{"id":48206,"date":"2025-04-29T05:06:49","date_gmt":"2025-04-29T09:06:49","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=48206"},"modified":"2025-08-23T17:13:15","modified_gmt":"2025-08-23T21:13:15","slug":"%ce%b3%ce%af%ce%bd%ce%b5%cf%84%ce%b5-%ce%bc%ce%ad%cf%81%ce%bf%cf%82-%cf%84%ce%b7%cf%82-%ce%bb%cf%8d%cf%83%ce%b7%cf%82-%cf%84%cf%81%cf%8c%cf%80%ce%bf%ce%b9-%ce%bc%ce%b5-%cf%84%ce%bf%cf%85%cf%82-%ce%bf","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/be-part-of-the-solution-ways-to-contribute-to-ecdgas-mission\/","title":{"rendered":"\u0393\u03af\u03bd\u03b5\u03c4\u03b5 \u03bc\u03ad\u03c1\u03bf\u03c2 \u03c4\u03b7\u03c2 \u03bb\u03cd\u03c3\u03b7\u03c2: \u03a4\u03c1\u03cc\u03c0\u03bf\u03b9 \u03bc\u03b5 \u03c4\u03bf\u03c5\u03c2 \u03bf\u03c0\u03bf\u03af\u03bf\u03c5\u03c2 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af\u03c4\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03bb\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b7\u03bd \u03b1\u03c0\u03bf\u03c3\u03c4\u03bf\u03bb\u03ae \u03c4\u03b7\u03c2 ECDGA"},"content":{"rendered":"<p><strong>\u039a\u03ac\u03b8\u03b5 \u03ac\u03c0\u03bf\u03c8\u03b7 \u03ad\u03c7\u03b5\u03b9 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1 \u03c3\u03c4\u03b7\u03bd \u03c0\u03c1\u03bf\u03c3\u03c0\u03ac\u03b8\u03b5\u03b9\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03c4\u03b7\u03c2 \u03bd\u03cc\u03c3\u03bf\u03c5 Erdheim-Chester (ECD).<\/strong>\u0395\u03af\u03c4\u03b5 \u03ad\u03c7\u03b5\u03c4\u03b5 \u03bc\u03cc\u03bb\u03b9\u03c2 \u03b4\u03b9\u03b1\u03b3\u03bd\u03c9\u03c3\u03c4\u03b5\u03af, \u03b5\u03af\u03c4\u03b5 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b6\u03b5\u03c4\u03b5 \u03ad\u03bd\u03b1 \u03b1\u03b3\u03b1\u03c0\u03b7\u03bc\u03ad\u03bd\u03bf \u03c3\u03b1\u03c2 \u03c0\u03c1\u03cc\u03c3\u03c9\u03c0\u03bf, \u03b5\u03af\u03c4\u03b5 \u03b1\u03c0\u03bb\u03ce\u03c2 \u03b8\u03ad\u03bb\u03b5\u03c4\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03b5\u03c4\u03b5 \u03b8\u03b5\u03c4\u03b9\u03ba\u03ac, \u03c5\u03c0\u03ac\u03c1\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03c3\u03bc\u03b1\u03c4\u03b9\u03ba\u03bf\u03af \u03c4\u03c1\u03cc\u03c0\u03bf\u03b9 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03bc\u03ad\u03c3\u03c9 \u03c4\u03b7\u03c2 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1\u03c2 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA). \u0391\u03c0\u03cc \u03c4\u03b7 \u03c3\u03c5\u03bc\u03b2\u03bf\u03bb\u03ae \u03c3\u03b1\u03c2 \u03c3\u03b5 \u03b6\u03c9\u03c4\u03b9\u03ba\u03ae\u03c2 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b1\u03bd\u03c4\u03b1\u03bb\u03bb\u03b1\u03b3\u03ae \u03c4\u03c9\u03bd \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03b9\u03ce\u03bd \u03c3\u03b1\u03c2 \u03bc\u03ad\u03c3\u03c9 \u03b5\u03c1\u03c9\u03c4\u03b7\u03bc\u03b1\u03c4\u03bf\u03bb\u03bf\u03b3\u03af\u03c9\u03bd, \u03ad\u03c9\u03c2 \u03c4\u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c3\u03b1\u03c2 \u03c3\u03b5 \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b5\u03c2 \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03ae \u03c3\u03b1\u03c2 \u03c3\u03c4\u03bf \u03bc\u03b7\u03c4\u03c1\u03ce\u03bf \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd, \u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c3\u03b1\u03c2 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03bb\u03b5\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03bd\u03af\u03c3\u03c7\u03c5\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b3\u03bd\u03ce\u03c3\u03b7\u03c2, \u03c4\u03b7\u03c2 \u03b5\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03af\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03b5\u03bb\u03c0\u03af\u03b4\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03bf\u03bb\u03cc\u03ba\u03bb\u03b7\u03c1\u03b7 \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 \u03bd\u03cc\u03c3\u03bf\u03c5 ECD.<\/p>\n<h3>1.\u00a0<strong>\u03a3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03c3\u03c4\u03bf \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03bf \u039c\u03b7\u03c4\u03c1\u03ce\u03bf \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03bc\u03b5 ECD<\/strong><\/h3>\n<p>\u03a4\u03bf\u00a0<strong>\u039c\u03b7\u03c4\u03c1\u03ce\u03bf \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd ECD<\/strong>\u00a0\u03b4\u03b5\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03c0\u03bb\u03ce\u03c2 \u03bc\u03b9\u03b1 \u03b2\u03ac\u03c3\u03b7 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03c9\u03bd \u2014 \u03b5\u03af\u03bd\u03b1\u03b9 \u03ad\u03bd\u03b1 \u03b9\u03c3\u03c7\u03c5\u03c1\u03cc \u03b5\u03c1\u03b3\u03b1\u03bb\u03b5\u03af\u03bf \u03c0\u03bf\u03c5 \u03b2\u03bf\u03b7\u03b8\u03ac \u03c4\u03bf\u03c5\u03c2 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2 \u03bd\u03b1 \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03ae\u03c3\u03bf\u03c5\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b1 \u03c4\u03b7\u03bd \u03c0\u03c1\u03ce\u03b9\u03bc\u03b7 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ba\u03ae \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7 (ECD). \u039c\u03b5 \u03c4\u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c3\u03b1\u03c2, \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03bb\u03b5\u03c4\u03b5:<\/p>\n<ul>\n<li>\u0395\u03bd\u03c4\u03bf\u03c0\u03b9\u03c3\u03bc\u03cc\u03c2 \u03c4\u03ac\u03c3\u03b5\u03c9\u03bd \u03c3\u03c4\u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b1 \u03c3\u03c5\u03bc\u03c0\u03c4\u03ce\u03bc\u03b1\u03c4\u03b1<\/li>\n<li>\u0392\u03b5\u03bb\u03c4\u03af\u03c9\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7\u03c2 \u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c4\u03c9\u03bd \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03c5\u03c4\u03b9\u03ba\u03ce\u03bd \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03c3\u03bc\u03ac\u03c4\u03c9\u03bd<\/li>\n<li>\u039a\u03b1\u03b8\u03bf\u03c1\u03b9\u03c3\u03bc\u03cc\u03c2 \u03c4\u03c9\u03bd \u03bc\u03b5\u03bb\u03bb\u03bf\u03bd\u03c4\u03b9\u03ba\u03ce\u03bd \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ce\u03bd \u03c0\u03c1\u03bf\u03c4\u03b5\u03c1\u03b1\u03b9\u03bf\u03c4\u03ae\u03c4\u03c9\u03bd<\/li>\n<\/ul>\n<p>\u0395\u03af\u03bd\u03b1\u03b9 \u03b1\u03c3\u03c6\u03b1\u03bb\u03ad\u03c2, \u03b5\u03bc\u03c0\u03b9\u03c3\u03c4\u03b5\u03c5\u03c4\u03b9\u03ba\u03cc \u03ba\u03b1\u03b9 \u03b1\u03bd\u03bf\u03b9\u03c7\u03c4\u03cc \u03c3\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03bc\u03b5 ECD. \u038c\u03c3\u03bf \u03c0\u03b9\u03bf \u03c0\u03bf\u03b9\u03ba\u03af\u03bb\u03b1 \u03ba\u03b1\u03b9 \u03c0\u03bb\u03ae\u03c1\u03b7 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03b1 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03b1 \u03bc\u03b1\u03c2, \u03c4\u03cc\u03c3\u03bf \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b1 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c9\u03b8\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b1\u03c7\u03cd\u03c4\u03b5\u03c1\u03b5\u03c2 \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2, \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b5\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03b9\u03c3\u03c7\u03c5\u03c1\u03cc\u03c4\u03b5\u03c1\u03b1 \u03c3\u03c5\u03c3\u03c4\u03ae\u03bc\u03b1\u03c4\u03b1 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7\u03c2.<\/p>\n<p><strong><a href=\"\/el\/patient-registry\/\" aria-label=\"\u0395\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af\u03c4\u03b5 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1 \u03c3\u03c4\u03bf \u03bc\u03b7\u03c4\u03c1\u03ce\u03bf \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd\">\u0395\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af\u03c4\u03b5 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1 \u03c3\u03c4\u03bf \u03bc\u03b7\u03c4\u03c1\u03ce\u03bf \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd<\/a>.<\/strong><\/p>\n<h3>2.\u00a0<strong>\u03a5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03be\u03c4\u03b5 \u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03c0\u03bf\u03c5 \u03b4\u03af\u03bd\u03b5\u03b9 \u03c0\u03c1\u03bf\u03c4\u03b5\u03c1\u03b1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c3\u03c4\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b9\u03b6\u03ce\u03bd\u03c4\u03b5\u03c2: \u039c\u03b5\u03bb\u03ad\u03c4\u03b7 \u03c4\u03b7\u03c2 UAB \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b9\u03b6\u03ce\u03bd\u03c4\u03b5\u03c2<\/strong><\/h3>\n<p>\u0391\u03bd \u03b5\u03af\u03c3\u03c4\u03b5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ae\u03c2 \u03c3\u03c4\u03bf\u00a0<strong>\u0397\u03bd\u03c9\u03bc\u03ad\u03bd\u03b5\u03c2 \u03a0\u03bf\u03bb\u03b9\u03c4\u03b5\u03af\u03b5\u03c2 \u03ae \u039a\u03b1\u03bd\u03b1\u03b4\u03ac\u03c2<\/strong>, \u03b5\u03bd\u03b4\u03ad\u03c7\u03b5\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03c0\u03bb\u03b7\u03c1\u03bf\u03af\u03c4\u03b5 \u03c4\u03b9\u03c2 \u03c0\u03c1\u03bf\u03cb\u03c0\u03bf\u03b8\u03ad\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03c3\u03c4\u03bf\u00a0<strong>\u039c\u03b5\u03bb\u03ad\u03c4\u03b7 \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b9\u03b6\u03ce\u03bd\u03c4\u03b5\u03c2 \u03c4\u03bf\u03c5 \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03af\u03bf\u03c5 \u03c4\u03b7\u03c2 \u0391\u03bb\u03b1\u03bc\u03c0\u03ac\u03bc\u03b1 \u03c3\u03c4\u03bf \u039c\u03c0\u03ad\u03c1\u03bc\u03b9\u03b3\u03c7\u03b1\u03bc (UAB)<\/strong>. \u0391\u03c5\u03c4\u03cc \u03c4\u03bf \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc \u03ad\u03c1\u03b3\u03bf \u03b5\u03c0\u03b9\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03b5\u03c4\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03c4\u03c9\u03bd \u03bc\u03b1\u03ba\u03c1\u03bf\u03c0\u03c1\u03cc\u03b8\u03b5\u03c3\u03bc\u03c9\u03bd \u03b5\u03c0\u03b9\u03c0\u03c4\u03ce\u03c3\u03b5\u03c9\u03bd \u03c4\u03b7\u03c2 ECD \u03ba\u03b1\u03b9 \u03c3\u03c4\u03bf\u03bd \u03c4\u03c1\u03cc\u03c0\u03bf \u03bc\u03b5 \u03c4\u03bf\u03bd \u03bf\u03c0\u03bf\u03af\u03bf \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03b2\u03b5\u03bb\u03c4\u03b9\u03ce\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03c0\u03bf\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1 \u03b6\u03c9\u03ae\u03c2 \u03c4\u03c9\u03bd 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\u03bc\u03b1\u03c2 \u03bd\u03b1 \u03b1\u03bd\u03c4\u03b1\u03bd\u03b1\u03ba\u03bb\u03bf\u03cd\u03bd \u03cc,\u03c4\u03b9 \u03ad\u03c7\u03b5\u03b9 \u03bc\u03b5\u03b3\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1 \u03b3\u03b9\u03b1 \u03b5\u03c3\u03ac\u03c2.<\/p>\n<h3>4.\u00a0<strong>\u03a3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b9\u03c2 \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c4\u03b7\u03c2 ECDGA \u2014 \u03b4\u03b9\u03b1 \u03b6\u03ce\u03c3\u03b7\u03c2 \u03ae \u03b4\u03b9\u03b1\u03b4\u03b9\u03ba\u03c4\u03c5\u03b1\u03ba\u03ac<\/strong><\/h3>\n<p>\u03a4\u03bf \u03b4\u03b9\u03ba\u03cc \u03bc\u03b1\u03c2\u00a0<strong>\u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd<\/strong>\u00a0\u03ba\u03b1\u03b9\u00a0<strong>\u0399\u03b1\u03c4\u03c1\u03b9\u03ba\u03cc \u03a3\u03c5\u03bc\u03c0\u03cc\u03c3\u03b9\u03bf<\/strong>\u00a0\u03b4\u03b9\u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ba\u03ac\u03b8\u03b5 \u03c7\u03c1\u03cc\u03bd\u03bf, \u03c0\u03c1\u03bf\u03c3\u03c6\u03ad\u03c1\u03bf\u03bd\u03c4\u03b1\u03c2 \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7, \u03b4\u03b9\u03ba\u03c4\u03cd\u03c9\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7. \u039f\u03b9 \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03b9\u03c2 \u03b1\u03c5\u03c4\u03ad\u03c2 \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03bf\u03c5\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2, \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03cd\u03c2 \u03b1\u03c0\u03cc \u03cc\u03bb\u03bf \u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf.<\/p>\n<p>\u0397 \u03b5\u03c0\u03cc\u03bc\u03b5\u03bd\u03b7 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b8\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03b7\u03b8\u03b5\u03af \u03c3\u03c4\u03b9\u03c2\u00a0<strong>26 \u039c\u03b1\u0390\u03bf\u03c5 2025, \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7, \u0399\u03c3\u03c0\u03b1\u03bd\u03af\u03b1<\/strong>, \u03ba\u03b1\u03b9 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03bd\u03bf\u03b9\u03c7\u03c4\u03ae \u03c3\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b7\u03c1\u03b5\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd ECD. \u0394\u03b5\u03bd \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03c4\u03b1 \u03b2\u03b3\u03ac\u03b6\u03b5\u03c4\u03b5 \u03c0\u03ad\u03c1\u03b1 \u03bc\u03cc\u03bd\u03bf\u03b9 \u03c3\u03b1\u03c2 \u2014 \u03cc\u03c4\u03b1\u03bd \u03b5\u03bd\u03c9\u03bd\u03cc\u03bc\u03b1\u03c3\u03c4\u03b5, \u03b3\u03b9\u03bd\u03cc\u03bc\u03b1\u03c3\u03c4\u03b5 \u03c0\u03b9\u03bf \u03b4\u03c5\u03bd\u03b1\u03c4\u03bf\u03af.<\/p>\n<p>\u0394\u03b5\u03bd \u03bc\u03c0\u03bf\u03c1\u03b5\u03af\u03c4\u03b5 \u03bd\u03b1 \u03c4\u03b1\u03be\u03b9\u03b4\u03ad\u03c8\u03b5\u03c4\u03b5; \u03a0\u03bf\u03bb\u03bb\u03ad\u03c2 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b5\u03c2 \u03ba\u03b1\u03c4\u03b1\u03b3\u03c1\u03ac\u03c6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ae \u03bc\u03b5\u03c4\u03b1\u03b4\u03af\u03b4\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b6\u03c9\u03bd\u03c4\u03b1\u03bd\u03ac, \u03ce\u03c3\u03c4\u03b5\u00a0<strong>\u03cc\u03bb\u03bf\u03b9 \u03ad\u03c7\u03bf\u03c5\u03bd \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7<\/strong>\u00a0\u03c3\u03c4\u03b7\u03bd \u03ba\u03b1\u03b8\u03bf\u03b4\u03ae\u03b3\u03b7\u03c3\u03b7 \u03b1\u03c0\u03cc \u03b5\u03b9\u03b4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2.<\/p>\n<p><a href=\"\/el\/%cf%83%cf%85%ce%bd%ce%ac%ce%bd%cf%84%ce%b7%cf%83%ce%b7-%ce%bf%ce%b9%ce%ba%ce%bf%ce%b3%ce%b5%ce%bd%ce%b5%ce%b9%cf%8e%ce%bd-%ce%b1%cf%83%ce%b8%ce%b5%ce%bd%cf%8e%ce%bd-%cf%84%ce%bf%cf%85-ecd\/\" aria-label=\"\u039c\u03ac\u03b8\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7.\">\u039c\u03ac\u03b8\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03c3\u03c4\u03b7 \u0392\u03b1\u03c1\u03ba\u03b5\u03bb\u03ce\u03bd\u03b7.<\/a><\/p>\n<h3>5.\u00a0<strong>\u0395\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ae\u03c2 \u03ae \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03b9\u03ba\u03c4\u03ae\u03c2<\/strong><\/h3>\n<p>\u0397 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b1 \u03c3\u03bf\u03c5 \u03ad\u03c7\u03b5\u03b9 \u03b4\u03cd\u03bd\u03b1\u03bc\u03b7. \u03a3\u03ba\u03ad\u03c8\u03bf\u03c5 \u03c4\u03bf \u03b5\u03be\u03ae\u03c2:<\/p>\n<ul>\n<li>\u03a0\u03ce\u03c2 \u03bd\u03b1 \u03b3\u03af\u03bd\u03b5\u03c4\u03b5 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ae\u03c2 \u03c3\u03c4\u03b7\u03bd \u03b1\u03bb\u03bb\u03b7\u03bb\u03bf\u03b2\u03bf\u03ae\u03b8\u03b5\u03b9\u03b1<\/li>\n<li>\u039c\u03bf\u03b9\u03c1\u03b1\u03c3\u03c4\u03b5\u03af\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b1 \u03c3\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03bf blog \u03ae \u03c4\u03bf \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03cc \u03bc\u03b1\u03c2 \u03b4\u03b5\u03bb\u03c4\u03af\u03bf<\/li>\n<li>\u03a3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7 \u03c7\u03c1\u03b7\u03bc\u03ac\u03c4\u03c9\u03bd \u03b3\u03b9\u03b1 \u03bb\u03bf\u03b3\u03b1\u03c1\u03b9\u03b1\u03c3\u03bc\u03cc \u03c4\u03b7\u03c2 ECDGA<\/li>\n<li>\u03a0\u03c1\u03bf\u03ce\u03b8\u03b7\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b8\u03b5\u03bc\u03ac\u03c4\u03c9\u03bd \u03c3\u03b1\u03c2 \u03c3\u03c4\u03b7\u03bd \u03c4\u03bf\u03c0\u03b9\u03ba\u03ae \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1<\/li>\n<\/ul>\n<p>\u038c\u03c3\u03bf \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7 \u03ae \u03bc\u03b9\u03ba\u03c1\u03ae \u03ba\u03b9 \u03b1\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 \u03c7\u03b5\u03b9\u03c1\u03bf\u03bd\u03bf\u03bc\u03af\u03b1 \u03c3\u03bf\u03c5, \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03b5\u03af \u03ad\u03bd\u03b1 \u03ba\u03c5\u03bc\u03b1\u03c4\u03b9\u03ba\u03cc \u03c6\u03b1\u03b9\u03bd\u03cc\u03bc\u03b5\u03bd\u03bf \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03bb\u03c0\u03af\u03b4\u03b1\u03c2.<br \/>\n<a href=\"\/el\/%ce%b5%ce%b8%ce%b5%ce%bb%ce%bf%ce%bd%cf%84%ce%ae%cf%82\/\" aria-label=\"\u0398\u03ad\u03bb\u03b5\u03b9\u03c2 \u03bd\u03b1 \u03b3\u03af\u03bd\u03b5\u03b9\u03c2 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ae\u03c2;\">\u0398\u03ad\u03bb\u03b5\u03b9\u03c2 \u03bd\u03b1 \u03b3\u03af\u03bd\u03b5\u03b9\u03c2 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ae\u03c2;\u00a0<\/a><\/p>\n<h3>\u03a3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03b5\u03c4\u03b5. \u039c\u03b5\u03af\u03bd\u03b5\u03c4\u03b5 \u03c3\u03b5 \u03b5\u03c0\u03b1\u03c6\u03ae. \u039a\u03ac\u03bd\u03c4\u03b5 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03ac.<\/h3>\n<p>\u0397 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c3\u03b1\u03c2 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03bb\u03b5\u03b9 \u03c3\u03c4\u03b7 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03af\u03b1 \u03b5\u03bd\u03cc\u03c2 \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03bf\u03c5 \u03b1\u03cd\u03c1\u03b9\u03bf \u03b3\u03b9\u03b1 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester. \u0395\u03af\u03c4\u03b5 \u03c3\u03c5\u03bc\u03c0\u03bb\u03b7\u03c1\u03ce\u03c3\u03b5\u03c4\u03b5 \u03bc\u03b9\u03b1 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1, \u03b5\u03af\u03c4\u03b5 \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af\u03c4\u03b5 \u03c3\u03b5 \u03bc\u03b9\u03b1 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7, \u03b5\u03af\u03c4\u03b5 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03c3\u03b5 \u03bc\u03b9\u03b1 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7,\u00a0<strong>\u039c\u03b1\u03c2 \u03b2\u03bf\u03b7\u03b8\u03ac\u03c4\u03b5 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c7\u03c9\u03c1\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03bc\u03b1\u03b6\u03af.<\/strong><\/p>\n<p>\u039b\u03bf\u03b9\u03c0\u03cc\u03bd, \u03c0\u03c1\u03bf\u03c7\u03ce\u03c1\u03b1\u2014<strong>\u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b7 \u03c3\u03c5\u03b6\u03ae\u03c4\u03b7\u03c3\u03b7<\/strong>. \u0397 \u03c6\u03c9\u03bd\u03ae \u03c3\u03bf\u03c5 \u03ad\u03c7\u03b5\u03b9 \u03bc\u03b5\u03b3\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1 \u03b1\u03c0\u03cc \u03cc,\u03c4\u03b9 \u03bd\u03bf\u03bc\u03af\u03b6\u03b5\u03b9\u03c2.<\/p>\n<p><em>\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA) \u03b4\u03b5\u03bd \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03b9 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ad\u03c2, \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ae \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2. \u038c\u03bb\u03bf \u03c4\u03bf \u03c0\u03b5\u03c1\u03b9\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03c4\u03b1\u03b9 \u03b1\u03c0\u03bf\u03ba\u03bb\u03b5\u03b9\u03c3\u03c4\u03b9\u03ba\u03ac \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c3\u03ba\u03bf\u03c0\u03bf\u03cd\u03c2. \u0393\u03b9\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ac \u03b6\u03b7\u03c4\u03ae\u03bc\u03b1\u03c4\u03b1, \u03c0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03c5\u03c4\u03b5\u03af\u03c4\u03b5 \u03ad\u03bd\u03b1\u03bd \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b1 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Every voice matters in the journey toward better understanding and treating Erdheim-Chester Disease (ECD).Whether you\u2019re newly diagnosed, caring for a loved one, or simply looking to make a difference, there 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