{"id":42628,"date":"2025-01-23T11:40:17","date_gmt":"2025-01-23T16:40:17","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=42628"},"modified":"2025-09-16T22:03:41","modified_gmt":"2025-09-17T03:03:41","slug":"%ce%be%ce%b5%ce%ba%ce%af%ce%bd%ce%b7%cf%83%ce%b1%ce%bd-%ce%bf%ce%b9-%cf%85%cf%80%ce%bf%cf%88%ce%b7%cf%86%ce%b9%cf%8c%cf%84%ce%b7%cf%84%ce%b5%cf%82-%ce%b3%ce%b9%ce%b1-%cf%84%ce%bf-%ce%b2%cf%81%ce%b1","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/nominations-open-for-the-mark-heaney-memorial-award-for-awareness\/","title":{"rendered":"\u039e\u03b5\u03ba\u03af\u03bd\u03b7\u03c3\u03b1\u03bd \u03bf\u03b9 \u03c5\u03c0\u03bf\u03c8\u03b7\u03c6\u03b9\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03bf \u0392\u03c1\u03b1\u03b2\u03b5\u03af\u03bf \u00abMark Heaney Memorial\u00bb \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7"},"content":{"rendered":"<p>\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA) \u03b5\u03af\u03bd\u03b1\u03b9 \u03c5\u03c0\u03b5\u03c1\u03ae\u03c6\u03b1\u03bd\u03b7 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03b1\u03ba\u03bf\u03b9\u03bd\u03ce\u03bd\u03b5\u03b9 \u03cc\u03c4\u03b9 \u03ad\u03c7\u03bf\u03c5\u03bd \u03be\u03b5\u03ba\u03b9\u03bd\u03ae\u03c3\u03b5\u03b9 \u03bf\u03b9 \u03c5\u03c0\u03bf\u03c8\u03b7\u03c6\u03b9\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03b4\u03b9\u03b1\u03ba\u03b5\u03ba\u03c1\u03b9\u03bc\u03ad\u03bd\u03bf \u0392\u03c1\u03b1\u03b2\u03b5\u03af\u03bf \u00abMark Heaney Memorial Award for Awareness\u00bb. \u03a4\u03bf \u03b5\u03c4\u03ae\u03c3\u03b9\u03bf \u03b1\u03c5\u03c4\u03cc \u03b2\u03c1\u03b1\u03b2\u03b5\u03af\u03bf \u03c4\u03b9\u03bc\u03ac \u03c4\u03b7 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ae \u03c3\u03c5\u03bc\u03b2\u03bf\u03bb\u03ae \u03c4\u03bf\u03c5 \u0394\u03c1. Mark Heaney, \u03b5\u03bd\u03cc\u03c2 \u03b4\u03b9\u03b1\u03ba\u03b5\u03ba\u03c1\u03b9\u03bc\u03ad\u03bd\u03bf\u03c5 \u03b1\u03b9\u03bc\u03b1\u03c4\u03bf\u03bb\u03cc\u03b3\u03bf\u03c5 \u03c4\u03bf\u03c5 \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03af\u03bf\u03c5 Columbia, \u03c4\u03bf\u03c5 \u03bf\u03c0\u03bf\u03af\u03bf\u03c5 \u03b7 \u03b1\u03c6\u03bf\u03c3\u03af\u03c9\u03c3\u03b7 \u03b4\u03b9\u03b1\u03bc\u03cc\u03c1\u03c6\u03c9\u03c3\u03b5 \u03b2\u03b1\u03b8\u03b9\u03ac \u03c4\u03b7\u03bd Alliance \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03af\u03b4\u03c1\u03c5\u03c3\u03ae \u03c4\u03b7\u03c2 \u03bc\u03ad\u03c7\u03c1\u03b9 \u03c4\u03bf\u03bd \u03b8\u03ac\u03bd\u03b1\u03c4\u03cc \u03c4\u03bf\u03c5 \u03c4\u03bf 2022.<\/p>\n<p>Dr. Heaney&#8217;s unwavering commitment to the ECD community has left an indelible mark, inspiring this award that honors individuals or groups who have demonstrated exceptional commitment to raising awareness of Erdheim-Chester Disease (ECD) and adult Histio-related conditions. The goal of these awareness activities is crucial\u2014they aim to educate physicians and other key figures who can aid in the early and accurate diagnosis of ECD.<\/p>\n<p>\u03a4\u03bf \u0392\u03c1\u03b1\u03b2\u03b5\u03af\u03bf \u00abMark Heaney Memorial Award for Awareness\u00bb \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03bd\u03bf\u03b9\u03c7\u03c4\u03cc \u03c3\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 \u2014\u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2, \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c4\u03bf\u03c5 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03bf\u03cd \u03ba\u03bb\u03ac\u03b4\u03bf\u03c5, \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2, \u03c6\u03af\u03bb\u03bf\u03c5\u03c2\u2014 \u03b1\u03bd\u03b5\u03be\u03ac\u03c1\u03c4\u03b7\u03c4\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03b5\u03b8\u03bd\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1 \u03ae \u03c4\u03bf\u03bd \u03c4\u03cc\u03c0\u03bf \u03b4\u03b9\u03b1\u03bc\u03bf\u03bd\u03ae\u03c2 \u03c4\u03bf\u03c5\u03c2. \u0394\u03b9\u03ba\u03b1\u03af\u03c9\u03bc\u03b1 \u03c5\u03c0\u03bf\u03c8\u03b7\u03c6\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03ad\u03c7\u03bf\u03c5\u03bd \u03cc\u03c3\u03bf\u03b9 \u03ad\u03c7\u03bf\u03c5\u03bd \u03b1\u03bd\u03b1\u03bb\u03ac\u03b2\u03b5\u03b9 \u03b5\u03be\u03b1\u03b9\u03c1\u03b5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03c3\u03bc\u03b1\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b4\u03c1\u03ac\u03c3\u03b5\u03b9\u03c2 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7\u03c2 \u03ba\u03b1\u03c4\u03ac \u03c4\u03bf\u03c5\u03c2 \u03c4\u03b5\u03bb\u03b5\u03c5\u03c4\u03b1\u03af\u03bf\u03c5\u03c2 12 \u03bc\u03ae\u03bd\u03b5\u03c2, \u03b1\u03c0\u03b5\u03c5\u03b8\u03c5\u03bd\u03cc\u03bc\u03b5\u03bd\u03bf\u03b9 \u03c3\u03b5 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c4\u03bf\u03c5 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03bf\u03cd \u03ba\u03b1\u03b9 \u03c5\u03b3\u03b5\u03b9\u03bf\u03bd\u03bf\u03bc\u03b9\u03ba\u03bf\u03cd \u03ba\u03bb\u03ac\u03b4\u03bf\u03c5, \u03bc\u03b5 \u03c3\u03c4\u03cc\u03c7\u03bf \u03c4\u03b7\u03bd \u03b5\u03bd\u03af\u03c3\u03c7\u03c5\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03b9\u03ba\u03b1\u03bd\u03cc\u03c4\u03b7\u03c4\u03ac\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03bd\u03b1 \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03bf\u03c5\u03bd \u03ad\u03b3\u03ba\u03b1\u03b9\u03c1\u03b1 \u03c4\u03b7\u03bd ECD.<\/p>\n<p>\u0391\u03bd \u03b3\u03bd\u03c9\u03c1\u03af\u03b6\u03b5\u03c4\u03b5 \u03ba\u03ac\u03c0\u03bf\u03b9\u03bf\u03bd \u03c0\u03bf\u03c5 \u03ad\u03c7\u03b5\u03b9 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03b9 \u03b5\u03bd\u03b5\u03c1\u03b3\u03ac \u03c3\u03b5 \u03c4\u03ad\u03c4\u03bf\u03b9\u03b5\u03c2 \u03c0\u03c1\u03c9\u03c4\u03bf\u03b2\u03bf\u03c5\u03bb\u03af\u03b5\u03c2 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7\u03c2 \u03c0\u03bf\u03c5 \u03c6\u03ad\u03c1\u03bd\u03bf\u03c5\u03bd \u03b1\u03bb\u03bb\u03b1\u03b3\u03ae, \u03c3\u03b1\u03c2 \u03b5\u03bd\u03b8\u03b1\u03c1\u03c1\u03cd\u03bd\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03c5\u03c0\u03bf\u03b2\u03ac\u03bb\u03b5\u03c4\u03b5 \u03c5\u03c0\u03bf\u03c8\u03b7\u03c6\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1 \u03b5\u03ba \u03bc\u03ad\u03c1\u03bf\u03c5\u03c2 \u03c4\u03bf\u03c5. \u0391\u03bd\u03b1\u03b3\u03bd\u03c9\u03c1\u03af\u03b6\u03bf\u03bd\u03c4\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b9\u03bc\u03ce\u03bd\u03c4\u03b1\u03c2 \u03b1\u03c5\u03c4\u03ad\u03c2 \u03c4\u03b9\u03c2 \u03b6\u03c9\u03c4\u03b9\u03ba\u03ae\u03c2 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1\u03c2 \u03c3\u03c5\u03bd\u03b5\u03b9\u03c3\u03c6\u03bf\u03c1\u03ad\u03c2, \u03b7 ECDGA \u03c3\u03c5\u03bd\u03b5\u03c7\u03af\u03b6\u03b5\u03b9 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c9\u03b8\u03b5\u03af \u03c4\u03b7\u03bd \u03b1\u03c0\u03bf\u03c3\u03c4\u03bf\u03bb\u03ae \u03c4\u03b7\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b1\u03cd\u03be\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03b2\u03b5\u03bb\u03c4\u03af\u03c9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03c3\u03bc\u03ac\u03c4\u03c9\u03bd \u03b3\u03b9\u03b1 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc \u03b1\u03c5\u03c4\u03ae \u03c4\u03b7 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1.<\/p>\n<p>To nominate an individual or group for the Mark Heaney Memorial Award for Awareness, please click the link below to access the nomination form. Help us honor the legacy of Dr. Mark Heaney and the many advocates who follow in his footsteps, dedicated to enlightening the medical community about ECD.<\/p>\n<p><a href=\"https:\/\/questionpro.com\/t\/ATlviZ00Lv\" target=\"_blank\" rel=\"noopener\">\u03a3\u03c5\u03bc\u03c0\u03bb\u03b7\u03c1\u03ce\u03c3\u03c4\u03b5 \u03c4\u03b7 \u03c6\u03cc\u03c1\u03bc\u03b1 \u03c5\u03c0\u03bf\u03c8\u03b7\u03c6\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2<\/a><\/p>\n<p>Nominations are now open. The recipient of the award will be announced during the upcoming ECDGA Annual Meeting. Join us in celebrating the champions of ECD awareness and their crucial role in changing the landscape of this disease.<\/p>","protected":false},"excerpt":{"rendered":"<p>The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce that nominations are now open for the prestigious Mark Heaney Memorial Award for Awareness. This annual award commemorates the significant [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":42630,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-42628","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/42628","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=42628"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/42628\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/42630"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=42628"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=42628"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=42628"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}