{"id":174483,"date":"2026-09-13T08:00:21","date_gmt":"2026-09-13T13:00:21","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174483"},"modified":"2026-09-13T08:21:42","modified_gmt":"2026-09-13T13:21:42","slug":"%ce%b7-%cf%80%ce%b1%ce%b3%ce%ba%cf%8c%cf%83%ce%bc%ce%b9%ce%b1-%ce%ba%ce%bf%ce%b9%ce%bd%cf%8c%cf%84%ce%b7%cf%84%ce%b1-%cf%84%cf%89%ce%bd-ecd-%ce%bc%ce%b1%cf%82","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/our-global-ecd-community\/","title":{"rendered":"\u0397 \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 ECD \u03bc\u03b1\u03c2"},"content":{"rendered":"<p>\u0397 ECD \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1, \u03b1\u03bb\u03bb\u03ac \u03ba\u03b1\u03bd\u03b5\u03af\u03c2 \u03b4\u03b5\u03bd \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bd\u03b1 \u03c4\u03b7\u03bd \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03c3\u03b5\u03b9 \u03bc\u03cc\u03bd\u03bf\u03c2 \u03c4\u03bf\u03c5.<\/p>\n<p>\u03a3\u03b5 \u03cc\u03bb\u03bf \u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf, \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2, \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03af, \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2, \u03b5\u03b8\u03b5\u03bb\u03bf\u03bd\u03c4\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03b9\u03ba\u03c4\u03ad\u03c2 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c7\u03c4\u03af\u03c3\u03bf\u03c5\u03bd \u03ad\u03bd\u03b1 \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03bf \u03bc\u03ad\u03bb\u03bb\u03bf\u03bd \u03b3\u03b9\u03b1 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b7\u03c1\u03b5\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd ECD.<\/p>\n<p>\u039c\u03c0\u03bf\u03c1\u03b5\u03af \u03b7 \u03b1\u03c0\u03cc\u03c3\u03c4\u03b1\u03c3\u03b7 \u03bd\u03b1 \u03bc\u03b1\u03c2 \u03c7\u03c9\u03c1\u03af\u03b6\u03b5\u03b9, \u03b1\u03bb\u03bb\u03ac \u03b7 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03ac \u03bc\u03b1\u03c2 \u03bc\u03b1\u03c2 \u03b5\u03bd\u03ce\u03bd\u03b5\u03b9.<\/p>\n<p>\u0394\u03b5\u03af\u03c4\u03b5 \u03ad\u03bd\u03b1\u03bd \u03c7\u03ac\u03c1\u03c4\u03b7 \u03c4\u03b7\u03c2 <a href=\"https:\/\/www.erdheim-chester.org\/el\/%cf%84%ce%bf%cf%80%ce%bf%ce%b8%ce%b5%cf%83%ce%af%ce%b5%cf%82-%ce%bc%ce%b5%ce%bb%cf%8e%ce%bd-2\/\">\u03c4\u03bf\u03c0\u03bf\u03b8\u03b5\u03c3\u03af\u03b5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd<\/a>.<\/p>\n<p><strong>\u039c\u03b1\u03b6\u03af \u03ba\u03ac\u03bd\u03bf\u03c5\u03bc\u03b5 \u03c4\u03bf \u03c3\u03c0\u03ac\u03bd\u03b9\u03bf \u03bf\u03c1\u03b1\u03c4\u03cc.<\/strong><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>ECD may be rare, but no one has to face it alone. Across the world, patients, caregivers, physicians, researchers, volunteers, and advocates are working together to build a stronger future [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174484,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,6171,6169,6170,376,6161],"class_list":["post-174483","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-globalcommunity","tag-k","tag-nowecd","tag-raredisease","tag-togetherwemakerarevisible"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/174483","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=174483"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/174483\/revisions"}],"predecessor-version":[{"id":174498,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/174483\/revisions\/174498"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/174484"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=174483"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=174483"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=174483"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}