{"id":53450,"date":"2025-05-06T17:29:51","date_gmt":"2025-05-06T21:29:51","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=53450"},"modified":"2026-08-13T07:54:49","modified_gmt":"2026-08-13T12:54:49","slug":"%cf%84%ce%b9-%ce%bd%ce%b1-%cf%80%ce%b5%cf%81%ce%b9%ce%bc%ce%ad%ce%bd%ce%b5%cf%84%ce%b5-%ce%ba%ce%b1%cf%84%ce%ac-%cf%84%ce%b7%ce%bd-%ce%ac%cf%86%ce%b9%ce%be%ce%ae-%cf%83%ce%b1%cf%82-%cf%83%cf%84%ce%b7-2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/what-to-expect-when-you-arrive-in-barcelona-a-guide-for-patient-family-gathering-attendees\/","title":{"rendered":"\u03a4\u03b9 \u03bd\u03b1 \u03c0\u03b5\u03c1\u03b9\u03bc\u03ad\u03bd\u03b5\u03c4\u03b5 \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7\u03bd \u03ac\u03c6\u03b9\u03be\u03ae \u03c3\u03b1\u03c2 \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7: \u039f\u03b4\u03b7\u03b3\u03cc\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03c3\u03c4\u03b7 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd"},"content":{"rendered":"

\u039a\u03b1\u03b8\u03ce\u03c2 \u03c0\u03c1\u03bf\u03b5\u03c4\u03bf\u03b9\u03bc\u03ac\u03b6\u03b5\u03c3\u03c4\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b7\u03bd 10\u03b7 \u0395\u03c4\u03ae\u03c3\u03b9\u03b1 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03c0\u03bf\u03c5 \u03b4\u03b9\u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03bd\u03b5\u03b9 \u03b7 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA), \u03b8\u03ad\u03bb\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03b4\u03b9\u03b1\u03c3\u03c6\u03b1\u03bb\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03cc\u03c4\u03b9 \u03b4\u03b9\u03b1\u03b8\u03ad\u03c4\u03b5\u03c4\u03b5 \u03cc\u03bb\u03b5\u03c2 \u03c4\u03b9\u03c2 \u03c0\u03c1\u03b1\u03ba\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03bf \u03b1\u03c0\u03b1\u03c1\u03b1\u03af\u03c4\u03b7\u03c4\u03bf \u03c0\u03bb\u03b1\u03af\u03c3\u03b9\u03bf, \u03ce\u03c3\u03c4\u03b5 \u03bd\u03b1 \u03b1\u03b9\u03c3\u03b8\u03ac\u03bd\u03b5\u03c3\u03c4\u03b5 \u03c3\u03b9\u03b3\u03bf\u03c5\u03c1\u03b9\u03ac \u03ba\u03b1\u03b9 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7 \u03b1\u03c0\u03cc \u03c4\u03b7 \u03c3\u03c4\u03b9\u03b3\u03bc\u03ae \u03c0\u03bf\u03c5 \u03b8\u03b1 \u03c6\u03c4\u03ac\u03c3\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7. \u0391\u03c5\u03c4\u03ae \u03b7 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b4\u03b5\u03bd \u03b1\u03c6\u03bf\u03c1\u03ac \u03b1\u03c0\u03bb\u03ce\u03c2 \u03c4\u03b7\u03bd \u03c0\u03b1\u03c1\u03bf\u03c7\u03ae \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03b9\u03ce\u03bd \u2014 \u03b1\u03c6\u03bf\u03c1\u03ac \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1, \u03c4\u03b7\u03bd \u03b5\u03bd\u03b4\u03c5\u03bd\u03ac\u03bc\u03c9\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03ae \u03b5\u03bb\u03c0\u03af\u03b4\u03b1. \u0391\u03c0\u03cc \u03c4\u03b1 \u03c0\u03c1\u03b1\u03ba\u03c4\u03b9\u03ba\u03ac \u03b8\u03ad\u03bc\u03b1\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03bc\u03bf\u03bd\u03ae \u03ad\u03c9\u03c2 \u03c4\u03bf \u03c0\u03c1\u03cc\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1 \u03c4\u03b7\u03c2 \u03b7\u03bc\u03ad\u03c1\u03b1\u03c2, \u03b5\u03b4\u03ce \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03b9 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af\u03c4\u03b5 \u03bd\u03b1 \u03c0\u03b5\u03c1\u03b9\u03bc\u03ad\u03bd\u03b5\u03c4\u03b5.<\/p>\n

\u0386\u03c6\u03b9\u03be\u03b7 \u03ba\u03b1\u03b9 \u03bc\u03b5\u03c4\u03b1\u03ba\u03b9\u03bd\u03ae\u03c3\u03b5\u03b9\u03c2<\/h3>\n

\u039f \u03ba\u03cd\u03c1\u03b9\u03bf\u03c2 \u03c7\u03ce\u03c1\u03bf\u03c2 \u03b4\u03b9\u03b1\u03bc\u03bf\u03bd\u03ae\u03c2 \u03b3\u03b9\u03b1 \u03c0\u03bf\u03bb\u03bb\u03bf\u03cd\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03bf \u039e\u03b5\u03bd\u03bf\u03b4\u03bf\u03c7\u03b5\u03af\u03bf Renaissance Barcelona Fira<\/strong>, which will serve as the informal home base for ECDGA\u2019s events throughout the week. On the morning of \u0394\u03b5\u03c5\u03c4\u03ad\u03c1\u03b1, 26 \u039c\u03b1\u0390\u03bf\u03c5<\/strong>, \u03bf\u03b9 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ad\u03c2 \u03b8\u03b1 \u03b2\u03c1\u03af\u03c3\u03ba\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c3\u03c4\u03bf \u03bb\u03cc\u03bc\u03c0\u03b9 \u03c4\u03bf\u03c5 \u03be\u03b5\u03bd\u03bf\u03b4\u03bf\u03c7\u03b5\u03af\u03bf\u03c5 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 7:00 \u03ad\u03c9\u03c2 7:45 \u03c0.\u03bc.<\/strong> \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b2\u03bf\u03b7\u03b8\u03ae\u03c3\u03b5\u03b9 \u03c3\u03c4\u03b7 \u03bc\u03b5\u03c4\u03b1\u03c6\u03bf\u03c1\u03ac \u03c4\u03c9\u03bd \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03b5\u03c7\u03cc\u03bd\u03c4\u03c9\u03bd \u03bc\u03b5 \u03c4\u03bf \u03bc\u03b5\u03c4\u03c1\u03cc \u03c0\u03c1\u03bf\u03c2 \u03c4\u03bf\u03bd \u03c7\u03ce\u03c1\u03bf \u03c4\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03bf\u03c5 \u03c3\u03c4\u03b7 \u03b4\u03b9\u03b5\u03cd\u03b8\u03c5\u03bd\u03c3\u03b7 \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03b9\u03b1\u03ba\u03cc \u039d\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf \u039c\u03c0\u03b5\u03bb\u03b2\u03af\u03c4\u03b6\u03b5<\/strong>. \u0397 \u03b4\u03b9\u03b1\u03b4\u03c1\u03bf\u03bc\u03ae \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03c0\u03bb\u03ae \u03ba\u03b1\u03b9 \u03b4\u03b9\u03b1\u03c1\u03ba\u03b5\u03af \u03c0\u03b5\u03c1\u03af\u03c0\u03bf\u03c5 10 \u03bb\u03b5\u03c0\u03c4\u03ac<\/strong>. \u0393\u03b9\u03b1 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03b5\u03bd\u03b4\u03b5\u03c7\u03bf\u03bc\u03ad\u03bd\u03c9\u03c2 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03b6\u03bf\u03c5\u03bd \u03c0\u03c1\u03bf\u03b2\u03bb\u03ae\u03bc\u03b1\u03c4\u03b1 \u03ba\u03b9\u03bd\u03b7\u03c4\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03ae \u03c0\u03c1\u03bf\u03c4\u03b9\u03bc\u03bf\u03cd\u03bd \u03bc\u03b9\u03b1 \u03c0\u03b9\u03bf \u03ac\u03bc\u03b5\u03c3\u03b7 \u03bc\u03b5\u03c4\u03b1\u03ba\u03af\u03bd\u03b7\u03c3\u03b7, \u03c4\u03b1\u03be\u03af \u03ba\u03b1\u03b9 \u03c5\u03c0\u03b7\u03c1\u03b5\u03c3\u03af\u03b5\u03c2 \u03bc\u03b5\u03c4\u03b1\u03c6\u03bf\u03c1\u03ac\u03c2 \u03bc\u03b5 \u03ba\u03bf\u03b9\u03bd\u03ae \u03c7\u03c1\u03ae\u03c3\u03b7 \u03bf\u03c7\u03ae\u03bc\u03b1\u03c4\u03bf\u03c2<\/strong> \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03cd\u03ba\u03bf\u03bb\u03b1 \u03c0\u03c1\u03bf\u03c3\u03b2\u03ac\u03c3\u03b9\u03bc\u03b1 \u03ba\u03b1\u03b9 \u03b5\u03bd\u03b8\u03b1\u03c1\u03c1\u03cd\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9.<\/p>\n

\u0391\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 \u03c0\u03c1\u03ce\u03c4\u03b7 \u03c6\u03bf\u03c1\u03ac \u03c0\u03bf\u03c5 \u03c7\u03c1\u03b7\u03c3\u03b9\u03bc\u03bf\u03c0\u03bf\u03b9\u03b5\u03af\u03c4\u03b5 \u03c4\u03b1 \u03bc\u03ad\u03c3\u03b1 \u03bc\u03b1\u03b6\u03b9\u03ba\u03ae\u03c2 \u03bc\u03b5\u03c4\u03b1\u03c6\u03bf\u03c1\u03ac\u03c2 \u03c4\u03b7\u03c2 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7\u03c2, \u03b8\u03b1 \u03ad\u03c7\u03b5\u03c4\u03b5 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7. \u039f\u03b9 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ad\u03c2 \u03b8\u03b1 \u03c3\u03b1\u03c2 \u03c3\u03c5\u03bd\u03bf\u03b4\u03b5\u03cd\u03c3\u03bf\u03c5\u03bd \u03ba\u03b1\u03b9 \u03b8\u03b1 \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03bf\u03c5\u03bd \u03c3\u03c4\u03b9\u03c2 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c3\u03b1\u03c2 \u03ba\u03b1\u03b8\u2019 \u03cc\u03bb\u03b7 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03b4\u03c1\u03bf\u03bc\u03ae. \u039c\u03b7\u03bd \u03b4\u03b9\u03c3\u03c4\u03ac\u03c3\u03b5\u03c4\u03b5 \u03bd\u03b1 \u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03c4\u03b5 \u03b2\u03bf\u03ae\u03b8\u03b5\u03b9\u03b1 \u2014 \u03b5\u03af\u03bc\u03b1\u03c3\u03c4\u03b5 \u03b5\u03b4\u03ce \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b4\u03b9\u03b1\u03c3\u03c6\u03b1\u03bb\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03cc\u03c4\u03b9 \u03b7 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b1 \u03c3\u03b1\u03c2 \u03b8\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bf\u03bc\u03b1\u03bb\u03ae \u03ba\u03b1\u03b9 \u03c7\u03c9\u03c1\u03af\u03c2 \u03ac\u03b3\u03c7\u03bf\u03c2.<\/p>\n

\u03a4\u03cc\u03c0\u03bf\u03c2 \u03b4\u03b9\u03b5\u03be\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2: \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03b9\u03b1\u03ba\u03cc \u039d\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf Bellvitge<\/h3>\n

\u03a4\u03bf \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd<\/strong> \u03b8\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03b7\u03b8\u03b5\u03af \u03c3\u03c4\u03bf \u039a\u03b5\u03bd\u03c4\u03c1\u03b9\u03ba\u03cc \u039a\u03c4\u03af\u03c1\u03b9\u03bf<\/strong> \u03c4\u03bf\u03c5 \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03b9\u03b1\u03ba\u03bf\u03cd \u039d\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf\u03c5 Bellvitge, \u03c3\u03c4\u03bf \u0399\u03c3\u03cc\u03b3\u03b5\u03b9\u03bf \u03c4\u03bf\u03c5 \u0391\u03bc\u03c6\u03b9\u03b8\u03b5\u03ac\u03c4\u03c1\u03bf\u03c5<\/strong>. \u0397 \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03ae \u03ba\u03b1\u03b9 \u03ad\u03bd\u03b1 \u03b5\u03bb\u03b1\u03c6\u03c1\u03cd \u03c0\u03c1\u03c9\u03b9\u03bd\u03cc \u03b8\u03b1 \u03be\u03b5\u03ba\u03b9\u03bd\u03ae\u03c3\u03bf\u03c5\u03bd \u03c3\u03c4\u03b9\u03c2 8:00 \u03c0.\u03bc.<\/strong>, \u03ba\u03b1\u03b9 \u03c4\u03bf \u03c0\u03c1\u03cc\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1 \u03b8\u03b1 \u03b5\u03ba\u03c4\u03b5\u03bb\u03b5\u03c3\u03c4\u03b5\u03af \u03b1\u03c0\u03cc 8:30 \u03c0.\u03bc. \u03ad\u03c9\u03c2 4:30 \u03bc.\u03bc.<\/strong>. \u03a4\u03bf Bellvitge \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03ad\u03bd\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b1 \u03ba\u03bf\u03c1\u03c5\u03c6\u03b1\u03af\u03b1 \u03b9\u03b4\u03c1\u03cd\u03bc\u03b1\u03c4\u03b1 \u03c4\u03b7\u03c2 \u0399\u03c3\u03c0\u03b1\u03bd\u03af\u03b1\u03c2 \u03c3\u03c4\u03bf\u03bd \u03c4\u03bf\u03bc\u03ad\u03b1 \u03c4\u03c9\u03bd \u03c3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd \u03ba\u03b1\u03b9 \u03c6\u03b9\u03bb\u03bf\u03be\u03b5\u03bd\u03b5\u03af \u03ad\u03bd\u03b1 \u03b5\u03b9\u03b4\u03b9\u03ba\u03ac \u03b4\u03b9\u03b1\u03c0\u03b9\u03c3\u03c4\u03b5\u03c5\u03bc\u03ad\u03bd\u03bf \u039a\u03ad\u03bd\u03c4\u03c1\u03bf \u03a6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd ECD. \u0397 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03c4\u03bf\u03c5, \u03c5\u03c0\u03cc \u03c4\u03b7\u03bd \u03b7\u03b3\u03b5\u03c3\u03af\u03b1 \u03c4\u03bf\u03c5 \u0394\u03c1. Xavier Solanich, \u03ad\u03c7\u03b5\u03b9 \u03b4\u03b9\u03b1\u03b4\u03c1\u03b1\u03bc\u03b1\u03c4\u03af\u03c3\u03b5\u03b9 \u03ba\u03b1\u03b8\u03bf\u03c1\u03b9\u03c3\u03c4\u03b9\u03ba\u03cc \u03c1\u03cc\u03bb\u03bf \u03c3\u03c4\u03bf\u03bd \u03c3\u03c7\u03b5\u03b4\u03b9\u03b1\u03c3\u03bc\u03cc \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b9\u03c3\u03c0\u03b1\u03bd\u03b9\u03ba\u03ae\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03b1\u03c1\u03b9\u03ba\u03ae \u03bd\u03cc\u03c3\u03bf.<\/p>\n

\u0394\u03b5\u03af\u03c0\u03bd\u03bf \u03b5\u03bf\u03c1\u03c4\u03b1\u03c3\u03bc\u03bf\u03cd \u03c4\u03bf \u03b2\u03c1\u03ac\u03b4\u03c5<\/h3>\n

\u039c\u03b5\u03c4\u03ac \u03b1\u03c0\u03cc \u03bc\u03b9\u03b1 \u03bf\u03bb\u03cc\u03ba\u03bb\u03b7\u03c1\u03b7 \u03bc\u03ad\u03c1\u03b1 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03b9\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c3\u03c5\u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd, \u03cc\u03bb\u03bf\u03b9 \u03bf\u03b9 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03ba\u03b1\u03bb\u03bf\u03cd\u03bd\u03c4\u03b1\u03b9 \u03c3\u03c4\u03bf\u00a0\u0394\u03b5\u03af\u03c0\u03bd\u03bf \u03b5\u03bf\u03c1\u03c4\u03b1\u03c3\u03bc\u03bf\u03cd \u03c4\u03b7\u03c2 ECD Global Alliance<\/b>\u00a0\u03c3\u03c4\u03bf\u00a0\u0391\u03af\u03b8\u03bf\u03c5\u03c3\u03b1 \u00ab\u03a6\u03b9\u03c1\u03ac\u00bb<\/b>, \u03c0\u03bf\u03c5 \u03b2\u03c1\u03af\u03c3\u03ba\u03b5\u03c4\u03b1\u03b9 \u03c3\u03c4\u03bf\u03bd -1 \u03cc\u03c1\u03bf\u03c6\u03bf \u03c4\u03bf\u03c5 Renaissance Barcelona Fira. \u0391\u03c0\u03cc 6:00 \u03ad\u03c9\u03c2 8:00 \u03bc.\u03bc.<\/strong>, \u03b8\u03b1 \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03c9\u03b8\u03bf\u03cd\u03bc\u03b5 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b1\u03bd\u03b1\u03bb\u03bf\u03b3\u03b9\u03c3\u03c4\u03bf\u03cd\u03bc\u03b5 \u03c4\u03b1 \u03b4\u03b9\u03b4\u03ac\u03b3\u03bc\u03b1\u03c4\u03b1 \u03c4\u03b7\u03c2 \u03b7\u03bc\u03ad\u03c1\u03b1\u03c2, \u03bd\u03b1 \u03b5\u03bd\u03b9\u03c3\u03c7\u03cd\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b9\u03c2 \u03c6\u03b9\u03bb\u03af\u03b5\u03c2 \u03bc\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b3\u03b9\u03bf\u03c1\u03c4\u03ac\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b5\u03c7\u03af\u03b6\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03c7\u03c4\u03af\u03b6\u03bf\u03c5\u03bc\u03b5 \u03bc\u03b1\u03b6\u03af. \u0395\u03af\u03bd\u03b1\u03b9 \u03bc\u03b9\u03b1 \u03b2\u03c1\u03b1\u03b4\u03b9\u03ac \u03b3\u03b5\u03bc\u03ac\u03c4\u03b7 \u03b5\u03bd\u03b8\u03ac\u03c1\u03c1\u03c5\u03bd\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03b7, \u03b5\u03af\u03c4\u03b5 \u03b1\u03c5\u03c4\u03ae \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 \u03c0\u03c1\u03ce\u03c4\u03b7 \u03c3\u03b1\u03c2 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b5\u03af\u03c4\u03b5 \u03b7 \u03b4\u03ad\u03ba\u03b1\u03c4\u03b7.<\/p>\n

\u03a0\u03c1\u03bf\u03c3\u03b2\u03b1\u03c3\u03b9\u03bc\u03cc\u03c4\u03b7\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7<\/h3>\n

\u0395\u03af\u03c4\u03b5 \u03c4\u03b1\u03be\u03b9\u03b4\u03b5\u03cd\u03b5\u03c4\u03b5 \u03bc\u03cc\u03bd\u03bf\u03b9 \u03c3\u03b1\u03c2 \u03b5\u03af\u03c4\u03b5 \u03bc\u03b5 \u03c4\u03bf\u03c5\u03c2 \u03b1\u03b3\u03b1\u03c0\u03b7\u03bc\u03ad\u03bd\u03bf\u03c5\u03c2 \u03c3\u03b1\u03c2, \u03b8\u03ad\u03bb\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03be\u03ad\u03c1\u03b5\u03c4\u03b5 \u03cc\u03c4\u03b9 \u03b4\u03b5\u03bd \u03b5\u03af\u03c3\u03c4\u03b5 \u03bc\u03cc\u03bd\u03bf\u03b9. \u0397 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 ECDGA \u03b5\u03af\u03bd\u03b1\u03b9 \u03ad\u03c4\u03bf\u03b9\u03bc\u03b7 \u03bd\u03b1 \u03c3\u03b1\u03c2 \u03c5\u03c0\u03bf\u03b4\u03b5\u03c7\u03c4\u03b5\u03af \u03bc\u03b5 \u03c3\u03c5\u03bc\u03c0\u03cc\u03bd\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1. \u0391\u03bd \u03ad\u03c7\u03b5\u03c4\u03b5 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03bc\u03b5 \u03ba\u03b9\u03bd\u03b7\u03c4\u03b9\u03ba\u03ac \u03c0\u03c1\u03bf\u03b2\u03bb\u03ae\u03bc\u03b1\u03c4\u03b1, \u03c4\u03b9\u03c2 \u03b4\u03b9\u03b1\u03c4\u03c1\u03bf\u03c6\u03b9\u03ba\u03ad\u03c2 \u03c3\u03b1\u03c2 \u03b1\u03bd\u03ac\u03b3\u03ba\u03b5\u03c2 \u03ae \u03c4\u03b7\u03bd \u03c0\u03b5\u03c1\u03b9\u03ae\u03b3\u03b7\u03c3\u03ae \u03c3\u03b1\u03c2 \u03c3\u03c4\u03bf \u03bd\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf, \u03bf\u03b9 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ad\u03c2 \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03bf \u03c0\u03c1\u03bf\u03c3\u03c9\u03c0\u03b9\u03ba\u03cc \u03b5\u03af\u03bd\u03b1\u03b9 \u03ad\u03c4\u03bf\u03b9\u03bc\u03bf\u03b9 \u03bd\u03b1 \u03c3\u03b1\u03c2 \u03b2\u03bf\u03b7\u03b8\u03ae\u03c3\u03bf\u03c5\u03bd. \u0397 \u03ac\u03bd\u03b5\u03c3\u03ae \u03c3\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03b7 \u03b1\u03c3\u03c6\u03ac\u03bb\u03b5\u03b9\u03ac \u03c3\u03b1\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 \u03c0\u03c1\u03bf\u03c4\u03b5\u03c1\u03b1\u03b9\u03cc\u03c4\u03b7\u03c4\u03ac \u03bc\u03b1\u03c2.<\/p>\n

\u0393\u03b9\u03b1\u03c4\u03af \u03b1\u03c5\u03c4\u03ae \u03b7 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03ad\u03c7\u03b5\u03b9 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1<\/h3>\n

\u0397 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03b4\u03b5\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03c0\u03bb\u03ce\u03c2 \u03bc\u03b9\u03b1 \u03b5\u03ba\u03c0\u03b1\u03b9\u03b4\u03b5\u03c5\u03c4\u03b9\u03ba\u03ae \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7 \u2014 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03b1\u03ba\u03c1\u03bf\u03b3\u03c9\u03bd\u03b9\u03b1\u03af\u03bf \u03bb\u03af\u03b8\u03bf \u03c4\u03b7\u03c2 \u03b1\u03c0\u03bf\u03c3\u03c4\u03bf\u03bb\u03ae\u03c2 \u03c4\u03b7\u03c2 ECDGA \u03bd\u03b1 \u03b5\u03bd\u03ce\u03bd\u03b5\u03b9 \u03c4\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b5\u03c0\u03b7\u03c1\u03b5\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester. \u0395\u03b4\u03ce \u03bc\u03bf\u03b9\u03c1\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b5\u03c2, \u03b5\u03b4\u03ce \u03c4\u03b1 \u03c0\u03bf\u03bb\u03cd\u03c0\u03bb\u03bf\u03ba\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ac \u03b8\u03ad\u03bc\u03b1\u03c4\u03b1 \u03b3\u03af\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c0\u03b9\u03bf \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03b7\u03c4\u03ac \u03ba\u03b1\u03b9 \u03b5\u03b4\u03ce \u03cc\u03c3\u03bf\u03b9 \u03b6\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf ECD \u03ad\u03c7\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03bd\u03b1 \u03b1\u03ba\u03bf\u03cd\u03c3\u03bf\u03c5\u03bd \u03b1\u03c0\u03b5\u03c5\u03b8\u03b5\u03af\u03b1\u03c2 \u03b4\u03b9\u03b5\u03b8\u03bd\u03b5\u03af\u03c2 \u03b5\u03b9\u03b4\u03b9\u03ba\u03bf\u03cd\u03c2. \u0395\u03be\u03af\u03c3\u03bf\u03c5 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03bf \u03b3\u03b5\u03b3\u03bf\u03bd\u03cc\u03c2 \u03cc\u03c4\u03b9 \u03b5\u03b4\u03ce \u03c3\u03c5\u03c7\u03bd\u03ac \u03be\u03b5\u03ba\u03b9\u03bd\u03bf\u03cd\u03bd \u03c6\u03b9\u03bb\u03af\u03b5\u03c2 \u03c0\u03bf\u03c5 \u03b4\u03b9\u03b1\u03c1\u03ba\u03bf\u03cd\u03bd \u03bc\u03b9\u03b1 \u03b6\u03c9\u03ae.<\/p>\n

\u0391\u03bd\u03b1\u03b3\u03bd\u03c9\u03c1\u03af\u03b6\u03bf\u03c5\u03bc\u03b5 \u03cc\u03c4\u03b9 \u03c4\u03b1 \u03c4\u03b1\u03be\u03af\u03b4\u03b9\u03b1, \u03c4\u03b1 \u03bd\u03ad\u03b1 \u03c0\u03b5\u03c1\u03b9\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03bf\u03b9 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03bf\u03cd\u03bd \u03b1\u03b2\u03b5\u03b2\u03b1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1. \u03a9\u03c3\u03c4\u03cc\u03c3\u03bf, \u03bd\u03b1 \u03be\u03ad\u03c1\u03b5\u03c4\u03b5 \u03cc\u03c4\u03b9 \u03b8\u03b1 \u03b5\u03af\u03c3\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c4\u03c1\u03b9\u03b3\u03c5\u03c1\u03b9\u03c3\u03bc\u03ad\u03bd\u03bf\u03b9 \u03b1\u03c0\u03cc \u03b1\u03bd\u03b8\u03c1\u03ce\u03c0\u03bf\u03c5\u03c2 \u03c0\u03bf\u03c5 \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03bf\u03cd\u03bd, \u03c0\u03bf\u03c5 \u03bd\u03bf\u03b9\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ba\u03b1\u03b9 \u03c0\u03bf\u03c5 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03c0\u03bf\u03c6\u03b1\u03c3\u03b9\u03c3\u03bc\u03ad\u03bd\u03bf\u03b9 \u03bd\u03b1 \u03c3\u03b1\u03c2 \u03c3\u03c5\u03bd\u03bf\u03b4\u03b5\u03cd\u03c3\u03bf\u03c5\u03bd \u03c3\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03c4\u03b1\u03be\u03af\u03b4\u03b9. \u039c\u03b1\u03b6\u03af, \u03c7\u03c4\u03af\u03b6\u03bf\u03c5\u03bc\u03b5 \u03cc\u03c7\u03b9 \u03bc\u03cc\u03bd\u03bf \u03b3\u03bd\u03ce\u03c3\u03b7, \u03b1\u03bb\u03bb\u03ac \u03ba\u03b1\u03b9 \u03b5\u03bb\u03c0\u03af\u03b4\u03b1.<\/p>\n

\u03a0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03b5\u03bb\u03ad\u03b3\u03c7\u03b5\u03c4\u03b5 \u03c4\u03b1\u03ba\u03c4\u03b9\u03ba\u03ac \u03c4\u03bf\u03bd \u03b9\u03c3\u03c4\u03cc\u03c4\u03bf\u03c0\u03bf \u03c4\u03b7\u03c2 ECDGA \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b5\u03bb\u03b9\u03ba\u03ad\u03c2 \u03bb\u03b5\u03c0\u03c4\u03bf\u03bc\u03ad\u03c1\u03b5\u03b9\u03b5\u03c2. \u0391\u03bd \u03c7\u03c1\u03b5\u03b9\u03b1\u03c3\u03c4\u03b5\u03af\u03c4\u03b5 \u03b2\u03bf\u03ae\u03b8\u03b5\u03b9\u03b1 \u03c0\u03c1\u03b9\u03bd \u03ae \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2, \u03b5\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03ae\u03c3\u03c4\u03b5 \u03bc\u03b1\u03b6\u03af \u03bc\u03b1\u03c2. \u0391\u03bd\u03c5\u03c0\u03bf\u03bc\u03bf\u03bd\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03c3\u03b1\u03c2 \u03b4\u03bf\u03cd\u03bc\u03b5 \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7.<\/p>","protected":false},"excerpt":{"rendered":"

As you prepare to attend the 10th Annual Patient and Family Gathering hosted by the Erdheim-Chester Disease Global Alliance (ECDGA), we want to ensure you have all the practical information […]<\/p>\n","protected":false},"author":14,"featured_media":174663,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[594,375,378,387,380,383,374,384,386,376,385],"class_list":["post-53450","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-barcelona","tag-ecdawareness","tag-ecdcommunity","tag-ecdga","tag-ecdsupport","tag-ecdvolunteer","tag-erdheimchesterdisease","tag-hopeforecd","tag-makerarevisible","tag-raredisease","tag-supportraredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/53450","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=53450"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/53450\/revisions"}],"predecessor-version":[{"id":174664,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/53450\/revisions\/174664"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/174663"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=53450"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=53450"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=53450"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}