{"id":19865,"date":"2021-11-01T13:41:18","date_gmt":"2021-11-01T18:41:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19865"},"modified":"2026-08-19T06:49:13","modified_gmt":"2026-08-19T11:49:13","slug":"%ce%b1%ce%bd%ce%b1%ce%ba%ce%bf%ce%af%ce%bd%cf%89%cf%83%ce%b7-%cf%84%ce%b7%cf%82-%ce%b5%cf%84%ce%ae%cf%83%ce%b9%ce%b1%cf%82-%cf%83%cf%85%ce%bd%ce%ac%ce%bd%cf%84%ce%b7%cf%83%ce%b7%cf%82-%cf%84%ce%bf-2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/announcing-the-2022-annual-ecd-meeting\/","title":{"rendered":"\u0391\u03bd\u03b1\u03ba\u03bf\u03af\u03bd\u03c9\u03c3\u03b7 \u03c4\u03b7\u03c2 \u0395\u03c4\u03ae\u03c3\u03b9\u03b1\u03c2 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7\u03c2 \u03c4\u03bf\u03c5 ECD \u03b3\u03b9\u03b1 \u03c4\u03bf 2022"},"content":{"rendered":"<h3><em>\u039c\u03b9\u03b1 \u03be\u03b5\u03c7\u03c9\u03c1\u03b9\u03c3\u03c4\u03ae \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03b8\u03b1 \u03b5\u03bd\u03c9\u03b8\u03b5\u03af \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03ae\u03c3\u03b5\u03b9 \u03c3\u03c7\u03ad\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03bc\u03ac\u03b8\u03b5\u03b9.<\/em><\/h3>\n<p>Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!\u00a0 During the challenges of the pandemic, serving our members remained the top priority.\u00a0 Through regularly scheduled chat sessions, education webinars, and a commitment to support, ECDGA has been able to keep our members connected during the test of the pandemic.<\/p>\n<p><strong>\u03a4\u03bf<\/strong> <strong>\u039f\u03b9 \u03b5\u03c4\u03ae\u03c3\u03b9\u03b5\u03c2 \u03b4\u03b9\u03b5\u03b8\u03bd\u03b5\u03af\u03c2 \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester \u03b8\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03b7\u03b8\u03bf\u03cd\u03bd \u03c3\u03c4\u03bf \u03a1\u03cc\u03c4\u03c3\u03b5\u03c3\u03c4\u03b5\u03c1 \u03c4\u03b7\u03c2 \u039c\u03b9\u03bd\u03b5\u03c3\u03cc\u03c4\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 6 \u03ad\u03c9\u03c2 \u03c4\u03b9\u03c2 8 \u0391\u03c0\u03c1\u03b9\u03bb\u03af\u03bf\u03c5 2022<\/strong>. \u039a\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03b1\u03c5\u03c4\u03bf\u03cd \u03c4\u03bf\u03c5 \u03c4\u03c1\u03b9\u03ae\u03bc\u03b5\u03c1\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03bf\u03c5, \u03b8\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03b7\u03b8\u03bf\u03cd\u03bd \u03c3\u03c5\u03bd\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b5\u03b9\u03b4\u03b9\u03ba\u03ac \u03c0\u03c1\u03bf\u03c3\u03b1\u03c1\u03bc\u03bf\u03c3\u03bc\u03ad\u03bd\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03ba\u03ac\u03b8\u03b5 \u03bc\u03ad\u03bb\u03bf\u03c2 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2.<\/p>\n<div id=\"attachment_175278\" style=\"width: 310px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-175278\" class=\"wp-image-175278 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1-18x12.png 18w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><p id=\"caption-attachment-175278\" class=\"wp-caption-text\">\u039f\u03b9 \u0394\u03c1. Go \u03ba\u03b1\u03b9 \u0394\u03c1. Goyal \u03c3\u03c4\u03bf \u03a3\u03c5\u03bc\u03c0\u03cc\u03c3\u03b9\u03bf \u03c4\u03b7\u03c2 \u039d\u03ad\u03b1\u03c2 \u03a5\u03cc\u03c1\u03ba\u03b7\u03c2 \u03c4\u03bf\u03c5 2017<\/p><\/div>\n<p>\u0397 ECDGA \u03ad\u03c7\u03b5\u03b9 \u03c4\u03b7\u03bd \u03c4\u03b9\u03bc\u03ae \u03bd\u03b1 \u03ad\u03c7\u03b5\u03b9 \u03c4\u03bf\u03c5\u03c2 \u03c6\u03b5\u03c4\u03b9\u03bd\u03bf\u03cd\u03c2 \u03c3\u03c5\u03bd\u03b4\u03b9\u03bf\u03c1\u03b3\u03b1\u03bd\u03c9\u03c4\u03ad\u03c2 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b5\u03b9\u03c3\u03c6\u03ad\u03c1\u03bf\u03c5\u03bd \u03c3\u03c4\u03bf\u03bd \u03c3\u03c7\u03b5\u03b4\u03b9\u03b1\u03c3\u03bc\u03cc \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03c5\u03bb\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2. <a href=\"https:\/\/www.mayo.edu\/research\/faculty\/go-ronald-s-m-d\/bio-20013527?eType=EmailBlastContent&amp;eId=44444444-4444-4444-4444-444444444444\" target=\"_blank\" rel=\"noopener\"><strong>\u0394\u03c1. \u03a1\u03cc\u03bd\u03b1\u03bb\u03bd\u03c4 \u0393\u03ba\u03bf<\/strong><\/a> \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03b9\u03bc\u03b1\u03c4\u03bf\u03bb\u03cc\u03b3\u03bf\u03c2-\u03bf\u03b3\u03ba\u03bf\u03bb\u03cc\u03b3\u03bf\u03c2 \u03c3\u03c4\u03b7 Mayo Clinic \u03c3\u03c4\u03bf \u03a1\u03cc\u03c4\u03c3\u03b5\u03c3\u03c4\u03b5\u03c1, \u03ba\u03bf\u03bd\u03c4\u03ac \u03c3\u03c4\u03bf\u03bd \u03c4\u03cc\u03c0\u03bf \u03b4\u03b9\u03b5\u03be\u03b1\u03b3\u03c9\u03b3\u03ae\u03c2 \u03c4\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03bf\u03c5. \u039f \u0394\u03c1. Go \u03b5\u03af\u03bd\u03b1\u03b9 \u03bf \u03b5\u03c0\u03b9\u03ba\u03b5\u03c6\u03b1\u03bb\u03ae\u03c2 \u03b9\u03b1\u03c4\u03c1\u03cc\u03c2 \u03c4\u03bf\u03c5 \u039a\u03ad\u03bd\u03c4\u03c1\u03bf\u03c5 \u03a6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1\u03c2 ECD \u03c3\u03c4\u03b7\u03bd \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ae \u03c4\u03bf\u03c5. \u0388\u03c7\u03b5\u03b9 \u03c0\u03ac\u03b8\u03bf\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03af\u03b1 \u03bc\u03b9\u03b1\u03c2 \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7\u03c2 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2. \u00a0\u039f \u0394\u03c1. Go \u03ad\u03c7\u03b5\u03b9 \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03b5\u03c0\u03b9\u03b4\u03b5\u03af\u03be\u03b5\u03b9 \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1 \u03c0\u03c1\u03bf\u03c2 \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1, \u03b5\u03bd\u03b4\u03c5\u03bd\u03b1\u03bc\u03ce\u03bd\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03bc\u03b5\u03bb\u03bb\u03bf\u03bd\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03cd\u03c2 \u03bc\u03b5 \u03b5\u03bc\u03c0\u03bd\u03b5\u03c5\u03c3\u03bc\u03ad\u03bd\u03b7 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03c3\u03bc\u03b1\u03c4\u03b9\u03ba\u03ae \u03ba\u03b1\u03b8\u03bf\u03b4\u03ae\u03b3\u03b7\u03c3\u03b7 \u03c3\u03c4\u03bf\u03bd \u03c4\u03bf\u03bc\u03ad\u03b1 \u03c4\u03b7\u03c2 \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03c3\u03b7\u03c2. \u03a3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03b5\u03b9 \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03c9\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b4\u03b5\u03c3\u03c0\u03cc\u03c4\u03b7\u03c2 <a href=\"https:\/\/providerdirectory.uabmedicine.org\/provider\/Gaurav+Goyal\/895892?unified=gaurav%20goyal&amp;sort=networks%2Crelevance%2Cavailability_density_best\" target=\"_blank\" rel=\"noopener\"><strong>\u0394\u03c1. \u0393\u03ba\u03b1\u03bf\u03c5\u03c1\u03ac\u03b2 \u0393\u03ba\u03bf\u03b3\u03b9\u03ac\u03bb<\/strong><\/a><strong>,<\/strong> \u03b5\u03c0\u03af\u03ba\u03bf\u03c5\u03c1\u03bf\u03c2 \u03ba\u03b1\u03b8\u03b7\u03b3\u03b7\u03c4\u03ae\u03c2 \u03c3\u03c4\u03bf \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03ae\u03bc\u03b9\u03bf \u03c4\u03b7\u03c2 \u0391\u03bb\u03b1\u03bc\u03c0\u03ac\u03bc\u03b1 \u03c3\u03c4\u03bf \u039c\u03c0\u03ad\u03c1\u03bc\u03b9\u03b3\u03c7\u03b1\u03bc. \u039f \u0394\u03c1. \u0393\u03ba\u03cc\u03b3\u03b9\u03b1\u03bb \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03b1\u03c6\u03bf\u03c3\u03b9\u03c9\u03bc\u03ad\u03bd\u03bf \u03bc\u03ad\u03bb\u03bf\u03c2 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03c4\u03b7\u03c2 ECD, \u03c4\u03cc\u03c3\u03bf \u03c3\u03b5 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03b9\u03ba\u03cc \u03b5\u03c0\u03af\u03c0\u03b5\u03b4\u03bf \u03cc\u03c3\u03bf \u03ba\u03b1\u03b9 \u03c9\u03c2 \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ae\u03c2 \u03c3\u03c4\u03b7\u03bd ECDGA. \u0397 \u03c3\u03c5\u03bc\u03b2\u03bf\u03bb\u03ae \u03c4\u03bf\u03c5 \u03ad\u03c7\u03b5\u03b9 \u03b5\u03c0\u03b7\u03c1\u03b5\u03ac\u03c3\u03b5\u03b9 \u03b8\u03b5\u03c4\u03b9\u03ba\u03ac \u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03c0\u03c1\u03cc\u03c4\u03c5\u03c0\u03b1 \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7\u03c2 \u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03bc\u03b5 \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03c3\u03b7, \u03b5\u03bd\u03ce \u03c0\u03b1\u03c1\u03ac\u03bb\u03bb\u03b7\u03bb\u03b1 \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03b9 \u03b5\u03be\u03b1\u03b9\u03c1\u03b5\u03c4\u03b9\u03ba\u03ae \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1 \u03c3\u03c4\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2. \u039c\u03b5\u03c4\u03ac \u03c4\u03b7 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1 \u03c4\u03bf\u03c5 \u03bc\u03b5 \u03c4\u03bf\u03bd \u0394\u03c1. Go \u03c9\u03c2 \u03bc\u03ad\u03bd\u03c4\u03bf\u03c1\u03b1, \u03bf \u0394\u03c1. Goyal \u03b4\u03b9\u03b5\u03c5\u03b8\u03cd\u03bd\u03b5\u03b9 \u03c0\u03bb\u03ad\u03bf\u03bd \u03ad\u03bd\u03b1 \u039a\u03ad\u03bd\u03c4\u03c1\u03bf \u03a6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1\u03c2 ECD \u03c3\u03c4\u03bf \u039c\u03c0\u03ad\u03c1\u03bc\u03b9\u03b3\u03c7\u03b1\u03bc. \u03a4\u03cc\u03c3\u03bf \u03bf \u0394\u03c1. Go \u03cc\u03c3\u03bf \u03ba\u03b1\u03b9 \u03bf \u0394\u03c1. Goyal \u03ad\u03c7\u03bf\u03c5\u03bd \u03b4\u03b9\u03b1\u03b4\u03c1\u03b1\u03bc\u03b1\u03c4\u03af\u03c3\u03b5\u03b9 \u03ba\u03b1\u03b8\u03bf\u03c1\u03b9\u03c3\u03c4\u03b9\u03ba\u03cc \u03c1\u03cc\u03bb\u03bf \u03c3\u03c4\u03b7\u03bd \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b5\u03c0\u03b9\u03c4\u03c5\u03c7\u03af\u03b1 \u03c4\u03b7\u03c2 ECDGA.<\/p>\n<p>\u03a4\u03bf <strong>9<sup>th<\/sup> ECD<\/strong> <strong>\u0399\u03b1\u03c4\u03c1\u03b9\u03ba\u03cc \u03a3\u03c5\u03bc\u03c0\u03cc\u03c3\u03b9\u03bf <\/strong>\u03ad\u03c7\u03b5\u03b9 \u03c0\u03c1\u03bf\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1\u03c4\u03b9\u03c3\u03c4\u03b5\u03af \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 6 \u0391\u03c0\u03c1\u03b9\u03bb\u03af\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03c0\u03c1\u03bf\u03c3\u03c6\u03ad\u03c1\u03b5\u03b9 \u03c3\u03c4\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c4\u03bf\u03c5 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03bf\u03cd \u03ba\u03bb\u03ac\u03b4\u03bf\u03c5 \u03c4\u03b7\u03bd \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03bd\u03b1 \u03b4\u03b9\u03ba\u03c4\u03c5\u03c9\u03b8\u03bf\u03cd\u03bd \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03c4\u03bf\u03cd\u03bd \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b1 \u03c0\u03b9\u03bf \u03c0\u03c1\u03cc\u03c3\u03c6\u03b1\u03c4\u03b1 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03b9\u03ba\u03ac \u03b5\u03c5\u03c1\u03ae\u03bc\u03b1\u03c4\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd ECD, \u03ba\u03b1\u03b8\u03ce\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b1\u03bd\u03c4\u03b1\u03bb\u03bb\u03ac\u03be\u03bf\u03c5\u03bd \u03c4\u03b9\u03c2 \u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03cc\u03c3\u03bf\u03bd \u03b1\u03c6\u03bf\u03c1\u03ac \u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1 \u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03bc\u03b5 ECD. \u038c\u03bb\u03bf\u03b9 \u03bf\u03b9 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c4\u03bf\u03c5 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03bf\u03cd \u03ba\u03bb\u03ac\u03b4\u03bf\u03c5 \u03c0\u03bf\u03c5 \u03b5\u03bd\u03b4\u03b9\u03b1\u03c6\u03ad\u03c1\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd ECD \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03b9\u03bf\u03ba\u03c5\u03c4\u03c4\u03ac\u03c1\u03c9\u03c3\u03b7 \u03b5\u03bd\u03b7\u03bb\u03af\u03ba\u03c9\u03bd, \u03ba\u03b1\u03b9 \u03b9\u03b4\u03af\u03c9\u03c2 \u03bf\u03b9 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03bf\u03af \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03af \u03c0\u03bf\u03c5 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bd\u03ad\u03bf\u03b9 \u03c3\u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03bc\u03b5 ECD, \u03b5\u03bd\u03b8\u03b1\u03c1\u03c1\u03cd\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b8\u03b5\u03c1\u03bc\u03ac \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd.<\/p>\n<p>\u03a4\u03bf <strong>8<sup>th<\/sup><\/strong> <strong>ECD<\/strong> <strong>\u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd<\/strong> on April 8 is an event offered to all ECD patients, caregivers, and anyone interested in learning more about care and support for ECD patients. The patient meeting sets out to unite patients and family members, as well as increase their knowledge and understanding of ECD. During the meeting, physicians knowledgeable in ECD care offer their specialized expertise and provide answers to the families\u2019 questions. Many patients have reported successful adjustments in their care following these meetings.\u00a0 All ECD patients and their loved ones, especially those with a new diagnosis or who have never attended an ECD event, are strongly encouraged to consider this opportunity.<\/p>\n<p>\u0395\u03c0\u03af\u03c3\u03b7\u03c2, \u03b8\u03b1 \u03b4\u03bf\u03b8\u03b5\u03af \u03b7 \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03c3\u03c4\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b1\u03bd\u03b1\u03c3\u03c4\u03c1\u03b1\u03c6\u03bf\u03cd\u03bd \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03bc\u03b9\u03b1\u03c2 \u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03b9\u03ba\u03ae\u03c2 \u03b4\u03b5\u03be\u03af\u03c9\u03c3\u03b7\u03c2 \u03c0\u03bf\u03c5 \u03b8\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03b7\u03b8\u03b5\u03af \u03c3\u03c4\u03b9\u03c2 7 \u0391\u03c0\u03c1\u03b9\u03bb\u03af\u03bf\u03c5. \u03a0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03ad\u03bd\u03b1 \u03c0\u03b9\u03bf \u03b1\u03bd\u03b5\u03c0\u03af\u03c3\u03b7\u03bc\u03bf \u03c0\u03bb\u03b1\u03af\u03c3\u03b9\u03bf \u03cc\u03c0\u03bf\u03c5 \u03b8\u03b1 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bd \u03bd\u03b1 \u03b3\u03bd\u03c9\u03c1\u03b9\u03c3\u03c4\u03bf\u03cd\u03bd, \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b1\u03bd\u03c4\u03ae\u03c3\u03bf\u03c5\u03bd \u03bd\u03ad\u03b1 \u03bc\u03ad\u03bb\u03b7 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b1\u03c0\u03bf\u03bb\u03b1\u03cd\u03c3\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03c0\u03b1\u03c1\u03ad\u03b1 \u03cc\u03c3\u03c9\u03bd \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03bf\u03cd\u03bd \u03c4\u03b9\u03c2 \u03b4\u03c5\u03c3\u03ba\u03bf\u03bb\u03af\u03b5\u03c2 \u03c4\u03b7\u03c2 \u03b6\u03c9\u03ae\u03c2 \u03bc\u03b5 ECD.<\/p>\n<p><strong>\u00a0<\/strong><strong>*\u0394\u03ae\u03bb\u03c9\u03c3\u03b7 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03bf\u03bd COVID:<\/strong> \u03a0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03bf\u03cd\u03bc\u03b5 \u03c4\u03b9\u03c2 \u03c5\u03b3\u03b5\u03b9\u03bf\u03bd\u03bf\u03bc\u03b9\u03ba\u03ad\u03c2 \u03b4\u03b9\u03b1\u03c4\u03ac\u03be\u03b5\u03b9\u03c2 \u03c0\u03bf\u03c5 \u03b9\u03c3\u03c7\u03cd\u03bf\u03c5\u03bd \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03c3\u03c5\u03b3\u03ba\u03b5\u03ba\u03c1\u03b9\u03bc\u03ad\u03bd\u03b7 \u03c4\u03bf\u03c0\u03bf\u03b8\u03b5\u03c3\u03af\u03b1, \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b5\u03bb\u03c0\u03af\u03b4\u03b1 \u03cc\u03c4\u03b9 \u03bf \u03b9\u03cc\u03c2 \u03b8\u03b1 \u03ad\u03c7\u03b5\u03b9 \u03be\u03b5\u03c0\u03b5\u03c1\u03b1\u03c3\u03c4\u03b5\u03af \u03b5\u03b3\u03ba\u03b1\u03af\u03c1\u03c9\u03c2 \u03ce\u03c3\u03c4\u03b5 \u03bd\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03b7\u03b8\u03b5\u03af \u03b7 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03cc\u03c0\u03c9\u03c2 \u03ad\u03c7\u03b5\u03b9 \u03c0\u03c1\u03bf\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1\u03c4\u03b9\u03c3\u03c4\u03b5\u03af. \u0398\u03b1 \u03c3\u03c5\u03bd\u03b5\u03c7\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03c0\u03b1\u03c1\u03b1\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03bf\u03cd\u03bc\u03b5 \u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03ac\u03c3\u03c4\u03b1\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b4\u03b7\u03bc\u03bf\u03c3\u03b9\u03b5\u03cd\u03bf\u03c5\u03bc\u03b5 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c3\u03b5 \u03c0\u03b5\u03c1\u03af\u03c0\u03c4\u03c9\u03c3\u03b7 \u03c0\u03bf\u03c5 \u03c5\u03c0\u03ac\u03c1\u03be\u03bf\u03c5\u03bd \u03b1\u03bb\u03bb\u03b1\u03b3\u03ad\u03c2. \u0395\u03bd \u03c4\u03c9 \u03bc\u03b5\u03c4\u03b1\u03be\u03cd, \u03b8\u03b1 \u03c3\u03c5\u03bd\u03b5\u03c7\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1\u03c4\u03af\u03b6\u03bf\u03c5\u03bc\u03b5 \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03b7\u03bc\u03b5\u03c1\u03bf\u03bc\u03b7\u03bd\u03af\u03b5\u03c2 \u03b1\u03c0\u03cc 6 \u03ad\u03c9\u03c2 8 \u0391\u03c0\u03c1\u03b9\u03bb\u03af\u03bf\u03c5 2022.<\/p>\n<p><strong>\u039c\u03ac\u03b8\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1:<\/strong><\/p>\n<ul>\n<li>\u0395\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c4\u03bf\u03c5 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03bf\u03cd \u03ba\u03bb\u03ac\u03b4\u03bf\u03c5: <a href=\"https:\/\/erdheim-chester.salsalabs.org\/scientificmeeting2022\">\u039c\u03ac\u03b8\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03ba\u03b1\u03b9 \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af\u03c4\u03b5.<\/a><\/li>\n<li>\u0391\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03c5\u03b3\u03b3\u03b5\u03bd\u03b5\u03af\u03c2: <a href=\"https:\/\/erdheim-chester.salsalabs.org\/ecdmeeting2022\">\u0394\u03b5\u03af\u03c4\u03b5 \u03b5\u03b4\u03ce \u03c4\u03b9\u03c2 \u03bb\u03b5\u03c0\u03c4\u03bf\u03bc\u03ad\u03c1\u03b5\u03b9\u03b5\u03c2 \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03ae.<\/a><\/li>\n<li><a href=\"https:\/\/www.erdheim-chester.org\/el\/%cf%83%cf%87%ce%b5%cf%84%ce%b9%ce%ba%ce%ac-%ce%bc%ce%b5-%cf%84%ce%b7%ce%bd-ecd\/\">\u03a4\u03b9 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c4\u03bf ECD;<\/a><\/li>\n<li><a title=\"\u03a3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03b5\u03bc\u03ac\u03c2\" href=\"https:\/\/www.erdheim-chester.org\/el\/about-us-2\/\">\u03a0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd ECD Global Alliance<\/a><\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>A rare community will join together to connect &amp; learn. Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!\u00a0 During the challenges of [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":19868,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,54,59,53,58,133,134,56,57,122,135,52,130],"class_list":["post-19865","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-disease-education","tag-ecd-awareness","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-medical-symposium","tag-rare-disease","tag-research"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/19865","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=19865"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/19865\/revisions"}],"predecessor-version":[{"id":175279,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/19865\/revisions\/175279"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/19868"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=19865"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=19865"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=19865"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}