{"id":53452,"date":"2025-05-06T17:30:27","date_gmt":"2025-05-06T21:30:27","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=53452"},"modified":"2026-08-19T05:35:51","modified_gmt":"2026-08-19T10:35:51","slug":"%ce%ba%ce%b1%cf%84%ce%b1%ce%bd%cf%8c%ce%b7%cf%83%ce%b7-%cf%84%ce%b7%cf%82-%ce%b7%ce%bc%ce%ad%cf%81%ce%b1%cf%82-%ce%bc%ce%b9%ce%b1-%cf%80%ce%b5%cf%81%ce%b9%ce%ae%ce%b3%ce%b7%cf%83%ce%b7-%cf%83%cf%84","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/understanding-the-day-a-walk-through-the-pfg-agenda\/","title":{"rendered":"\u039a\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u0397\u03bc\u03ad\u03c1\u03b1\u03c2: \u039c\u03b9\u03b1 \u03c0\u03b5\u03c1\u03b9\u03ae\u03b3\u03b7\u03c3\u03b7 \u03c3\u03c4\u03b7\u03bd \u03b1\u03c4\u03b6\u03ad\u03bd\u03c4\u03b1 \u03c4\u03b7\u03c2 PFG"},"content":{"rendered":"<p>The Patient and Family Gathering is one of the most anticipated\u00a0events\u00a0of the year for the Erdheim-Chester Disease community. Each session is carefully selected to offer insight, clarity, and support for individuals living with ECD and the loved ones who stand beside them. Whether you\u2019re newly diagnosed or years into your journey, this day offers a rare opportunity to hear directly from global leaders in histiocytosis research and care.<\/p>\n<p>\u0391\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03b5\u03af \u03bc\u03b9\u03b1 \u03b5\u03c0\u03b9\u03c3\u03ba\u03cc\u03c0\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c4\u03b9 \u03bd\u03b1 \u03c0\u03b5\u03c1\u03b9\u03bc\u03ad\u03bd\u03b5\u03c4\u03b5 \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03b7\u03c2\u00a0<strong>\u0394\u03b5\u03c5\u03c4\u03ad\u03c1\u03b1, 26 \u039c\u03b1\u0390\u03bf\u03c5<\/strong>\u00a0\u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7 \u2014 \u03ba\u03b1\u03b9 \u03b3\u03b9\u03b1\u03c4\u03af \u03ba\u03ac\u03b8\u03b5 \u03c3\u03c4\u03b9\u03b3\u03bc\u03ae \u03ad\u03c7\u03b5\u03b9 \u03c3\u03c7\u03b5\u03b4\u03b9\u03b1\u03c3\u03c4\u03b5\u03af \u03b5\u03b9\u03b4\u03b9\u03ba\u03ac \u03b3\u03b9\u03b1 \u03b5\u03c3\u03ac\u03c2.<\/p>\n<h3>\u03a0\u03c1\u03c9\u03b9\u03bd\u03ae \u03b5\u03c0\u03b9\u03c3\u03ba\u03cc\u03c0\u03b7\u03c3\u03b7: \u0392\u03b1\u03c3\u03b9\u03ba\u03ad\u03c2 \u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03cc\u03c8\u03b5\u03b9\u03c2 \u03b5\u03b9\u03b4\u03b9\u03ba\u03ce\u03bd<\/h3>\n<p>\u0391\u03c6\u03bf\u03cd \u03ba\u03ac\u03bd\u03b5\u03c4\u03b5 \u03c4\u03bf check-in \u03ba\u03b1\u03b9 \u03b1\u03c0\u03bf\u03bb\u03b1\u03cd\u03c3\u03b5\u03c4\u03b5 \u03ad\u03bd\u03b1 \u03b5\u03bb\u03b1\u03c6\u03c1\u03cd \u03c0\u03c1\u03c9\u03b9\u03bd\u03cc \u03c0\u03bf\u03c5 \u03be\u03b5\u03ba\u03b9\u03bd\u03ac \u03c3\u03c4\u03b9\u03c2\u00a0<strong>8:00 \u03c0.\u03bc.<\/strong>, \u03c4\u03bf \u03c0\u03c1\u03cc\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1 \u03b8\u03b1 \u03be\u03b5\u03ba\u03b9\u03bd\u03ae\u03c3\u03b5\u03b9 \u03b5\u03c0\u03af\u03c3\u03b7\u03bc\u03b1 \u03c3\u03c4\u03b9\u03c2\u00a0<strong>8:30 \u03c0.\u03bc. <\/strong>\u03bc\u03b5 \u03ba\u03b1\u03bb\u03c9\u03c3\u03cc\u03c1\u03b9\u03c3\u03bc\u03b1 \u03b1\u03c0\u03cc \u03c4\u03bf\u03c5\u03c2 \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03b9\u03b1\u03c3\u03c4\u03ad\u03c2 \u03bc\u03b1\u03c2,\u00a0<strong>\u0394\u03c1. Xavier Solanich<\/strong>\u00a0\u03ba\u03b1\u03b9\u00a0<strong>\u0394\u03c1. Juvianee Estrada-Veras<\/strong>. As the host and a member of the ECDGA\u00a0Medical Advisory Board, they\u2019ll provide an overview of the day, introduce the hospital, and speak to the significance of bringing the community together in Barcelona.<\/p>\n<p>\u0391\u03c0\u03cc \u03b5\u03ba\u03b5\u03af, \u03bf\u03b9 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03b8\u03b1 \u03c0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03ae\u03c3\u03bf\u03c5\u03bd \u03bc\u03b9\u03b1 \u03c3\u03b5\u03b9\u03c1\u03ac \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03b9\u03ce\u03bd \u03c5\u03c0\u03cc \u03c4\u03b7\u03bd \u03ba\u03b1\u03b8\u03bf\u03b4\u03ae\u03b3\u03b7\u03c3\u03b7 \u03b5\u03b9\u03b4\u03b9\u03ba\u03ce\u03bd, \u03bf\u03b9 \u03bf\u03c0\u03bf\u03af\u03b5\u03c2 \u03b8\u03b1 \u03b5\u03c0\u03b9\u03ba\u03b5\u03bd\u03c4\u03c1\u03c9\u03b8\u03bf\u03cd\u03bd \u03c3\u03b5 \u03b2\u03b1\u03c3\u03b9\u03ba\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03bf\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2, \u03cc\u03c0\u03c9\u03c2:<\/p>\n<ul>\n<li><strong>\u0395\u03c0\u03b9\u03c3\u03ba\u03cc\u03c0\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03c3\u03b7\u03c2 \u03c4\u03c9\u03bd \u03b5\u03bd\u03b7\u03bb\u03af\u03ba\u03c9\u03bd<\/strong><br \/>\n\u03a5\u03c0\u03cc \u03c4\u03b7\u03bd \u03ba\u03b1\u03b8\u03bf\u03b4\u03ae\u03b3\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 \u0394\u03c1. Gaurav Goyal, \u03b1\u03c5\u03c4\u03ae \u03b7 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b1 \u03b8\u03b1 \u03b4\u03b9\u03b5\u03c1\u03b5\u03c5\u03bd\u03ae\u03c3\u03b5\u03b9 \u03c0\u03ce\u03c2 \u03b7 \u03bd\u03cc\u03c3\u03bf\u03c2 Erdheim-Chester \u03b5\u03bd\u03c4\u03ac\u03c3\u03c3\u03b5\u03c4\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c5\u03c1\u03cd\u03c4\u03b5\u03c1\u03b7 \u03ba\u03b1\u03c4\u03b7\u03b3\u03bf\u03c1\u03af\u03b1 \u03c4\u03c9\u03bd \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03b1\u03c1\u03b9\u03ba\u03ce\u03bd \u03b4\u03b9\u03b1\u03c4\u03b1\u03c1\u03b1\u03c7\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c4\u03b9 \u03c5\u03c0\u03bf\u03b4\u03b7\u03bb\u03ce\u03bd\u03bf\u03c5\u03bd \u03bf\u03b9 \u03c0\u03c1\u03cc\u03c3\u03c6\u03b1\u03c4\u03b5\u03c2 \u03b1\u03bd\u03b1\u03ba\u03b1\u03bb\u03cd\u03c8\u03b5\u03b9\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b9\u03c2 \u03bf\u03bc\u03bf\u03b9\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03ad\u03c2 \u03c4\u03bf\u03c5\u03c2.<\/li>\n<li><strong>\u0397 \u03b2\u03b9\u03bf\u03bb\u03bf\u03b3\u03af\u03b1 \u03c4\u03b7\u03c2 \u03c0\u03c1\u03ce\u03b9\u03bc\u03b7\u03c2 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ba\u03ae\u03c2 \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7\u03c2 (ECD) \u03ba\u03b1\u03b9 \u03b7 \u03c4\u03c1\u03ad\u03c7\u03bf\u03c5\u03c3\u03b1 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03c3\u03c4\u03b9\u03c2 \u03b8\u03b5\u03bc\u03b5\u03bb\u03b9\u03ce\u03b4\u03b5\u03b9\u03c2 \u03b5\u03c0\u03b9\u03c3\u03c4\u03ae\u03bc\u03b5\u03c2<\/strong><br \/>\n\u0397 \u0394\u03c1. \u038c\u03c3\u03c1\u03b1\u03c4 \u03a7\u03ad\u03c1\u03c3\u03ba\u03bf\u03b2\u03b9\u03c4\u03c2-\u03a1\u03cc\u03ba\u03b1 \u03b8\u03b1 \u03bc\u03b1\u03c2 \u03be\u03b5\u03bd\u03b1\u03b3\u03ae\u03c3\u03b5\u03b9 \u03c3\u03c4\u03b7 \u03c3\u03cd\u03bd\u03b8\u03b5\u03c4\u03b7 \u03b2\u03b9\u03bf\u03bb\u03bf\u03b3\u03af\u03b1 \u03c4\u03b7\u03c2 ECD, \u03b5\u03c3\u03c4\u03b9\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c3\u03c4\u03bf\u03bd \u03c1\u03cc\u03bb\u03bf \u03c4\u03c9\u03bd \u03b3\u03bf\u03bd\u03b9\u03b4\u03b9\u03b1\u03ba\u03ce\u03bd \u03bc\u03b5\u03c4\u03b1\u03bb\u03bb\u03ac\u03be\u03b5\u03c9\u03bd \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03b5\u03c0\u03b9\u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae\u03c2. \u0391\u03c5\u03c4\u03ae \u03b7 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03c0\u03b1\u03c1\u03b1\u03af\u03c4\u03b7\u03c4\u03b7 \u03b3\u03b9\u03b1 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03b5\u03bd\u03b4\u03b9\u03b1\u03c6\u03ad\u03c1\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03c4\u03bf\u03bd \u03c4\u03c1\u03cc\u03c0\u03bf \u03bc\u03b5 \u03c4\u03bf\u03bd \u03bf\u03c0\u03bf\u03af\u03bf \u03b7 \u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03bf\u03bd\u03b9\u03ba\u03ae \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03bc\u03b5\u03c4\u03b1\u03c6\u03c1\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03c3\u03b5 \u03bd\u03ad\u03b5\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03c5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b4\u03c5\u03bd\u03b1\u03c4\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2.<\/li>\n<li><strong>\u0395\u03c0\u03b9\u03bb\u03bf\u03b3\u03ad\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1\u03c2 \u03c4\u03b7\u03c2 ECD (\u03c5\u03c6\u03b9\u03c3\u03c4\u03ac\u03bc\u03b5\u03bd\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03bc\u03b5\u03bb\u03bb\u03bf\u03bd\u03c4\u03b9\u03ba\u03ad\u03c2)<\/strong><br \/>\nOne of the most anticipated presentations of the day, this talk by Dr. Julien Haroche will outline current\u00a0treatments.\u00a0 He will discuss the circumstances that are considered when selecting and administering treatments and dosages.<\/li>\n<li><strong>\u03a0\u03b1\u03c1\u03b5\u03bd\u03ad\u03c1\u03b3\u03b5\u03b9\u03b5\u03c2 \u03c4\u03b7\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1\u03c2 <\/strong><br \/>\n\u039f \u03bd\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03b9\u03b1\u03ba\u03cc\u03c2 \u03c6\u03b1\u03c1\u03bc\u03b1\u03ba\u03bf\u03c0\u03bf\u03b9\u03cc\u03c2 Pol Cleries Rovira \u03b8\u03b1 \u03b5\u03be\u03b7\u03b3\u03ae\u03c3\u03b5\u03b9 \u03c4\u03b9 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bd \u03bd\u03b1 \u03b1\u03bd\u03b1\u03bc\u03ad\u03bd\u03bf\u03c5\u03bd \u03bf\u03b9 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03b1\u03c0\u03cc \u03c4\u03b1 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03c5\u03c4\u03b9\u03ba\u03ac \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c7\u03ad\u03b4\u03b9\u03b1, \u03c0\u03ce\u03c2 \u03bd\u03b1 \u03b1\u03bd\u03b1\u03b3\u03bd\u03c9\u03c1\u03af\u03b6\u03bf\u03c5\u03bd \u03c4\u03b9\u03c2 \u03c0\u03b1\u03c1\u03b5\u03bd\u03ad\u03c1\u03b3\u03b5\u03b9\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c0\u03bf\u03b9\u03b5\u03c2 \u03c0\u03b1\u03c1\u03b5\u03bd\u03ad\u03c1\u03b3\u03b5\u03b9\u03b5\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc \u03bd\u03b1 \u03b1\u03bd\u03b1\u03c6\u03ad\u03c1\u03bf\u03c5\u03bd.<\/li>\n<li><strong>\u039a\u03bb\u03b9\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c4\u03b7\u03c2 ECD \u03ba\u03b1\u03b9 \u03c0\u03c1\u03bf\u03c3\u03b2\u03bf\u03bb\u03ae \u03bf\u03c1\u03b3\u03ac\u03bd\u03c9\u03bd<\/strong><br \/>\nIn the late morning, presentations will provide insight as to how ECD affects various organs.\u00a0 Dr. Razanmahery will begin by sharing which organs can be affected by ECD and what to expect.\u00a0 Dr. Eli Diamond will offer a focused session on neurologic and ocular\u00a0symptoms\u00a0of ECD\u2014topics that are among the most difficult for patients and caregivers to navigate. These talks will be followed by Dr. Vaglio talking about kidney\/urology involvement and Dr. Abeykoon discussing other organ involvement and why regular testing is important.<\/li>\n<\/ul>\n<p>\u038c\u03bb\u03bf \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03c0\u03c1\u03ce\u03c4\u03bf \u03bc\u03b9\u03c3\u03cc \u03c4\u03b7\u03c2 \u03b7\u03bc\u03ad\u03c1\u03b1\u03c2 \u03ad\u03c7\u03b5\u03b9 \u03c3\u03c7\u03b5\u03b4\u03b9\u03b1\u03c3\u03c4\u03b5\u03af \u03ce\u03c3\u03c4\u03b5 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c3\u03c6\u03ad\u03c1\u03b5\u03b9 \u03bc\u03b9\u03b1 \u03bf\u03bb\u03bf\u03ba\u03bb\u03b7\u03c1\u03c9\u03bc\u03ad\u03bd\u03b7 \u03b5\u03b9\u03ba\u03cc\u03bd\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03c4\u03b9 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03bf ECD, \u03c0\u03ce\u03c2 \u03bb\u03b5\u03b9\u03c4\u03bf\u03c5\u03c1\u03b3\u03b5\u03af \u03ba\u03b1\u03b9 \u03c0\u03ce\u03c2 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03b9\u03c3\u03c4\u03b5\u03af.<\/p>\n<h3>\u0391\u03c0\u03bf\u03b3\u03b5\u03c5\u03bc\u03b1\u03c4\u03b9\u03bd\u03ad\u03c2 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2: \u0396\u03ce\u03bd\u03c4\u03b1\u03c2 \u03bc\u03b5 \u03c4\u03b7\u03bd ECD<\/h3>\n<p>\u039c\u03b5\u03c4\u03ac \u03b1\u03c0\u03cc \u03ad\u03bd\u03b1 \u03bc\u03b5\u03c3\u03b7\u03bc\u03b5\u03c1\u03b9\u03b1\u03bd\u03cc \u03b4\u03b9\u03ac\u03bb\u03b5\u03b9\u03bc\u03bc\u03b1 \u03ba\u03b1\u03b9 \u03bc\u03b9\u03b1 \u03bf\u03bc\u03b1\u03b4\u03b9\u03ba\u03ae \u03c6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b1, \u03bf\u03b9 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03b8\u03b1 \u03b5\u03c0\u03b9\u03c3\u03c4\u03c1\u03ad\u03c8\u03bf\u03c5\u03bd \u03b3\u03b9\u03b1 \u03ad\u03bd\u03b1 \u03b1\u03c0\u03cc\u03b3\u03b5\u03c5\u03bc\u03b1 \u03b1\u03c6\u03b9\u03b5\u03c1\u03c9\u03bc\u03ad\u03bd\u03bf \u03c3\u03c4\u03b7 \u03b6\u03c9\u03ae \u03bc\u03b5 \u03c4\u03b7\u03bd ECD \u2014 \u03cc\u03c7\u03b9 \u03bc\u03cc\u03bd\u03bf \u03b1\u03c0\u03cc \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae \u03ac\u03c0\u03bf\u03c8\u03b7, \u03b1\u03bb\u03bb\u03ac \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bd\u03b1\u03b9\u03c3\u03b8\u03b7\u03bc\u03b1\u03c4\u03b9\u03ba\u03ac, \u03c3\u03c9\u03bc\u03b1\u03c4\u03b9\u03ba\u03ac \u03ba\u03b1\u03b9 \u03c0\u03c1\u03b1\u03ba\u03c4\u03b9\u03ba\u03ac. \u03a4\u03b1 \u03b8\u03ad\u03bc\u03b1\u03c4\u03b1 \u03c4\u03bf\u03c5 \u03b1\u03c0\u03bf\u03b3\u03b5\u03cd\u03bc\u03b1\u03c4\u03bf\u03c2 \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03c5\u03bd:<\/p>\n<ul>\n<li><strong>\u03a3\u03c5\u03bd\u03bf\u03b4\u03ad\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2<\/strong><br \/>\n\u039f \u0394\u03c1. Francesco Pegoraro \u03b8\u03b1 \u03b5\u03be\u03b5\u03c4\u03ac\u03c3\u03b5\u03b9 \u03ac\u03bb\u03bb\u03b5\u03c2 \u03b1\u03b9\u03bc\u03b1\u03c4\u03bf\u03bb\u03bf\u03b3\u03b9\u03ba\u03ad\u03c2 \u03ae \u03c3\u03c5\u03c3\u03c4\u03b7\u03bc\u03b1\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c5 \u03b5\u03bd\u03b4\u03ad\u03c7\u03b5\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03b5\u03bc\u03c6\u03b1\u03bd\u03b9\u03c3\u03c4\u03bf\u03cd\u03bd \u03c0\u03b1\u03c1\u03ac\u03bb\u03bb\u03b7\u03bb\u03b1 \u03bc\u03b5 \u03c4\u03b7\u03bd ECD \u03ba\u03b1\u03b9 \u03c4\u03bf\u03bd \u03c4\u03c1\u03cc\u03c0\u03bf \u03bc\u03b5 \u03c4\u03bf\u03bd \u03bf\u03c0\u03bf\u03af\u03bf \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c3\u03b1\u03c1\u03bc\u03bf\u03c3\u03c4\u03b5\u03af \u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03c9\u03c2 \u03b1\u03c0\u03bf\u03c4\u03ad\u03bb\u03b5\u03c3\u03bc\u03b1 \u03b1\u03c5\u03c4\u03bf\u03cd.<\/li>\n<li><strong>\u039f\u03bc\u03ac\u03b4\u03b1 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03bf\u03b3\u03bd\u03c9\u03bc\u03cc\u03bd\u03c9\u03bd \u03b3\u03b9\u03b1 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2<\/strong><br \/>\n\u0391\u03c5\u03c4\u03ae \u03b7 \u03b4\u03b9\u03b1\u03b4\u03c1\u03b1\u03c3\u03c4\u03b9\u03ba\u03ae \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b1 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1\u03c2 \u03bc\u03af\u03b1\u03c2 \u03ce\u03c1\u03b1\u03c2 \u03b4\u03af\u03bd\u03b5\u03b9 \u03c4\u03b7 \u03b4\u03c5\u03bd\u03b1\u03c4\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c3\u03c4\u03bf\u03c5\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03bd\u03b1 \u03c5\u03c0\u03bf\u03b2\u03ac\u03bb\u03bf\u03c5\u03bd \u03b3\u03b5\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c3\u03b5 \u03bc\u03b9\u03b1 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03ba\u03bf\u03c1\u03c5\u03c6\u03b1\u03af\u03c9\u03bd \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ce\u03bd \u03ba\u03b1\u03b9 \u03b9\u03b1\u03c4\u03c1\u03ce\u03bd \u03c3\u03c4\u03bf\u03bd \u03c4\u03bf\u03bc\u03ad\u03b1 \u03c4\u03b7\u03c2 \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ba\u03ae\u03c2 \u03b7\u03bb\u03b9\u03ba\u03af\u03b1\u03c2 (ECD). \u0391\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03bc\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03b5\u03ba\u03c4\u03b9\u03bc\u03b7\u03bc\u03ad\u03bd\u03b5\u03c2 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2 \u03b1\u03c0\u03cc \u03c4\u03bf\u03c5\u03c2 \u03c0\u03c1\u03bf\u03b7\u03b3\u03bf\u03cd\u03bc\u03b5\u03bd\u03bf\u03c5\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2, \u03ba\u03b1\u03b8\u03ce\u03c2 \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03b5\u03b9 \u03c0\u03bf\u03bb\u03bb\u03ad\u03c2 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03b5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03bf\u03c0\u03c4\u03b9\u03ba\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03bd\u03b8\u03b1\u03c1\u03c1\u03cd\u03bd\u03b5\u03b9 \u03c4\u03b7\u03bd \u03b1\u03bd\u03bf\u03b9\u03c7\u03c4\u03ae \u03c3\u03c5\u03b6\u03ae\u03c4\u03b7\u03c3\u03b7. \u0394\u03b5\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03b4\u03c5\u03bd\u03b1\u03c4\u03ae \u03b7 \u03c0\u03b1\u03c1\u03bf\u03c7\u03ae \u03c0\u03c1\u03bf\u03c3\u03c9\u03c0\u03b9\u03ba\u03ce\u03bd \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ce\u03bd \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ce\u03bd, \u03b1\u03bb\u03bb\u03ac \u03bf\u03b9 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03b5\u03bd\u03b8\u03b1\u03c1\u03c1\u03cd\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03c5\u03c0\u03bf\u03b2\u03ac\u03bb\u03bf\u03c5\u03bd \u03b3\u03b5\u03bd\u03b9\u03ba\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c5 \u03b1\u03c6\u03bf\u03c1\u03bf\u03cd\u03bd \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1.<\/li>\n<li><strong>\u03a8\u03c5\u03c7\u03b9\u03ba\u03ae \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bd\u03b1\u03b9\u03c3\u03b8\u03b7\u03bc\u03b1\u03c4\u03b9\u03ba\u03ae \u03c5\u03b3\u03b5\u03af\u03b1 \u03b3\u03b9\u03b1 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2<\/strong><br \/>\n\u039c\u03b5 \u03c3\u03c5\u03bd\u03c4\u03bf\u03bd\u03af\u03c3\u03c4\u03c1\u03b9\u03b1 \u03c4\u03b7 Laia Ferrer, \u03b1\u03c5\u03c4\u03ae \u03b7 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ae \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b1 \u03bc\u03b1\u03c2 \u03c5\u03c0\u03b5\u03bd\u03b8\u03c5\u03bc\u03af\u03b6\u03b5\u03b9 \u03cc\u03c4\u03b9 \u03b7 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03ce\u03c0\u03b9\u03c3\u03b7 \u03c4\u03b7\u03c2 ECD \u03b4\u03b5\u03bd \u03b1\u03c6\u03bf\u03c1\u03ac \u03bc\u03cc\u03bd\u03bf \u03c4\u03b1 \u03c6\u03ac\u03c1\u03bc\u03b1\u03ba\u03b1. \u0391\u03c6\u03bf\u03c1\u03ac \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c6\u03cc\u03b2\u03bf\u03c5, \u03c4\u03b7\u03c2 \u03ba\u03b1\u03c4\u03ac\u03b8\u03bb\u03b9\u03c8\u03b7\u03c2, \u03c4\u03bf\u03c5 \u03ac\u03b3\u03c7\u03bf\u03c5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03bf\u03c5 \u03b2\u03ac\u03c1\u03bf\u03c5\u03c2 \u03c4\u03b7\u03c2 \u03b1\u03b2\u03b5\u03b2\u03b1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2.<\/li>\n<li><strong>\u0394\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c0\u03cc\u03bd\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2, \u03b4\u03b9\u03b1\u03c4\u03ae\u03c1\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c3\u03c9\u03bc\u03b1\u03c4\u03b9\u03ba\u03ae\u03c2 \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c5\u03b3\u03b9\u03b5\u03b9\u03bd\u03ae \u03b4\u03b9\u03b1\u03c4\u03c1\u03bf\u03c6\u03ae<\/strong><br \/>\n\u039c\u03b9\u03b1 \u03c3\u03b5\u03b9\u03c1\u03ac \u03bf\u03bc\u03b9\u03bb\u03b9\u03ce\u03bd \u03bc\u03b5 \u03b8\u03ad\u03bc\u03b1 \u03c4\u03bf\u03bd \u03c4\u03c1\u03cc\u03c0\u03bf \u03b6\u03c9\u03ae\u03c2, \u03b1\u03c0\u03cc \u03c4\u03bf\u03c5\u03c2 \u0394\u03c1. Montserrat Olmo Plaza, \u0394\u03c1. Mariona Viol\u00e1n \u03ba\u03b1\u03b9 \u0394\u03c1. Rafael Lopez Urdiales, \u03b8\u03b1 \u03c0\u03c1\u03bf\u03c3\u03c6\u03ad\u03c1\u03b5\u03b9 \u03c0\u03c1\u03bf\u03c4\u03ac\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b5\u03ba\u03bc\u03b7\u03c1\u03b9\u03c9\u03bc\u03ad\u03bd\u03b5\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03ce\u03c0\u03b9\u03c3\u03b7 \u03ba\u03bf\u03b9\u03bd\u03ce\u03bd \u03c0\u03c1\u03bf\u03ba\u03bb\u03ae\u03c3\u03b5\u03c9\u03bd \u03c0\u03bf\u03c5 \u03c3\u03c7\u03b5\u03c4\u03af\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03c0\u03c1\u03ce\u03b9\u03bc\u03b7 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ba\u03ae \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7 (ECD), \u03bc\u03b5 \u03c4\u03b7 \u03c7\u03c1\u03ae\u03c3\u03b7 \u03c0\u03c1\u03b1\u03ba\u03c4\u03b9\u03ba\u03ce\u03bd \u03b5\u03c1\u03b3\u03b1\u03bb\u03b5\u03af\u03c9\u03bd.<\/li>\n<li><strong>\u0394\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03b5\u03c0\u03b9\u03b6\u03ce\u03bd\u03c4\u03c9\u03bd \u03b1\u03c0\u03cc ECD: \u03a3\u03c5\u03b6\u03ae\u03c4\u03b7\u03c3\u03b7 \u03bc\u03b5 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2<\/strong><br \/>\n\u0397 \u03c4\u03b5\u03bb\u03b5\u03c5\u03c4\u03b1\u03af\u03b1 \u03c3\u03c5\u03b6\u03ae\u03c4\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b7\u03bc\u03ad\u03c1\u03b1\u03c2 \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03b5\u03b9 \u03b4\u03b9\u03ac\u03c6\u03bf\u03c1\u03bf\u03c5\u03c2 \u03b5\u03b9\u03b4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c3\u03c5\u03b6\u03b7\u03c4\u03ae\u03c3\u03bf\u03c5\u03bd \u03b8\u03ad\u03bc\u03b1\u03c4\u03b1 \u03c0\u03bf\u03c5 \u03b1\u03c6\u03bf\u03c1\u03bf\u03cd\u03bd \u03c4\u03b7 \u03bc\u03b1\u03ba\u03c1\u03bf\u03c7\u03c1\u03cc\u03bd\u03b9\u03b1 \u03b5\u03c0\u03b9\u03b2\u03af\u03c9\u03c3\u03b7 \u2014 \u03c4\u03b9 \u03bd\u03b1 \u03c0\u03b5\u03c1\u03b9\u03bc\u03ad\u03bd\u03b5\u03c4\u03b5, \u03c0\u03ce\u03c2 \u03bd\u03b1 \u03c0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03b5\u03af\u03c3\u03c4\u03b5 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ac \u03ba\u03b1\u03b9 \u03c0\u03ce\u03c2 \u03bd\u03b1 \u03b6\u03b5\u03af\u03c4\u03b5 \u03bc\u03b5 \u03c4\u03b7\u03bd ECD \u03c9\u03c2 \u03bc\u03ad\u03c1\u03bf\u03c2 \u03c4\u03b7\u03c2 \u03b6\u03c9\u03ae\u03c2 \u03c3\u03b1\u03c2, \u03ba\u03b1\u03b9 \u03cc\u03c7\u03b9 \u03c9\u03c2 \u03c4\u03bf \u03b5\u03c0\u03af\u03ba\u03b5\u03bd\u03c4\u03c1\u03cc \u03c4\u03b7\u03c2.<\/li>\n<\/ul>\n<p>\u0397 \u03b7\u03bc\u03ad\u03c1\u03b1 \u03b8\u03b1 \u03ba\u03bb\u03b5\u03af\u03c3\u03b5\u03b9 \u03bc\u03b5 \u03bf\u03bc\u03b9\u03bb\u03af\u03b5\u03c2 \u03b1\u03c0\u03cc\u00a0<strong>\u039d\u03c4\u03b1\u03ca\u03ac\u03bd \u03a3\u03c1\u03ac\u03b9\u03bd\u03b5\u03c1<\/strong>\u00a0\u03c4\u03bf\u03c5 \u0394\u03b9\u03bf\u03b9\u03ba\u03b7\u03c4\u03b9\u03ba\u03bf\u03cd \u03a3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03af\u03bf\u03c5 \u03c4\u03b7\u03c2 ECDGA, \u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03bf\u03cd\u03bc\u03b5\u03bd\u03b7 \u03b1\u03c0\u03cc \u03b1\u03be\u03b9\u03bf\u03bb\u03cc\u03b3\u03b7\u03c3\u03b7 \u03c4\u03c9\u03bd \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03b5\u03c7\u03cc\u03bd\u03c4\u03c9\u03bd, \u03b7 \u03bf\u03c0\u03bf\u03af\u03b1 \u03b8\u03b1 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03b5\u03b9 \u03c3\u03c4\u03b7 \u03b4\u03b9\u03b1\u03bc\u03cc\u03c1\u03c6\u03c9\u03c3\u03b7 \u03bc\u03b5\u03bb\u03bb\u03bf\u03bd\u03c4\u03b9\u03ba\u03ce\u03bd \u03c3\u03c5\u03bd\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd.<\/p>\n<h3>\u039c\u03b9\u03b1 \u03bc\u03ad\u03c1\u03b1 \u03b5\u03b9\u03b4\u03b9\u03ba\u03ac \u03b3\u03b9\u03b1 \u03b5\u03c3\u03ac\u03c2<\/h3>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/PFG-Program-2025-05-06-English-DRAFT-1.pdf\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" class=\"border-image alignleft wp-image-147150\" title=\"\u03b5\u03b9\u03ba\u03cc\u03bd\u03b1 \u03c0\u03b5\u03c1\u03b9\u03b3\u03c1\u03ac\u03bc\u03bc\u03b1\u03c4\u03bf\u03c2\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Picture1.png\" alt=\"\" width=\"216\" height=\"298\" \/><\/a>This agenda was not designed in a vacuum. It reflects feedback from past attendees and the guidance of ECD experts around the globe. Every speaker, every panelist, and every\u00a0volunteer\u00a0is here because they believe in the power of this community to learn, support, and grow\u00a0together.<\/p>\n<p>\u0393\u03b9\u03b1 \u03c0\u03bf\u03bb\u03bb\u03bf\u03cd\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2, \u03b1\u03c5\u03c4\u03ae \u03b7 \u03bc\u03ad\u03c1\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03c0\u03c1\u03cc\u03c3\u03c6\u03b5\u03c1\u03b5 \u03c4\u03b7\u03bd \u03c0\u03b1\u03c1\u03b7\u03b3\u03bf\u03c1\u03b9\u03ac \u03c4\u03bf\u03c5 \u03bd\u03b1 \u03bd\u03b9\u03ce\u03c3\u03bf\u03c5\u03bd \u03cc\u03c4\u03b9 \u03c4\u03bf\u03c5\u03c2 \u03ba\u03b1\u03c4\u03b1\u03bb\u03b1\u03b2\u03b1\u03af\u03bd\u03bf\u03c5\u03bd \u03b3\u03b9\u03b1 \u03c0\u03c1\u03ce\u03c4\u03b7 \u03c6\u03bf\u03c1\u03ac. \u0393\u03b9\u03b1 \u03ac\u03bb\u03bb\u03bf\u03c5\u03c2, \u03ad\u03b4\u03c9\u03c3\u03b5 \u03c4\u03bf \u03ad\u03bd\u03b1\u03c5\u03c3\u03bc\u03b1 \u03b3\u03b9\u03b1 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b9\u03b4\u03ad\u03b5\u03c2, \u03bd\u03ad\u03b5\u03c2 \u03c3\u03c5\u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae \u03ae \u03c6\u03b9\u03bb\u03af\u03b5\u03c2 \u03c0\u03bf\u03c5 \u03b8\u03b1 \u03b4\u03b9\u03b1\u03c1\u03ba\u03ad\u03c3\u03bf\u03c5\u03bd \u03bc\u03b9\u03b1 \u03b6\u03c9\u03ae. \u038c,\u03c4\u03b9 \u03ba\u03b9 \u03b1\u03bd \u03c3\u03b7\u03bc\u03b1\u03af\u03bd\u03b5\u03b9 \u03b1\u03c5\u03c4\u03ae \u03b7 \u03bc\u03ad\u03c1\u03b1 \u03b3\u03b9\u03b1 \u03b5\u03c3\u03ac\u03c2, \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03b9\u03bc\u03ae \u03bc\u03b1\u03c2 \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03b5\u03c4\u03b5 \u03c3\u03b5 \u03b1\u03c5\u03c4\u03ae\u03bd.<\/p>\n<p>\u0391\u03bd \u03c3\u03ba\u03bf\u03c0\u03b5\u03cd\u03b5\u03c4\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03ba\u03b1\u03b9 \u03ad\u03c7\u03b5\u03c4\u03b5 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b5\u03ba \u03c4\u03c9\u03bd \u03c0\u03c1\u03bf\u03c4\u03ad\u03c1\u03c9\u03bd \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7 \u03b4\u03b9\u03bf\u03c1\u03b3\u03ac\u03bd\u03c9\u03c3\u03b7, \u03c4\u03b9\u03c2 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2 \u03ae \u03c4\u03b7 \u03b4\u03b9\u03b1\u03bc\u03bf\u03bd\u03ae, \u03b7 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03c4\u03b7\u03c2 ECDGA \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03b4\u03ce \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c3\u03b1\u03c2 \u03b2\u03bf\u03b7\u03b8\u03ae\u03c3\u03b5\u03b9. \u0391\u03c6\u03ae\u03c3\u03c4\u03b5 \u03bc\u03b1\u03c2 \u03bd\u03b1 \u03c3\u03b1\u03c2 \u03c3\u03c5\u03bc\u03c0\u03b1\u03c1\u03b1\u03c3\u03c4\u03b1\u03b8\u03bf\u03cd\u03bc\u03b5 \u2014 \u03b3\u03b9\u03b1\u03c4\u03af \u03ba\u03b1\u03bd\u03b5\u03af\u03c2 \u03b4\u03b5\u03bd \u03c0\u03c1\u03ad\u03c0\u03b5\u03b9 \u03bd\u03b1 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03b6\u03b5\u03b9 \u03bc\u03cc\u03bd\u03bf\u03c2 \u03c4\u03bf\u03c5 \u03b1\u03c5\u03c4\u03ae \u03c4\u03b7 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1.<\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/PFG-Program-2025-05-06-English-DRAFT-1.pdf\" target=\"_blank\" rel=\"noopener\">\u039a\u03b1\u03c4\u03b5\u03b2\u03ac\u03c3\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b7\u03bc\u03b5\u03c1\u03ae\u03c3\u03b9\u03b1 \u03b4\u03b9\u03ac\u03c4\u03b1\u03be\u03b7<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>The Patient and Family Gathering is one of the most anticipated\u00a0events\u00a0of the year for the Erdheim-Chester Disease community. Each session is carefully selected to offer insight, clarity, and support for [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":55028,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[594,375,378,387,380,383,374,384,386,376,385],"class_list":["post-53452","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-barcelona","tag-ecdawareness","tag-ecdcommunity","tag-ecdga","tag-ecdsupport","tag-ecdvolunteer","tag-erdheimchesterdisease","tag-hopeforecd","tag-makerarevisible","tag-raredisease","tag-supportraredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/53452","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=53452"}],"version-history":[{"count":3,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/53452\/revisions"}],"predecessor-version":[{"id":175247,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/53452\/revisions\/175247"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/55028"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=53452"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=53452"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=53452"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}