{"id":171555,"date":"2026-06-25T12:07:19","date_gmt":"2026-06-25T17:07:19","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=171555"},"modified":"2026-07-03T12:07:39","modified_gmt":"2026-07-03T17:07:39","slug":"%ce%b4%ce%b9%ce%b1%cf%87%ce%b5%ce%af%cf%81%ce%b9%cf%83%ce%b7-%cf%84%ce%bf%cf%85-%cf%80%cf%8c%ce%bd%ce%bf%cf%85-%ce%ba%ce%b1%ce%b9-%cf%84%ce%b7%cf%82-%ce%ba%cf%8c%cf%80%cf%89%cf%83%ce%b7%cf%82-%cf%80","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/managing-ecd-pain-fatigue\/","title":{"rendered":"\u0391\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03ce\u03c0\u03b9\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c0\u03cc\u03bd\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2 \u03c3\u03c4\u03b7\u03bd \u03c0\u03c1\u03ce\u03b9\u03bc\u03b7 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ba\u03ae \u03b7\u03bb\u03b9\u03ba\u03af\u03b1"},"content":{"rendered":"<p><iframe loading=\"lazy\" title=\"2026 - \u0394\u03b9\u03b1\u03b4\u03b9\u03ba\u03c4\u03c5\u03b1\u03ba\u03cc \u03c3\u03b5\u03bc\u03b9\u03bd\u03ac\u03c1\u03b9\u03bf - \u0394\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c0\u03cc\u03bd\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2 \u03c3\u03c4\u03b7\u03bd ECD - Kevin O\u2019Brien\" width=\"1080\" height=\"608\" src=\"https:\/\/www.youtube.com\/embed\/0Fn66coP69k?feature=oembed\"  allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>\u03a3\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03b5\u03ba\u03c0\u03b1\u03b9\u03b4\u03b5\u03c5\u03c4\u03b9\u03ba\u03cc \u03b4\u03b9\u03b1\u03b4\u03b9\u03ba\u03c4\u03c5\u03b1\u03ba\u03cc \u03c3\u03b5\u03bc\u03b9\u03bd\u03ac\u03c1\u03b9\u03bf, <strong>\u039f \u039a\u03ad\u03b2\u03b9\u03bd \u039f\u2019\u039c\u03c0\u03c1\u03ac\u03b9\u03b5\u03bd, \u03b5\u03b9\u03b4\u03b9\u03ba\u03b5\u03c5\u03bc\u03ad\u03bd\u03bf\u03c2 \u03bd\u03bf\u03c3\u03b7\u03bb\u03b5\u03c5\u03c4\u03ae\u03c2 \u03c3\u03c4\u03b1 \u0395\u03b8\u03bd\u03b9\u03ba\u03ac \u0399\u03bd\u03c3\u03c4\u03b9\u03c4\u03bf\u03cd\u03c4\u03b1 \u03a5\u03b3\u03b5\u03af\u03b1\u03c2 (NIH),<\/strong> \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03b9 \u03bc\u03b9\u03b1 \u03b1\u03bd\u03b1\u03bb\u03c5\u03c4\u03b9\u03ba\u03ae \u03b5\u03c0\u03b9\u03c3\u03ba\u03cc\u03c0\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7\u03c2 \u03c4\u03bf\u03c5 \u03c0\u03cc\u03bd\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2 \u03c3\u03b5 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03c0\u03ac\u03c3\u03c7\u03bf\u03c5\u03bd \u03b1\u03c0\u03cc \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester (ECD). \u0391\u03c5\u03c4\u03ae \u03b7 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03ae \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03b1 \u03b5\u03be\u03b5\u03c4\u03ac\u03b6\u03b5\u03b9 \u03c0\u03c1\u03b1\u03ba\u03c4\u03b9\u03ba\u03ad\u03c2 \u03bf\u03b4\u03b7\u03b3\u03af\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ad\u03c2 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03b6\u03bf\u03c5\u03bd \u03c0\u03cc\u03bd\u03bf \u03ba\u03b1\u03b9 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7 \u03c0\u03bf\u03c5 \u03c3\u03c7\u03b5\u03c4\u03af\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03bc\u03b5 \u03c4\u03b7\u03bd ECD.<\/p>\n<p><strong>\u03a3\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03b4\u03b9\u03b1\u03b4\u03b9\u03ba\u03c4\u03c5\u03b1\u03ba\u03cc \u03c3\u03b5\u03bc\u03b9\u03bd\u03ac\u03c1\u03b9\u03bf, \u03b8\u03b1 \u03bc\u03ac\u03b8\u03b5\u03c4\u03b5 \u03b3\u03b9\u03b1:<\/strong><\/p>\n<ul>\n<li>\u039a\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b1\u03b9\u03c4\u03af\u03c9\u03bd \u03c4\u03bf\u03c5 \u03c0\u03cc\u03bd\u03bf\u03c5 \u03c3\u03c4\u03b7\u03bd ECD<\/li>\n<li>\u03a3\u03c4\u03c1\u03b1\u03c4\u03b7\u03b3\u03b9\u03ba\u03ad\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c0\u03cc\u03bd\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03b2\u03b5\u03bb\u03c4\u03af\u03c9\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ac\u03bd\u03b5\u03c3\u03b7\u03c2<\/li>\n<li>\u03a0\u03cc\u03c3\u03bf \u03c3\u03c5\u03c7\u03bd\u03ae \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7 \u03c3\u03c4\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03bc\u03b5 ECD<\/li>\n<li>\u03a0\u03c1\u03b1\u03ba\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03c1\u03bf\u03c3\u03b5\u03b3\u03b3\u03af\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03ba\u03cc\u03c0\u03c9\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03b5\u03be\u03bf\u03b9\u03ba\u03bf\u03bd\u03cc\u03bc\u03b7\u03c3\u03b7 \u03b5\u03bd\u03ad\u03c1\u03b3\u03b5\u03b9\u03b1\u03c2<\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>In this educational webinar, Kevin O&#8217;Brien, Nurse Practitioner at the National Institutes of Health (NIH), provides an in-depth overview of managing pain and fatigue in people living with Erdheim-Chester Disease (ECD).<\/p>","protected":false},"author":20,"featured_media":171556,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[351],"tags":[],"class_list":["post-171555","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-webinar-recordings"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/171555","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=171555"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/171555\/revisions"}],"predecessor-version":[{"id":171557,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/171555\/revisions\/171557"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/171556"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=171555"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=171555"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=171555"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}