{"id":105485,"date":"2025-10-29T11:32:42","date_gmt":"2025-10-29T16:32:42","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%ce%b4%ce%b9%ce%b1%cf%87%ce%b5%ce%af%cf%81%ce%b9%cf%83%ce%b7-%cf%84%ce%bf%cf%85-%ce%ac%ce%b3%cf%87%ce%bf%cf%85%cf%82-%cf%80%ce%bf%ce%b9%ce%b5%cf%82-%ce%b5%ce%af%ce%bd%ce%b1%ce%b9-%ce%bf%ce%b9-%cf%84\/"},"modified":"2025-11-13T10:47:44","modified_gmt":"2025-11-13T16:47:44","slug":"%ce%b4%ce%b9%ce%b1%cf%87%ce%b5%ce%af%cf%81%ce%b9%cf%83%ce%b7-%cf%84%ce%bf%cf%85-%ce%ac%ce%b3%cf%87%ce%bf%cf%85%cf%82-%cf%80%ce%bf%ce%b9%ce%b5%cf%82-%ce%b5%ce%af%ce%bd%ce%b1%ce%b9-%ce%bf%ce%b9-%cf%84","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/el\/%ce%b4%ce%b9%ce%b1%cf%87%ce%b5%ce%af%cf%81%ce%b9%cf%83%ce%b7-%cf%84%ce%bf%cf%85-%ce%ac%ce%b3%cf%87%ce%bf%cf%85%cf%82-%cf%80%ce%bf%ce%b9%ce%b5%cf%82-%ce%b5%ce%af%ce%bd%ce%b1%ce%b9-%ce%bf%ce%b9-%cf%84\/","title":{"rendered":"\u0394\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03ac\u03b3\u03c7\u03bf\u03c5\u03c2: \u03a0\u03bf\u03b9\u03b5\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bf\u03b9 \u03c4\u03b5\u03c7\u03bd\u03b9\u03ba\u03ad\u03c2 \u03c3\u03b1\u03c2;"},"content":{"rendered":"<p>\u0397 \u03b6\u03c9\u03ae \u03bc\u03b5 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester -\u03b5\u03af\u03c4\u03b5 \u03c9\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ae\u03c2 \u03b5\u03af\u03c4\u03b5 \u03c9\u03c2 \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ae\u03c2- \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03c6\u03ad\u03c1\u03b5\u03b9 \u03c3\u03c5\u03b3\u03ba\u03bb\u03bf\u03bd\u03b9\u03c3\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c4\u03b9\u03b3\u03bc\u03ad\u03c2. \u0391\u03bd\u03ac\u03bc\u03b5\u03c3\u03b1 \u03c3\u03c4\u03b9\u03c2 \u03b5\u03c0\u03b9\u03c3\u03ba\u03ad\u03c8\u03b5\u03b9\u03c2 \u03c3\u03b5 \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03cd\u03c2, \u03c4\u03b7\u03bd \u03b1\u03b2\u03b5\u03b2\u03b1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03ba\u03b1\u03b8\u03b7\u03bc\u03b5\u03c1\u03b9\u03bd\u03ae \u03b6\u03c9\u03ae, \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03cd\u03ba\u03bf\u03bb\u03bf \u03bd\u03b1 \u03bd\u03b9\u03ce\u03c3\u03b5\u03c4\u03b5 \u03c4\u03bf \u03b2\u03ac\u03c1\u03bf\u03c2 \u03cc\u03bb\u03c9\u03bd \u03b1\u03c5\u03c4\u03ce\u03bd. <\/p>\n<p>\u0391\u03bb\u03bb\u03ac \u03b4\u03b5\u03bd \u03b5\u03af\u03c3\u03c4\u03b5 \u03bc\u03cc\u03bd\u03bf\u03b9.<\/p>\n<p>\u0391\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03bf\u03cd\u03bd \u03bc\u03b5\u03c1\u03b9\u03ba\u03ad\u03c2 \u03b5\u03c5\u03b3\u03b5\u03bd\u03b9\u03ba\u03ad\u03c2 \u03c5\u03c0\u03b5\u03bd\u03b8\u03c5\u03bc\u03af\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b5\u03c7\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03ce\u03c0\u03b9\u03c3\u03b7\u03c2 \u03c0\u03bf\u03c5 \u03bc\u03bf\u03b9\u03c1\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ac\u03bb\u03bb\u03bf\u03b9 \u03c3\u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 ECD:<\/p>\n<ul>\n<li>\u0392\u03b1\u03b8\u03b9\u03ac \u03b1\u03bd\u03b1\u03c0\u03bd\u03bf\u03ae \u03ae \u03ba\u03b1\u03b8\u03bf\u03b4\u03b7\u03b3\u03bf\u03cd\u03bc\u03b5\u03bd\u03bf\u03c2 \u03b4\u03b9\u03b1\u03bb\u03bf\u03b3\u03b9\u03c3\u03bc\u03cc\u03c2<\/li>\n<li>\u039a\u03b1\u03c4\u03b1\u03b3\u03c1\u03b1\u03c6\u03ae \u03c3\u03ba\u03ad\u03c8\u03b5\u03c9\u03bd \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bd\u03b1\u03b9\u03c3\u03b8\u03b7\u03bc\u03ac\u03c4\u03c9\u03bd<\/li>\n<li>\u0389\u03c0\u03b9\u03bf\u03b9 \u03c0\u03b5\u03c1\u03af\u03c0\u03b1\u03c4\u03bf\u03b9 \u03ae \u03b4\u03b9\u03b1\u03c4\u03ac\u03c3\u03b5\u03b9\u03c2<\/li>\n<li>\u039d\u03b1 \u03bc\u03b9\u03bb\u03ac\u03c4\u03b5 \u03c3\u03b5 \u03ba\u03ac\u03c0\u03bf\u03b9\u03bf\u03bd \u03c0\u03bf\u03c5 \u03ba\u03b1\u03c4\u03b1\u03bb\u03b1\u03b2\u03b1\u03af\u03bd\u03b5\u03b9<\/li>\n<li>\u0394\u03b7\u03bc\u03b9\u03bf\u03c5\u03c1\u03b3\u03b9\u03ba\u03ad\u03c2 \u03b4\u03b9\u03b5\u03be\u03cc\u03b4\u03bf\u03c5\u03c2 \u03cc\u03c0\u03c9\u03c2 \u03b7 \u03c4\u03ad\u03c7\u03bd\u03b7 \u03ae \u03b7 \u03bc\u03bf\u03c5\u03c3\u03b9\u03ba\u03ae<\/li>\n<li>\u0394\u03ce\u03c3\u03c4\u03b5 \u03c3\u03c4\u03bf\u03bd \u03b5\u03b1\u03c5\u03c4\u03cc \u03c3\u03b1\u03c2 \u03c4\u03b7\u03bd \u03ac\u03b4\u03b5\u03b9\u03b1 \u03bd\u03b1 \u03be\u03b5\u03ba\u03bf\u03c5\u03c1\u03b1\u03c3\u03c4\u03b5\u03af &#8211; \u03c7\u03c9\u03c1\u03af\u03c2 \u03b5\u03bd\u03bf\u03c7\u03ad\u03c2<\/li>\n<\/ul>\n<p>\u03a4\u03bf \u03c4\u03b1\u03be\u03af\u03b4\u03b9 \u03c4\u03bf\u03c5 \u03ba\u03b1\u03b8\u03b5\u03bd\u03cc\u03c2 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03b5\u03c4\u03b9\u03ba\u03cc. \u0391\u03c5\u03c4\u03cc \u03c0\u03bf\u03c5 \u03b2\u03bf\u03b7\u03b8\u03ac \u03ad\u03bd\u03b1 \u03ac\u03c4\u03bf\u03bc\u03bf \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03c6\u03b1\u03af\u03bd\u03b5\u03c4\u03b1\u03b9 \u03b5\u03bd\u03c4\u03b5\u03bb\u03ce\u03c2 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03b5\u03c4\u03b9\u03ba\u03cc \u03b3\u03b9\u03b1 \u03ba\u03ac\u03c0\u03bf\u03b9\u03bf\u03bd \u03ac\u03bb\u03bb\u03bf &#8211; \u03ba\u03b1\u03b9 \u03b1\u03c5\u03c4\u03cc \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03bd\u03c4\u03ac\u03be\u03b5\u03b9. <\/p>\n<p>\u0398\u03b1 \u03b8\u03ad\u03bb\u03b1\u03bc\u03b5 \u03c0\u03bf\u03bb\u03cd \u03bd\u03b1 \u03c3\u03b1\u03c2 \u03b1\u03ba\u03bf\u03cd\u03c3\u03bf\u03c5\u03bc\u03b5: \u03a0\u03ce\u03c2 \u03b4\u03b9\u03b1\u03c7\u03b5\u03b9\u03c1\u03af\u03b6\u03b5\u03c3\u03c4\u03b5 \u03c4\u03bf \u03ac\u03b3\u03c7\u03bf\u03c2; \u0391\u03c6\u03ae\u03c3\u03c4\u03b5 \u03ad\u03bd\u03b1 \u03c3\u03c7\u03cc\u03bb\u03b9\u03bf \u03ae \u03bc\u03bf\u03b9\u03c1\u03b1\u03c3\u03c4\u03b5\u03af\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b1 \u03c3\u03b1\u03c2 \u03c0\u03b1\u03c1\u03b1\u03ba\u03ac\u03c4\u03c9. \u0397 \u03b9\u03c3\u03c4\u03bf\u03c1\u03af\u03b1 \u03c3\u03b1\u03c2 \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 \u03c3\u03b1\u03bd\u03af\u03b4\u03b1 \u03c3\u03c9\u03c4\u03b7\u03c1\u03af\u03b1\u03c2 \u03c0\u03bf\u03c5 \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03b5\u03c4\u03b1\u03b9 \u03ba\u03ac\u03c0\u03bf\u03b9\u03bf\u03c2 \u03ac\u03bb\u03bb\u03bf\u03c2 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1.  <\/p>\n<p>\u0397 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 \u03a0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1\u03c2 \u03a3\u03c5\u03bc\u03bc\u03b1\u03c7\u03af\u03b1\u03c2 ECD \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03b4\u03ce \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c3\u03b1\u03c2 \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03af\u03be\u03b5\u03b9 \u03bc\u03b5 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2, \u03c3\u03cd\u03bd\u03b4\u03b5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1. \u0395\u03af\u03bc\u03b1\u03c3\u03c4\u03b5 \u03b5\u03b4\u03ce \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b2\u03b1\u03b4\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03bc\u03b1\u03b6\u03af \u03c3\u03b1\u03c2 &#8211; \u03cc\u03c0\u03bf\u03c5 \u03ba\u03b9 \u03b1\u03bd \u03b2\u03c1\u03af\u03c3\u03ba\u03b5\u03c3\u03c4\u03b5 \u03c3\u03c4\u03bf \u03c4\u03b1\u03be\u03af\u03b4\u03b9 \u03c3\u03b1\u03c2. <\/p>\n<p>\u03a4\u03bf Erdheim-Chester Disease Global Alliance (ECDGA) \u03b4\u03b5\u03bd \u03c0\u03b1\u03c1\u03ad\u03c7\u03b5\u03b9 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ad\u03c2, \u03b4\u03b9\u03b1\u03b3\u03bd\u03ce\u03c3\u03b5\u03b9\u03c2 \u03ae \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b5\u03c2. \u038c\u03bb\u03bf \u03c4\u03bf \u03c0\u03b5\u03c1\u03b9\u03b5\u03c7\u03cc\u03bc\u03b5\u03bd\u03bf \u03c0\u03c1\u03bf\u03bf\u03c1\u03af\u03b6\u03b5\u03c4\u03b1\u03b9 \u03bc\u03cc\u03bd\u03bf \u03b3\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03c9\u03c4\u03b9\u03ba\u03bf\u03cd\u03c2 \u03c3\u03ba\u03bf\u03c0\u03bf\u03cd\u03c2. \u03a0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03b5\u03c5\u03c4\u03b5\u03af\u03c4\u03b5 \u03ad\u03bd\u03b1\u03bd \u03c0\u03ac\u03c1\u03bf\u03c7\u03bf \u03c5\u03b3\u03b5\u03b9\u03bf\u03bd\u03bf\u03bc\u03b9\u03ba\u03ae\u03c2 \u03c0\u03b5\u03c1\u03af\u03b8\u03b1\u03bb\u03c8\u03b7\u03c2 \u03b3\u03b9\u03b1 \u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ad\u03c2 \u03b1\u03bd\u03b7\u03c3\u03c5\u03c7\u03af\u03b5\u03c2.  <\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u0397 \u03b6\u03c9\u03ae \u03bc\u03b5 \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf Erdheim-Chester -\u03b5\u03af\u03c4\u03b5 \u03c9\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ae\u03c2 \u03b5\u03af\u03c4\u03b5 \u03c9\u03c2 \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ae\u03c2- \u03bc\u03c0\u03bf\u03c1\u03b5\u03af \u03bd\u03b1 \u03c6\u03ad\u03c1\u03b5\u03b9 \u03c3\u03c5\u03b3\u03ba\u03bb\u03bf\u03bd\u03b9\u03c3\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c4\u03b9\u03b3\u03bc\u03ad\u03c2. \u0391\u03bd\u03ac\u03bc\u03b5\u03c3\u03b1 \u03c3\u03c4\u03b9\u03c2 \u03b5\u03c0\u03b9\u03c3\u03ba\u03ad\u03c8\u03b5\u03b9\u03c2 \u03c3\u03b5 \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03cd\u03c2, \u03c4\u03b7\u03bd \u03b1\u03b2\u03b5\u03b2\u03b1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03ba\u03b1\u03b8\u03b7\u03bc\u03b5\u03c1\u03b9\u03bd\u03ae \u03b6\u03c9\u03ae, \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03cd\u03ba\u03bf\u03bb\u03bf [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":105499,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[2287],"tags":[5246,533,545,5248,536,5250,5249,3769,5247],"class_list":["post-105485","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-2287","tag-communityimpact","tag-ecdawareness-el","tag-ecdga-el","tag-ecdstrong","tag-ecd","tag-endecd","tag-givehope","tag-rarebutpowerful-el","tag-togetherwethrive"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/105485","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=105485"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/105485\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/105499"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=105485"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=105485"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=105485"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}