{"id":20040,"date":"2022-01-04T11:06:26","date_gmt":"2022-01-04T17:06:26","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20040"},"modified":"2025-08-23T17:14:09","modified_gmt":"2025-08-23T21:14:09","slug":"%ce%b1%ce%bd%ce%b1%ce%ba%ce%bf%ce%af%ce%bd%cf%89%cf%83%ce%b7-%ce%b3%ce%b9%ce%b1-%cf%85%cf%80%ce%bf%cf%84%cf%81%ce%bf%cf%86%ce%af%ce%b5%cf%82-%ce%ad%cf%81%ce%b5%cf%85%ce%bd%ce%b1%cf%82-%cf%84%ce%b7","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/ecd-global-alliance-2021-research-grant-announcement\/","title":{"rendered":"\u0391\u03bd\u03b1\u03ba\u03bf\u03af\u03bd\u03c9\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03c5\u03c0\u03bf\u03c4\u03c1\u03bf\u03c6\u03af\u03b5\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03c4\u03b7\u03c2 ECD Global Alliance 2021"},"content":{"rendered":"<h2><em>\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECD) \u03b1\u03c0\u03bf\u03bd\u03ad\u03bc\u03b5\u03b9 \u03c5\u03c0\u03bf\u03c4\u03c1\u03bf\u03c6\u03af\u03b1 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03bd\u03ad\u03bf\u03c5\u03c2 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2 \u03c3\u03b5 \u03b3\u03b9\u03b1\u03c4\u03c1\u03cc \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u0399\u03c4\u03b1\u03bb\u03af\u03b1, \u03bc\u03b5 \u03c3\u03ba\u03bf\u03c0\u03cc \u03c4\u03b7 \u03b4\u03b9\u03b5\u03c1\u03b5\u03cd\u03bd\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03bf\u03cd \u03c0\u03c1\u03bf\u03c6\u03af\u03bb \u03c4\u03b7\u03c2 ECD.<\/em><\/h2>\n<p>\u0397 ECD Global Alliance (ECDGA) \u03b1\u03c0\u03ad\u03bd\u03b5\u03b9\u03bc\u03b5 \u03c4\u03b7\u03bd \u0395\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ae \u03a5\u03c0\u03bf\u03c4\u03c1\u03bf\u03c6\u03af\u03b1 ECD \u03b3\u03b9\u03b1 \u03c4\u03bf 2021 \u03c3\u03c4\u03bf\u03bd \u0394\u03c1 Francesco Pegoraro, \u03c4\u03bf\u03c5 \u03a0\u03b1\u03b9\u03b4\u03b9\u03ba\u03bf\u03cd \u039d\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf\u03c5 \u03c4\u03bf\u03c5 \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03af\u03bf\u03c5 Meyer \u03c3\u03c4\u03b7 \u03a6\u03bb\u03c9\u03c1\u03b5\u03bd\u03c4\u03af\u03b1 \u03c4\u03b7\u03c2 \u0399\u03c4\u03b1\u03bb\u03af\u03b1\u03c2.  \u0397 \u03c0\u03c1\u03cc\u03c4\u03b1\u03c3\u03b7 \u03c0\u03bf\u03c5 \u03b5\u03c0\u03b9\u03bb\u03ad\u03c7\u03b8\u03b7\u03ba\u03b5, <em>\u0395\u03be\u03b5\u03c1\u03b5\u03cd\u03bd\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03bf\u03cd \u03c4\u03bf\u03c0\u03af\u03bf\u03c5 \u03c4\u03bf\u03c5 <\/em>\u0397 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester, \u03b7 \u03bf\u03c0\u03bf\u03af\u03b1 \u03c3\u03c5\u03bd\u03b4\u03c5\u03ac\u03b6\u03b5\u03b9 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03b1 GWAS \u03ba\u03b1\u03b9 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03b1 \u00ab-\u03bf\u03bc\u03b9\u03ba\u03ae\u03c2\u00bb, \u03b5\u03c0\u03b9\u03bb\u03ad\u03c7\u03b8\u03b7\u03ba\u03b5 \u03b3\u03b9\u03b1 \u03c7\u03c1\u03b7\u03bc\u03b1\u03c4\u03bf\u03b4\u03cc\u03c4\u03b7\u03c3\u03b7 \u03cd\u03c8\u03bf\u03c5\u03c2 $50.000. \u0397 ECDGA \u03ad\u03c7\u03b5\u03b9 \u03c4\u03b7\u03bd \u03c4\u03b9\u03bc\u03ae \u03bd\u03b1 \u03c7\u03c1\u03b7\u03bc\u03b1\u03c4\u03bf\u03b4\u03bf\u03c4\u03b5\u03af \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03c0\u03c1\u03c9\u03c4\u03bf\u03c0\u03bf\u03c1\u03b9\u03b1\u03ba\u03cc \u03ad\u03c1\u03b3\u03bf \u03ba\u03b1\u03b9 \u03c0\u03b9\u03c3\u03c4\u03b5\u03cd\u03b5\u03b9 \u03cc\u03c4\u03b9 \u03b8\u03b1 \u03bf\u03b4\u03b7\u03b3\u03ae\u03c3\u03b5\u03b9 \u03c3\u03b5 \u03ad\u03bd\u03b1 \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03bf \u03bc\u03ad\u03bb\u03bb\u03bf\u03bd \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03bc\u03b5 ECD \u03ba\u03b1\u03b9 \u03c3\u03b5 \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03c3\u03b7\u03c2.<\/p>\n<div id=\"attachment_19966\" style=\"width: 226px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/pegoraro-picture-.jpg\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-19966\" class=\"wp-image-19966\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/pegoraro-picture--300x300.jpg\" alt=\"\" width=\"216\" height=\"216\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/pegoraro-picture--300x300.jpg 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/pegoraro-picture--150x150.jpg 150w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/pegoraro-picture-.jpg 600w\" sizes=\"(max-width: 216px) 100vw, 216px\" \/><\/a><p id=\"caption-attachment-19966\" class=\"wp-caption-text\">\u0394\u03c1. \u03a6\u03c1\u03b1\u03bd\u03c4\u03c3\u03ad\u03c3\u03ba\u03bf \u03a0\u03b5\u03b3\u03bf\u03c1\u03ac\u03c1\u03bf<\/p><\/div>\n<p><strong>\u03a4\u03bf\u03c5 \u0394\u03c1. \u03a0\u03b5\u03b3\u03bf\u03c1\u03ac\u03c1\u03bf<\/strong><strong> \u0397 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7 \u03ad\u03c7\u03b5\u03b9 \u03c9\u03c2 \u03c3\u03c4\u03cc\u03c7\u03bf \u03bd\u03b1 \u03b4\u03b9\u03b1\u03c3\u03b1\u03c6\u03b7\u03bd\u03af\u03c3\u03b5\u03b9 \u03c4\u03b7 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae \u03c0\u03c1\u03bf\u03b4\u03b9\u03ac\u03b8\u03b5\u03c3\u03b7 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd ECD.<\/strong> &nbsp;\u0397 \u03b1\u03bd\u03b1\u03ba\u03ac\u03bb\u03c5\u03c8\u03b7 \u03c4\u03c9\u03bd \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ce\u03bd \u03c0\u03c1\u03bf\u03c4\u03cd\u03c0\u03c9\u03bd \u03c0\u03bf\u03c5 \u03c0\u03c1\u03bf\u03b4\u03b9\u03b1\u03b8\u03ad\u03c4\u03bf\u03c5\u03bd \u03c3\u03c4\u03b7\u03bd ECD \u03ba\u03b1\u03b9 \u03bf \u03b5\u03bd\u03b4\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf\u03c2 \u03c0\u03c1\u03bf\u03c3\u03b4\u03b9\u03bf\u03c1\u03b9\u03c3\u03bc\u03cc\u03c2 \u03bd\u03ad\u03c9\u03bd \u03c0\u03b1\u03b8\u03bf\u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ce\u03bd \u03bc\u03b7\u03c7\u03b1\u03bd\u03b9\u03c3\u03bc\u03ce\u03bd \u03b5\u03bd\u03b4\u03ad\u03c7\u03b5\u03c4\u03b1\u03b9 \u03bd\u03b1 <strong>\u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03b5\u03b9 \u03c3\u03c4\u03bf\u03bd \u03b5\u03bd\u03c4\u03bf\u03c0\u03b9\u03c3\u03bc\u03cc \u03bc\u03bf\u03bd\u03bf\u03c0\u03b1\u03c4\u03b9\u03ce\u03bd \u03c0\u03bf\u03c5 \u03b5\u03bd\u03b4\u03ad\u03c7\u03b5\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bf\u03c5\u03bd \u03c3\u03c4\u03cc\u03c7\u03bf\u03c5\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b5\u03b9\u03c3\u03b1\u03b3\u03ac\u03b3\u03b5\u03b9 \u03ba\u03b1\u03b9\u03bd\u03bf\u03c4\u03cc\u03bc\u03b5\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2<\/strong>. \u0397 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7 \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03b5\u03b9 \u03ad\u03bd\u03b1 \u03b4\u03af\u03ba\u03c4\u03c5\u03bf \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ce\u03bd \u03b9\u03b1\u03c4\u03c1\u03ce\u03bd \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bd\u03ad\u03b2\u03b1\u03bb\u03b1\u03bd \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ac \u03c3\u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c0\u03b1\u03b8\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b1\u03c2 \u03c4\u03b7\u03c2 ECD \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03b9\u03c3\u03b1\u03b3\u03c9\u03b3\u03ae \u03c3\u03c4\u03bf\u03c7\u03b5\u03c5\u03bc\u03ad\u03bd\u03c9\u03bd \u03c0\u03c1\u03bf\u03c3\u03b5\u03b3\u03b3\u03af\u03c3\u03b5\u03c9\u03bd. \u0395\u03ac\u03bd \u03b4\u03b9\u03b1\u03c0\u03b9\u03c3\u03c4\u03c9\u03b8\u03b5\u03af \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae \u03c0\u03c1\u03bf\u03b4\u03b9\u03ac\u03b8\u03b5\u03c3\u03b7, \u03bf\u03b9 \u03b5\u03bc\u03c0\u03bb\u03b5\u03ba\u03cc\u03bc\u03b5\u03bd\u03bf\u03b9 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03bf\u03af \u03b9\u03b1\u03c4\u03c1\u03bf\u03af \u03b8\u03b1 \u03c0\u03c1\u03bf\u03c7\u03c9\u03c1\u03ae\u03c3\u03bf\u03c5\u03bd \u03c3\u03b5 \u03c0\u03b5\u03c1\u03b1\u03b9\u03c4\u03ad\u03c1\u03c9 \u03b5\u03c0\u03b9\u03ba\u03cd\u03c1\u03c9\u03c3\u03b7, \u03c3\u03b5 \u03c0\u03c1\u03bf\u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03cc \u03ba\u03b1\u03b9 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03cc \u03b5\u03c0\u03af\u03c0\u03b5\u03b4\u03bf, \u03c4\u03c9\u03bd \u03bf\u03b4\u03ce\u03bd \u03ae \u03c4\u03c9\u03bd \u03b2\u03b9\u03bf\u03bb\u03bf\u03b3\u03b9\u03ba\u03ce\u03bd \u03bc\u03b7\u03c7\u03b1\u03bd\u03b9\u03c3\u03bc\u03ce\u03bd \u03c0\u03bf\u03c5 \u03b5\u03bd\u03c4\u03bf\u03c0\u03af\u03c3\u03c4\u03b7\u03ba\u03b1\u03bd \u03b1\u03c0\u03cc \u03c4\u03b7 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7. \u03a3\u03c4\u03b7\u03bd \u03c0\u03b5\u03c1\u03af\u03c0\u03c4\u03c9\u03c3\u03b7 \u03b1\u03c5\u03c4\u03ae, \u03bf\u03b9 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03bf\u03af \u03b9\u03b1\u03c4\u03c1\u03bf\u03af \u03b8\u03b1 \u03b5\u03c0\u03b1\u03bb\u03b7\u03b8\u03b5\u03cd\u03c3\u03bf\u03c5\u03bd \u03b5\u03c0\u03af\u03c3\u03b7\u03c2, \u03bc\u03ad\u03c3\u03c9 \u03b4\u03b9\u03b5\u03b8\u03bd\u03ce\u03bd \u03b2\u03ac\u03c3\u03b5\u03c9\u03bd \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03c9\u03bd, \u03b5\u03ac\u03bd \u03c5\u03c0\u03ac\u03c1\u03c7\u03bf\u03c5\u03bd \u03c6\u03ac\u03c1\u03bc\u03b1\u03ba\u03b1 \u03c0\u03bf\u03c5 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bd \u03b5\u03bd\u03b4\u03b5\u03c7\u03bf\u03bc\u03ad\u03bd\u03c9\u03c2 \u03bd\u03b1 \u03c3\u03c4\u03bf\u03c7\u03b5\u03cd\u03bf\u03c5\u03bd \u03c4\u03b9\u03c2 \u03b5\u03bd\u03c4\u03bf\u03c0\u03b9\u03c3\u03bc\u03ad\u03bd\u03b5\u03c2 \u03bf\u03b4\u03bf\u03cd\u03c2 \u03ba\u03b1\u03b9 \u03b8\u03b1 \u03c0\u03c1\u03bf\u03c7\u03c9\u03c1\u03ae\u03c3\u03bf\u03c5\u03bd \u03c3\u03b5 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ae \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1.<\/p>\n<p>\u03a3\u03cd\u03bd\u03bf\u03c8\u03b7 \u03c4\u03bf\u03c5 \u0394\u03c1. Pegoraro: \u201c\u0391\u03bd\u03b1\u03bc\u03ad\u03bd\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03b5\u03bd\u03c4\u03bf\u03c0\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03b3\u03bf\u03bd\u03af\u03b4\u03b9\u03b1 \u03bc\u03b5 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03b5\u03c4\u03b9\u03ba\u03ae \u03bc\u03b5\u03b8\u03c5\u03bb\u03af\u03c9\u03c3\u03b7 \u03ba\u03b1\u03b9\/\u03ae \u03ad\u03ba\u03c6\u03c1\u03b1\u03c3\u03b7 \u03c3\u03b5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03bc\u03b5 ECD, \u03c3\u03b5 \u03c3\u03cd\u03b3\u03ba\u03c1\u03b9\u03c3\u03b7 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03bf\u03bc\u03ac\u03b4\u03b1 \u03b5\u03bb\u03ad\u03b3\u03c7\u03bf\u03c5. \u03a4\u03b1 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ac \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03b1 \u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03b8\u03b1 \u03c3\u03c5\u03bb\u03bb\u03b5\u03c7\u03b8\u03bf\u03cd\u03bd \u03b1\u03c0\u03cc \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c6\u03b1\u03ba\u03ad\u03bb\u03bf\u03c5\u03c2 \u03ba\u03b1\u03b9 \u03b8\u03b1 \u03b1\u03bd\u03c4\u03b9\u03c3\u03c4\u03bf\u03b9\u03c7\u03b9\u03c3\u03c4\u03bf\u03cd\u03bd \u03bc\u03b5 \u03c4\u03b1 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ac \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bc\u03b1\u03c4\u03b1. \u0391\u03bd\u03b1\u03bc\u03ad\u03bd\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c3\u03b4\u03b9\u03bf\u03c1\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03b5\u03ac\u03bd \u03c5\u03c0\u03ac\u03c1\u03c7\u03b5\u03b9 \u03c3\u03c5\u03c3\u03c7\u03ad\u03c4\u03b9\u03c3\u03b7 \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03c4\u03c9\u03bd \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ce\u03bd \u03c0\u03b1\u03c1\u03b1\u03bb\u03bb\u03b1\u03b3\u03ce\u03bd \u03ae \u03c4\u03c9\u03bd \u03b5\u03c0\u03b9\u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ce\u03bd \u03c0\u03c1\u03bf\u03c6\u03af\u03bb \u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03c0\u03bf\u03c5 \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc ECD \u03ba\u03b1\u03b9 \u03c4\u03c9\u03bd \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ce\u03bd \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03c9\u03bd \u03c0\u03bf\u03c5 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c7\u03b1\u03c1\u03b1\u03ba\u03c4\u03b7\u03c1\u03b9\u03c3\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c4\u03b7\u03c2 ECD \u03ae \u03c4\u03c9\u03bd \u03c3\u03c9\u03bc\u03b1\u03c4\u03b9\u03ba\u03ce\u03bd \u03bc\u03b5\u03c4\u03b1\u03bb\u03bb\u03ac\u03be\u03b5\u03c9\u03bd. \u0398\u03b1 \u03c3\u03c5\u03bd\u03b4\u03c5\u03ac\u03c3\u03bf\u03c5\u03bc\u03b5 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03b1 GWAS \u03bc\u03b5 \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03b1 \u03bc\u03b5\u03b8\u03c5\u03bb\u03af\u03c9\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03bc\u03b5\u03c4\u03b1\u03b3\u03c1\u03b1\u03c6\u03c9\u03bc\u03b9\u03ba\u03ae\u03c2 \u03b1\u03bd\u03ac\u03bb\u03c5\u03c3\u03b7\u03c2, \u03c0\u03c1\u03bf\u03ba\u03b5\u03b9\u03bc\u03ad\u03bd\u03bf\u03c5 \u03bd\u03b1 \u03b5\u03bd\u03c4\u03bf\u03c0\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c0\u03bf\u03bb\u03c5\u03bc\u03bf\u03c1\u03c6\u03b9\u03c3\u03bc\u03bf\u03cd\u03c2 \u03c0\u03bf\u03c5 \u03b5\u03c0\u03b7\u03c1\u03b5\u03ac\u03b6\u03bf\u03c5\u03bd \u03c4\u03b7 \u03bc\u03b5\u03b8\u03c5\u03bb\u03af\u03c9\u03c3\u03b7 \u03ae\/\u03ba\u03b1\u03b9 \u03c4\u03b7 \u03b3\u03bf\u03bd\u03b9\u03b4\u03b9\u03b1\u03ba\u03ae \u03ad\u03ba\u03c6\u03c1\u03b1\u03c3\u03b7. \u03a4\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bc\u03b1\u03c4\u03b1 \u03b5\u03bd\u03b4\u03ad\u03c7\u03b5\u03c4\u03b1\u03b9 \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03bd\u03b1 \u03c0\u03b5\u03c1\u03b9\u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03c0\u03b5\u03c1\u03b9\u03b3\u03c1\u03b1\u03c6\u03ae \u03c4\u03c9\u03bd \u03b5\u03bc\u03c0\u03bb\u03b5\u03ba\u03cc\u03bc\u03b5\u03bd\u03c9\u03bd \u03b2\u03b9\u03bf\u03bb\u03bf\u03b3\u03b9\u03ba\u03ce\u03bd \u03bf\u03b4\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c4\u03bf\u03bd \u03b5\u03bd\u03c4\u03bf\u03c0\u03b9\u03c3\u03bc\u03cc \u03c0\u03b9\u03b8\u03b1\u03bd\u03ce\u03bd \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03c5\u03c4\u03b9\u03ba\u03ce\u03bd \u03c3\u03c4\u03cc\u03c7\u03c9\u03bd \u03ba\u03b1\u03b9 \u03b2\u03b9\u03bf\u03b4\u03b5\u03b9\u03ba\u03c4\u03ce\u03bd \u03c4\u03b7\u03c2 \u03bd\u03cc\u03c3\u03bf\u03c5.\u2019<\/p>\n<p>\u0397 \u03b5\u03c0\u03b9\u03c4\u03c1\u03bf\u03c0\u03ae \u03b1\u03be\u03b9\u03bf\u03bb\u03cc\u03b3\u03b7\u03c3\u03b7\u03c2 \u03c4\u03c9\u03bd \u03b5\u03c0\u03b9\u03c7\u03bf\u03c1\u03b7\u03b3\u03ae\u03c3\u03b5\u03c9\u03bd \u03b5\u03ba\u03c6\u03c1\u03ac\u03b6\u03b5\u03b9 \u03c4\u03b7\u03bd \u03c0\u03b5\u03c0\u03bf\u03af\u03b8\u03b7\u03c3\u03ae \u03c4\u03b7\u03c2 \u03cc\u03c4\u03b9 \u03b7 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7 \u03c4\u03bf\u03c5 \u0394\u03c1. Pegoraro \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03be\u03b9\u03cc\u03bb\u03bf\u03b3\u03b7 \u03ba\u03b1\u03b9 \u03b1\u03bd\u03b1\u03b3\u03bd\u03c9\u03c1\u03af\u03b6\u03b5\u03b9 \u03c4\u03b7\u03bd \u03b5\u03be\u03b5\u03b9\u03b4\u03af\u03ba\u03b5\u03c5\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c0\u03bf\u03bb\u03c5\u03b9\u03b4\u03c1\u03c5\u03bc\u03b1\u03c4\u03b9\u03ba\u03ae\u03c2 \u03bf\u03bc\u03ac\u03b4\u03b1\u03c2 \u03c4\u03bf\u03c5 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b9\u03b5\u03be\u03b1\u03b3\u03c9\u03b3\u03ae \u03c4\u03b7\u03c2 \u03b5\u03bd \u03bb\u03cc\u03b3\u03c9 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7\u03c2. \u201c\u039f \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ae\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03b5\u03c4\u03b1\u03b4\u03b9\u03b4\u03b1\u03ba\u03c4\u03bf\u03c1\u03b9\u03ba\u03cc\u03c2 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ae\u03c2 \u03ba\u03b1\u03b9 \u03ad\u03c7\u03b5\u03b9 \u03b4\u03b7\u03bc\u03bf\u03c3\u03b9\u03b5\u03cd\u03c3\u03b5\u03b9 \u03c9\u03c2 \u03c3\u03c5\u03bd-\u03c3\u03c5\u03b3\u03b3\u03c1\u03b1\u03c6\u03ad\u03b1\u03c2 \u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b5\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03bd \u03c4\u03bf\u03c5 Langerhans (LCH), \u03bc\u03b9\u03b1 \u03bd\u03cc\u03c3\u03bf \u03c0\u03bf\u03c5 \u03c3\u03c7\u03b5\u03c4\u03af\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bc\u03b5 \u03c4\u03b7\u03bd ECD.\u201d<\/p>\n<p>\u0397 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03c3\u03c4\u03cc\u03c7\u03bf \u03b6\u03c9\u03c4\u03b9\u03ba\u03ae\u03c2 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd ECDGA. \u039f \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03cc\u03c2 \u03ad\u03c7\u03b5\u03b9 \u03c7\u03bf\u03c1\u03b7\u03b3\u03ae\u03c3\u03b5\u03b9 \u03bc\u03ad\u03c7\u03c1\u03b9 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1 \u03b4\u03ad\u03ba\u03b1 (10) \u03b5\u03c0\u03b9\u03c7\u03bf\u03c1\u03b7\u03b3\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1, \u03b4\u03b9\u03b1\u03b8\u03ad\u03c4\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c0\u03ac\u03bd\u03c9 \u03b1\u03c0\u03cc $800K \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1. \u0397 \u03c7\u03c1\u03b7\u03bc\u03b1\u03c4\u03bf\u03b4\u03cc\u03c4\u03b7\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b5\u03c0\u03b9\u03c7\u03bf\u03c1\u03b7\u03b3\u03ae\u03c3\u03b5\u03c9\u03bd \u03c0\u03c1\u03bf\u03ad\u03c1\u03c7\u03b5\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03b3\u03b5\u03bd\u03bd\u03b1\u03b9\u03cc\u03b4\u03c9\u03c1\u03b5\u03c2 \u03b9\u03b4\u03b9\u03c9\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b4\u03c9\u03c1\u03b5\u03ad\u03c2. \u039f\u03b9 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03c1\u03bf\u03c3\u03c0\u03ac\u03b8\u03b5\u03b9\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd ECD, \u03c0\u03bf\u03c5 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b5\u03bd \u03bc\u03ad\u03c1\u03b5\u03b9 \u03b1\u03c0\u03cc \u03c4\u03bf\u03bd \u03bc\u03b7 \u03ba\u03b5\u03c1\u03b4\u03bf\u03c3\u03ba\u03bf\u03c0\u03b9\u03ba\u03cc \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03cc, \u03bf\u03b4\u03ae\u03b3\u03b7\u03c3\u03b1\u03bd \u03c0\u03c1\u03cc\u03c3\u03c6\u03b1\u03c4\u03b1 \u03c3\u03c4\u03b7\u03bd \u03ad\u03b3\u03ba\u03c1\u03b9\u03c3\u03b7 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd FDA \u03b5\u03bd\u03cc\u03c2 \u03c6\u03b1\u03c1\u03bc\u03ac\u03ba\u03bf\u03c5 \u03c0\u03bf\u03c5 \u03bf\u03bd\u03bf\u03bc\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 vemurafenib, \u03c4\u03bf \u03bf\u03c0\u03bf\u03af\u03bf \u03b1\u03c1\u03c7\u03b9\u03ba\u03ac \u03b5\u03af\u03c7\u03b5 \u03b1\u03bd\u03b1\u03c0\u03c4\u03c5\u03c7\u03b8\u03b5\u03af \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03ac\u03bb\u03bb\u03c9\u03bd \u03c4\u03cd\u03c0\u03c9\u03bd \u03ba\u03b1\u03c1\u03ba\u03af\u03bd\u03bf\u03c5, \u03cc\u03c0\u03c9\u03c2 \u03c4\u03bf \u03bc\u03b5\u03bb\u03ac\u03bd\u03c9\u03bc\u03b1 \u03c4\u03bf\u03c5 \u03b4\u03ad\u03c1\u03bc\u03b1\u03c4\u03bf\u03c2, \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03bc\u03b5 ECD \u03c0\u03bf\u03c5 \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc <em>BRAF<\/em>\u039c\u03b5\u03c4\u03ac\u03bb\u03bb\u03b1\u03be\u03b7 V600E.<\/p>\n<p>\u0397 \u03bd\u03cc\u03c3\u03bf\u03c2 Erdheim-Chester \u03b8\u03b5\u03c9\u03c1\u03b5\u03af\u03c4\u03b1\u03b9 \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03b1\u03c1\u03b9\u03ba\u03cc \u03bd\u03b5\u03cc\u03c0\u03bb\u03b1\u03c3\u03bc\u03b1 (\u03b5\u03af\u03b4\u03bf\u03c2 \u03ba\u03b1\u03c1\u03ba\u03af\u03bd\u03bf\u03c5 \u03c4\u03bf\u03c5 \u03b1\u03af\u03bc\u03b1\u03c4\u03bf\u03c2), \u03bc\u03b9\u03b1 \u03b5\u03be\u03b1\u03b9\u03c1\u03b5\u03c4\u03b9\u03ba\u03ac \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7 \u03c7\u03c9\u03c1\u03af\u03c2 \u03b3\u03bd\u03c9\u03c3\u03c4\u03ae \u03b1\u03b9\u03c4\u03af\u03b1, \u03b7 \u03bf\u03c0\u03bf\u03af\u03b1 \u03b8\u03b5\u03c9\u03c1\u03b5\u03af\u03c4\u03b1\u03b9 \u03cc\u03c4\u03b9 \u03b4\u03b5\u03bd \u03b4\u03b9\u03b1\u03b3\u03b9\u03b3\u03bd\u03ce\u03c3\u03ba\u03b5\u03c4\u03b1\u03b9 \u03b5\u03c0\u03b1\u03c1\u03ba\u03ce\u03c2. \u0397 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1 \u03c7\u03b1\u03c1\u03b1\u03ba\u03c4\u03b7\u03c1\u03af\u03b6\u03b5\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7 \u03c3\u03c5\u03c3\u03c3\u03ce\u03c1\u03b5\u03c5\u03c3\u03b7 \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03bd \u2014 \u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03bd \u03c0\u03bf\u03c5 \u03ba\u03b1\u03bd\u03bf\u03bd\u03b9\u03ba\u03ac \u03ba\u03b1\u03c4\u03b1\u03c0\u03bf\u03bb\u03b5\u03bc\u03bf\u03cd\u03bd \u03c4\u03b9\u03c2 \u03bb\u03bf\u03b9\u03bc\u03ce\u03be\u03b5\u03b9\u03c2 \u2014 \u03c3\u03c4\u03bf\u03c5\u03c2 \u03b9\u03c3\u03c4\u03bf\u03cd\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03cc\u03c1\u03b3\u03b1\u03bd\u03b1. \u039f\u03b9 \u03b9\u03c3\u03c4\u03bf\u03af \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03cc\u03c1\u03b3\u03b1\u03bd\u03b1 \u03b3\u03af\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c0\u03c5\u03ba\u03bd\u03bf\u03af \u03ba\u03b1\u03b9 \u03b9\u03bd\u03ce\u03b4\u03b5\u03b9\u03c2 \u03bb\u03cc\u03b3\u03c9 \u03c4\u03b7\u03c2 \u03b4\u03b9\u03ae\u03b8\u03b7\u03c3\u03b7\u03c2 \u03b1\u03c0\u03cc \u03c4\u03b1 \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03cd\u03c4\u03c4\u03b1\u03c1\u03b1 \u03ba\u03b1\u03b9 \u03b1\u03c5\u03c4\u03cc \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03bf\u03b4\u03b7\u03b3\u03ae\u03c3\u03b5\u03b9 \u03c3\u03b5 \u03b1\u03bd\u03b5\u03c0\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03bf\u03c1\u03b3\u03ac\u03bd\u03c9\u03bd, \u03b5\u03ba\u03c4\u03cc\u03c2 \u03b1\u03bd \u03b2\u03c1\u03b5\u03b8\u03b5\u03af \u03bc\u03b9\u03b1 \u03b5\u03c0\u03b9\u03c4\u03c5\u03c7\u03ae\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1.<\/p>\n<p>\u03a4\u03bf <a href=\"https:\/\/www.erdheim-chester.org\/el\/%ce%b1%cf%80%ce%bf%cf%83%cf%84%ce%bf%ce%bb%ce%ae-3\/\">ECD Global Alliance<\/a> \u03b5\u03af\u03bd\u03b1\u03b9 \u03ad\u03bd\u03b1\u03c2 \u03bc\u03b7 \u03ba\u03b5\u03c1\u03b4\u03bf\u03c3\u03ba\u03bf\u03c0\u03b9\u03ba\u03cc\u03c2 \u03bf\u03c1\u03b3\u03b1\u03bd\u03b9\u03c3\u03bc\u03cc\u03c2 \u03c4\u03cd\u03c0\u03bf\u03c5 501(c)(3) \u03c0\u03bf\u03c5 \u03b1\u03c6\u03b9\u03b5\u03c1\u03ce\u03bd\u03b5\u03c4\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7, \u03c4\u03b7\u03bd \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7, \u03c4\u03b7\u03bd \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester.<\/p>","protected":false},"excerpt":{"rendered":"<p>The Erdheim-Chester Disease Global Alliance awards Young Investigator Research Grant to Italy doctor to explore the genetic landscape of ECD. The ECD Global Alliance (ECDGA) has awarded the 2021 ECD [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":20052,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51,70],"tags":[55,101,83,59,53,58,170,56,57,122,169,82,130],"class_list":["post-20040","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-research-awareness","tag-advocacy","tag-awareness","tag-blood-cancer","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-dr-pegoraro","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-meyer-university","tag-rare-cancer","tag-research"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/20040","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=20040"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/20040\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/20052"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=20040"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=20040"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=20040"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}