{"id":30094,"date":"2017-12-31T12:09:59","date_gmt":"2017-12-31T17:09:59","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=30094"},"modified":"2025-10-04T04:36:17","modified_gmt":"2025-10-04T09:36:17","slug":"%ce%b5%ce%bc%cf%80%ce%b5%ce%b9%cf%81%ce%af%ce%b1-%ce%bc%ce%b5-%cf%84%ce%b7-%ce%bd%cf%8c%cf%83%ce%bf-%cf%84%ce%bf%cf%85-erdheim-chester-%cf%83%ce%b5-%ce%ad%ce%bd%ce%b1%ce%bd-%ce%ba%ce%b9%ce%bd%ce%ad","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/erdheim-chester-disease-experience-from-a-chinese-patient-2012-to-2017\/","title":{"rendered":"\u0397 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b1 \u03b5\u03bd\u03cc\u03c2 \u039a\u03b9\u03bd\u03ad\u03b6\u03bf\u03c5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03bf\u03cd\u03c2 \u03bc\u03b5 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester: 2012 \u03ad\u03c9\u03c2 2017"},"content":{"rendered":"<p><strong>\u0397 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b1 \u03b5\u03bd\u03cc\u03c2 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\u03cc\u03c4\u03b9 \u03c5\u03c0\u03ae\u03c1\u03c7\u03b5 \u03ba\u03b1\u03b9 \u03ac\u03bb\u03bb\u03bf \u03ac\u03c4\u03bf\u03bc\u03bf \u03c3\u03c4\u03b7\u03bd \u039a\u03af\u03bd\u03b1 \u03c0\u03bf\u03c5 \u03ad\u03c0\u03b1\u03c3\u03c7\u03b5 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03af\u03b4\u03b9\u03b1 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1. \u0397 Jin \u03bc\u03bf\u03c5 \u03b5\u03af\u03c0\u03b5 \u03cc\u03c4\u03b9 \u03c0\u03c1\u03bf\u03c3\u03c0\u03b1\u03b8\u03bf\u03cd\u03c3\u03b5 \u03bd\u03b1 \u03b1\u03b3\u03bf\u03c1\u03ac\u03c3\u03b5\u03b9 Vemurafenib \u03b1\u03c0\u03cc \u03ad\u03bd\u03b1 \u03c6\u03b1\u03c1\u03bc\u03b1\u03ba\u03b5\u03af\u03bf \u03c3\u03c4\u03b7\u03bd \u0399\u03bd\u03b4\u03af\u03b1, \u03bb\u03cc\u03b3\u03c9 \u03c4\u03c9\u03bd \u03c7\u03b1\u03bc\u03b7\u03bb\u03cc\u03c4\u03b5\u03c1\u03c9\u03bd \u03c4\u03b9\u03bc\u03ce\u03bd \u03c3\u03b5 \u03c3\u03cd\u03b3\u03ba\u03c1\u03b9\u03c3\u03b7 \u03bc\u03b5 \u03c4\u03b7\u03bd \u0395\u03c5\u03c1\u03ce\u03c0\u03b7. \u0391\u03bd\u03b1\u03c1\u03c1\u03ce\u03b8\u03b7\u03ba\u03b1 \u03b3\u03c1\u03ae\u03b3\u03bf\u03c1\u03b1 \u03bc\u03b5\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b5\u03cd\u03c4\u03b5\u03c1\u03b7 \u03c7\u03b5\u03b9\u03c1\u03bf\u03c5\u03c1\u03b3\u03b9\u03ba\u03ae \u03b5\u03c0\u03ad\u03bc\u03b2\u03b1\u03c3\u03b7, \u03ba\u03b1\u03c4\u03ac\u03c6\u03b5\u03c1\u03b1 \u03bd\u03b1 \u03c0\u03b5\u03c1\u03c0\u03b1\u03c4\u03ae\u03c3\u03c9 \u03ba\u03b1\u03b9 \u03b5\u03c0\u03ad\u03c3\u03c4\u03c1\u03b5\u03c8\u03b1 \u03c3\u03c4\u03bf\u03bd \u03c7\u03ce\u03c1\u03bf \u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1\u03c2 \u03bc\u03bf\u03c5. \u0397 Jin \u03b6\u03bf\u03cd\u03c3\u03b5 \u03c3\u03c4\u03b7\u03bd \u03c0\u03cc\u03bb\u03b7 Wuhan, \u03c3\u03c4\u03b7\u03bd \u03ba\u03b5\u03bd\u03c4\u03c1\u03b9\u03ba\u03ae \u039a\u03af\u03bd\u03b1. \u0395\u03af\u03c7\u03b5 \u03c0\u03bd\u03b5\u03c5\u03bc\u03bf\u03bd\u03b9\u03ba\u03ae \u03bb\u03bf\u03af\u03bc\u03c9\u03be\u03b7 \u03ba\u03b1\u03b9 \u03b2\u03ae\u03c7\u03b1\u03b9\u03bd\u03b5 \u03c3\u03c5\u03bd\u03b5\u03c7\u03ce\u03c2. \u03a4\u03b7\u03bd \u03b5\u03c0\u03b9\u03c3\u03ba\u03ad\u03c6\u03b8\u03b7\u03ba\u03b1 \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03c9\u03bd \u03b5\u03bf\u03c1\u03c4\u03ce\u03bd \u03c4\u03b7\u03c2 \u0395\u03b8\u03bd\u03b9\u03ba\u03ae\u03c2 \u0397\u03bc\u03ad\u03c1\u03b1\u03c2, \u03c4\u03bf\u03bd \u039f\u03ba\u03c4\u03ce\u03b2\u03c1\u03b9\u03bf \u03c4\u03bf\u03c5 2015. \u039f\u03b9 \u03b3\u03bf\u03bd\u03b5\u03af\u03c2 \u03c4\u03b7\u03c2 \u03b5\u03af\u03c7\u03b1\u03bd \u03b1\u03b3\u03bf\u03c1\u03ac\u03c3\u03b5\u03b9 \u03c4\u03bf Vemurafenib \u03b1\u03c0\u03cc \u03ad\u03bd\u03b1 \u03c6\u03b1\u03c1\u03bc\u03b1\u03ba\u03b5\u03af\u03bf \u03c3\u03c4\u03bf \u03a7\u03bf\u03bd\u03b3\u03ba \u039a\u03bf\u03bd\u03b3\u03ba. \u03a0\u03b1\u03c1\u03ac\u03bb\u03bb\u03b7\u03bb\u03b1, \u03bb\u03ac\u03bc\u03b2\u03b1\u03bd\u03b5 \u03c4\u03b1\u03ba\u03c4\u03b9\u03ba\u03ac \u03b5\u03bd\u03ad\u03c3\u03b5\u03b9\u03c2 \u03b9\u03bd\u03c4\u03b5\u03c1\u03c6\u03b5\u03c1\u03cc\u03bd\u03b7\u03c2. \u038c\u03c4\u03b1\u03bd \u03b1\u03bd\u03ad\u03c6\u03b5\u03c1\u03b1 \u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03c3\u03c4\u03bf\u03bd \u0394\u03c1. Diamond, \u03bc\u03bf\u03c5 \u03b1\u03c0\u03ac\u03bd\u03c4\u03b7\u03c3\u03b5 \u03c3\u03bf\u03b2\u03b1\u03c1\u03ac \u03ba\u03b1\u03b9 \u03c0\u03c1\u03cc\u03c4\u03b5\u03b9\u03bd\u03b5 \u03c4\u03b7\u03bd \u03ac\u03bc\u03b5\u03c3\u03b7 \u03b4\u03b9\u03b1\u03ba\u03bf\u03c0\u03ae \u03c4\u03c9\u03bd \u03b5\u03bd\u03ad\u03c3\u03b5\u03c9\u03bd \u03b9\u03bd\u03c4\u03b5\u03c1\u03c6\u03b5\u03c1\u03cc\u03bd\u03b7\u03c2, \u03ba\u03b1\u03b8\u03ce\u03c2 \u03b1\u03c5\u03c4\u03ad\u03c2 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bd \u03bd\u03b1 \u03ba\u03b1\u03c4\u03b1\u03c3\u03c4\u03b5\u03af\u03bb\u03bf\u03c5\u03bd \u03c4\u03bf \u03b1\u03bd\u03bf\u03c3\u03bf\u03c0\u03bf\u03b9\u03b7\u03c4\u03b9\u03ba\u03cc \u03c3\u03cd\u03c3\u03c4\u03b7\u03bc\u03b1, \u03ba\u03ac\u03c4\u03b9 \u03c0\u03bf\u03c5 \u03c0\u03b9\u03b8\u03b1\u03bd\u03ce\u03c2 \u03b8\u03b1 \u03b5\u03c0\u03b9\u03c4\u03ac\u03c7\u03c5\u03bd\u03b5 \u03c4\u03b7\u03bd \u03c0\u03bd\u03b5\u03c5\u03bc\u03bf\u03bd\u03b9\u03ba\u03ae \u03bb\u03bf\u03af\u03bc\u03c9\u03be\u03b7. \u03a4\u03b7\u03bd \u03c0\u03b1\u03c1\u03b1\u03bc\u03bf\u03bd\u03ae \u03c4\u03b7\u03c2 \u0395\u03bf\u03c1\u03c4\u03ae\u03c2 \u03c4\u03b7\u03c2 \u0386\u03bd\u03bf\u03b9\u03be\u03b7\u03c2 \u03c4\u03bf\u03c5 2016, \u03b7 \u03bc\u03b7\u03c4\u03ad\u03c1\u03b1 \u03c4\u03b7\u03c2 \u03a4\u03b6\u03b9\u03bd \u03bc\u03bf\u03c5 \u03b5\u03af\u03c0\u03b5 \u03cc\u03c4\u03b9 \u03b7 \u03ba\u03b1\u03c4\u03ac\u03c3\u03c4\u03b1\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03a4\u03b6\u03b9\u03bd \u03b5\u03af\u03c7\u03b5 \u03b5\u03c0\u03b9\u03b4\u03b5\u03b9\u03bd\u03c9\u03b8\u03b5\u03af \u03ba\u03b1\u03b9 \u03cc\u03c4\u03b9 \u03bf \u03b3\u03b9\u03b1\u03c4\u03c1\u03cc\u03c2 \u03c4\u03b7\u03c2 \u03b5\u03af\u03c7\u03b5 \u03b5\u03b3\u03ba\u03b1\u03c4\u03b1\u03bb\u03b5\u03af\u03c8\u03b5\u03b9 \u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03c4\u03b7\u03c2. \u0397 \u03bc\u03b7\u03c4\u03ad\u03c1\u03b1 \u03c4\u03b7\u03c2 \u03a4\u03b6\u03b9\u03bd \u03ad\u03ba\u03b1\u03bd\u03b5 \u03cc,\u03c4\u03b9 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03c3\u03b5 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c5\u03c0\u03bf\u03b2\u03ac\u03bb\u03b5\u03b9 \u03b1\u03af\u03c4\u03b7\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03c6\u03b9\u03bb\u03bf\u03be\u03b5\u03bd\u03af\u03b1 \u03c3\u03c4\u03bf \u039a\u03ad\u03bd\u03c4\u03c1\u03bf \u039a\u03b1\u03c1\u03ba\u03af\u03bd\u03bf\u03c5 \u00abMemorial Sloan Kettering\u00bb. \u03a9\u03c3\u03c4\u03cc\u03c3\u03bf, \u03b7 ECD \u03c4\u03b5\u03bb\u03b9\u03ba\u03ac \u03c4\u03b7\u03c2 \u03c3\u03c4\u03ad\u03c1\u03b7\u03c3\u03b5 \u03c4\u03b7 \u03b6\u03c9\u03ae \u03c4\u03bf\u03bd \u039c\u03ac\u03c1\u03c4\u03b9\u03bf \u03c4\u03bf\u03c5 2016. \u03a4\u03bf\u03bd \u0394\u03b5\u03ba\u03ad\u03bc\u03b2\u03c1\u03b9\u03bf \u03c4\u03bf\u03c5 2015, \u03b4\u03b7\u03bc\u03b9\u03bf\u03cd\u03c1\u03b3\u03b7\u03c3\u03b1 \u03bc\u03b9\u03b1 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03c3\u03c4\u03bf WeChat \u03bc\u03b5 \u03c4\u03b7\u03bd \u03bf\u03bd\u03bf\u03bc\u03b1\u03c3\u03af\u03b1 \u00abErdheim Chest\u00bb. \u03a0\u03b1\u03c1\u03ac\u03bb\u03bb\u03b7\u03bb\u03b1, \u03b4\u03b7\u03bc\u03b9\u03bf\u03cd\u03c1\u03b3\u03b7\u03c3\u03b1 \u03bc\u03b9\u03b1 \u03b4\u03b7\u03bc\u03cc\u03c3\u03b9\u03b1 \u03c0\u03bb\u03b1\u03c4\u03c6\u03cc\u03c1\u03bc\u03b1 \u03c3\u03c4\u03bf WeChat \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b9\u03ac\u03b4\u03bf\u03c3\u03b7 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03b9\u03ce\u03bd \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd ECD. \u0391\u03c1\u03c7\u03b9\u03ba\u03ac, \u03b7 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03bf\u03cd\u03bd\u03c4\u03b1\u03bd \u03b1\u03c0\u03cc \u03b5\u03bc\u03ad\u03bd\u03b1, \u03c4\u03bf\u03bd \u0396\u03bf\u03c5, \u03c4\u03bf\u03bd \u03a6\u03b1\u03bd, \u03c4\u03b7\u03bd \u03a4\u03b6\u03b9\u03bd \u03ba\u03b1\u03b9 \u03c4\u03bf\u03bd \u039f\u03c5. \u03a4\u03b1 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b1 \u03c0\u03c1\u03ce\u03c4\u03b1 \u03bc\u03ad\u03bb\u03b7 \u03b2\u03c1\u03ae\u03ba\u03b1\u03bd \u03c4\u03bf \u03ad\u03bd\u03b1 \u03c4\u03bf \u03ac\u03bb\u03bb\u03bf \u03ba\u03c5\u03c1\u03af\u03c9\u03c2 \u03bc\u03ad\u03c3\u03c9 \u03c4\u03b7\u03c2 \u03b9\u03c3\u03c4\u03bf\u03c3\u03b5\u03bb\u03af\u03b4\u03b1\u03c2 \u03c4\u03b7\u03c2 ECDGA. \u03a3\u03ae\u03bc\u03b5\u03c1\u03b1, \u03b7 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03b1\u03c1\u03b9\u03b8\u03bc\u03b5\u03af \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03b1\u03c0\u03cc 30 \u03bc\u03ad\u03bb\u03b7, \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03c4\u03c9\u03bd \u03bf\u03c0\u03bf\u03af\u03c9\u03bd \u03b4\u03cd\u03bf \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03af \u03b1\u03c0\u03cc \u03c4\u03bf Peking Union Medical College Hospital, \u03ba\u03b1\u03b8\u03ce\u03c2 \u03ba\u03b1\u03b9 \u03b1\u03c1\u03ba\u03b5\u03c4\u03ac 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