{"id":19654,"date":"2021-06-10T16:11:03","date_gmt":"2021-06-10T16:11:03","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19654"},"modified":"2025-08-23T17:14:22","modified_gmt":"2025-08-23T21:14:22","slug":"%cf%84%ce%bf-%ce%b4%ce%af%ce%ba%cf%84%cf%85%ce%bf-%cf%86%cf%81%ce%bf%ce%bd%cf%84%ce%af%ce%b4%ce%b1%cf%82-ecd-%ce%b5%ce%be%cf%85%cf%80%ce%b7%cf%81%ce%b5%cf%84%ce%b5%ce%af-%cf%80%ce%bb%ce%ad%ce%bf%ce%bd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/ecd-care-network-now-serves-michigan-patients\/","title":{"rendered":"\u03a4\u03bf \u03b4\u03af\u03ba\u03c4\u03c5\u03bf ECD Care \u03b5\u03be\u03c5\u03c0\u03b7\u03c1\u03b5\u03c4\u03b5\u03af \u03c0\u03bb\u03ad\u03bf\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03c3\u03c4\u03bf \u039c\u03af\u03c3\u03b9\u03b3\u03ba\u03b1\u03bd"},"content":{"rendered":"

\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECD) \u03b5\u03af\u03bd\u03b1\u03b9 \u03c5\u03c0\u03b5\u03c1\u03ae\u03c6\u03b1\u03bd\u03b7 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03b1\u03ba\u03bf\u03b9\u03bd\u03ce\u03bd\u03b5\u03b9 \u03c4\u03b7\u03bd \u03af\u03b4\u03c1\u03c5\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c0\u03c1\u03ce\u03c4\u03bf\u03c5 \u039a\u03ad\u03bd\u03c4\u03c1\u03bf\u03c5 \u03a0\u03b1\u03c1\u03b1\u03c0\u03bf\u03bc\u03c0\u03ae\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf ECD, \u03c4\u03bf \u03bf\u03c0\u03bf\u03af\u03bf \u03b8\u03b1 \u03b5\u03b4\u03c1\u03b5\u03cd\u03b5\u03b9 \u03c3\u03c4\u03bf \u039c\u03af\u03c3\u03b9\u03b3\u03ba\u03b1\u03bd<\/strong><\/p>\n

\u0397 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA) \u03ad\u03c7\u03b5\u03b9 \u03c4\u03b7\u03bd \u03b5\u03c5\u03c7\u03b1\u03c1\u03af\u03c3\u03c4\u03b7\u03c3\u03b7 \u03bd\u03b1 \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03b9\u03ac\u03c3\u03b5\u03b9 \u03c4\u03bf \u03bd\u03b5\u03cc\u03c4\u03b5\u03c1\u03bf \u03bc\u03ad\u03bb\u03bf\u03c2 \u03c4\u03bf\u03c5 \u03b4\u03b9\u03ba\u03c4\u03cd\u03bf\u03c5 \u039a\u03ad\u03bd\u03c4\u03c1\u03c9\u03bd \u03a0\u03b1\u03c1\u03b1\u03c0\u03bf\u03bc\u03c0\u03ae\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf ECD, \u039a\u03ad\u03bd\u03c4\u03c1\u03bf \u039a\u03b1\u03c1\u03ba\u03af\u03bd\u03bf\u03c5 \u00abRogel\u00bb \u03c4\u03bf\u03c5 \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03af\u03bf\u03c5 \u03c4\u03bf\u03c5 \u039c\u03af\u03c3\u03b9\u03b3\u03ba\u03b1\u03bd, <\/strong>Ann Arbor, Michigan. The lead physician at this center is Dr. Asra Ahmed who specializes in hematology-oncology. Having an Erdheim-Chester Disease (ECD) referral center located in this region will not only be beneficial to the 12 Michigan-based patients currently registered with ECDGA but also allow access for more patients seeking a possible ECD diagnosis in the future. Forming this partnership ensures collaboration, education, improving early diagnosis, providing effective treatments, and support for the ECD patients in this part of the country.<\/p>\n

\"\"<\/p>\n

\u201c\u0397 \u03bd\u03cc\u03c3\u03bf\u03c2 Erdheim-Chester \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03be\u03b1\u03b9\u03c1\u03b5\u03c4\u03b9\u03ba\u03ac \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1, \u03c0\u03c1\u03ac\u03b3\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03c3\u03b7\u03bc\u03b1\u03af\u03bd\u03b5\u03b9 \u03cc\u03c4\u03b9 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b6\u03c9\u03c4\u03b9\u03ba\u03ae\u03c2 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03bd\u03b1 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bd \u03bd\u03b1 \u03b2\u03c1\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03ac\u03bb\u03bb\u03b7\u03bb\u03b7 \u03b5\u03be\u03b5\u03b9\u03b4\u03af\u03ba\u03b5\u03c5\u03c3\u03b7 \u03ce\u03c3\u03c4\u03b5 \u03bd\u03b1 \u03b5\u03be\u03b1\u03c3\u03c6\u03b1\u03bb\u03b9\u03c3\u03c4\u03b5\u03af \u03b7 \u03ba\u03b1\u03c4\u03ac\u03bb\u03bb\u03b7\u03bb\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1. \u0395\u03af\u03bc\u03b1\u03c3\u03c4\u03b5 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c5\u03c7\u03ac\u03c1\u03b9\u03c3\u03c4\u03b7 \u03b8\u03ad\u03c3\u03b7 \u03bd\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03bf\u03cd\u03bc\u03b5 \u03c4\u03bf \u03bc\u03bf\u03bd\u03b1\u03b4\u03b9\u03ba\u03cc \u03ba\u03ad\u03bd\u03c4\u03c1\u03bf \u03c0\u03b1\u03c1\u03b1\u03c0\u03bf\u03bc\u03c0\u03ae\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd ECD \u03c3\u03c4\u03bf \u039c\u03af\u03c3\u03b9\u03b3\u03ba\u03b1\u03bd \u03ba\u03b1\u03b9 \u03b1\u03bd\u03c5\u03c0\u03bf\u03bc\u03bf\u03bd\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03c4\u03bf\u03bd\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1 \u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03c3\u03b5 \u03bf\u03bb\u03cc\u03ba\u03bb\u03b7\u03c1\u03b7 \u03c4\u03b7\u03bd \u03c0\u03bf\u03bb\u03b9\u03c4\u03b5\u03af\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03c0\u03b5\u03c1\u03b9\u03bf\u03c7\u03ae\u201d, \u03b4\u03b7\u03bb\u03ce\u03bd\u03b5\u03b9 \u03b7 Asra Ahmed, M.D., \u03b5\u03c0\u03af\u03ba\u03bf\u03c5\u03c1\u03b7 \u03ba\u03b1\u03b8\u03b7\u03b3\u03ae\u03c4\u03c1\u03b9\u03b1 \u03b5\u03c3\u03c9\u03c4\u03b5\u03c1\u03b9\u03ba\u03ae\u03c2 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae\u03c2 \u03c3\u03c4\u03bf Michigan Medicine, \u03c4\u03bf \u03b1\u03ba\u03b1\u03b4\u03b7\u03bc\u03b1\u03ca\u03ba\u03cc \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03cc \u03ba\u03ad\u03bd\u03c4\u03c1\u03bf \u03c4\u03bf\u03c5 \u03a0\u03b1\u03bd\u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03af\u03bf\u03c5 \u03c4\u03bf\u03c5 \u039c\u03af\u03c3\u03b9\u03b3\u03ba\u03b1\u03bd.<\/p>\n

\u0397 ECDGA \u03b1\u03bd\u03b1\u03b3\u03bd\u03c9\u03c1\u03af\u03b6\u03b5\u03b9 35 \u03ba\u03ad\u03bd\u03c4\u03c1\u03b1 \u03b1\u03c1\u03b9\u03c3\u03c4\u03b5\u03af\u03b1\u03c2 \u03c3\u03b5 \u03cc\u03bb\u03bf \u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf. \u038c\u03bb\u03b1 \u03c4\u03b1 \u03b9\u03b4\u03c1\u03cd\u03bc\u03b1\u03c4\u03b1 \u03c5\u03c0\u03bf\u03c7\u03c1\u03b5\u03bf\u03cd\u03bd\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03b5\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03bf\u03cd\u03bd \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03c4\u03bf\u03c5\u03c2, \u03c0\u03c1\u03bf\u03ba\u03b5\u03b9\u03bc\u03ad\u03bd\u03bf\u03c5 \u03bd\u03b1 \u03b4\u03b9\u03b1\u03c3\u03c6\u03b1\u03bb\u03af\u03b6\u03b5\u03c4\u03b1\u03b9 \u03cc\u03c4\u03b9 \u03bf\u03b9 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03c5\u03bd \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03c3\u03cd\u03b3\u03c7\u03c1\u03bf\u03bd\u03b5\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03c5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b5\u03c0\u03b9\u03bb\u03bf\u03b3\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b7 \u03b4\u03c5\u03bd\u03b1\u03c4\u03ae \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1. \u039c\u03b9\u03b1 \u03ac\u03bb\u03bb\u03b7 \u03b6\u03c9\u03c4\u03b9\u03ba\u03ae\u03c2 \u03c3\u03b7\u03bc\u03b1\u03c3\u03af\u03b1\u03c2 \u03c0\u03c4\u03c5\u03c7\u03ae \u03c4\u03bf\u03c5 \u03b4\u03b9\u03ba\u03c4\u03cd\u03bf\u03c5 \u039a\u03ad\u03bd\u03c4\u03c1\u03c9\u03bd \u03a0\u03b1\u03c1\u03b1\u03c0\u03bf\u03bc\u03c0\u03ae\u03c2 \u03c4\u03b7\u03c2 ECD \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 \u03b4\u03b9\u03b1\u03c3\u03c6\u03ac\u03bb\u03b9\u03c3\u03b7 \u03cc\u03c4\u03b9, \u03c3\u03b5 \u03c0\u03b5\u03c1\u03af\u03c0\u03c4\u03c9\u03c3\u03b7 \u03c0\u03bf\u03c5 \u03ad\u03bd\u03b1\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ae\u03c2 \u03b4\u03b5\u03bd \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03c4\u03b1\u03be\u03b9\u03b4\u03ad\u03c8\u03b5\u03b9 \u03bb\u03cc\u03b3\u03c9 \u03c4\u03b7\u03c2 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03ac\u03c2 \u03c4\u03bf\u03c5, \u03bf\u03b9 \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03af \u03c4\u03b7\u03c2 ECD \u03c3\u03c4\u03b1 \u03ba\u03ad\u03bd\u03c4\u03c1\u03b1 \u03b1\u03c5\u03c4\u03ac \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bd \u03bd\u03b1 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03cd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c4\u03bf\u03bd \u03c4\u03bf\u03c0\u03b9\u03ba\u03cc \u03b3\u03b9\u03b1\u03c4\u03c1\u03cc \u03c4\u03bf\u03c5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03bf\u03cd\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd \u03c0\u03b5\u03c1\u03af\u03c0\u03c4\u03c9\u03c3\u03ae \u03c4\u03bf\u03c5.<\/p>\n

\u0393\u03b9\u03b1 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03bf \u03b4\u03af\u03ba\u03c4\u03c5\u03bf \u03c4\u03c9\u03bd \u039a\u03ad\u03bd\u03c4\u03c1\u03c9\u03bd \u03a0\u03b1\u03c1\u03b1\u03c0\u03bf\u03bc\u03c0\u03ae\u03c2 \u03ba\u03b1\u03b9 \u03a6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1\u03c2 ECD \u03ba\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03c0\u03ce\u03c2 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af\u03c4\u03b5 \u03bd\u03b1 \u03b5\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03ae\u03c3\u03b5\u03c4\u03b5 \u03bc\u03b1\u03b6\u03af \u03c4\u03bf\u03c5\u03c2, \u03c0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03b5\u03c0\u03b9\u03c3\u03ba\u03b5\u03c6\u03b8\u03b5\u03af\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b9\u03c3\u03c4\u03bf\u03c3\u03b5\u03bb\u03af\u03b4\u03b1 www.erdheim-chester.org\/care-centers\/<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

The Erdheim-Chester Disease Global Alliance is proud to announce the first ECD Referral Care Center to be located in Michigan Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to introduce the […]<\/p>\n","protected":false},"author":14,"featured_media":19655,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,115,101,83,54,59,53,58,56,69,57,116,82,52,114,113],"class_list":["post-19654","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-ann-arbor","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-patient-support","tag-rare-cancer","tag-rare-disease","tag-rogel-cancer-center","tag-university-of-michigan"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/19654","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=19654"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/19654\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/19655"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=19654"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=19654"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=19654"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}