{"id":61518,"date":"2021-02-17T17:02:46","date_gmt":"2021-02-17T22:02:46","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/2021-%ce%b7%ce%bc%ce%ad%cf%81%ce%b1-%cf%83%cf%80%ce%b1%ce%bd%ce%af%cf%89%ce%bd-%cf%80%ce%b1%ce%b8%ce%ae%cf%83%ce%b5%cf%89%ce%bd\/"},"modified":"2025-08-23T18:18:48","modified_gmt":"2025-08-23T22:18:48","slug":"2021-%ce%b7%ce%bc%ce%ad%cf%81%ce%b1-%cf%83%cf%80%ce%b1%ce%bd%ce%af%cf%89%ce%bd-%cf%80%ce%b1%ce%b8%ce%ae%cf%83%ce%b5%cf%89%ce%bd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/2021-%ce%b7%ce%bc%ce%ad%cf%81%ce%b1-%cf%83%cf%80%ce%b1%ce%bd%ce%af%cf%89%ce%bd-%cf%80%ce%b1%ce%b8%ce%ae%cf%83%ce%b5%cf%89%ce%bd\/","title":{"rendered":"2021 \u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03b1\u03bd\u03af\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd"},"content":{"rendered":"<h1><strong>\u03a4\u0399 \u0395\u038a\u039d\u0391\u0399 \u0397 \u0397\u039c\u0388\u03a1\u0391 \u03a3\u03a0\u0386\u039d\u0399\u03a9\u039d \u0391\u03a3\u0398\u0395\u039d\u0395\u0399\u038f\u039d;<\/strong><\/h1>\n<p>\u0397 <em>28\u03b7 \u03a6\u03b5\u03b2\u03c1\u03bf\u03c5\u03b1\u03c1\u03af\u03bf\u03c5 2021<\/em> \u03b8\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 14\u03b7 \u0394\u03b9\u03b5\u03b8\u03bd\u03ae\u03c2 \u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bd\u03c4\u03bf\u03bd\u03af\u03b6\u03b5\u03b9 \u03b7 EURORDIS. \u03a4\u03b7\u03bd \u03b7\u03bc\u03ad\u03c1\u03b1 \u03b1\u03c5\u03c4\u03ae \u03ba\u03b1\u03b9 \u03b3\u03cd\u03c1\u03c9 \u03b1\u03c0\u03cc \u03b1\u03c5\u03c4\u03ae\u03bd, \u03b5\u03ba\u03b1\u03c4\u03bf\u03bd\u03c4\u03ac\u03b4\u03b5\u03c2 \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03b1\u03c0\u03cc \u03c7\u03ce\u03c1\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c0\u03b5\u03c1\u03b9\u03bf\u03c7\u03ad\u03c2 \u03c3\u03b5 \u03cc\u03bb\u03bf \u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf \u03b8\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03ae\u03c3\u03bf\u03c5\u03bd \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7\u03c2. &nbsp;&nbsp;<\/p>\n<p>\u03a0\u03b5\u03c1\u03af\u03c0\u03bf\u03c5 300 \u03b5\u03ba\u03b1\u03c4\u03bf\u03bc\u03bc\u03cd\u03c1\u03b9\u03b1 \u03ac\u03bd\u03b8\u03c1\u03c9\u03c0\u03bf\u03b9 (\u03c0\u03b5\u03c1\u03af\u03c0\u03bf\u03c5 \u03c4\u03bf 5% \u03c4\u03bf\u03c5 \u03c0\u03bb\u03b7\u03b8\u03c5\u03c3\u03bc\u03bf\u03cd) \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc \u03bc\u03b9\u03b1 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1. \u039c\u03ad\u03c3\u03b1 \u03c3\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf 5%, \u03bb\u03b9\u03b3\u03cc\u03c4\u03b5\u03c1\u03bf\u03b9 \u03b1\u03c0\u03cc 1.000 \u03ac\u03bd\u03b8\u03c1\u03c9\u03c0\u03bf\u03b9 \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc Erdheim-Chester \u0391\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1 \u03c0\u03b1\u03b3\u03ba\u03bf\u03c3\u03bc\u03af\u03c9\u03c2. &nbsp;&nbsp;<\/p>\n<p><strong>\u03a3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b7\u03bd \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 ECD \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2, \u03bc\u03bf\u03b9\u03c1\u03b1\u03b6\u03cc\u03bc\u03b5\u03bd\u03bf\u03b9 \u03c4\u03b7\u03bd \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b1 \u03c3\u03b1\u03c2 \u03bc\u03b5 \u03c4\u03bf ECD.<\/strong>&nbsp;&nbsp;<\/p>\n<p><a href=\"https:\/\/twitter.com\/intent\/tweet?url=https%3A\/\/youtu.be\/3bxaP9FJKnk&amp;text=Rare%20Disease%20Day%202021%20official%20video&amp;via=YouTube&amp;related=YouTube,YouTubeTrends,YTCreators\" target=\"_blank\" rel=\"noopener noreferrer\">\u0395\u03c0\u03af\u03c3\u03b7\u03bc\u03bf \u03b2\u03af\u03bd\u03c4\u03b5\u03bf \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03b1\u03bd\u03af\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd&nbsp;<\/a><\/p>\n<p>\u0392\u03c1\u03b5\u03af\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03bf\u03c5\u03c2 \u03c0\u03cc\u03c1\u03bf\u03c5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03c1\u03cc\u03c0\u03bf\u03c5\u03c2 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7\u03c2 \u03c3\u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03bf\u03c3\u03b5\u03bb\u03af\u03b4\u03b1 \u03bc\u03b1\u03c2 <a title=\"\u0394\u03b9\u03b1\u03b4\u03ce\u03c3\u03c4\u03b5 \u03c4\u03b7 \u03bb\u03ad\u03be\u03b7\" href=\"https:\/\/www.erdheim-chester.org\/el\/%ce%b4%ce%b9%ce%b1%ce%b4%cf%8e%cf%83%cf%84%ce%b5-%cf%84%ce%b7-%ce%bb%ce%ad%ce%be%ce%b7\/\">Spread the Word<\/a> \u03ae \u03c3\u03c4\u03bf\u03bd <a href=\"https:\/\/www.rarediseaseday.org\/article\/get-involved\">\u03b9\u03c3\u03c4\u03cc\u03c4\u03bf\u03c0\u03bf \u03c4\u03b7\u03c2 \u0397\u03bc\u03ad\u03c1\u03b1\u03c2 \u03a3\u03c0\u03b1\u03bd\u03af\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd<\/a>.<\/p>\n<p>\u039c\u03bf\u03b9\u03c1\u03b1\u03c3\u03c4\u03b5\u03af\u03c4\u03b5 \u03c4\u03b7 \u03bc\u03ad\u03c1\u03b1 \u03c3\u03b1\u03c2 \u03bc\u03b1\u03b6\u03af \u03bc\u03b1\u03c2 \u03c3\u03c4\u03b1 \u03bc\u03ad\u03c3\u03b1 \u03bc\u03b1\u03b6\u03b9\u03ba\u03ae\u03c2 \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7\u03c2, \u03ba\u03ac\u03bd\u03bf\u03bd\u03c4\u03b1\u03c2 tag @ECDGA \u03c3\u03c4\u03bf Facebook \u03ba\u03b1\u03b9 \u03c7\u03c1\u03b7\u03c3\u03b9\u03bc\u03bf\u03c0\u03bf\u03b9\u03ce\u03bd\u03c4\u03b1\u03c2 \u03c4\u03bf #ECDawareness \u03c3\u03b5 \u03bf\u03c0\u03bf\u03b9\u03bf\u03b4\u03ae\u03c0\u03bf\u03c4\u03b5 \u03bc\u03ad\u03c3\u03bf \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7\u03c2. \u0398\u03b1 \u03c4\u03bf \u03b5\u03ba\u03c4\u03b9\u03bc\u03bf\u03cd\u03c3\u03b1\u03bc\u03b5 \u03b1\u03bd \u03b5\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03bf\u03cd\u03c3\u03b1\u03c4\u03b5 \u03bc\u03b1\u03b6\u03af \u03bc\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c7\u03c1\u03b7\u03c3\u03b9\u03bc\u03bf\u03c0\u03bf\u03b9\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b1, \u03c4\u03bf \u03b1\u03c0\u03cc\u03c3\u03c0\u03b1\u03c3\u03bc\u03b1, \u03c4\u03b7 \u03c6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b1 \u03ba\u03b1\u03b9\/\u03ae \u03c4\u03b7\u03bd \u03b1\u03bd\u03ac\u03c1\u03c4\u03b7\u03c3\u03ae \u03c3\u03b1\u03c2 \u03c3\u03c4\u03b9\u03c2 \u03c3\u03b5\u03bb\u03af\u03b4\u03b5\u03c2 \u03c4\u03c9\u03bd \u03bc\u03ad\u03c3\u03c9\u03bd \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7\u03c2 ECDGA. <\/p>\n<p><strong>\u0394\u03b9\u03b1\u03b2\u03ac\u03c3\u03c4\u03b5 \u03c4\u03b7 \u03bd\u03b5\u03cc\u03c4\u03b5\u03c1\u03b7 \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b1 \u03b1\u03c3\u03b8\u03b5\u03bd\u03bf\u03cd\u03c2 \u03bc\u03b1\u03c2, \u03c0\u03bf\u03c5 \u03b4\u03b7\u03bc\u03bf\u03c3\u03b9\u03b5\u03cd\u03c4\u03b7\u03ba\u03b5 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03c6\u03b5\u03c4\u03b9\u03bd\u03ae \u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd: <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/02\/A-Spiritual-Journey-Through-ECD-Dean-William.pdf\">\u0388\u03bd\u03b1 \u03c0\u03bd\u03b5\u03c5\u03bc\u03b1\u03c4\u03b9\u03ba\u03cc \u03c4\u03b1\u03be\u03af\u03b4\u03b9 \u03bc\u03ad\u03c3\u03b1 \u03b1\u03c0\u03cc ECD<\/a><\/strong><\/p>\n<p><strong>\u039c\u03bf\u03b9\u03c1\u03b1\u03c3\u03c4\u03b5\u03af\u03c4\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03c6\u03c5\u03bb\u03bb\u03ac\u03b4\u03b9\u03bf \u03c3\u03c4\u03b9\u03c2 \u03c3\u03b5\u03bb\u03af\u03b4\u03b5\u03c2 \u03c3\u03b1\u03c2 \u03c3\u03c4\u03b1 \u03bc\u03ad\u03c3\u03b1 \u03bc\u03b1\u03b6\u03b9\u03ba\u03ae\u03c2 \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7\u03c2 \u03ae \u03bc\u03ad\u03c3\u03c9 email <\/strong><strong>\u03bc\u03b5 \u03c4\u03b9\u03c2 \u03b5\u03c0\u03b1\u03c6\u03ad\u03c2 \u03c3\u03b1\u03c2!<\/strong><\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/02\/Rare-Disease-Day-2021-flyer.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-medium wp-image-19547\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/02\/Rare-Disease-Day-2021-flyer-232x300.jpg\" alt=\"\" width=\"232\" height=\"300\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/02\/Rare-Disease-Day-2021-flyer-232x300.jpg 232w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/02\/Rare-Disease-Day-2021-flyer-791x1024.jpg 791w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/02\/Rare-Disease-Day-2021-flyer-768x994.jpg 768w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/02\/Rare-Disease-Day-2021-flyer-1187x1536.jpg 1187w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/02\/Rare-Disease-Day-2021-flyer.jpg 1545w\" sizes=\"(max-width: 232px) 100vw, 232px\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p><em><strong>\u038c,\u03c4\u03b9 \u03ba\u03b9 \u03b1\u03bd \u03ba\u03ac\u03bd\u03b5\u03c4\u03b5 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03b1\u03bd\u03af\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd, \u03b7 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03c5\u03c0\u03b5\u03c1\u03ac\u03c3\u03c0\u03b9\u03c3\u03ae\u03c2 \u03c3\u03b1\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03b4\u03ce \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c3\u03b1\u03c2 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03be\u03b5\u03b9 \u03c3\u03c4\u03bf \u03c4\u03b1\u03be\u03af\u03b4\u03b9 \u03c3\u03b1\u03c2! \u03a3\u03b1\u03c2 \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03bf\u03cd\u03bc\u03b5 \u03c0\u03bf\u03c5 \u03ba\u03bf\u03c5\u03b2\u03b1\u03bb\u03ac\u03c4\u03b5 \u03bc\u03b5 \u03c5\u03c0\u03b5\u03c1\u03b7\u03c6\u03ac\u03bd\u03b5\u03b9\u03b1 \u03c4\u03b7 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03ba\u03bf\u03c1\u03b4\u03ad\u03bb\u03b1 \u03c3\u03b1\u03c2! <\/strong><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u03a4\u0399 \u0395\u038a\u039d\u0391\u0399 \u0397 \u0397\u039c\u0388\u03a1\u0391 \u03a3\u03a0\u0386\u039d\u0399\u03a9\u039d \u0391\u03a3\u0398\u0395\u039d\u0395\u0399\u038f\u039d; \u0397 28\u03b7 \u03a6\u03b5\u03b2\u03c1\u03bf\u03c5\u03b1\u03c1\u03af\u03bf\u03c5 2021 \u03b8\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 14\u03b7 \u0394\u03b9\u03b5\u03b8\u03bd\u03ae\u03c2 \u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bd\u03c4\u03bf\u03bd\u03af\u03b6\u03b5\u03b9 \u03b7 EURORDIS. \u03a4\u03b7\u03bd \u03b7\u03bc\u03ad\u03c1\u03b1 \u03b1\u03c5\u03c4\u03ae \u03ba\u03b1\u03b9 \u03b3\u03cd\u03c1\u03c9 \u03b1\u03c0\u03cc \u03b1\u03c5\u03c4\u03ae\u03bd, \u03b5\u03ba\u03b1\u03c4\u03bf\u03bd\u03c4\u03ac\u03b4\u03b5\u03c2 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