{"id":20097,"date":"2022-02-24T09:56:23","date_gmt":"2022-02-24T15:56:23","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20097"},"modified":"2025-08-23T18:10:08","modified_gmt":"2025-08-23T22:10:08","slug":"%ce%b7%ce%bc%ce%ad%cf%81%ce%b1-%cf%83%cf%80%ce%ac%ce%bd%ce%b9%cf%89%ce%bd-%cf%80%ce%b1%ce%b8%ce%ae%cf%83%ce%b5%cf%89%ce%bd-2022","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/rare-disease-day-2022\/","title":{"rendered":"\u0397\u03bc\u03ad\u03c1\u03b1 \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd 2022"},"content":{"rendered":"

\"\"<\/p>\n

\u0397 \u0397\u03bc\u03ad\u03c1\u03b1 \u03c4\u03c9\u03bd \u03a3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03a0\u03b1\u03b8\u03ae\u03c3\u03b5\u03c9\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03c3\u03c4\u03b9\u03c2 28 \u03a6\u03b5\u03b2\u03c1\u03bf\u03c5\u03b1\u03c1\u03af\u03bf\u03c5 2022! \u03a3\u03c4\u03b9\u03c2 \u0397\u03bd\u03c9\u03bc\u03ad\u03bd\u03b5\u03c2 \u03a0\u03bf\u03bb\u03b9\u03c4\u03b5\u03af\u03b5\u03c2, \u03bc\u03b9\u03b1 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7 \u03b8\u03b5\u03c9\u03c1\u03b5\u03af\u03c4\u03b1\u03b9 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03b1\u03bd \u03c0\u03c1\u03bf\u03c3\u03b2\u03ac\u03bb\u03bb\u03b5\u03b9 \u03bb\u03b9\u03b3\u03cc\u03c4\u03b5\u03c1\u03bf\u03c5\u03c2 \u03b1\u03c0\u03cc 200.000 \u0391\u03bc\u03b5\u03c1\u03b9\u03ba\u03b1\u03bd\u03bf\u03cd\u03c2\u00b7 7.000 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b5\u03bc\u03c0\u03af\u03c0\u03c4\u03bf\u03c5\u03bd \u03c3\u03b5 \u03b1\u03c5\u03c4\u03ae \u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03b7\u03b3\u03bf\u03c1\u03af\u03b1, \u03b5\u03bd\u03ce 1 \u03c3\u03c4\u03bf\u03c5\u03c2 10 \u0391\u03bc\u03b5\u03c1\u03b9\u03ba\u03b1\u03bd\u03bf\u03cd\u03c2 \u03c0\u03ac\u03c3\u03c7\u03b5\u03b9 \u03b1\u03c0\u03cc \u03ba\u03ac\u03c0\u03bf\u03b9\u03b1 \u03b1\u03c0\u03cc \u03b1\u03c5\u03c4\u03ad\u03c2.<\/p>\n

\u039f\u03b9 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03c0\u03bf\u03c5 \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03bd\u03cc\u03c3\u03bf \u03c5\u03c0\u03bf\u03c6\u03ad\u03c1\u03bf\u03c5\u03bd \u03b3\u03b9\u03b1 \u03bc\u03b5\u03b3\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03bf \u03c7\u03c1\u03bf\u03bd\u03b9\u03ba\u03cc \u03b4\u03b9\u03ac\u03c3\u03c4\u03b7\u03bc\u03b1 \u03c0\u03c1\u03bf\u03c4\u03bf\u03cd \u03b2\u03c1\u03bf\u03c5\u03bd \u03b1\u03c0\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2.\u00a0 \u03a3\u03c5\u03c7\u03bd\u03ac, \u03bf\u03b9 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03c5\u03c0\u03bf\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c3\u03b5 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2 \u201c\u03b5\u03ba\u03c4\u03cc\u03c2 \u03b5\u03bd\u03b4\u03b5\u03af\u03be\u03b5\u03c9\u03bd\u201d (\u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2 \u03c0\u03bf\u03c5 \u03b4\u03b5\u03bd \u03ad\u03c7\u03bf\u03c5\u03bd \u03b5\u03b3\u03ba\u03c1\u03b9\u03b8\u03b5\u03af \u03b1\u03c0\u03cc \u03c4\u03bf\u03bd FDA \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03c3\u03c5\u03b3\u03ba\u03b5\u03ba\u03c1\u03b9\u03bc\u03ad\u03bd\u03b7 \u03bd\u03cc\u03c3\u03bf), \u03ba\u03ac\u03c4\u03b9 \u03c0\u03bf\u03c5 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03bf\u03b4\u03b7\u03b3\u03ae\u03c3\u03b5\u03b9 \u03c3\u03b5 \u03c0\u03c1\u03bf\u03b2\u03bb\u03ae\u03bc\u03b1\u03c4\u03b1 \u03b1\u03c0\u03bf\u03b6\u03b7\u03bc\u03af\u03c9\u03c3\u03b7\u03c2 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03b1\u03c3\u03c6\u03b1\u03bb\u03b9\u03c3\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b5\u03c4\u03b1\u03b9\u03c1\u03b5\u03af\u03b5\u03c2, \u03b5\u03bd\u03ce \u03c3\u03b5 \u03c0\u03bf\u03bb\u03bb\u03ad\u03c2 \u03c7\u03ce\u03c1\u03b5\u03c2 \u03b4\u03b5\u03bd \u03c5\u03c0\u03ac\u03c1\u03c7\u03b5\u03b9 \u03bf\u03b9\u03ba\u03bf\u03bd\u03bf\u03bc\u03b9\u03ba\u03ac \u03c0\u03c1\u03bf\u03c3\u03b9\u03c4\u03ae \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7 \u03c3\u03b5 \u03b2\u03b1\u03c3\u03b9\u03ba\u03ac \u03c6\u03ac\u03c1\u03bc\u03b1\u03ba\u03b1. \u0397 \u03ba\u03b1\u03bb\u03ae \u03b5\u03af\u03b4\u03b7\u03c3\u03b7 \u03b5\u03af\u03bd\u03b1\u03b9 \u03cc\u03c4\u03b9, \u03bc\u03cc\u03bb\u03b9\u03c2 \u03b4\u03b9\u03b1\u03b3\u03bd\u03c9\u03c3\u03c4\u03b5\u03af \u03b7 \u03bd\u03cc\u03c3\u03bf\u03c2 \u03ba\u03b1\u03b9 \u03ba\u03b1\u03b8\u03bf\u03c1\u03b9\u03c3\u03c4\u03b5\u03af \u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1, \u03c0\u03bf\u03bb\u03bb\u03bf\u03af \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ba\u03b1\u03c4\u03b1\u03c6\u03ad\u03c1\u03bd\u03bf\u03c5\u03bd \u03bd\u03b1 \u03b5\u03bb\u03ad\u03b3\u03be\u03bf\u03c5\u03bd \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03c3\u03c5\u03bc\u03c0\u03c4\u03ce\u03bc\u03b1\u03c4\u03ac \u03c4\u03b7\u03c2. <\/p>\n

\"\"\u0393\u03b9\u03b1 \u03bd\u03b1 \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03ae\u03c3\u03b5\u03c4\u03b5 \u03c0\u03bb\u03ae\u03c1\u03c9\u03c2 \u03c4\u03b7 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1 \u03c4\u03b7\u03c2 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7\u03c2, \u03c1\u03af\u03be\u03c4\u03b5 \u03bc\u03b9\u03b1 \u03bc\u03b1\u03c4\u03b9\u03ac \u03c3\u03c4\u03b7 \u03b6\u03c9\u03ae \u03b1\u03c5\u03c4\u03ae\u03c2 \u03c4\u03b7\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03bf\u03cd\u03c2 \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1, \u03c4\u03b7\u03c2 \u03a7\u03af\u03bc\u03c0\u03b1 \u03a4\u03cc\u03bc\u03b5. \u0397 \u03a7\u03af\u03bc\u03c0\u03b1 \u03bc\u03bf\u03b9\u03c1\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b1 \u03c4\u03b7\u03c2 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7\u03c2 \u03c4\u03b7\u03c2 ECD \u03ba\u03b1\u03b9 \u03c4\u03bf\u03c5 \u03c0\u03ce\u03c2 \u03ba\u03b1\u03c4\u03ac\u03c6\u03b5\u03c1\u03b5 \u03c4\u03b5\u03bb\u03b9\u03ba\u03ac \u03bd\u03b1 \u03ad\u03c7\u03b5\u03b9 \u03c0\u03c1\u03cc\u03c3\u03b2\u03b1\u03c3\u03b7 \u03c3\u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03c0\u03bf\u03c5 \u03c4\u03b7 \u03b2\u03bf\u03b7\u03b8\u03ac \u03bd\u03b1 \u03bb\u03b5\u03b9\u03c4\u03bf\u03c5\u03c1\u03b3\u03b5\u03af \u03c3\u03c4\u03b7\u03bd \u03ba\u03b1\u03b8\u03b7\u03bc\u03b5\u03c1\u03b9\u03bd\u03ae \u03c4\u03b7\u03c2 \u03b6\u03c9\u03ae. \u039f\u03b9 \u03b4\u03c5\u03c3\u03ba\u03bf\u03bb\u03af\u03b5\u03c2 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03ce\u03c0\u03b9\u03c3\u03b5 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03c0\u03bf\u03ba\u03b1\u03bb\u03c5\u03c0\u03c4\u03b9\u03ba\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03bf\u03b4\u03b5\u03b9\u03ba\u03bd\u03cd\u03bf\u03c5\u03bd \u03b3\u03b9\u03b1\u03c4\u03af \u03b7 \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03cc\u03c3\u03bf \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ae.<\/p>\n

\u201c\u0395\u03af\u03bd\u03b1\u03b9 \u03b6\u03c9\u03c4\u03b9\u03ba\u03ae\u03c2 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1\u03c2 \u03bd\u03b1 \u03b1\u03c0\u03bf\u03b4\u03b5\u03c7\u03c4\u03b5\u03af\u03c2 \u03c4\u03b7\u03bd \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03ac \u03c3\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03bc\u03b7\u03bd \u03c4\u03b1 \u03c0\u03b1\u03c1\u03b1\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c4\u03ad, \u03b4\u03b7\u03bb\u03ce\u03bd\u03bf\u03bd\u03c4\u03b1\u03c2 \u03b4\u03c5\u03bd\u03b1\u03c4\u03ac \u03ba\u03b1\u03b9 \u03be\u03b5\u03ba\u03ac\u03b8\u03b1\u03c1\u03b1 \u03cc\u03c4\u03b9 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af\u03c2 \u03bd\u03b1 \u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03cd\u03c3\u03b5\u03b9\u03c2. \u0388\u03c7\u03c9 \u03b3\u03af\u03bd\u03b5\u03b9 \u03b5\u03b9\u03b4\u03b9\u03ba\u03cc\u03c2 \u03c3\u03b5 \u03b1\u03c5\u03c4\u03ae \u03c4\u03b7 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1, \u03ac\u03b3\u03bd\u03c9\u03c3\u03c4\u03b7 \u03c3\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2, \u03b1\u03ba\u03cc\u03bc\u03b1 \u03ba\u03b1\u03b9 \u03c3\u03c4\u03bf\u03c5\u03c2 \u03c0\u03b9\u03bf \u03b4\u03b9\u03b1\u03ba\u03b5\u03ba\u03c1\u03b9\u03bc\u03ad\u03bd\u03bf\u03c5\u03c2 \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03cd\u03c2. <\/em>\u201d\u0397 \u03bd\u03cc\u03c3\u03bf\u03c2 Erdheim-Chester \u03ad\u03b3\u03b9\u03bd\u03b5 \u03b4\u03cd\u03bf \u03c3\u03ba\u03b9\u03ad\u03c2 \u03c0\u03bf\u03c5 \u03bc\u03b5 \u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03bf\u03cd\u03c3\u03b1\u03bd \u03c0\u03b1\u03bd\u03c4\u03bf\u03cd \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b9\u03c2 \u03bf\u03c0\u03bf\u03af\u03b5\u03c2 \u03ae\u03b8\u03b5\u03bb\u03b1 \u03bd\u03b1 \u03c1\u03af\u03be\u03c9 \u03c6\u03c9\u03c2. \u0395\u03bb\u03c0\u03af\u03b6\u03c9 \u03b1\u03c5\u03c4\u03ae \u03b7 \u03bc\u03b1\u03c1\u03c4\u03c5\u03c1\u03af\u03b1 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03b5\u03b9 \u03c3\u03c4\u03b7\u03bd \u03c0\u03c1\u03cc\u03bf\u03b4\u03bf \u03c4\u03b7\u03c2 \u03b5\u03c0\u03b9\u03c3\u03c4\u03ae\u03bc\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1 \u03c4\u03c9\u03bd \u03b1\u03c4\u03cc\u03bc\u03c9\u03bd \u03c0\u03bf\u03c5 \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester.\u00bb \u2013 \u03a7\u03af\u03bc\u03c0\u03b1<\/em><\/p>\n

 <\/p>\n

\u0394\u03b9\u03b1\u03b2\u03ac\u03c3\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b1 \u03c4\u03b7\u03c2 \u03a7\u03af\u03bc\u03c0\u03b1<\/a><\/p>\n

\u0393\u03b1\u03bb\u03bb\u03b9\u03ba\u03ae \u03ad\u03ba\u03b4\u03bf\u03c3\u03b7<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Rare Disease Day is on February 28, 2022!  In the United States, a disease is considered rare if it affects fewer than 200,000 Americans, 7,000 illnesses fall into this category, with 1 […]<\/p>\n","protected":false},"author":14,"featured_media":20103,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[67,51,70],"tags":[101,83,54,59,58,56,57,122,123,98,82,52,174],"class_list":["post-20097","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","category-news","category-research-awareness","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-histio-warrior","tag-isolation","tag-rare-cancer","tag-rare-disease","tag-treatment-access"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/20097","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=20097"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/20097\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/20103"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=20097"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=20097"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=20097"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}