{"id":109872,"date":"2025-12-09T21:25:06","date_gmt":"2025-12-10T03:25:06","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=109872"},"modified":"2025-12-29T10:09:43","modified_gmt":"2025-12-29T16:09:43","slug":"%ce%b7-%ce%b7%ce%b3%ce%b5%cf%84%ce%b9%ce%ba%ce%ae-%ce%bf%ce%bc%ce%ac%ce%b4%ce%b1-%cf%84%ce%b7%cf%82-ecdga-%cf%80%cf%81%ce%bf%cf%89%ce%b8%ce%b5%ce%af-%cf%84%ce%b7%ce%bd-%ce%b5%cf%85%ce%b1%ce%b9%cf%83","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/ecdga-leadership-shares-ecd-awareness-at-ash-conference-in-orlando-fl\/","title":{"rendered":"\u0397 \u03b7\u03b3\u03b5\u03c4\u03b9\u03ba\u03ae \u03bf\u03bc\u03ac\u03b4\u03b1 \u03c4\u03b7\u03c2 ECDGA \u03c0\u03c1\u03bf\u03c9\u03b8\u03b5\u03af \u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd ECD \u03c3\u03c4\u03bf \u03c3\u03c5\u03bd\u03ad\u03b4\u03c1\u03b9\u03bf \u03c4\u03b7\u03c2 ASH \u03c3\u03c4\u03bf \u039f\u03c1\u03bb\u03ac\u03bd\u03c4\u03bf \u03c4\u03b7\u03c2 \u03a6\u03bb\u03cc\u03c1\u03b9\u03bd\u03c4\u03b1"},"content":{"rendered":"<p>\u0391\u03c5\u03c4\u03cc \u03c4\u03bf \u03a3\u03b1\u03b2\u03b2\u03b1\u03c4\u03bf\u03ba\u03cd\u03c1\u03b9\u03b1\u03ba\u03bf, \u03b5\u03ba\u03c0\u03c1\u03cc\u03c3\u03c9\u03c0\u03bf\u03b9 \u03c4\u03b7\u03c2 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1\u03c2 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u039d\u03cc\u03c3\u03bf Erdheim-Chester (ECDGA) \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03b5\u03af\u03c7\u03b1\u03bd \u03c3\u03c4\u03bf \u0395\u03c4\u03ae\u03c3\u03b9\u03bf \u03a3\u03c5\u03bd\u03ad\u03b4\u03c1\u03b9\u03bf \u03c4\u03b7\u03c2 \u0391\u03bc\u03b5\u03c1\u03b9\u03ba\u03b1\u03bd\u03b9\u03ba\u03ae\u03c2 \u0395\u03c4\u03b1\u03b9\u03c1\u03b5\u03af\u03b1\u03c2 \u0391\u03b9\u03bc\u03b1\u03c4\u03bf\u03bb\u03bf\u03b3\u03af\u03b1\u03c2 (ASH) \u03c3\u03c4\u03bf \u039f\u03c1\u03bb\u03ac\u03bd\u03c4\u03bf \u03c4\u03b7\u03c2 \u03a6\u03bb\u03cc\u03c1\u03b9\u03bd\u03c4\u03b1 \u2014 \u03bc\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03ba\u03bf\u03c1\u03c5\u03c6\u03b1\u03af\u03b5\u03c2 \u03b4\u03b9\u03b5\u03b8\u03bd\u03b5\u03af\u03c2 \u03c3\u03c5\u03bd\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03b9\u03ce\u03bd \u03c4\u03b7\u03c2 \u03b1\u03b9\u03bc\u03b1\u03c4\u03bf\u03bb\u03bf\u03b3\u03af\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ce\u03bd \u03c3\u03c4\u03bf\u03bd \u03c4\u03bf\u03bc\u03ad\u03b1 \u03c4\u03c9\u03bd \u03c3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd.<\/p>\n<p>\u0397 \u03c0\u03c1\u03cc\u03b5\u03b4\u03c1\u03bf\u03c2 \u03c4\u03bf\u03c5 \u0394\u03b9\u03bf\u03b9\u03ba\u03b7\u03c4\u03b9\u03ba\u03bf\u03cd \u03a3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03af\u03bf\u03c5 \u03c4\u03b7\u03c2 ECDGA, \u039d\u03c4\u03b1\u03ca\u03ac\u03bd \u03a3\u03c1\u03ac\u03b9\u03bd\u03b5\u03c1, \u03ba\u03b1\u03b9 \u03bf \u03c5\u03c0\u03ac\u03bb\u03bb\u03b7\u03bb\u03bf\u03c2 \u03a4\u03b6\u03ad\u03c1\u03bf\u03bc \u03a7\u03ad\u03bd\u03c3\u03bf\u03bd \u03c3\u03c5\u03bd\u03b1\u03bd\u03c4\u03ae\u03b8\u03b7\u03ba\u03b1\u03bd \u03bc\u03b5 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03bf\u03cd\u03c2 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03bf\u03b3\u03bd\u03ce\u03bc\u03bf\u03bd\u03b5\u03c2 \u03c0\u03bf\u03c5 \u03b1\u03c3\u03c7\u03bf\u03bb\u03bf\u03cd\u03bd\u03c4\u03b1\u03b9 \u03b5\u03bd\u03b5\u03c1\u03b3\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd \u03c0\u03c1\u03bf\u03ce\u03b8\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester, \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03c4\u03c9\u03bd \u03bf\u03c0\u03bf\u03af\u03c9\u03bd:<\/p>\n<ul>\n<li>\u03a1\u03cc\u03bd\u03b1\u03bb\u03bd\u03c4 \u0393\u03ba\u03bf, MD, \u03bc\u03ad\u03bb\u03bf\u03c2 \u03c4\u03bf\u03c5 \u0394\u03b9\u03bf\u03b9\u03ba\u03b7\u03c4\u03b9\u03ba\u03bf\u03cd \u03a3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03af\u03bf\u03c5 \u03c4\u03b7\u03c2 ECDGA<\/li>\n<li>Gaurav Goyal, MD, ECDGA Medical Advisory Board Member and host of the 2026 Patient &amp; Family Gathering and Medical Symposium in Birmingham, Alabama<\/li>\n<li>Oshrat Hershkovitz-Rokah, PhD, member of the ECDGA Medical Advisory Board<\/li>\n<\/ul>\n<p>Throughout the conference, the team engaged with clinicians, researchers, and industry partners to elevate awareness of ECD, discuss current challenges in diagnosis and treatment, and highlight the ongoing need for expanded research and clinical expertise.<\/p>\n<p>\u201c\u03a4\u03bf ASH \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03bc\u03b9\u03b1 \u03b1\u03bd\u03b5\u03ba\u03c4\u03af\u03bc\u03b7\u03c4\u03b7 \u03c0\u03bb\u03b1\u03c4\u03c6\u03cc\u03c1\u03bc\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03af\u03b1\u201d, \u03b4\u03ae\u03bb\u03c9\u03c3\u03b5 \u03bf Schriner. \u201c\u039a\u03ac\u03b8\u03b5 \u03b5\u03c0\u03b1\u03c6\u03ae \u03c0\u03bf\u03c5 \u03b4\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03bf\u03cd\u03bc\u03b5 \u03c3\u03c5\u03bc\u03b2\u03ac\u03bb\u03bb\u03b5\u03b9 \u03c3\u03c4\u03bf \u03bd\u03b1 \u03b1\u03bd\u03b1\u03b3\u03bd\u03c9\u03c1\u03af\u03b6\u03bf\u03c5\u03bd \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03bf\u03b9 \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03af \u03c4\u03b7\u03bd ECD \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03bb\u03b1\u03bc\u03b2\u03ac\u03bd\u03bf\u03c5\u03bd \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03bf\u03b9 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03c4\u03b7\u03bd \u03ad\u03b3\u03ba\u03b1\u03b9\u03c1\u03b7 \u03ba\u03b1\u03b9 \u03b1\u03ba\u03c1\u03b9\u03b2\u03ae \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7 \u03c0\u03bf\u03c5 \u03c4\u03bf\u03c5\u03c2 \u03b1\u03be\u03af\u03b6\u03b5\u03b9.\u201d<\/p>\n<p>\u0397 ECDGA \u03c0\u03b1\u03c1\u03b1\u03bc\u03ad\u03bd\u03b5\u03b9 \u03c0\u03c1\u03bf\u03c3\u03b7\u03bb\u03c9\u03bc\u03ad\u03bd\u03b7 \u03c3\u03c4\u03b7\u03bd \u03b5\u03bd\u03af\u03c3\u03c7\u03c5\u03c3\u03b7 \u03c4\u03c9\u03bd \u03c3\u03c5\u03bd\u03b5\u03c1\u03b3\u03b1\u03c3\u03b9\u03ce\u03bd \u03b5\u03bd\u03c4\u03cc\u03c2 \u03c4\u03b7\u03c2 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2, \u03c3\u03c4\u03b7 \u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7 \u03c4\u03b7\u03c2 \u03ba\u03b1\u03b9\u03bd\u03bf\u03c4\u03cc\u03bc\u03bf\u03c5 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03bd\u03b4\u03c5\u03bd\u03ac\u03bc\u03c9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b1\u03c4\u03cc\u03bc\u03c9\u03bd \u03ba\u03b1\u03b9 \u03c4\u03c9\u03bd \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03c0\u03bf\u03c5 \u03c0\u03bb\u03ae\u03c4\u03c4\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester.<\/p>\n<p>\u0395\u03ba\u03c6\u03c1\u03ac\u03b6\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c5\u03b3\u03bd\u03c9\u03bc\u03bf\u03c3\u03cd\u03bd\u03b7 \u03bc\u03b1\u03c2 \u03c3\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03c3\u03c5\u03bd\u03ad\u03b2\u03b1\u03bb\u03b1\u03bd \u03c3\u03c4\u03b7\u03bd \u03b1\u03bd\u03ac\u03b4\u03b5\u03b9\u03be\u03b7 \u03c4\u03bf\u03c5 \u03b8\u03ad\u03bc\u03b1\u03c4\u03bf\u03c2 \u03c4\u03b7\u03c2 ECD \u03c3\u03c4\u03bf \u03c3\u03c5\u03bd\u03ad\u03b4\u03c1\u03b9\u03bf ASH 2025.<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>This weekend, ECDGA Board President Diane Schriner and staff member Jerome Henson had the privilege of meeting with esteemed medical leaders at the American Society of Hematology (ASH) Conference in Orlando, FL.<\/p>\n<p>They connected with:<br \/>\n\u2022\tRonald Go, MD, ECDGA Board Member<\/p>\n<p>\u2022\tGaurav Goyal, MD, ECDGA Medical Advisory Board Member and host of the 2026 Patient &amp; Family Gathering and Medical Symposium in Birmingham, Alabama<\/p>\n<p>\u2022\tOshrat Hershkovitz-Rokah, PhD, member of the ECDGA Medical Advisory Board<\/p>\n<p>Together, they helped raise critical awareness of Erdheim-Chester Disease (ECD) among hematologists and medical professionals from around the world.<\/p>\n<p>Every conversation, every connection, and every shared resource brings us one step closer to improved recognition, diagnosis, and care for those living with ECD.<\/p>\n<p>Thank you to everyone helping amplify the voice of the ECD community! \ud83d\udc9b<\/p>","protected":false},"author":14,"featured_media":109873,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[5488,3190,387,2252,376],"class_list":["post-109872","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ash2025","tag-ecd","tag-ecdga","tag-erdheimchester","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/109872","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=109872"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/109872\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/109873"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=109872"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=109872"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=109872"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}