{"id":54824,"date":"2025-03-21T16:07:32","date_gmt":"2025-03-21T20:07:32","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%ce%b4%ce%b9%ce%b1%cf%87%ce%b5%ce%af%cf%81%ce%b9%cf%83%ce%b7-%cf%84%ce%b7%cf%82-%ce%ba%cf%8c%cf%80%cf%89%cf%83%ce%b7%cf%82-%ce%b5%ce%bd%cf%8e-%ce%b6%ce%b5%ce%af%cf%84%ce%b5-%ce%bc%ce%b5-erdheim-cheste\/"},"modified":"2025-08-23T17:17:10","modified_gmt":"2025-08-23T21:17:10","slug":"%ce%b4%ce%b9%ce%b1%cf%87%ce%b5%ce%af%cf%81%ce%b9%cf%83%ce%b7-%cf%84%ce%b7%cf%82-%ce%ba%cf%8c%cf%80%cf%89%cf%83%ce%b7%cf%82-%ce%b5%ce%bd%cf%8e-%ce%b6%ce%b5%ce%af%cf%84%ce%b5-%ce%bc%ce%b5-erdheim-cheste","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/%ce%b4%ce%b9%ce%b1%cf%87%ce%b5%ce%af%cf%81%ce%b9%cf%83%ce%b7-%cf%84%ce%b7%cf%82-%ce%ba%cf%8c%cf%80%cf%89%cf%83%ce%b7%cf%82-%ce%b5%ce%bd%cf%8e-%ce%b6%ce%b5%ce%af%cf%84%ce%b5-%ce%bc%ce%b5-erdheim-cheste\/","title":{"rendered":"\u0394\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2 \u03b5\u03bd\u03ce \u03b6\u03b5\u03af\u03c4\u03b5 \u03bc\u03b5 Erdheim-Chester \u0391\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1"},"content":{"rendered":"<p>\u0397 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03ba\u03bf\u03b9\u03bd\u03ad\u03c2 -\u03ba\u03b1\u03b9 \u03c3\u03c5\u03c7\u03bd\u03ac \u03c0\u03b9\u03bf \u03b1\u03c0\u03bf\u03b3\u03bf\u03b7\u03c4\u03b5\u03c5\u03c4\u03b9\u03ba\u03ad\u03c2- \u03c0\u03c1\u03bf\u03ba\u03bb\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03b6\u03bf\u03c5\u03bd \u03c4\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b6\u03bf\u03c5\u03bd \u03bc\u03b5 <strong>\u03c4\u03b7 \u03bd\u03cc\u03c3\u03bfErdheim-Chester (ECD<\/strong>). \u0394\u03b5\u03bd \u03c0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03b1\u03c0\u03bb\u03ce\u03c2 \u03b3\u03b9\u03b1 \u03b1\u03af\u03c3\u03b8\u03b7\u03bc\u03b1 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2 \u03c3\u03c4\u03bf \u03c4\u03ad\u03bb\u03bf\u03c2 \u03bc\u03b9\u03b1\u03c2 \u03ba\u03bf\u03c5\u03c1\u03b1\u03c3\u03c4\u03b9\u03ba\u03ae\u03c2 \u03b7\u03bc\u03ad\u03c1\u03b1\u03c2. \u0397 \u03c7\u03c1\u03cc\u03bd\u03b9\u03b1 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7 \u03c0\u03bf\u03c5 \u03c3\u03c7\u03b5\u03c4\u03af\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bc\u03b5 \u03c4\u03bf ECD \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b5\u03c0\u03b7\u03c1\u03b5\u03ac\u03c3\u03b5\u03b9 \u03c3\u03c7\u03b5\u03b4\u03cc\u03bd \u03ba\u03ac\u03b8\u03b5 \u03c0\u03c4\u03c5\u03c7\u03ae \u03c4\u03b7\u03c2 \u03ba\u03b1\u03b8\u03b7\u03bc\u03b5\u03c1\u03b9\u03bd\u03ae\u03c2 \u03b6\u03c9\u03ae\u03c2, \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03bf\u03bb\u03bf\u03ba\u03bb\u03ae\u03c1\u03c9\u03c3\u03b7 \u03b2\u03b1\u03c3\u03b9\u03ba\u03ce\u03bd \u03b5\u03c1\u03b3\u03b1\u03c3\u03b9\u03ce\u03bd \u03bc\u03ad\u03c7\u03c1\u03b9 \u03c4\u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c3\u03b5 \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03c0\u03bf\u03c5 \u03c3\u03b1\u03c2 \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03bf\u03cd\u03bd. \u03a0\u03bf\u03bb\u03bb\u03bf\u03af \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 ECD \u03c0\u03b5\u03c1\u03b9\u03b3\u03c1\u03ac\u03c6\u03bf\u03c5\u03bd \u03b1\u03c5\u03c4\u03ae \u03c4\u03b7\u03bd \u03b5\u03be\u03ac\u03bd\u03c4\u03bb\u03b7\u03c3\u03b7 \u03c9\u03c2 \u03b5\u03c0\u03af\u03bc\u03bf\u03bd\u03b7, \u03bc\u03b5\u03c1\u03b9\u03ba\u03ad\u03c2 \u03c6\u03bf\u03c1\u03ad\u03c2 \u03c3\u03c5\u03bd\u03c4\u03c1\u03b9\u03c0\u03c4\u03b9\u03ba\u03ae \u03ba\u03b1\u03b9 \u03b4\u03cd\u03c3\u03ba\u03bf\u03bb\u03b1 \u03b5\u03be\u03b7\u03b3\u03ae\u03c3\u03b9\u03bc\u03b7 \u03c3\u03b5 \u03ac\u03bb\u03bb\u03bf\u03c5\u03c2 \u03c0\u03bf\u03c5 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03bc\u03b7\u03bd \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03bf\u03cd\u03bd \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf.   <\/p>\n<p>\u03a3\u03c4\u03b7\u03bd <strong>Erdheim-Chester Disease Global Alliance (ECDGA<\/strong>), \u03b1\u03bd\u03b1\u03b3\u03bd\u03c9\u03c1\u03af\u03b6\u03bf\u03c5\u03bc\u03b5 \u03c0\u03cc\u03c3\u03bf \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc \u03b5\u03af\u03bd\u03b1\u03b9 \u03bd\u03b1 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7 \u03bc\u03b5 \u03c3\u03c5\u03bc\u03c0\u03cc\u03bd\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03c0\u03c1\u03b1\u03ba\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c4\u03c1\u03b1\u03c4\u03b7\u03b3\u03b9\u03ba\u03ad\u03c2. \u03a0\u03b1\u03c1\u03cc\u03bb\u03bf \u03c0\u03bf\u03c5 \u03b4\u03b5\u03bd \u03c5\u03c0\u03ac\u03c1\u03c7\u03b5\u03b9 \u03bc\u03af\u03b1 \u03bb\u03cd\u03c3\u03b7 \u03c0\u03bf\u03c5 \u03bd\u03b1 \u03c4\u03b1\u03b9\u03c1\u03b9\u03ac\u03b6\u03b5\u03b9 \u03c3\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2, \u03c0\u03bf\u03bb\u03bb\u03bf\u03af \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ad\u03c7\u03bf\u03c5\u03bd \u03b2\u03c1\u03b5\u03b9 \u03b1\u03bd\u03b1\u03ba\u03bf\u03cd\u03c6\u03b9\u03c3\u03b7 \u03b4\u03af\u03bd\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c0\u03c1\u03bf\u03c4\u03b5\u03c1\u03b1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c3\u03c4\u03b7\u03bd <strong>\u03be\u03b5\u03ba\u03bf\u03cd\u03c1\u03b1\u03c3\u03b7<\/strong>, \u03ba\u03ac\u03bd\u03bf\u03bd\u03c4\u03b1\u03c2 <strong>\u03ae\u03c0\u03b9\u03b1 \u03ac\u03c3\u03ba\u03b7\u03c3\u03b7<\/strong> (\u03cc\u03c0\u03c9\u03c2 \u03c0\u03b5\u03c1\u03c0\u03ac\u03c4\u03b7\u03bc\u03b1 \u03ae \u03b4\u03b9\u03b1\u03c4\u03ac\u03c3\u03b5\u03b9\u03c2) \u03ba\u03b1\u03b9 \u03b5\u03c6\u03b1\u03c1\u03bc\u03cc\u03b6\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c4\u03b5\u03c7\u03bd\u03b9\u03ba\u03ad\u03c2 <strong>\u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7\u03c2 \u03c4\u03bf\u03c5 \u03c3\u03c4\u03c1\u03b5\u03c2<\/strong>, \u03cc\u03c0\u03c9\u03c2 \u03b4\u03b9\u03b1\u03bb\u03bf\u03b3\u03b9\u03c3\u03bc\u03cc, \u03b2\u03b1\u03b8\u03b9\u03ad\u03c2 \u03b1\u03bd\u03b1\u03c0\u03bd\u03bf\u03ad\u03c2 \u03ae \u03b7\u03bc\u03b5\u03c1\u03bf\u03bb\u03cc\u03b3\u03b9\u03bf. \u039c\u03b9\u03ba\u03c1\u03ad\u03c2 \u03c0\u03c1\u03bf\u03c3\u03b1\u03c1\u03bc\u03bf\u03b3\u03ad\u03c2 -\u03cc\u03c0\u03c9\u03c2 \u03bf \u03b2\u03b7\u03bc\u03b1\u03c4\u03b9\u03c3\u03bc\u03cc\u03c2 \u03c4\u03bf\u03c5 \u03b5\u03b1\u03c5\u03c4\u03bf\u03cd \u03c3\u03b1\u03c2, \u03bf \u03ba\u03b1\u03b8\u03bf\u03c1\u03b9\u03c3\u03bc\u03cc\u03c2 \u03c1\u03b5\u03b1\u03bb\u03b9\u03c3\u03c4\u03b9\u03ba\u03ce\u03bd \u03c3\u03c4\u03cc\u03c7\u03c9\u03bd \u03ba\u03b1\u03b9 \u03b7 \u03b1\u03ba\u03c1\u03cc\u03b1\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c3\u03ce\u03bc\u03b1\u03c4\u03cc\u03c2 \u03c3\u03b1\u03c2- \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bd \u03bd\u03b1 \u03ba\u03ac\u03bd\u03bf\u03c5\u03bd \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03ac \u03c3\u03c4\u03b7 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b5\u03c0\u03b9\u03c0\u03ad\u03b4\u03c9\u03bd \u03b5\u03bd\u03ad\u03c1\u03b3\u03b5\u03b9\u03b1\u03c2.  <\/p>\n<p>\u0398\u03ad\u03bb\u03b5\u03c4\u03b5 \u03bd\u03b1 \u03b1\u03ba\u03bf\u03cd\u03c3\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1; \u0394\u03b5\u03af\u03c4\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03bf \u03b2\u03af\u03bd\u03c4\u03b5\u03bf \u03b1\u03c0\u03cc \u03bc\u03b9\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c0\u03c1\u03bf\u03b7\u03b3\u03bf\u03cd\u03bc\u03b5\u03bd\u03b5\u03c2 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2 \u03bc\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03b3\u03b9\u03b1 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2: <\/p>\n<p><a href=\"https:\/\/www.youtube.com\/watch?v=KTC3F4WX2-U&amp;list=PLd9i5JBvapc4iKEHUe1oWz8KkoLHgVagA&amp;index=4&amp;t=118s\" target=\"_blank\" rel=\"noopener\" aria-label=\"Watch the video - opens in new tab\">\u0394\u03b5\u03af\u03c4\u03b5 \u03c4\u03bf \u03b2\u03af\u03bd\u03c4\u03b5\u03bf<\/a><\/p>\n<p>\u0398\u03b1 \u03b8\u03ad\u03bb\u03b1\u03bc\u03b5 \u03c0\u03bf\u03bb\u03cd \u03bd\u03b1 \u03c3\u03b1\u03c2 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\u03c3\u03ae\u03bc\u03b5\u03c1\u03b1.  <\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u0397 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03ba\u03bf\u03b9\u03bd\u03ad\u03c2 -\u03ba\u03b1\u03b9 \u03c3\u03c5\u03c7\u03bd\u03ac \u03c0\u03b9\u03bf \u03b1\u03c0\u03bf\u03b3\u03bf\u03b7\u03c4\u03b5\u03c5\u03c4\u03b9\u03ba\u03ad\u03c2- \u03c0\u03c1\u03bf\u03ba\u03bb\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03b6\u03bf\u03c5\u03bd \u03c4\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b6\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bfErdheim-Chester (ECD). \u0394\u03b5\u03bd \u03c0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03b1\u03c0\u03bb\u03ce\u03c2 \u03b3\u03b9\u03b1 \u03b1\u03af\u03c3\u03b8\u03b7\u03bc\u03b1 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2 \u03c3\u03c4\u03bf 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