{"id":124208,"date":"2026-04-15T05:13:29","date_gmt":"2026-04-15T10:13:29","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=124208"},"modified":"2026-04-15T09:00:02","modified_gmt":"2026-04-15T14:00:02","slug":"%cf%84%ce%b5%ce%bb%ce%b5%cf%85%cf%84%ce%b1%ce%af%ce%b1-%ce%b5%cf%85%ce%ba%ce%b1%ce%b9%cf%81%ce%af%ce%b1-%ce%b3%ce%b9%ce%b1-%ce%b5%ce%b3%ce%b3%cf%81%ce%b1%cf%86%ce%ae-%cf%83%cf%84%ce%b7-%cf%83%cf%85","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/last-chance-to-register-2026-patient-family-gathering\/","title":{"rendered":"\u03a4\u03b5\u03bb\u03b5\u03c5\u03c4\u03b1\u03af\u03b1 \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03b3\u03b9\u03b1 \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03ae: \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd 2026"},"content":{"rendered":"<p>\u039f \u03c7\u03c1\u03cc\u03bd\u03bf\u03c2 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b5\u03be\u03b1\u03c3\u03c6\u03b1\u03bb\u03af\u03c3\u03b5\u03c4\u03b5 \u03c4\u03b7 \u03b8\u03ad\u03c3\u03b7 \u03c3\u03b1\u03c2 \u03c3\u03b5 \u03bc\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c0\u03b9\u03bf \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03c4\u03b7\u03c2 \u03bd\u03cc\u03c3\u03bf\u03c5 Erdheim-Chester (ECD) \u03c3\u03c7\u03b5\u03b4\u03cc\u03bd \u03c4\u03b5\u03bb\u03b5\u03b9\u03ce\u03bd\u03b5\u03b9. \u0397 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd 2026 \u03b8\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03b7\u03b8\u03b5\u03af \u03c3\u03c4\u03bf \u039c\u03c0\u03ad\u03c1\u03bc\u03b9\u03b3\u03c7\u03b1\u03bc \u03c4\u03b7\u03c2 \u0391\u03bb\u03b1\u03bc\u03c0\u03ac\u03bc\u03b1 \u03c3\u03c4\u03b9\u03c2 29\u201330 \u0391\u03c0\u03c1\u03b9\u03bb\u03af\u03bf\u03c5 2026 \u2014 \u03ba\u03b1\u03b9 \u03bf\u03b9 \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03ad\u03c2 \u03ba\u03bb\u03b5\u03af\u03bd\u03bf\u03c5\u03bd \u03c3\u03cd\u03bd\u03c4\u03bf\u03bc\u03b1.<\/p>\n<p>\u0391\u03c5\u03c4\u03ae \u03b7 \u03b5\u03b9\u03b4\u03b9\u03ba\u03ae \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7, \u03c0\u03bf\u03c5 \u03b4\u03b9\u03bf\u03c1\u03b3\u03b1\u03bd\u03ce\u03bd\u03b5\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA), \u03ad\u03c7\u03b5\u03b9 \u03c9\u03c2 \u03c3\u03c4\u03cc\u03c7\u03bf \u03bd\u03b1 \u03c6\u03ad\u03c1\u03b5\u03b9 \u03c3\u03b5 \u03b5\u03c0\u03b1\u03c6\u03ae \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03b1\u03c0\u03cc \u03cc\u03bb\u03bf \u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf \u03c3\u03b5 \u03ad\u03bd\u03b1 \u03c0\u03b5\u03c1\u03b9\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd \u03b1\u03bb\u03bb\u03b7\u03bb\u03bf\u03cb\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7\u03c2.<\/p>\n<h3>\u0393\u03b9\u03b1\u03c4\u03af \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5;<\/h3>\n<p>\u0397 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03bc\u03b9\u03b1 \u03bc\u03bf\u03bd\u03b1\u03b4\u03b9\u03ba\u03ae \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03b3\u03b9\u03b1:<\/p>\n<ul>\n<li>\u0395\u03bb\u03ac\u03c4\u03b5 \u03c3\u03b5 \u03b5\u03c0\u03b1\u03c6\u03ae \u03bc\u03b5 \u03ac\u03bb\u03bb\u03bf\u03c5\u03c2 \u03c0\u03bf\u03c5 \u03ba\u03b1\u03c4\u03b1\u03bd\u03bf\u03bf\u03cd\u03bd \u03c4\u03b7\u03bd \u03c0\u03bf\u03c1\u03b5\u03af\u03b1 \u03c4\u03b7\u03c2 \u03c0\u03c1\u03ce\u03b9\u03bc\u03b7\u03c2 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ba\u03ae\u03c2 \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7\u03c2 (ECD)<\/li>\n<li>\u0391\u03ba\u03bf\u03cd\u03c3\u03c4\u03b5 \u03b1\u03c0\u03b5\u03c5\u03b8\u03b5\u03af\u03b1\u03c2 \u03b1\u03c0\u03cc \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c4\u03bf\u03c5 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03bf\u03cd \u03ba\u03bb\u03ac\u03b4\u03bf\u03c5 \u03bc\u03b5 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b1 \u03c3\u03c4\u03b7 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03c3\u03c4\u03bf\u03bd \u03c4\u03bf\u03bc\u03ad\u03b1 \u03c4\u03b7\u03c2 \u03c0\u03c1\u03ce\u03b9\u03bc\u03b7\u03c2 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ba\u03ae\u03c2 \u03b1\u03bd\u03ac\u03c0\u03c4\u03c5\u03be\u03b7\u03c2<\/li>\n<li>\u0395\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03b8\u03b5\u03af\u03c4\u03b5 \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03c4\u03b5\u03bb\u03b5\u03c5\u03c4\u03b1\u03af\u03b5\u03c2 \u03b5\u03c0\u03b9\u03c3\u03c4\u03b7\u03bc\u03bf\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b5\u03be\u03b5\u03bb\u03af\u03be\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03c4\u03c1\u03ad\u03c7\u03bf\u03c5\u03c3\u03b5\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b5\u03c2<\/li>\n<li>\u039a\u03ac\u03bd\u03c4\u03b5 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03b1\u03c0\u03bf\u03ba\u03c4\u03ae\u03c3\u03c4\u03b5 \u03bd\u03ad\u03b5\u03c2 \u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03c3\u03b5 \u03ad\u03bd\u03b1 \u03b1\u03bd\u03bf\u03b9\u03c7\u03c4\u03cc \u03ba\u03b1\u03b9 \u03c6\u03b9\u03bb\u03cc\u03be\u03b5\u03bd\u03bf \u03c0\u03b5\u03c1\u03b9\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd<\/li>\n<li>\u0394\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03ae\u03c3\u03c4\u03b5 \u03bc\u03b1\u03ba\u03c1\u03bf\u03c7\u03c1\u03cc\u03bd\u03b9\u03b5\u03c2 \u03c3\u03c7\u03ad\u03c3\u03b5\u03b9\u03c2 \u03c3\u03c4\u03bf \u03c0\u03bb\u03b1\u03af\u03c3\u03b9\u03bf \u03b5\u03bd\u03cc\u03c2 \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03bf\u03c5 \u03b4\u03b9\u03ba\u03c4\u03cd\u03bf\u03c5 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7\u03c2<\/li>\n<\/ul>\n<p>\u039a\u03ac\u03b8\u03b5 \u03c7\u03c1\u03cc\u03bd\u03bf, \u03b1\u03c5\u03c4\u03ae \u03b7 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03bc\u03b9\u03b1 \u03b9\u03c3\u03c7\u03c5\u03c1\u03ae \u03c5\u03c0\u03b5\u03bd\u03b8\u03cd\u03bc\u03b9\u03c3\u03b7 \u03cc\u03c4\u03b9 \u03ba\u03b1\u03bd\u03ad\u03bd\u03b1\u03c2 \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 ECD \u03b4\u03b5\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03cc\u03bd\u03bf\u03c2. \u0391\u03c5\u03c4\u03cc \u03c0\u03bf\u03c5 \u03be\u03b5\u03ba\u03af\u03bd\u03b7\u03c3\u03b5 \u03c9\u03c2 \u03bc\u03b9\u03b1 \u03bc\u03b9\u03ba\u03c1\u03ae \u03bf\u03bc\u03ac\u03b4\u03b1 \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ce\u03bd \u03c0\u03bf\u03c5 \u03b1\u03bd\u03b1\u03b6\u03b7\u03c4\u03bf\u03cd\u03c3\u03b1\u03bd \u03b5\u03c0\u03b1\u03c6\u03ae \u03ad\u03c7\u03b5\u03b9 \u03b5\u03be\u03b5\u03bb\u03b9\u03c7\u03b8\u03b5\u03af \u03c3\u03b5 \u03ad\u03bd\u03b1 \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03bf \u03b4\u03af\u03ba\u03c4\u03c5\u03bf \u03c0\u03bf\u03c5 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03b6\u03b5\u03b9 \u03c0\u03ac\u03bd\u03c9 \u03b1\u03c0\u03cc 1.000 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03c3\u03b5 76 \u03c7\u03ce\u03c1\u03b5\u03c2.<\/p>\n<h3>\u039c\u03b7\u03bd \u03c4\u03bf \u03c7\u03ac\u03c3\u03b5\u03c4\u03b5<\/h3>\n<p>\u0395\u03af\u03c4\u03b5 \u03ad\u03c7\u03b5\u03c4\u03b5 \u03bc\u03cc\u03bb\u03b9\u03c2 \u03b4\u03b9\u03b1\u03b3\u03bd\u03c9\u03c3\u03c4\u03b5\u03af, \u03b5\u03af\u03c4\u03b5 \u03b5\u03af\u03c3\u03c4\u03b5 \u03bc\u03b1\u03ba\u03c1\u03bf\u03c7\u03c1\u03cc\u03bd\u03b9\u03bf\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ae\u03c2, \u03b5\u03af\u03c4\u03b5 \u03c3\u03c4\u03b7\u03c1\u03af\u03b6\u03b5\u03c4\u03b5 \u03ad\u03bd\u03b1 \u03b1\u03b3\u03b1\u03c0\u03b7\u03bc\u03ad\u03bd\u03bf \u03c3\u03b1\u03c2 \u03c0\u03c1\u03cc\u03c3\u03c9\u03c0\u03bf, \u03b1\u03c5\u03c4\u03ae \u03b7 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7 \u03c0\u03c1\u03bf\u03c3\u03c6\u03ad\u03c1\u03b5\u03b9 \u03c0\u03bf\u03bb\u03cd\u03c4\u03b9\u03bc\u03b5\u03c2 \u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2, \u03b5\u03bd\u03b8\u03ac\u03c1\u03c1\u03c5\u03bd\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03b7 \u03bc\u03b5 \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1.<\/p>\n<p>\u0397 \u03c0\u03c1\u03bf\u03b8\u03b5\u03c3\u03bc\u03af\u03b1 \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03ae\u03c2 \u03bb\u03ae\u03b3\u03b5\u03b9 \u03c3\u03cd\u03bd\u03c4\u03bf\u03bc\u03b1 \u2014 \u03bc\u03b7\u03bd \u03c7\u03ac\u03c3\u03b5\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03bd\u03b1 \u03bb\u03ac\u03b2\u03b5\u03c4\u03b5 \u03bc\u03ad\u03c1\u03bf\u03c2 \u03c3\u03b5 \u03b1\u03c5\u03c4\u03ae \u03c4\u03b7 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03ae \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7.<\/p>\n<p>\u0395\u03c0\u03b9\u03c3\u03ba\u03b5\u03c6\u03b8\u03b5\u03af\u03c4\u03b5 <a href=\"https:\/\/www.erdheim-chester.org\/el\/\">https:\/\/www.erdheim-chester.org\/<\/a> \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03bc\u03ac\u03b8\u03b5\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b5\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af\u03c4\u03b5 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1.<\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/2026birminghampatientfamilygathering\/event\/ecdpatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\">\u0395\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af\u03c4\u03b5 \u03b5\u03b4\u03ce<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Time is almost up to secure your spot for one of the most meaningful events in the Erdheim-Chester Disease (ECD) community. The 2026 Patient &amp; Family Gathering will take place [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":115341,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[3190,387,2252,376],"class_list":["post-124208","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecd","tag-ecdga","tag-erdheimchester","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/124208","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=124208"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/124208\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/115341"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=124208"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=124208"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=124208"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}