{"id":48325,"date":"2025-04-29T05:33:41","date_gmt":"2025-04-29T09:33:41","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=48325"},"modified":"2025-05-03T12:13:08","modified_gmt":"2025-05-03T16:13:08","slug":"%cf%83%cf%85%ce%b3%ce%ba%ce%ad%ce%bd%cf%84%cf%81%cf%89%cf%83%ce%b7-%cf%87%cf%81%ce%b7%ce%bc%ce%ac%cf%84%cf%89%ce%bd-%ce%bc%ce%b5-%ce%ba%ce%b1%cf%81%ce%b4%ce%b9%ce%ac-%cf%84%ce%b9%ce%bc%cf%8e%ce%bd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/fundraising-with-heart-celebrating-volunteer-champions\/","title":{"rendered":"\u03a3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7 \u03c7\u03c1\u03b7\u03bc\u03ac\u03c4\u03c9\u03bd \u03bc\u03b5 \u03ba\u03b1\u03c1\u03b4\u03b9\u03ac: \u03a4\u03b9\u03bc\u03ce\u03bd\u03c4\u03b1\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03c0\u03c1\u03c9\u03c4\u03b1\u03b8\u03bb\u03b7\u03c4\u03ad\u03c2 \u03c4\u03bf\u03c5 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03b9\u03c3\u03bc\u03bf\u03cd"},"content":{"rendered":"<p>\u0395\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03bc\u03b9\u03b1 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1 \u03cc\u03c0\u03c9\u03c2\u00a0<strong>\u039d\u03cc\u03c3\u03bf\u03c2 Erdheim-Chester (ECD)<\/strong>\u00a0\u03b4\u03b5\u03bd \u03b1\u03c1\u03ba\u03bf\u03cd\u03bd \u03bc\u03cc\u03bd\u03bf \u03c4\u03b1 \u03b3\u03b5\u03b3\u03bf\u03bd\u03cc\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03bf\u03b9 \u03b1\u03c1\u03b9\u03b8\u03bc\u03bf\u03af \u2014 \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ac\u03bd\u03b8\u03c1\u03c9\u03c0\u03bf\u03b9. \u03a7\u03c1\u03b5\u03b9\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03c0\u03ac\u03b8\u03bf\u03c2, \u03c6\u03b1\u03bd\u03c4\u03b1\u03c3\u03af\u03b1 \u03ba\u03b1\u03b9 \u03ba\u03bf\u03b9\u03bd\u03bf\u03c4\u03b9\u03ba\u03cc \u03c0\u03bd\u03b5\u03cd\u03bc\u03b1. \u039a\u03b1\u03b9 \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1\u00a0<strong>\u039c\u03ae\u03bd\u03b1\u03c2 \u0395\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03b9\u03c3\u03bc\u03bf\u03cd<\/strong>, we\u2019re thrilled to recognize a very special kind of volunteer: the fundraisers who turn everyday events into life-changing impact.<\/p>\n<p>\u03a3\u03c4\u03bf\u00a0<strong>\u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA)<\/strong>, \u03b7 \u03b1\u03c0\u03bf\u03c3\u03c4\u03bf\u03bb\u03ae \u03bc\u03b1\u03c2 \u03b5\u03be\u03b1\u03c1\u03c4\u03ac\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7 \u03b3\u03b5\u03bd\u03bd\u03b1\u03b9\u03bf\u03b4\u03c9\u03c1\u03af\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1 \u03cc\u03c3\u03c9\u03bd \u03c0\u03b9\u03c3\u03c4\u03b5\u03cd\u03bf\u03c5\u03bd \u03c3\u03b5 \u03b1\u03c5\u03c4\u03ae\u03bd. \u0395\u03af\u03c4\u03b5 \u03c0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03bc\u03b9\u03b1 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7 \u03c0\u03ce\u03bb\u03b7\u03c3\u03b7\u03c2 \u03b3\u03bb\u03c5\u03ba\u03ce\u03bd, \u03bc\u03b9\u03b1 \u03c0\u03c1\u03cc\u03ba\u03bb\u03b7\u03c3\u03b7 \u03b3\u03c5\u03bc\u03bd\u03b1\u03c3\u03c4\u03b9\u03ba\u03ae\u03c2 \u03ae \u03bc\u03b9\u03b1 \u03b2\u03c1\u03b1\u03b4\u03b9\u03ac \u03c0\u03b1\u03b9\u03c7\u03bd\u03b9\u03b4\u03b9\u03ce\u03bd \u03bc\u03b5 \u03c3\u03ba\u03bf\u03c0\u03cc, \u03ba\u03ac\u03b8\u03b5 \u03b4\u03bf\u03bb\u03ac\u03c1\u03b9\u03bf \u03c0\u03bf\u03c5 \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03b5\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03b1\u03c5\u03c4\u03bf\u03cd\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ad\u03c2 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03bb\u03b5\u03b9 \u03c3\u03c4\u03b7 \u03c7\u03c1\u03b7\u03bc\u03b1\u03c4\u03bf\u03b4\u03cc\u03c4\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2, \u03c3\u03c4\u03b7 \u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7 \u03c4\u03c9\u03bd \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c0\u03ad\u03ba\u03c4\u03b1\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03bf\u03c4\u03ae\u03c4\u03c9\u03bd \u03bc\u03b1\u03c2 \u03c3\u03b5 \u03cc\u03bb\u03bf \u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf.<\/p>\n<h3>\u039a\u03b1\u03b8\u03b7\u03bc\u03b5\u03c1\u03b9\u03bd\u03ad\u03c2 \u03c0\u03c1\u03ac\u03be\u03b5\u03b9\u03c2, \u03b5\u03be\u03b1\u03b9\u03c1\u03b5\u03c4\u03b9\u03ba\u03cc\u03c2 \u03b1\u03bd\u03c4\u03af\u03ba\u03c4\u03c5\u03c0\u03bf\u03c2<\/h3>\n<p>What do yogurt, wine, pampered kitchens, and running shoes have in common? They\u2019ve all been used to support the fight against ECD. Our volunteer fundraisers have found meaningful and often fun ways to give back,\u00a0and the results are making a real difference.<\/p>\n<p>\u039c\u03b5\u03c1\u03b9\u03ba\u03ad\u03c2 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03b1\u03be\u03b9\u03bf\u03c3\u03b7\u03bc\u03b5\u03af\u03c9\u03c4\u03b5\u03c2 \u03c0\u03c1\u03bf\u03c3\u03c0\u03ac\u03b8\u03b5\u03b9\u03b5\u03c2 \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03c5\u03bd:<\/p>\n<ul>\n<li><strong>\u03a0\u03b1\u03b9\u03c7\u03bd\u03af\u03b4\u03b9 \u00abWine Survivor\u00bb<\/strong>\u00a0\u2013 \u0388\u03bd\u03b1\u03c2 \u03c6\u03b9\u03bb\u03b9\u03ba\u03cc\u03c2 \u03b4\u03b9\u03b1\u03b3\u03c9\u03bd\u03b9\u03c3\u03bc\u03cc\u03c2 \u03bc\u03b5 \u03ad\u03c0\u03b1\u03b8\u03bb\u03b1 \u03bc\u03c0\u03bf\u03c5\u03ba\u03ac\u03bb\u03b9\u03b1 \u03ba\u03c1\u03b1\u03c3\u03b9\u03bf\u03cd, \u03c0\u03bf\u03c5 \u03ad\u03c7\u03b5\u03b9 \u03c9\u03c2 \u03ba\u03cd\u03c1\u03b9\u03bf \u03c3\u03c4\u03cc\u03c7\u03bf \u03c4\u03b7 \u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7 \u03c4\u03b7\u03c2 ECDGA.<\/li>\n<li><strong>\u03a0\u03c9\u03bb\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1\u03bf\u03c5\u03c1\u03c4\u03b9\u03bf\u03cd \u03c4\u03b7\u03c2 Culver\u2019s<\/strong>\u00a0\u2013 \u0388\u03bd\u03b1 \u03b1\u03b3\u03b1\u03c0\u03b7\u03bc\u03ad\u03bd\u03bf \u03c3\u03c4\u03ad\u03ba\u03b9 \u03c4\u03b7\u03c2 \u03c0\u03b5\u03c1\u03b9\u03bf\u03c7\u03ae\u03c2 \u03bc\u03b5\u03c4\u03b1\u03c4\u03c1\u03ac\u03c0\u03b7\u03ba\u03b5 \u03c3\u03b5 \u03ad\u03bd\u03b1 \u00ab\u03b3\u03bb\u03c5\u03ba\u03cc\u00bb \u03b4\u03af\u03ba\u03c4\u03c5\u03bf \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7\u03c2.<\/li>\n<li><strong>\u0395\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7\u03c2 \u03c7\u03c1\u03b7\u03bc\u03ac\u03c4\u03c9\u03bd \u03c4\u03b7\u03c2 Pampered Chef<\/strong>\u00a0\u2013 \u039c\u03b1\u03b3\u03b5\u03b9\u03c1\u03b5\u03cd\u03bf\u03bd\u03c4\u03b1\u03c2 \u03bc\u03b5 \u03c3\u03ba\u03bf\u03c0\u03cc: \u03b5\u03ba\u03b5\u03af \u03cc\u03c0\u03bf\u03c5 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03bf\u03cd\u03bd\u03c4\u03b1\u03b9 \u03b3\u03b5\u03cd\u03bc\u03b1\u03c4\u03b1, \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03bf\u03cd\u03bd\u03c4\u03b1\u03b9 \u03ba\u03b1\u03b9 \u03b1\u03bd\u03b1\u03bc\u03bd\u03ae\u03c3\u03b5\u03b9\u03c2\u00a0<em>\u03ba\u03b1\u03c4\u03b1\u03c3\u03ba\u03b5\u03c5\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9, \u03ba\u03b1\u03b9<\/em>\u00a0\u03b3\u03af\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b4\u03c9\u03c1\u03b5\u03ad\u03c2.<\/li>\n<li><strong>\u0391\u03c1\u03c7\u03b7\u03b3\u03bf\u03af \u03bf\u03bc\u03ac\u03b4\u03c9\u03bd \u03c3\u03c4\u03bf\u03bd \u0391\u03b3\u03ce\u03bd\u03b1 \u0394\u03b9\u03b1\u03c3\u03ba\u03ad\u03b4\u03b1\u03c3\u03b7\u03c2 (\u03a4\u03c1\u03ad\u03be\u03b9\u03bc\u03bf\/\u03a0\u03b5\u03c1\u03af\u03c0\u03b1\u03c4\u03bf\u03c2\/\u03a4\u03c1\u03bf\u03c7\u03bf\u03ba\u03af\u03bd\u03b7\u03c4\u03bf)<\/strong>\u00a0\u2013 \u0394\u03c1\u03ac\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03ad\u03bd\u03b1\u03bd \u03c3\u03ba\u03bf\u03c0\u03cc, \u03c0\u03bf\u03c5 \u03b5\u03bd\u03ce\u03bd\u03b5\u03b9 \u03c4\u03b9\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03c3\u03c4\u03b7\u03bd \u03c0\u03bf\u03c1\u03b5\u03af\u03b1.<\/li>\n<li><strong>\u0395\u03ba\u03c3\u03c4\u03c1\u03b1\u03c4\u03b5\u03af\u03b5\u03c2 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7\u03c2 \u03c7\u03c1\u03b7\u03bc\u03ac\u03c4\u03c9\u03bd \u03b3\u03b9\u03b1 \u03b3\u03b5\u03bd\u03ad\u03b8\u03bb\u03b9\u03b1 \u03c3\u03c4\u03bf Facebook<\/strong>\u00a0\u2013 \u0393\u03b9\u03bf\u03c1\u03c4\u03ac\u03c3\u03c4\u03b5 \u03c4\u03b7 \u03be\u03b5\u03c7\u03c9\u03c1\u03b9\u03c3\u03c4\u03ae \u03c3\u03b1\u03c2 \u03bc\u03ad\u03c1\u03b1, \u03b5\u03bd\u03b8\u03b1\u03c1\u03c1\u03cd\u03bd\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03c6\u03af\u03bb\u03bf\u03c5\u03c2 \u03c3\u03b1\u03c2 \u03bd\u03b1 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03be\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd ECDGA, \u03bc\u03b5\u03c4\u03b1\u03c4\u03c1\u03ad\u03c0\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c4\u03b1 \u03b3\u03b5\u03bd\u03ad\u03b8\u03bb\u03b9\u03ac \u03c3\u03b1\u03c2 \u03c3\u03b5 \u03bc\u03b9\u03b1 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ae \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03bd\u03b1 \u03ba\u03ac\u03bd\u03b5\u03c4\u03b5 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03ac.<\/li>\n<li><strong>\u0395\u03c0\u03b9\u03c3\u03c4\u03bf\u03bb\u03ad\u03c2 \u03c0\u03c1\u03bf\u03c2 \u03c6\u03af\u03bb\u03bf\u03c5\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03c5\u03b3\u03b3\u03b5\u03bd\u03b5\u03af\u03c2<\/strong>\u00a0\u2013 \u039c\u03bf\u03b9\u03c1\u03b1\u03c3\u03c4\u03b5\u03af\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b1 \u03c3\u03b1\u03c2 \u03bc\u03b5 \u03c4\u03b7\u03bd ECDGA \u03bc\u03b5 \u03c4\u03bf\u03c5\u03c2 \u03c0\u03b9\u03bf \u03ba\u03bf\u03bd\u03c4\u03b9\u03bd\u03bf\u03cd\u03c2 \u03c3\u03b1\u03c2 \u03b1\u03bd\u03b8\u03c1\u03ce\u03c0\u03bf\u03c5\u03c2, \u03c0\u03c1\u03bf\u03ba\u03b5\u03b9\u03bc\u03ad\u03bd\u03bf\u03c5 \u03bd\u03b1 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03b9\u03ae\u03c3\u03b5\u03c4\u03b5 \u03c4\u03bf \u03ba\u03bf\u03b9\u03bd\u03cc, \u03bd\u03b1 \u03c0\u03c5\u03c1\u03bf\u03b4\u03bf\u03c4\u03ae\u03c3\u03b5\u03c4\u03b5 \u03bf\u03c5\u03c3\u03b9\u03b1\u03c3\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03c4\u03b5 \u03c4\u03b7 \u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03ae \u03c4\u03bf\u03c5\u03c2.<\/li>\n<\/ul>\n<p>These events may seem small on the surface, but collectively, they build momentum. They raise awareness in new circles, draw in first-time supporters, and create an environment where fundraising feels less like a task and more like a celebration of hope.<\/p>\n<h3>\u0395\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ad\u03c2 \u03c0\u03bf\u03c5 \u03ba\u03ac\u03bd\u03bf\u03c5\u03bd \u03c4\u03bf \u03ba\u03ac\u03c4\u03b9 \u03c0\u03b1\u03c1\u03b1\u03c0\u03ac\u03bd\u03c9<\/h3>\n<p>\u0394\u03b5\u03bd \u03ad\u03c7\u03b5\u03b9 \u03bd\u03b1 \u03ba\u03ac\u03bd\u03b5\u03b9 \u03bc\u03cc\u03bd\u03bf \u03bc\u03b5 \u03c4\u03b1 \u03c7\u03c1\u03ae\u03bc\u03b1\u03c4\u03b1 \u03c0\u03bf\u03c5 \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03b8\u03b7\u03ba\u03b1\u03bd \u2014 \u03ad\u03c7\u03b5\u03b9 \u03bd\u03b1 \u03ba\u03ac\u03bd\u03b5\u03b9 \u03bc\u03b5 \u03c4\u03bf\u00a0<strong role=\"heading\" aria-level=\"5\">\u03bc\u03ae\u03bd\u03c5\u03bc\u03b1<\/strong>. Volunteer fundraisers remind the world that ECD isn\u2019t invisible. Every t-shirt sold, step walked, and recipe shared is a powerful act of advocacy.<\/p>\n<p>Many of these fundraisers are organized by patients, caregivers, or friends of someone living with ECD. Often, they happen quietly\u2014behind the scenes, in local communities, or online among friends. But their effect ripples far and wide, supporting everything from research grants to patient travel assistance to expanded educational tools.<\/p>\n<p>\u039a\u03b1\u03b9 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c0\u03b9\u03ba\u03b5\u03af\u03bc\u03b5\u03bd\u03b7\u00a0<strong>\u03a3\u03c5\u03bd\u03ad\u03b4\u03c1\u03b9\u03bf \u03c4\u03bf\u03c5 \u039c\u03b1\u0390\u03bf\u03c5 \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7<\/strong>, the impact of these efforts will be visible in real time, from the resources available at the event to the programs supported by fundraiser dollars.<\/p>\n<h3>\u0393\u03b9\u03b1\u03c4\u03af \u03bf\u03b9 \u03c0\u03c1\u03bf\u03c3\u03c0\u03ac\u03b8\u03b5\u03b9\u03ad\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03ad\u03c7\u03bf\u03c5\u03bd \u03c4\u03cc\u03c3\u03bf \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1<\/h3>\n<p>\u0395\u03c0\u03b5\u03b9\u03b4\u03ae \u03b7 ECD \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03cc\u03c3\u03bf \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1, \u03b4\u03b5\u03bd \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b1\u03be\u03b9\u03bf\u03c0\u03bf\u03b9\u03ae\u03c3\u03b5\u03b9 \u03bc\u03b7\u03c7\u03b1\u03bd\u03b9\u03c3\u03bc\u03bf\u03cd\u03c2 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7\u03c2 \u03c7\u03c1\u03b7\u03bc\u03ac\u03c4\u03c9\u03bd \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7\u03c2 \u03ba\u03bb\u03af\u03bc\u03b1\u03ba\u03b1\u03c2. \u0394\u03b5\u03bd \u03b4\u03b9\u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03bd\u03bf\u03c5\u03bc\u03b5 \u03b5\u03ba\u03b1\u03c4\u03bf\u03bd\u03c4\u03ac\u03b4\u03b5\u03c2 \u03c0\u03b5\u03b6\u03bf\u03c0\u03bf\u03c1\u03af\u03b5\u03c2 \u03bc\u03b5 \u03c7\u03bf\u03c1\u03b7\u03b3\u03bf\u03cd\u03c2 \u03ae \u03b5\u03c4\u03ae\u03c3\u03b9\u03b5\u03c2 \u03c4\u03b7\u03bb\u03b5\u03bc\u03b1\u03c1\u03b1\u03b8\u03ce\u03bd\u03b9\u03b5\u03c2. \u0391\u03c5\u03c4\u03cc \u03c0\u03bf\u03c5\u00a0<em>\u03ba\u03ac\u03bd\u03b5<\/em>\u00a0\u0391\u03c5\u03c4\u03cc \u03c0\u03bf\u03c5 \u03ad\u03c7\u03bf\u03c5\u03bc\u03b5 \u03b5\u03af\u03bd\u03b1\u03b9 \u03ba\u03ac\u03c4\u03b9 \u03b1\u03ba\u03cc\u03bc\u03b1 \u03c0\u03b9\u03bf \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc: \u03bc\u03b9\u03b1 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03b1\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03b5\u03b9 \u03b4\u03c1\u03ac\u03c3\u03b7 \u03bc\u03b5 \u03ba\u03b1\u03c1\u03b4\u03b9\u03ac, \u03c0\u03c1\u03c9\u03c4\u03bf\u03b2\u03bf\u03c5\u03bb\u03af\u03b1 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03bf\u03c6\u03b1\u03c3\u03b9\u03c3\u03c4\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1.<\/p>\n<p>Volunteer-led fundraisers have helped:<\/p>\n<ul>\n<li>\u0394\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03af\u03b1 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ce\u03bd \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03b9\u03ce\u03bd<\/li>\n<li>\u0392\u03b5\u03bb\u03c4\u03af\u03c9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03c0\u03bb\u03b1\u03c4\u03c6\u03bf\u03c1\u03bc\u03ce\u03bd \u03b5\u03b9\u03ba\u03bf\u03bd\u03b9\u03ba\u03ae\u03c2 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7\u03c2<\/li>\n<li>Provide resources to newly diagnosed patients<\/li>\n<li>\u0391\u03bd\u03b1\u03b4\u03b5\u03af\u03be\u03c4\u03b5 \u03c4\u03bf ECD \u03c3\u03c4\u03b7 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ae \u03c3\u03ba\u03b7\u03bd\u03ae \u03c4\u03c9\u03bd \u03c3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd<\/li>\n<\/ul>\n<p>\u03a4\u03bf \u03ad\u03c1\u03b3\u03bf \u03c4\u03bf\u03c5\u03c2 \u03ba\u03b1\u03bb\u03cd\u03c0\u03c4\u03b5\u03b9 \u03c4\u03b1 \u03ba\u03b5\u03bd\u03ac \u03c3\u03c4\u03b1 \u03bf\u03c0\u03bf\u03af\u03b1 \u03b7 \u03b8\u03b5\u03c3\u03bc\u03b9\u03ba\u03ae \u03c7\u03c1\u03b7\u03bc\u03b1\u03c4\u03bf\u03b4\u03cc\u03c4\u03b7\u03c3\u03b7 \u03b4\u03b5\u03bd \u03ad\u03c7\u03b5\u03b9 \u03c6\u03c4\u03ac\u03c3\u03b5\u03b9 \u03b1\u03ba\u03cc\u03bc\u03b1 \u2014 \u03ba\u03b1\u03b9 \u03b4\u03b9\u03b1\u03c3\u03c6\u03b1\u03bb\u03af\u03b6\u03b5\u03b9 \u03cc\u03c4\u03b9 \u03ba\u03b1\u03bc\u03af\u03b1 \u03c0\u03c1\u03bf\u03c3\u03c0\u03ac\u03b8\u03b5\u03b9\u03b1, \u03cc\u03c3\u03bf \u03bc\u03b9\u03ba\u03c1\u03ae \u03ba\u03b9 \u03b1\u03bd \u03b5\u03af\u03bd\u03b1\u03b9, \u03b4\u03b5\u03bd \u03c0\u03b7\u03b3\u03b1\u03af\u03bd\u03b5\u03b9 \u03c7\u03b1\u03bc\u03ad\u03bd\u03b7.<\/p>\n<h3>\u0391\u03c2 \u03b4\u03b9\u03b1\u03c4\u03b7\u03c1\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7 \u03b4\u03c5\u03bd\u03b1\u03bc\u03b9\u03ba\u03ae<\/h3>\n<p>\u039a\u03b1\u03b8\u03ce\u03c2 \u03b1\u03bd\u03b1\u03b4\u03b5\u03b9\u03ba\u03bd\u03cd\u03bf\u03c5\u03bc\u03b5 \u03b1\u03c5\u03c4\u03bf\u03cd\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03ba\u03b1\u03c4\u03b1\u03c0\u03bb\u03b7\u03ba\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ad\u03c2, \u03b1\u03c0\u03b5\u03c5\u03b8\u03cd\u03bd\u03bf\u03c5\u03bc\u03b5 \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03bc\u03b9\u03b1 \u03b1\u03bd\u03bf\u03b9\u03c7\u03c4\u03ae \u03c0\u03c1\u03cc\u03c3\u03ba\u03bb\u03b7\u03c3\u03b7:\u00a0<strong>\u03b4\u03b5\u03bd \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03b5\u03af\u03c3\u03b1\u03b9 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b1\u03c6\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c4\u03bf \u03c3\u03c4\u03af\u03b3\u03bc\u03b1 \u03c3\u03bf\u03c5.<\/strong>\u00a0\u0395\u03af\u03c4\u03b5 \u03c0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b9\u03bf\u03c1\u03b3\u03ac\u03bd\u03c9\u03c3\u03b7 \u03bc\u03b9\u03b1\u03c2 \u03b2\u03c1\u03b1\u03b4\u03b9\u03ac\u03c2 \u03ba\u03bf\u03c5\u03af\u03b6, \u03c4\u03b7\u03bd \u03c0\u03ce\u03bb\u03b7\u03c3\u03b7 \u03c7\u03b5\u03b9\u03c1\u03bf\u03c0\u03bf\u03af\u03b7\u03c4\u03c9\u03bd \u03c0\u03c1\u03bf\u03ca\u03cc\u03bd\u03c4\u03c9\u03bd, \u03b5\u03af\u03c4\u03b5 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c3\u03b5 \u03ad\u03bd\u03b1\u03bd \u03c4\u03bf\u03c0\u03b9\u03ba\u03cc \u03b1\u03b3\u03ce\u03bd\u03b1 \u03b4\u03c1\u03cc\u03bc\u03bf\u03c5 \u03bc\u03b5 \u03c3\u03ba\u03bf\u03c0\u03cc \u03c4\u03b7\u03bd ECDGA, \u03ba\u03ac\u03b8\u03b5 \u03b4\u03c1\u03ac\u03c3\u03b7 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7\u03c2 \u03c7\u03c1\u03b7\u03bc\u03ac\u03c4\u03c9\u03bd \u03bc\u03b1\u03c2 \u03c6\u03ad\u03c1\u03bd\u03b5\u03b9 \u03ad\u03bd\u03b1 \u03b2\u03ae\u03bc\u03b1 \u03c0\u03b9\u03bf \u03ba\u03bf\u03bd\u03c4\u03ac \u03c3\u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03ba\u03bf\u03b9\u03bd\u03bf\u03cd, \u03c3\u03c4\u03b7\u03bd \u03b5\u03bd\u03af\u03c3\u03c7\u03c5\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03c0\u03c1\u03bf\u03ce\u03b8\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2.<\/p>\n<p>\u0391\u03c2 \u03c3\u03c5\u03bd\u03b5\u03c7\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03b1\u03be\u03b9\u03bf\u03c0\u03bf\u03b9\u03bf\u03cd\u03bc\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03c0\u03bd\u03b5\u03cd\u03bc\u03b1 \u03ba\u03b1\u03b8\u03ce\u03c2 \u03c0\u03c1\u03bf\u03b5\u03c4\u03bf\u03b9\u03bc\u03b1\u03b6\u03cc\u03bc\u03b1\u03c3\u03c4\u03b5 \u03b3\u03b9\u03b1\u00a0<strong>\u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7 2025<\/strong>. \u03a4\u03bf \u03c0\u03ac\u03b8\u03bf\u03c2 \u03c4\u03c9\u03bd \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ce\u03bd \u03bc\u03b1\u03c2 \u03b8\u03b1 \u03b1\u03bd\u03b1\u03b4\u03b5\u03b9\u03c7\u03b8\u03b5\u03af \u03c0\u03bb\u03ae\u03c1\u03c9\u03c2, \u03c5\u03c0\u03b5\u03bd\u03b8\u03c5\u03bc\u03af\u03b6\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c3\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03cc\u03c4\u03b9 \u03b7 \u03c0\u03c1\u03cc\u03bf\u03b4\u03bf\u03c2 \u03c4\u03c1\u03bf\u03c6\u03bf\u03b4\u03bf\u03c4\u03b5\u03af\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03bf\u03c5\u03c2 \u03b1\u03bd\u03b8\u03c1\u03ce\u03c0\u03bf\u03c5\u03c2.<\/p>\n<h3>\u0395\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03bf\u03cd\u03bc\u03b5, \u0389\u03c1\u03c9\u03b5\u03c2 \u03c4\u03b7\u03c2 \u0395\u03c1\u03ac\u03bd\u03bf\u03c5<\/h3>\n<p>\u03a0\u03c1\u03bf\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03b4\u03b9\u03bf\u03c1\u03b3\u03b1\u03bd\u03c9\u03c4\u03ad\u03c2, \u03c4\u03bf\u03c5\u03c2 \u03b4\u03c9\u03c1\u03b7\u03c4\u03ad\u03c2, \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03bc\u03b1\u03c2 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b1\u03bd: \u03c3\u03b1\u03c2 \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03bf\u03cd\u03bc\u03b5 \u03c0\u03bf\u03c5 \u03ba\u03ac\u03bd\u03b1\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b5\u03bb\u03c0\u03af\u03b4\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1. \u03a3\u03b1\u03c2 \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03bf\u03cd\u03bc\u03b5 \u03c0\u03bf\u03c5 \u03c0\u03b9\u03c3\u03c4\u03ad\u03c8\u03b1\u03c4\u03b5 \u03cc\u03c4\u03b9 \u03ad\u03bd\u03b1 \u03ba\u03c5\u03c0\u03b5\u03bb\u03bb\u03ac\u03ba\u03b9 \u03b3\u03b9\u03b1\u03bf\u03c5\u03c1\u03c4\u03b9\u03bf\u03cd \u03ae \u03ad\u03bd\u03b1\u03c2 \u03b1\u03b3\u03ce\u03bd\u03b1\u03c2 5K \u03b8\u03b1 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03c3\u03b1\u03bd \u03bd\u03b1 \u03b1\u03bb\u03bb\u03ac\u03be\u03bf\u03c5\u03bd \u03b6\u03c9\u03ad\u03c2. \u039a\u03b1\u03b9 \u03c3\u03b1\u03c2 \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03bf\u03cd\u03bc\u03b5 \u03c0\u03bf\u03c5 \u03b1\u03c0\u03bf\u03b4\u03b5\u03af\u03be\u03b1\u03c4\u03b5, \u03be\u03b1\u03bd\u03ac \u03ba\u03b1\u03b9 \u03be\u03b1\u03bd\u03ac, \u03cc\u03c4\u03b9 \u03cc\u03c4\u03b1\u03bd \u03b5\u03bd\u03b5\u03c1\u03b3\u03bf\u03cd\u03bc\u03b5 \u03bc\u03b1\u03b6\u03af, \u03c6\u03c4\u03ac\u03bd\u03bf\u03c5\u03bc\u03b5 \u03c0\u03b9\u03bf \u03bc\u03b1\u03ba\u03c1\u03b9\u03ac.<\/p>\n<p>\u0394\u03b5\u03bd \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03b5\u03c4\u03b5 \u03b1\u03c0\u03bb\u03ce\u03c2 \u03c7\u03c1\u03ae\u03bc\u03b1\u03c4\u03b1 \u2014 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03b9\u03b5\u03af\u03c4\u03b5 \u03c4\u03bf \u03ba\u03bf\u03b9\u03bd\u03cc, \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03b5\u03af\u03c4\u03b5 \u03bc\u03b9\u03b1 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03b4\u03b5\u03af\u03c7\u03bd\u03b5\u03c4\u03b5 \u03c3\u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf \u03c0\u03ce\u03c2 \u03b5\u03ba\u03c6\u03c1\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03b7 \u03b1\u03bd\u03b8\u03b5\u03ba\u03c4\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1 \u03b1\u03c0\u03ad\u03bd\u03b1\u03bd\u03c4\u03b9 \u03c3\u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2.<\/p>\n<hr \/>\n<p><em>\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA) \u03b4\u03b5\u03bd \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03b9 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ad\u03c2, \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ae \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2. \u038c\u03bb\u03bf \u03c4\u03bf \u03c0\u03b5\u03c1\u03b9\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03c4\u03b1\u03b9 \u03b1\u03c0\u03bf\u03ba\u03bb\u03b5\u03b9\u03c3\u03c4\u03b9\u03ba\u03ac \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c3\u03ba\u03bf\u03c0\u03bf\u03cd\u03c2. \u0393\u03b9\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ac \u03b6\u03b7\u03c4\u03ae\u03bc\u03b1\u03c4\u03b1, \u03c0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03c5\u03c4\u03b5\u03af\u03c4\u03b5 \u03ad\u03bd\u03b1\u03bd \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b1 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Raising awareness for a rare disease like\u00a0Erdheim-Chester Disease (ECD)\u00a0takes more than facts and figures\u2014it takes people. It takes passion, imagination, and community spirit. And during\u00a0Volunteer Month, we\u2019re thrilled to recognize [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":48326,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[375,378,387,380,383,374,384,386,388,379,376,385,381,377,382],"class_list":["post-48325","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdawareness","tag-ecdcommunity","tag-ecdga","tag-ecdsupport","tag-ecdvolunteer","tag-erdheimchesterdisease","tag-hopeforecd","tag-makerarevisible","tag-powerofvolunteers","tag-rarebutstrong","tag-raredisease","tag-supportraredisease","tag-tealandnavy","tag-volunteerforecd","tag-zebraribbon"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/48325","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=48325"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/48325\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/48326"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=48325"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=48325"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=48325"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}