{"id":176046,"date":"2026-08-29T12:55:09","date_gmt":"2026-08-29T17:55:09","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=176046"},"modified":"2026-09-22T10:22:42","modified_gmt":"2026-09-22T15:22:42","slug":"no-one-faces-ecd-alone","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/no-one-faces-ecd-alone\/","title":{"rendered":"\u039a\u03b1\u03bd\u03b5\u03af\u03c2 \u03b4\u03b5\u03bd \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03b6\u03b5\u03b9 \u03c4\u03b7\u03bd ECD \u03bc\u03cc\u03bd\u03bf\u03c2 \u03c4\u03bf\u03c5"},"content":{"rendered":"<p>\u0397 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03bc\u03b9\u03b1\u03c2 ECD \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03c6\u03b1\u03af\u03bd\u03b5\u03c4\u03b1\u03b9 \u03c3\u03c5\u03bd\u03c4\u03c1\u03b9\u03c0\u03c4\u03b9\u03ba\u03ae, \u03b5\u03b9\u03b4\u03b9\u03ba\u03ac \u03cc\u03c4\u03b1\u03bd \u03c0\u03c1\u03cc\u03ba\u03b5\u03b9\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03bc\u03b9\u03b1 \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1 \u03c0\u03bf\u03c5 \u03bf\u03b9 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03bf\u03b9 \u03ac\u03bd\u03b8\u03c1\u03c9\u03c0\u03bf\u03b9 \u03b4\u03b5\u03bd \u03ad\u03c7\u03bf\u03c5\u03bd \u03b1\u03ba\u03bf\u03cd\u03c3\u03b5\u03b9 \u03c0\u03bf\u03c4\u03ad.<\/p>\n<p>\u038c\u03bc\u03c9\u03c2, \u03ba\u03b1\u03bd\u03b5\u03af\u03c2 \u03b4\u03b5\u03bd \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03c3\u03b5\u03b9 \u03c4\u03b7\u03bd ECD \u03bc\u03cc\u03bd\u03bf\u03c2 \u03c4\u03bf\u03c5. \u03a3\u03b5 \u03cc\u03bb\u03bf \u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf, \u03bf\u03b9 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 \u03bf\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03ad\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c5\u03bd\u03b4\u03ad\u03bf\u03bd\u03c4\u03b1\u03b9 \u03bc\u03ad\u03c3\u03c9 \u03bc\u03b9\u03b1\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03c0\u03bf\u03c5 \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03b5\u03af, \u03b1\u03ba\u03bf\u03cd\u03b5\u03b9, \u03bc\u03bf\u03b9\u03c1\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03ba\u03b1\u03b9 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03b6\u03b5\u03b9 \u03bf \u03ad\u03bd\u03b1\u03c2 \u03c4\u03bf\u03bd \u03ac\u03bb\u03bb\u03bf\u03bd.<\/p>\n<p><strong>\u038c\u03c0\u03bf\u03c5 \u03ba\u03b9 \u03b1\u03bd \u03b2\u03c1\u03af\u03c3\u03ba\u03b5\u03c3\u03c4\u03b5, \u03b7 ECD Global Alliance \u03b5\u03af\u03bd\u03b1\u03b9 \u03c0\u03ac\u03bd\u03c4\u03b1 \u03b4\u03af\u03c0\u03bb\u03b1 \u03c3\u03b1\u03c2.<\/strong><\/p>\n<p><strong>\u0391\u03bd\u03b1\u03bb\u03ac\u03b2\u03b5\u03c4\u03b5 \u03b4\u03c1\u03ac\u03c3\u03b7:<\/strong> \u0395\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03ae\u03c3\u03c4\u03b5 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1 \u03bc\u03b5 \u03ba\u03ac\u03c0\u03bf\u03b9\u03bf\u03bd \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 ECD. \u0388\u03bd\u03b1 \u03b1\u03c0\u03bb\u03cc \u03bc\u03ae\u03bd\u03c5\u03bc\u03b1 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03c5\u03c0\u03b5\u03bd\u03b8\u03c5\u03bc\u03af\u03c3\u03b5\u03b9 \u03c3\u03b5 \u03ba\u03ac\u03c0\u03bf\u03b9\u03bf\u03bd \u03cc\u03c4\u03b9 \u03b4\u03b5\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03cc\u03bd\u03bf\u03c2.<\/p>","protected":false},"excerpt":{"rendered":"<p>An ECD diagnosis can feel overwhelming, especially when the disease is something most people have never heard of. But no one has to navigate ECD alone. Around the world, patients [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":176047,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[375,378,387,2252,6154,376],"class_list":["post-176046","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdawareness","tag-ecdcommunity","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/176046","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=176046"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/176046\/revisions"}],"predecessor-version":[{"id":176079,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/176046\/revisions\/176079"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/176047"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=176046"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=176046"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=176046"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}