{"id":46398,"date":"2025-03-21T10:26:50","date_gmt":"2025-03-21T14:26:50","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=46398"},"modified":"2026-08-19T05:44:28","modified_gmt":"2026-08-19T10:44:28","slug":"%ce%b7%ce%bc%ce%ad%cf%81%ce%b1-%cf%83%cf%80%ce%ac%ce%bd%ce%b9%cf%89%ce%bd-%ce%bd%ce%bf%cf%83%ce%b7%ce%bc%ce%ac%cf%84%cf%89%ce%bd-2025-%ce%bc%ce%b9%ce%b1-%ce%b5%cf%85%ce%ba%ce%b1%ce%b9%cf%81%ce%af","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/rare-disease-day-2025-a-chance-to-shine-a-light-on-erdheim-chester-disease-2\/","title":{"rendered":"\u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd 2025: \u039c\u03b9\u03b1 \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03bd\u03b1 \u03c1\u03af\u03be\u03bf\u03c5\u03bc\u03b5 \u03c6\u03c9\u03c2 \u03c3\u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester"},"content":{"rendered":"<p>\u039a\u03ac\u03b8\u03b5 \u03c7\u03c1\u03cc\u03bd\u03bf, \u03c4\u03b7\u03bd \u03c4\u03b5\u03bb\u03b5\u03c5\u03c4\u03b1\u03af\u03b1 \u03b7\u03bc\u03ad\u03c1\u03b1 \u03c4\u03bf\u03c5 \u03a6\u03b5\u03b2\u03c1\u03bf\u03c5\u03b1\u03c1\u03af\u03bf\u03c5, \u03b7 \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03b5\u03bd\u03ce\u03bd\u03b5\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c4\u03b9\u03bc\u03ae\u03c3\u03b5\u03b9\u00a0<strong>\u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd<\/strong>\u2014\u03bc\u03b9\u03b1 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ae \u03c0\u03c1\u03c9\u03c4\u03bf\u03b2\u03bf\u03c5\u03bb\u03af\u03b1 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03b1\u03b4\u03b5\u03b9\u03ba\u03bd\u03cd\u03b5\u03b9 \u03c4\u03b9\u03c2 \u03c0\u03c1\u03bf\u03ba\u03bb\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03b6\u03bf\u03c5\u03bd \u03c4\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b6\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2. \u03a3\u03c4\u03b9\u03c2\u00a0<strong>28 \u03a6\u03b5\u03b2\u03c1\u03bf\u03c5\u03b1\u03c1\u03af\u03bf\u03c5 2025<\/strong>, \u03b7 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA) \u03b5\u03af\u03bd\u03b1\u03b9 \u03c5\u03c0\u03b5\u03c1\u03ae\u03c6\u03b1\u03bd\u03b7 \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03b5\u03b9 \u03c3\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03bf \u03ba\u03af\u03bd\u03b7\u03bc\u03b1 \u03bc\u03b5 \u03c3\u03c4\u03cc\u03c7\u03bf \u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5\u00a0<strong>\u039d\u03cc\u03c3\u03bf\u03c2 Erdheim-Chester (ECD)<\/strong>\u00a0\u03ba\u03b1\u03b8\u03ce\u03c2 \u03ba\u03b1\u03b9 \u03b7 \u03b5\u03c0\u03b5\u03af\u03b3\u03bf\u03c5\u03c3\u03b1 \u03b1\u03bd\u03ac\u03b3\u03ba\u03b7 \u03b3\u03b9\u03b1 \u03bc\u03b5\u03b3\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03c0\u03c1\u03cc\u03bf\u03b4\u03bf \u03c3\u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1, \u03c4\u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1.<\/p>\n<p>\u0397 ECD \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03b9\u03b1\u00a0<strong>\u03b5\u03be\u03b1\u03b9\u03c1\u03b5\u03c4\u03b9\u03ba\u03ac \u03c3\u03c0\u03ac\u03bd\u03b9\u03bf\u03c2 \u03ba\u03b1\u03c1\u03ba\u03af\u03bd\u03bf\u03c2 \u03c4\u03bf\u03c5 \u03b1\u03af\u03bc\u03b1\u03c4\u03bf\u03c2<\/strong>\u00a0\u03c0\u03bf\u03c5 \u03c0\u03c1\u03bf\u03c3\u03b2\u03ac\u03bb\u03bb\u03b5\u03b9 \u03c0\u03bf\u03bb\u03bb\u03ac \u03cc\u03c1\u03b3\u03b1\u03bd\u03b1, \u03cc\u03c0\u03c9\u03c2 \u03c4\u03b1 \u03bf\u03c3\u03c4\u03ac, \u03c4\u03b7\u03bd \u03ba\u03b1\u03c1\u03b4\u03b9\u03ac, \u03c4\u03bf\u03bd \u03b5\u03b3\u03ba\u03ad\u03c6\u03b1\u03bb\u03bf \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03bd\u03b5\u03c6\u03c1\u03ac. \u039b\u03cc\u03b3\u03c9 \u03c4\u03b7\u03c2 \u03c3\u03c0\u03b1\u03bd\u03b9\u03cc\u03c4\u03b7\u03c4\u03ac\u03c2 \u03c4\u03b7\u03c2, \u03c0\u03bf\u03bb\u03bb\u03bf\u03af \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03c5\u03c0\u03bf\u03c6\u03ad\u03c1\u03bf\u03c5\u03bd\u00a0<strong>\u03c7\u03c1\u03cc\u03bd\u03b9\u03b1 \u03bb\u03b1\u03bd\u03b8\u03b1\u03c3\u03bc\u03ad\u03bd\u03c9\u03bd \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03b5\u03c9\u03bd<\/strong>\u00a0\u03c0\u03c1\u03b9\u03bd \u03bb\u03ac\u03b2\u03bf\u03c5\u03bd \u03c4\u03b7 \u03c3\u03c9\u03c3\u03c4\u03ae \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1. \u03a6\u03ad\u03c4\u03bf\u03c2, \u03b7 \u0397\u03bc\u03ad\u03c1\u03b1 \u03c4\u03c9\u03bd \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03bc\u03b9\u03b1 \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03c9\u03bd \u03b1\u03c4\u03cc\u03bc\u03c9\u03bd \u03bc\u03b5 ECD \u03bd\u03b1 \u03b5\u03bd\u03c9\u03b8\u03b5\u03af, \u03bd\u03b1 \u03bc\u03bf\u03b9\u03c1\u03b1\u03c3\u03c4\u03b5\u03af \u03c4\u03b9\u03c2 \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b5\u03c2 \u03c4\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b1\u03b3\u03c9\u03bd\u03b9\u03c3\u03c4\u03b5\u03af \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b5\u03c0\u03af\u03c4\u03b5\u03c5\u03be\u03b7 \u03b1\u03bb\u03bb\u03b1\u03b3\u03ce\u03bd.<\/p>\n<h3>\u03a0\u03ce\u03c2 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af\u03c4\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03ba\u03bf\u03b9\u03bd\u03bf\u03cd;<\/h3>\n<ol start=\"1\" data-spread=\"false\">\n<li><strong>\u039c\u03bf\u03b9\u03c1\u03b1\u03c3\u03c4\u03b5\u03af\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b1 \u03c3\u03b1\u03c2<\/strong>\u00a0\u2013 \u039f\u03b9 \u03c0\u03c1\u03bf\u03c3\u03c9\u03c0\u03b9\u03ba\u03ad\u03c2 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b5\u03c2 \u03ad\u03c7\u03bf\u03c5\u03bd \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7 \u03b4\u03cd\u03bd\u03b1\u03bc\u03b7. \u039c\u03ad\u03c3\u03c9 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7\u03c2 \u03b9\u03c3\u03c4\u03bf\u03c1\u03b9\u03ce\u03bd \u03b1\u03c4\u03cc\u03bc\u03c9\u03bd \u03c0\u03bf\u03c5 \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc ECD, \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03b2\u03bf\u03b7\u03b8\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03bf\u03c5\u03c2 \u03ac\u03bb\u03bb\u03bf\u03c5\u03c2 \u03bd\u03b1 \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03ae\u03c3\u03bf\u03c5\u03bd \u03c4\u03b9\u03c2 \u03c0\u03c1\u03bf\u03ba\u03bb\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b5\u03c0\u03ac\u03b3\u03b5\u03c4\u03b1\u03b9 \u03b7 \u03b6\u03c9\u03ae \u03bc\u03b5 \u03bc\u03b9\u03b1 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b5\u03bd\u03b8\u03b1\u03c1\u03c1\u03cd\u03bd\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03ad\u03b3\u03ba\u03b1\u03b9\u03c1\u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7.<\/li>\n<li><strong>\u03a3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c3\u03c4\u03b1 \u03bc\u03ad\u03c3\u03b1 \u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03b9\u03ba\u03ae\u03c2 \u03b4\u03b9\u03ba\u03c4\u03cd\u03c9\u03c3\u03b7\u03c2<\/strong>\u00a0\u2013 \u0391\u03be\u03b9\u03bf\u03c0\u03bf\u03b9\u03ae\u03c3\u03c4\u03b5 \u03c4\u03b7\u03bd \u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd 2025 \u03c9\u03c2 \u03c0\u03bb\u03b1\u03c4\u03c6\u03cc\u03c1\u03bc\u03b1 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b4\u03b7\u03bc\u03bf\u03c3\u03b9\u03b5\u03cd\u03c3\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd ECD, \u03c7\u03c1\u03b7\u03c3\u03b9\u03bc\u03bf\u03c0\u03bf\u03b9\u03ce\u03bd\u03c4\u03b1\u03c2 \u03c4\u03b1 \u03b5\u03c0\u03af\u03c3\u03b7\u03bc\u03b1 hashtag \u03ba\u03b1\u03b9 \u03c0\u03c1\u03bf\u03c3\u03b8\u03ad\u03c4\u03bf\u03bd\u03c4\u03b1\u03c2 \u03b5\u03c4\u03b9\u03ba\u03ad\u03c4\u03b5\u03c2 \u03c3\u03b5 \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c5 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03b6\u03bf\u03c5\u03bd \u03c4\u03bf \u03b8\u03ad\u03bc\u03b1, \u03ce\u03c3\u03c4\u03b5 \u03bd\u03b1 \u03b4\u03b9\u03b5\u03c5\u03c1\u03cd\u03bd\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03b5\u03bc\u03b2\u03ad\u03bb\u03b5\u03b9\u03ac \u03bc\u03b1\u03c2.<\/li>\n<li><strong>\u0395\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7<\/strong>\u00a0\u2013 \u0395\u03bd\u03b8\u03b1\u03c1\u03c1\u03cd\u03bd\u03b5\u03c4\u03b5 \u03c4\u03bf\u03c5\u03c2 \u03c6\u03af\u03bb\u03bf\u03c5\u03c2, \u03c4\u03b7\u03bd \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c4\u03bf\u03c5 \u03c4\u03bf\u03bc\u03ad\u03b1 \u03c4\u03b7\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2 \u03bd\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03b8\u03bf\u03cd\u03bd \u03c0\u03b5\u03c1\u03b1\u03b9\u03c4\u03ad\u03c1\u03c9 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd ECD, \u03c0\u03b1\u03c1\u03b1\u03c0\u03ad\u03bc\u03c0\u03bf\u03bd\u03c4\u03ac\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c4\u03bf\u03bd \u03b9\u03c3\u03c4\u03cc\u03c4\u03bf\u03c0\u03bf \u03c4\u03b7\u03c2 ECDGA \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b1 \u03c5\u03bb\u03b9\u03ba\u03ac \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd.<\/li>\n<li><strong>\u03a5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7 \u03c4\u03b7\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7\u03c2 \u03ba\u03b5\u03c6\u03b1\u03bb\u03b1\u03af\u03c9\u03bd<\/strong>\u00a0\u2013 \u039f\u03b9 \u03b4\u03c9\u03c1\u03b5\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03b7 \u03c7\u03c1\u03b7\u03bc\u03b1\u03c4\u03bf\u03b4\u03cc\u03c4\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b6\u03c9\u03c4\u03b9\u03ba\u03ae\u03c2 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7 \u03bd\u03ad\u03c9\u03bd \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03b9\u03ce\u03bd. \u03a3\u03ba\u03b5\u03c6\u03c4\u03b5\u03af\u03c4\u03b5 \u03bd\u03b1 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03be\u03b5\u03c4\u03b5 \u03c4\u03b9\u03c2 \u03c0\u03c1\u03c9\u03c4\u03bf\u03b2\u03bf\u03c5\u03bb\u03af\u03b5\u03c2 \u03c4\u03b7\u03c2 ECDGA, \u03ce\u03c3\u03c4\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03bb\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b7\u03bd \u03c0\u03c1\u03bf\u03ce\u03b8\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae\u03c2 \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7\u03c2 \u03c4\u03b7\u03c2 ECD.<\/li>\n<li><strong>\u03a6\u03bf\u03c1\u03ad\u03c3\u03c4\u03b5 \u03c1\u03bf\u03cd\u03c7\u03b1 \u03bc\u03b5 \u03c1\u03af\u03b3\u03b5\u03c2 \u03b6\u03ad\u03b2\u03c1\u03b1\u03c2 \u03ae \u03c3\u03b5 \u03c7\u03c1\u03ce\u03bc\u03b1\u03c4\u03b1 \u03c4\u03b9\u03c1\u03ba\u03bf\u03c5\u03ac\u03b6 \u03ba\u03b1\u03b9 \u03bd\u03b1\u03c5\u03c4\u03b9\u03ba\u03cc \u03bc\u03c0\u03bb\u03b5<\/strong>\u00a0\u2013 \u03a0\u03bf\u03bb\u03bb\u03ad\u03c2 \u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03c7\u03c1\u03b7\u03c3\u03b9\u03bc\u03bf\u03c0\u03bf\u03b9\u03bf\u03cd\u03bd \u03c4\u03b7 \u03b6\u03ad\u03b2\u03c1\u03b1 \u03c9\u03c2 \u03c3\u03cd\u03bc\u03b2\u03bf\u03bb\u03bf \u03c4\u03b7\u03c2 \u03c3\u03c0\u03b1\u03bd\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2, \u03b5\u03bd\u03ce \u03c4\u03b1 \u03c7\u03c1\u03ce\u03bc\u03b1\u03c4\u03b1 \u03c4\u03b7\u03c2 ECDGA, \u03c4\u03bf \u03c4\u03c5\u03c1\u03ba\u03bf\u03c5\u03ac\u03b6 \u03ba\u03b1\u03b9 \u03c4\u03bf \u03bd\u03b1\u03c5\u03c4\u03b9\u03ba\u03cc \u03bc\u03c0\u03bb\u03b5, \u03c3\u03c5\u03bc\u03b2\u03bf\u03bb\u03af\u03b6\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03b5\u03bb\u03c0\u03af\u03b4\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b5\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03bc\u03ad\u03c3\u03b1 \u03c3\u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03ac \u03bc\u03b1\u03c2.<\/li>\n<\/ol>\n<h3>\u0393\u03af\u03bd\u03b5\u03c4\u03b5 \u03b7 \u03c6\u03c9\u03bd\u03ae \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03c4\u03b7\u03c2 \u03c0\u03c1\u03ce\u03b9\u03bc\u03b7\u03c2 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ba\u03ae\u03c2 \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7\u03c2<\/h3>\n<p>\u0397 \u0397\u03bc\u03ad\u03c1\u03b1 \u03c4\u03c9\u03bd \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03ba\u03ac\u03c4\u03b9 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03bf \u03b1\u03c0\u03cc \u03bc\u03b9\u03b1 \u03b1\u03c0\u03bb\u03ae \u03b7\u03bc\u03b5\u03c1\u03bf\u03bc\u03b7\u03bd\u03af\u03b1 \u03c3\u03c4\u03bf \u03b7\u03bc\u03b5\u03c1\u03bf\u03bb\u03cc\u03b3\u03b9\u03bf \u2014 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03b9\u03b1 \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03bd\u03b1 \u03b5\u03c3\u03c4\u03b9\u03ac\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03c0\u03c1\u03bf\u03c3\u03bf\u03c7\u03ae \u03c3\u03b5 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2 \u03cc\u03c0\u03c9\u03c2 \u03b7 ECD, \u03bf\u03b9 \u03bf\u03c0\u03bf\u03af\u03b5\u03c2 \u03c3\u03c5\u03c7\u03bd\u03ac \u03c0\u03b5\u03c1\u03bd\u03bf\u03cd\u03bd \u03b1\u03c0\u03b1\u03c1\u03b1\u03c4\u03ae\u03c1\u03b7\u03c4\u03b5\u03c2. \u0391\u03bd\u03b1\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03bd\u03c4\u03b1\u03c2 \u03b4\u03c1\u03ac\u03c3\u03b7, \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c9\u03b8\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7, \u03bd\u03b1 \u03b5\u03bd\u03b9\u03c3\u03c7\u03cd\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b9\u03c2 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03c1\u03bf\u03c3\u03c0\u03ac\u03b8\u03b5\u03b9\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b4\u03b9\u03b1\u03c3\u03c6\u03b1\u03bb\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03cc\u03c4\u03b9 \u03ba\u03b1\u03bd\u03b5\u03af\u03c2 \u03b4\u03b5\u03bd \u03b8\u03b1 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03c3\u03b5\u03b9 \u03c4\u03b7\u03bd ECD \u03bc\u03cc\u03bd\u03bf\u03c2 \u03c4\u03bf\u03c5.<\/p>\n<p>\u0395\u03bb\u03ac\u03c4\u03b5 \u03bc\u03b1\u03b6\u03af \u03bc\u03b1\u03c2 \u03c3\u03c4\u03bf\u00a0<strong>28 \u03a6\u03b5\u03b2\u03c1\u03bf\u03c5\u03b1\u03c1\u03af\u03bf\u03c5 2025<\/strong>, \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c1\u03af\u03be\u03bf\u03c5\u03bc\u03b5 \u03c6\u03c9\u03c2 \u03c3\u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester. \u0395\u03c0\u03b9\u03c3\u03ba\u03b5\u03c6\u03b8\u03b5\u03af\u03c4\u03b5\u00a0<a href=\"https:\/\/www.erdheim-chester.org\/el\/\">\u039f \u03b9\u03c3\u03c4\u03cc\u03c4\u03bf\u03c0\u03bf\u03c2 \u03c4\u03b7\u03c2 ECDGA<\/a>\u00a0\u03ba\u03b1\u03b9\u00a0<a href=\"https:\/\/www.rarediseaseday.org\/\" target=\"_blank\" rel=\"noopener\">\u0397 \u03b5\u03c0\u03af\u03c3\u03b7\u03bc\u03b7 \u03c3\u03b5\u03bb\u03af\u03b4\u03b1 \u03c4\u03b7\u03c2 \u0397\u03bc\u03ad\u03c1\u03b1\u03c2 \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd<\/a>\u00a0\u03b3\u03b9\u03b1 \u03bd\u03b1 \u03bc\u03ac\u03b8\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5!<\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/05\/ribbon.png\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-55040 size-medium\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/05\/ribbon-300x300.png\" alt=\"\" width=\"300\" height=\"300\" \/><\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Every year, on the last day of February, the global community comes together to recognize\u00a0Rare Disease Day\u2014a vital initiative that highlights the challenges faced by individuals living with rare conditions. [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":44723,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-46398","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/46398","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=46398"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/46398\/revisions"}],"predecessor-version":[{"id":175251,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/46398\/revisions\/175251"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/44723"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=46398"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=46398"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=46398"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}