u03ad\u03c0\u03b5\u03b9 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03bb\u03ac\u03b2\u03bf\u03c5\u03bc\u03b5 \u03bc\u03b5 \u03b5\u03be\u03b1\u03b9\u03c1\u03b5\u03c4\u03b9\u03ba\u03ae \u03c0\u03c1\u03bf\u03c6\u03cd\u03bb\u03b1\u03be\u03b7 \u03c4\u03b7\u03bd \u03b1\u03c0\u03bf\u03c6\u03c5\u03b3\u03ae \u03c4\u03bf\u03c5 \u03ae\u03bb\u03b9\u03bf\u03c5. \u03a5\u03c0\u03ac\u03c1\u03c7\u03bf\u03c5\u03bd \u03b4\u03b9\u03ac\u03c6\u03bf\u03c1\u03bf\u03b9 \u03bb\u03cc\u03b3\u03bf\u03b9, \u03b1\u03bb\u03bb\u03ac \u03bf\u03b9 \u03ba\u03c5\u03c1\u03b9\u03cc\u03c4\u03b5\u03c1\u03bf\u03b9 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bf\u03b9 \u03ba\u03b1\u03c1\u03ba\u03af\u03bd\u03bf\u03b9- \u03ba\u03b1\u03c1\u03ba\u03af\u03bd\u03bf\u03b9 \u03c4\u03bf\u03c5 \u03b4\u03ad\u03c1\u03bc\u03b1\u03c4\u03bf\u03c2, \u03bc\u03b5\u03bb\u03ac\u03bd\u03c9\u03bc\u03b1… \u0395\u03b9\u03b4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7 \u03b2\u03b5\u03bc\u03bf\u03c5\u03c1\u03b1\u03c6\u03b5\u03bd\u03af\u03bc\u03c0\u03b7, \u03c0\u03bf\u03c5 \u03bc\u03b5\u03b9\u03ce\u03bd\u03b5\u03b9 \u03c4\u03bf \u03cc\u03c1\u03b9\u03bf \u03b1\u03bd\u03bf\u03c7\u03ae\u03c2 \u03c4\u03b7\u03c2 UVA [\u03c9\u03c2 \u03b1\u03bd\u03b1\u03c6\u03bf\u03c1\u03ac \u03c4\u03b7 \u03c6\u03c9\u03c4\u03bf\u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c3\u03af\u03b1 \u03c4\u03bf\u03c5 \u03b4\u03ad\u03c1\u03bc\u03b1\u03c4\u03bf\u03c2]\u201d.<\/p>\n

\n

\u03a0\u03c1\u03bf\u03c4\u03ac\u03c3\u03b5\u03b9\u03c2 \u03c4\u03bf\u03c5 Dr. Barete \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b1\u03c3\u03c6\u03ac\u03bb\u03b5\u03b9\u03b1 \u03c3\u03c4\u03bf\u03bd \u03ae\u03bb\u03b9\u03bf:<\/strong><\/p>\n

\u039d\u03b1 \u03c6\u03bf\u03c1\u03ac\u03c4\u03b5 \u03b1\u03bd\u03c4\u03b7\u03bb\u03b9\u03b1\u03ba\u03cc \u03bc\u03b5 \u03b4\u03b5\u03af\u03ba\u03c4\u03b7 \u03c0\u03c1\u03bf\u03c3\u03c4\u03b1\u03c3\u03af\u03b1\u03c2 \u03c4\u03bf\u03c5\u03bb\u03ac\u03c7\u03b9\u03c3\u03c4\u03bf\u03bd 50 SPF \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03c4\u03bf \u03b5\u03c0\u03b1\u03bd\u03b1\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03b5\u03c4\u03b5 \u03c4\u03bf\u03c5\u03bb\u03ac\u03c7\u03b9\u03c3\u03c4\u03bf\u03bd \u03ba\u03ac\u03b8\u03b5 \u03b4\u03cd\u03bf \u03ce\u03c1\u03b5\u03c2. \u0395\u03c0\u03b1\u03bd\u03b1\u03bb\u03ac\u03b2\u03b5\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c6\u03b1\u03c1\u03bc\u03bf\u03b3\u03ae \u03bc\u03b5\u03c4\u03ac \u03c4\u03bf \u03ba\u03bf\u03bb\u03cd\u03bc\u03c0\u03b9 \u03ae \u03c4\u03b7\u03bd \u03b5\u03c6\u03af\u03b4\u03c1\u03c9\u03c3\u03b7. \u039c\u03b7\u03bd \u03be\u03b5\u03c7\u03bd\u03ac\u03c4\u03b5 \u03bd\u03b1 \u03c4\u03bf \u03b5\u03c6\u03b1\u03c1\u03bc\u03cc\u03b6\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b1 \u03b1\u03c5\u03c4\u03b9\u03ac, \u03c4\u03bf \u03c0\u03c1\u03cc\u03c3\u03c9\u03c0\u03bf \u03ba\u03b1\u03b9 \u03c4\u03bf \u03bb\u03b1\u03b9\u03bc\u03cc. <\/em><\/p>\n

\u03a6\u03bf\u03c1\u03ad\u03c3\u03c4\u03b5 \u03b1\u03bd\u03c4\u03b7\u03bb\u03b9\u03b1\u03ba\u03cc \u03b1\u03ba\u03cc\u03bc\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03c3\u03c5\u03bd\u03bd\u03b5\u03c6\u03b9\u03b1\u03c3\u03bc\u03ad\u03bd\u03b5\u03c2 \u03b7\u03bc\u03ad\u03c1\u03b5\u03c2! \u0395\u03b9\u03b4\u03b9\u03ba\u03ac \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03bf\u03c5 \u03ba\u03b1\u03bb\u03bf\u03ba\u03b1\u03b9\u03c1\u03b9\u03bf\u03cd. <\/em><\/p>\n

\u03a6\u03bf\u03c1\u03ad\u03c3\u03c4\u03b5 \u03c0\u03c1\u03bf\u03c3\u03c4\u03b1\u03c4\u03b5\u03c5\u03c4\u03b9\u03ba\u03cc \u03c1\u03bf\u03c5\u03c7\u03b9\u03c3\u03bc\u03cc, \u03cc\u03c0\u03c9\u03c2 \u03bc\u03b1\u03ba\u03c1\u03b9\u03ac \u03bc\u03b1\u03bd\u03af\u03ba\u03b9\u03b1\/\u03c0\u03b1\u03bd\u03c4\u03b5\u03bb\u03cc\u03bd\u03b9\u03b1, \u03cc\u03c4\u03b1\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03b4\u03c5\u03bd\u03b1\u03c4\u03cc\u03bd, \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03ba\u03b1\u03bb\u03cd\u03c8\u03b5\u03c4\u03b5 \u03c4\u03bf \u03b5\u03ba\u03c4\u03b5\u03b8\u03b5\u03b9\u03bc\u03ad\u03bd\u03bf \u03b4\u03ad\u03c1\u03bc\u03b1.<\/em><\/p>\n

\u03a6\u03bf\u03c1\u03ad\u03c3\u03c4\u03b5 \u03ba\u03b1\u03c0\u03ad\u03bb\u03bf \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03ba\u03b1\u03bb\u03cd\u03c8\u03b5\u03c4\u03b5 \u03c4\u03bf \u03c0\u03c1\u03cc\u03c3\u03c9\u03c0\u03bf \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03b1\u03c5\u03c4\u03b9\u03ac.<\/em><\/p>\n

\n

\u03a4\u03bf \u03be\u03ad\u03c1\u03b1\u03c4\u03b5;<\/strong><\/p>\n

\u039f\u03b9 \u03c5\u03c0\u03b5\u03c1\u03b9\u03ce\u03b4\u03b5\u03b9\u03c2 \u03b1\u03ba\u03c4\u03af\u03bd\u03b5\u03c2 \u03c4\u03bf\u03c5 \u03ae\u03bb\u03b9\u03bf\u03c5 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b9\u03c3\u03c7\u03c5\u03c1\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03bc\u03b5\u03c4\u03b1\u03be\u03cd 10 \u03c0.\u03bc. \u03ba\u03b1\u03b9 4 \u03bc.\u03bc.!<\/em>
\n\u0395\u03be\u03b5\u03c4\u03ac\u03c3\u03c4\u03b5 \u03c4\u03bf \u03b5\u03bd\u03b4\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03bd\u03b1 \u03b1\u03c0\u03bf\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03b5\u03c4\u03b5 \u03c4\u03b7\u03bd \u03cd\u03c0\u03b1\u03b9\u03b8\u03c1\u03bf \u03bd\u03c9\u03c1\u03af\u03c2 \u03c4\u03bf \u03c0\u03c1\u03c9\u03af \u03ae \u03b1\u03c1\u03b3\u03ac \u03c4\u03bf \u03b1\u03c0\u03cc\u03b3\u03b5\u03c5\u03bc\u03b1 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b1\u03c0\u03bf\u03c6\u03cd\u03b3\u03b5\u03c4\u03b5 \u03c4\u03b9\u03c2 \u03b9\u03c3\u03c7\u03c5\u03c1\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03b1\u03ba\u03c4\u03af\u03bd\u03b5\u03c2 UV.<\/p>\n

\u0397 \u03c0\u03c1\u03cc\u03b2\u03bb\u03b5\u03c8\u03b7 \u03c4\u03bf\u03c5 \u03b4\u03b5\u03af\u03ba\u03c4\u03b7 UV \u03b5\u03ba\u03b4\u03af\u03b4\u03b5\u03c4\u03b1\u03b9 \u03ba\u03b1\u03b8\u03b7\u03bc\u03b5\u03c1\u03b9\u03bd\u03ac \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u0395\u03b8\u03bd\u03b9\u03ba\u03ae \u039c\u03b5\u03c4\u03b5\u03c9\u03c1\u03bf\u03bb\u03bf\u03b3\u03b9\u03ba\u03ae \u03a5\u03c0\u03b7\u03c1\u03b5\u03c3\u03af\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd EPA!<\/em>
\n\u03a0\u03c1\u03b9\u03bd \u03ba\u03ac\u03bd\u03b5\u03c4\u03b5 \u03c3\u03c7\u03ad\u03b4\u03b9\u03b1 \u03b3\u03b9\u03b1 \u03b5\u03be\u03c9\u03c4\u03b5\u03c1\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c7\u03ce\u03c1\u03bf\u03c5\u03c2, \u03b5\u03be\u03b5\u03c4\u03ac\u03c3\u03c4\u03b5 \u03c4\u03bf \u03b5\u03bd\u03b4\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03bd\u03b1 \u03b5\u03bb\u03ad\u03b3\u03be\u03b5\u03c4\u03b5 \u03c4\u03b1 \u03b5\u03c0\u03af\u03c0\u03b5\u03b4\u03b1 \u03c4\u03bf\u03c5 \u03b4\u03b5\u03af\u03ba\u03c4\u03b7 \u03c5\u03c0\u03b5\u03c1\u03b9\u03ce\u03b4\u03bf\u03c5\u03c2 \u03b1\u03ba\u03c4\u03b9\u03bd\u03bf\u03b2\u03bf\u03bb\u03af\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03b7\u03b3\u03bf\u03c1\u03af\u03b1 \u03ad\u03ba\u03b8\u03b5\u03c3\u03b7\u03c2.<\/p>\n

\u03a4\u03b1 \u03b3\u03c5\u03b1\u03bb\u03b9\u03ac \u03b7\u03bb\u03af\u03bf\u03c5 \u03c0\u03c1\u03bf\u03c3\u03c4\u03b1\u03c4\u03b5\u03cd\u03bf\u03c5\u03bd \u03c4\u03b1 \u03bc\u03ac\u03c4\u03b9\u03b1 \u03c3\u03b1\u03c2 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03c5\u03c0\u03b5\u03c1\u03b9\u03ce\u03b4\u03b7 \u03b1\u03ba\u03c4\u03b9\u03bd\u03bf\u03b2\u03bf\u03bb\u03af\u03b1!<\/em>
\n\u03a4\u03b7\u03bd \u03b5\u03c0\u03cc\u03bc\u03b5\u03bd\u03b7 \u03c6\u03bf\u03c1\u03ac \u03c0\u03bf\u03c5 \u03b8\u03b1 \u03b1\u03b3\u03bf\u03c1\u03ac\u03c3\u03b5\u03c4\u03b5 \u03b3\u03c5\u03b1\u03bb\u03b9\u03ac \u03b7\u03bb\u03af\u03bf\u03c5, \u03c3\u03b7\u03bc\u03b5\u03b9\u03ce\u03c3\u03c4\u03b5 \u03cc\u03c4\u03b9 \u03c4\u03b1 \u03b3\u03c5\u03b1\u03bb\u03b9\u03ac \u03b7\u03bb\u03af\u03bf\u03c5 \u03c0\u03bf\u03c5 \u03b5\u03bc\u03c0\u03bf\u03b4\u03af\u03b6\u03bf\u03c5\u03bd \u03c4\u03cc\u03c3\u03bf \u03c4\u03b9\u03c2 \u03b1\u03ba\u03c4\u03af\u03bd\u03b5\u03c2 UVA \u03cc\u03c3\u03bf \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03b1\u03ba\u03c4\u03af\u03bd\u03b5\u03c2 UVB \u03c0\u03c1\u03bf\u03c3\u03c6\u03ad\u03c1\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03c0\u03c1\u03bf\u03c3\u03c4\u03b1\u03c3\u03af\u03b1. \u03a4\u03b1 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03b3\u03c5\u03b1\u03bb\u03b9\u03ac \u03b7\u03bb\u03af\u03bf\u03c5 \u03c0\u03bf\u03c5 \u03c0\u03c9\u03bb\u03bf\u03cd\u03bd\u03c4\u03b1\u03b9 \u03c3\u03c4\u03b9\u03c2 \u0397\u03a0\u0391 \u03c0\u03bb\u03b7\u03c1\u03bf\u03cd\u03bd \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03c0\u03c1\u03cc\u03c4\u03c5\u03c0\u03bf. <\/p>\n

\n

\u0398\u03c5\u03bc\u03b7\u03b8\u03b5\u03af\u03c4\u03b5, \u03b1\u03bd \u03c0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03b1\u03c0\u03bf\u03bb\u03b1\u03cd\u03c3\u03b5\u03c4\u03b5 \u03c4\u03b7 \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7 \u03c6\u03cd\u03c3\u03b7 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03ba\u03b1\u03bb\u03bf\u03ba\u03b1\u03af\u03c1\u03b9, \u03b2\u03b5\u03b2\u03b1\u03b9\u03c9\u03b8\u03b5\u03af\u03c4\u03b5 \u03cc\u03c4\u03b9 \u03b5\u03c6\u03b1\u03c1\u03bc\u03cc\u03b6\u03b5\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b1\u03c3\u03c6\u03ac\u03bb\u03b5\u03b9\u03b1 \u03c3\u03c4\u03bf\u03bd \u03ae\u03bb\u03b9\u03bf!<\/p>\n

*\u0393\u03b9\u03b1 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03bf ECD \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c4\u03bf\u03c5 \u03b4\u03ad\u03c1\u03bc\u03b1\u03c4\u03bf\u03c2:<\/p>\n

\u0397 \u03b1\u03c0\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 Dr. Barete \u03c3\u03b5 \u03b5\u03c1\u03ce\u03c4\u03b7\u03c3\u03b7 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c3\u03af\u03b1\u03c2 \u03c6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b1\u03c2 \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03bf\u03c5 Ask the Experts \u03c3\u03c4\u03bf Patient and Family Gathering 2019. \u0397 \u03b5\u03c1\u03ce\u03c4\u03b7\u03c3\u03b7\/\u03b1\u03c0\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b2\u03c1\u03af\u03c3\u03ba\u03b5\u03c4\u03b1\u03b9 \u03c3\u03c4\u03b1 44 \u03bb\u03b5\u03c0\u03c4\u03ac \u03c4\u03bf\u03c5 \u03b2\u03af\u03bd\u03c4\u03b5\u03bf. https:\/\/youtu.be\/QcEVBl9bTpY<\/a><\/p>\n

\u03a3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c4\u03bf\u03c5 \u03b4\u03ad\u03c1\u03bc\u03b1\u03c4\u03bf\u03c2 – St\u00e9phane Barete, MD, PhD ~ \u0391\u03c5\u03c4\u03cc \u03c4\u03bf \u03b2\u03af\u03bd\u03c4\u03b5\u03bf \u03b5\u03af\u03bd\u03b1\u03b9 \u03ad\u03bd\u03b1 \u03b1\u03c0\u03cc\u03c3\u03c0\u03b1\u03c3\u03bc\u03b1 \u03b1\u03c0\u03cc \u03c4\u03bf 7\u03bf \u0395\u03c4\u03ae\u03c3\u03b9\u03bf Erdheim-Chester Disease Global Alliance Patient and Family Gathering \u03c3\u03c4\u03bf \u039c\u03b9\u03bb\u03ac\u03bd\u03bf \u03c4\u03b7\u03c2 \u0399\u03c4\u03b1\u03bb\u03af\u03b1\u03c2. \u039f St\u00e9phane Barete, MD, PhD \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03b9\u03ac\u03b6\u03b5\u03b9 \u03c4\u03b9\u03c2 \u03c0\u03b1\u03c1\u03b1\u03bb\u03bb\u03b1\u03b3\u03ad\u03c2 \u03c4\u03b7\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae\u03c2 \u03c4\u03bf\u03c5 \u03b4\u03ad\u03c1\u03bc\u03b1\u03c4\u03bf\u03c2 \u03c3\u03c4\u03bf ECD.
\nhttps:\/\/youtu.be\/RrrQgZyoCrQ<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

\u039a\u03b1\u03b8\u03ce\u03c2 \u03b7 \u03ac\u03bd\u03bf\u03b9\u03be\u03b7 \u03b1\u03c0\u03bf\u03bc\u03b1\u03ba\u03c1\u03cd\u03bd\u03b5\u03c4\u03b1\u03b9 \u03ba\u03b1\u03b9 \u03c4\u03bf \u03ba\u03b1\u03bb\u03bf\u03ba\u03b1\u03af\u03c1\u03b9 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c3\u03b5 \u03b1\u03c0\u03cc\u03c3\u03c4\u03b1\u03c3\u03b7 \u03b1\u03bd\u03b1\u03c0\u03bd\u03bf\u03ae\u03c2, \u03b7 \u03c6\u03c5\u03c3\u03b9\u03ba\u03ae \u03bc\u03b1\u03c2 \u03b5\u03c0\u03b9\u03b8\u03c5\u03bc\u03af\u03b1 \u03bd\u03b1 \u03b1\u03c0\u03bf\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03cd\u03c0\u03b1\u03b9\u03b8\u03c1\u03bf \u03b5\u03bd\u03c4\u03b5\u03af\u03bd\u03b5\u03c4\u03b1\u03b9. \u03a9\u03c3\u03c4\u03cc\u03c3\u03bf, \u03b1\u03ba\u03cc\u03bc\u03b7 \u03ba\u03b1\u03b9 \u03b7 \u03c0\u03b5\u03c1\u03b9\u03bf\u03c1\u03b9\u03c3\u03bc\u03ad\u03bd\u03b7 \u03ad\u03ba\u03b8\u03b5\u03c3\u03b7 \u03c3\u03c4\u03bf\u03bd \u03ae\u03bb\u03b9\u03bf \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 […]<\/p>\n","protected":false},"author":14,"featured_media":61902,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[940],"tags":[1254,830,1253,1255,828,1252,826,835],"class_list":["post-61899","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category---ecd","tag-cobimetinib-el","tag-erdheim-chester-el","tag-vemurafenib-el","tag-1255","tag-828","tag-1252","tag-826","tag-835"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/61899","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=61899"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/61899\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/61902"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=61899"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=61899"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=61899"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}