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_module_preset=&#8221;default&#8221; custom_margin=&#8221;||15px||false|false&#8221; border_width_bottom=&#8221;2px&#8221; border_color_bottom=&#8221;#35A4BB&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u03a0\u03b5\u03c1\u03af\u03bb\u03b7\u03c8\u03b7 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7\u03c2 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd &#038; \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]\u0397 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd &#038; \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd (PFG) \u03c4\u03bf\u03c5 2018 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b5 75 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 \u03bc\u03ad\u03bb\u03b7 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03b1\u03c0\u03cc 4 \u03c7\u03ce\u03c1\u03b5\u03c2. \u03a3\u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd\/\u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03c0\u03c1\u03bf\u03c3\u03c4\u03ad\u03b8\u03b7\u03ba\u03b1\u03bd 44 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03bf\u03af \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03af \u03ba\u03b1\u03b9 \u03b5\u03c0\u03b9\u03c3\u03c4\u03ae\u03bc\u03bf\u03bd\u03b5\u03c2 \u03c0\u03bf\u03c5 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b1\u03c6\u03bf\u03c3\u03b9\u03c9\u03bc\u03ad\u03bd\u03bf\u03b9 \u03c3\u03c4\u03b7 \u03c6\u03c1\u03bf\u03bd\u03c4\u03af\u03b4\u03b1 \u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03ba\u03bc\u03ac\u03b8\u03b7\u03c3\u03b7 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03c9\u03bd \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd Erdheim-Chester Disease. \u0394\u03b5\u03ba\u03b1\u03c4\u03ad\u03c3\u03c3\u03b5\u03c1\u03b9\u03c2 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03bf\u03af \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03af\/\u03b5\u03c0\u03b9\u03c3\u03c4\u03ae\u03bc\u03bf\u03bd\u03b5\u03c2 \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03af\u03b1\u03c3\u03b1\u03bd \u03bf\u03bc\u03b9\u03bb\u03af\u03b5\u03c2 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b7\u03bd ECD \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03b1\u03bd\u03ac\u03b3\u03ba\u03b5\u03c2 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7\u03c2 \u03c4\u03b7\u03c2 ECD. \u0391\u03c0\u03bf\u03bb\u03b1\u03cd\u03c3\u03b1\u03bc\u03b5 \u03ad\u03bd\u03b1 \u0395\u03bf\u03c1\u03c4\u03b1\u03c3\u03c4\u03b9\u03ba\u03cc \u0394\u03b5\u03af\u03c0\u03bd\u03bf \u03bc\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03c0\u03b1\u03c1\u03b5\u03c5\u03c1\u03b9\u03c3\u03ba\u03cc\u03bc\u03b5\u03bd\u03bf\u03c5\u03c2, \u03c4\u03bf \u03bf\u03c0\u03bf\u03af\u03bf \u03b5\u03c0\u03ad\u03c4\u03c1\u03b5\u03c8\u03b5 \u03c7\u03c1\u03cc\u03bd\u03bf \u03b3\u03b9\u03b1 \u03c3\u03c5\u03bd\u03c4\u03c1\u03bf\u03c6\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1 \u03ba\u03b1\u03b9 \u03b1\u03bd\u03b1\u03b3\u03bd\u03ce\u03c1\u03b9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03b7\u03b3\u03b5\u03c4\u03ce\u03bd \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03c0\u03bf\u03c5 \u03b1\u03c6\u03b9\u03b5\u03c1\u03ce\u03bd\u03bf\u03c5\u03bd \u03c4\u03bf\u03bd \u03c7\u03c1\u03cc\u03bd\u03bf \u03ba\u03b1\u03b9 \u03c4\u03bf\u03c5\u03c2 \u03c0\u03cc\u03c1\u03bf\u03c5\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b2\u03bf\u03b7\u03b8\u03ae\u03c3\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 ECD. \u03a0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03b4\u03b5\u03af\u03c4\u03b5 \u03c4\u03b9\u03c2 \u03c0\u03b1\u03c1\u03b1\u03ba\u03ac\u03c4\u03c9 \u03c0\u03bb\u03b7\u03c1\u03bf\u03c6\u03bf\u03c1\u03af\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03b9\u03c2 \u03b4\u03c1\u03b1\u03c3\u03c4\u03b7\u03c1\u03b9\u03cc\u03c4\u03b7\u03c4\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03b9\u03ac\u03c3\u03b5\u03b9\u03c2 \u03c4\u03b7\u03c2 PFG, \u03ba\u03b1\u03b8\u03ce\u03c2 \u03ba\u03b1\u03b9 \u03c6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b5\u03c2 \u03b1\u03c0\u03cc \u03c4\u03bf \u03c3\u03c5\u03bd\u03ad\u03b4\u03c1\u03b9\u03bf.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.6&#8243; 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module_class=&#8221;single-line-buttons &#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; width_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Picture13-1.png&#8221; title_text=&#8221;\u0395\u03b9\u03ba\u03cc\u03bd\u03b11(3)&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Final-PFG-2018-booklet-V2.pdf&#8221; url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|8px|8px|8px|8px&#8221; border_width_all=&#8221;1px&#8221; border_color_all=&#8221;#b2b2b2&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||15px||false|false&#8221; border_width_bottom=&#8221;2px&#8221; border_color_bottom=&#8221;#35A4BB&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u03a0\u03b1\u03c1\u03bf\u03c5\u03c3\u03af\u03b1\u03c3\u03b7<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text module_class=&#8221;event-table&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n\n<table id=\"tablepress-59\" class=\"tablepress tablepress-id-59\">\n<thead>\n<tr class=\"row-1\">\n\t<th class=\"column-1\">Presenter<\/th><th class=\"column-2\">Presentation Slides<\/th><th class=\"column-3\">Video<\/th>\n<\/tr>\n<\/thead>\n<tbody class=\"row-striping row-hover\">\n<tr class=\"row-2\">\n\t<td class=\"column-1\">Eric Jacobsen, MD, PhD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Jacobsen_The-Drug-Development-Process.pdf\" target=\"_blank\">The Drug Trial Process<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=HJ3ahoEmGbw\" target=\"_blank\">The Drug Trial Process - Eric Jacobsen<\/a><\/td>\n<\/tr>\n<tr class=\"row-3\">\n\t<td class=\"column-1\">Ronald S. Go, MD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Go_2018-ECD-Global-Allitance-Treatment-Options.pdf\" target=\"_blank\">Treatment Options for ECD<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=_sIOwTcDv2A\" target=\"_blank\">ECD Treatment Options - Ronald Go<\/a><\/td>\n<\/tr>\n<tr class=\"row-4\">\n\t<td class=\"column-1\">Cassie Nguyen, PharmD, BCOP<\/td><td class=\"column-2\">Drug Management<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=aKtwos-aYj0\" target=\"_blank\">Drug Management for ECD Patients - Cassie Nguyen<\/a><\/td>\n<\/tr>\n<tr class=\"row-5\">\n\t<td class=\"column-1\">Eli L. Diamond, MD<\/td><td class=\"column-2\">ECD and the Brain<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=rGJSPHObwCU\" target=\"_blank\">ECD Patient Registry - Eli Diamond<\/a><\/td>\n<\/tr>\n<tr class=\"row-6\">\n\t<td class=\"column-1\">Allison Mofsky, MA, CCC-SLP<\/td><td class=\"column-2\">Speech and Swallowing<\/td><td class=\"column-3\"><\/td>\n<\/tr>\n<tr class=\"row-7\">\n\t<td class=\"column-1\">Fady Hannah-Shmouni, MD, DABIM FRCPC<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Hannah-Shmouni-_-Endocrine.pdf\" target=\"_blank\">Endocrine Dysfunction in ECD<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=2W5u9XmJqBM\" target=\"_blank\">Endocrine Dysfunction - Fady Hannah-Shmouni<\/a><\/td>\n<\/tr>\n<tr class=\"row-8\">\n\t<td class=\"column-1\">Patty Bobryk, MHS, PT, MSCS, ATP<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/BOBRYK_ECD-and-Exercise.pdf\" target=\"_blank\">ECD and Exercise<\/a><\/td><td class=\"column-3\"><\/td>\n<\/tr>\n<tr class=\"row-9\">\n\t<td class=\"column-1\">Colleen Scordato, DPT, Cert. MDT<\/td><td class=\"column-2\">Physical Therapy<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=0rhNtEm8q04\" target=\"_blank\">Physical Therapy - Colleen Scordato<\/a><\/td>\n<\/tr>\n<tr class=\"row-10\">\n\t<td class=\"column-1\">Rebecca Donnenberg<\/td><td class=\"column-2\">Nutrition for ECD Patients<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=IuTOx3Ww59Y\" target=\"_blank\">Nutrition for ECD Patients - Rebecca Donnenberg<\/a><\/td>\n<\/tr>\n<tr class=\"row-11\">\n\t<td class=\"column-1\">Eli L. Diamond, MD<\/td><td class=\"column-2\">ECD Registry Update<\/td><td class=\"column-3\"><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<!-- #tablepress-59 from cache -->\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||15px||false|false&#8221; border_width_bottom=&#8221;2px&#8221; border_color_bottom=&#8221;#35A4BB&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u03a6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b5\u03c2<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;20px||20px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>\u03a6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b5\u03c2 \u03c5\u03c0\u03bf\u03b4\u03bf\u03c7\u03ae\u03c2<\/h3>\n<p>\u039f\u03b9 \u03c0\u03b1\u03c1\u03b1\u03ba\u03ac\u03c4\u03c9 \u03c6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b5\u03c2 \u03c4\u03c1\u03b1\u03b2\u03ae\u03c7\u03c4\u03b7\u03ba\u03b1\u03bd \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03b7\u03c2 \u03b4\u03b5\u03be\u03af\u03c9\u03c3\u03b7\u03c2 ECD Patient &#038; Family Gathering Reception \u03bc\u03b5 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 ECD \u03c3\u03c4\u03b9\u03c2 15 \u039d\u03bf\u03b5\u03bc\u03b2\u03c1\u03af\u03bf\u03c5 2018 \u03c3\u03c4\u03bf Orlando Health Regional Medical Center. \u0395\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03bf\u03cd\u03bc\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ad\u03c7\u03bf\u03bd\u03c4\u03b5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03af\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c4\u03bf\u03c5\u03c2 \u03c3\u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1. \u039c\u03c0\u03bf\u03c1\u03b5\u03af\u03c4\u03b5 \u03bd\u03b1 \u03b2\u03c1\u03b5\u03af\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03c6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b5\u03c2 \u03c3\u03c4\u03bf Facebook \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c4\u03b9\u03ba\u03ad\u03c4\u03b1 \u03b1\u03bd\u03b1\u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd #ECDGA18 \u03ae \u03b1\u03c0\u03b5\u03c5\u03b8\u03b5\u03af\u03b1\u03c2 \u03c3\u03c4\u03b7 <a href=\"https:\/\/www.facebook.com\/ErdheimChesterDisease\" target=\"_blank\" rel=\"noopener\">\u03c3\u03b5\u03bb\u03af\u03b4\u03b1 \u03bc\u03b1\u03c2 ECDGA \u03c3\u03c4\u03bf Facebook<\/a>.  <\/p>\n<p>[\/et_pb_text][et_pb_gallery gallery_ids=&#8221;35541,35553,35565,35577,35589,35601,35613,35625,35637,35649,35661,35673,35685,35697,35709,35721,35733,35745,35757,35769,35781,35793,35805,35817,35829,35841,35853,35865,35877,35889,35901,35913,35925,35937,35949,35961,35973&#8243; posts_number=&#8221;100&#8243; orientation=&#8221;portrait&#8221; show_title_and_caption=&#8221;off&#8221; module_class=&#8221;event-gallery&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; db_images_per_row=&#8221;5&#8243; db_image_max_width=&#8221;95%&#8221; db_image_max_height=&#8221;88px&#8221; db_image_row_spacing=&#8221;1%&#8221; dbdb_version=&#8221;5.5&#8243; db_image_object_fit=&#8221;cover&#8221; border_radii_image=&#8221;on|8px|8px|8px|8px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_gallery][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;20px||20px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>\u03a6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b5\u03c2 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd<\/h3>\n<p>\u039f\u03b9 \u03c0\u03b1\u03c1\u03b1\u03ba\u03ac\u03c4\u03c9 \u03c6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b5\u03c2 \u03c4\u03c1\u03b1\u03b2\u03ae\u03c7\u03c4\u03b7\u03ba\u03b1\u03bd \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03b7\u03c2 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7\u03c2 ECD Patient &#038; Family Gathering \u03c3\u03c4\u03b9\u03c2 16 \u039d\u03bf\u03b5\u03bc\u03b2\u03c1\u03af\u03bf\u03c5 2018 \u03c3\u03c4\u03bf Orlando Health &#8211; Orlando Regional Medical Center. \u0395\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03bf\u03cd\u03bc\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03c0\u03b1\u03c1\u03b5\u03c5\u03c1\u03b9\u03c3\u03ba\u03cc\u03bc\u03b5\u03bd\u03bf\u03c5\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03bf\u03c7\u03ae \u03c4\u03bf\u03c5\u03c2 \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03b7\u03c2 \u03c3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03c9\u03bd \u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03b9\u03ba\u03ce\u03bd \u03c3\u03c4\u03b9\u03b3\u03bc\u03ce\u03bd, \u03b5\u03c0\u03b9\u03c4\u03c1\u03ad\u03c0\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c4\u03b7 \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7 \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7 \u03ba\u03b1\u03b9 \u03c4\u03b9\u03c2 \u03c3\u03c5\u03bd\u03b4\u03ad\u03c3\u03b5\u03b9\u03c2 \u03b5\u03bd\u03c4\u03cc\u03c2 \u03b1\u03c5\u03c4\u03ae\u03c2 \u03c4\u03b7\u03c2 \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2. \u039c\u03c0\u03bf\u03c1\u03b5\u03af\u03c4\u03b5 \u03bd\u03b1 \u03b2\u03c1\u03b5\u03af\u03c4\u03b5 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03c6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b5\u03c2 \u03c3\u03c4\u03bf Facebook \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c4\u03b9\u03ba\u03ad\u03c4\u03b1 \u03b1\u03bd\u03b1\u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03c9\u03bd #ECDGA18 \u03ae \u03b1\u03c0\u03b5\u03c5\u03b8\u03b5\u03af\u03b1\u03c2 \u03c3\u03c4\u03b7 <a href=\"https:\/\/www.facebook.com\/ErdheimChesterDisease\">\u03c3\u03b5\u03bb\u03af\u03b4\u03b1 \u03bc\u03b1\u03c2 ECDGA \u03c3\u03c4\u03bf Facebook<\/a>. \u03a3\u03b1\u03c2 \u03c0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03ad\u03c1\u03b8\u03b5\u03c4\u03b5 \u03be\u03b1\u03bd\u03ac \u03c3\u03c4\u03b9\u03c2 12 \u0399\u03bf\u03c5\u03bb\u03af\u03bf\u03c5 2019 \u03c3\u03c4\u03bf \u039c\u03b9\u03bb\u03ac\u03bd\u03bf \u03c4\u03b7\u03c2 \u0399\u03c4\u03b1\u03bb\u03af\u03b1\u03c2!   <\/p>\n<p>[\/et_pb_text][et_pb_gallery gallery_ids=&#8221;35985,35997,36009,36021,36033,36045,36057,36069,36081,36093,36105,36117,36129,36141,36153,36165,36177,36189,36201,36213,36225,36237,36249,36261,36273,36285,36297,36309,36321,36333,36345,36357,36369,36381,36393,36405,36417,36429,36441,36453,36465,36477,36489,36501,36513,36525,36537,36549,36561,36573,36585,36597,36609,36621,36633,36645,36657,36669,36681,36693,36705,36717,36729,36741,36753,36765,36777,36789,36801,36813,36825,36837,36849,36861,36873,36885,36897,36909,36921,36933,36945,36957,36969,36981,36993,37005,37017,37029,37041,37053,37065,37077,37089,37101,37113,37125,37137,37149,37161,37173,37185,37197,37209,37221,37233,37245,37257,37269,37281,37293,37305,37317,37329,37341,37353,37365,37377,37389,37401,37413,37425,37437,37449,37461,37473,37485,37497,37509,37521,37533&#8243; posts_number=&#8221;100&#8243; orientation=&#8221;portrait&#8221; show_title_and_caption=&#8221;off&#8221; module_class=&#8221;event-gallery&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; db_images_per_row=&#8221;5&#8243; db_image_max_width=&#8221;95%&#8221; db_image_max_height=&#8221;88px&#8221; db_image_row_spacing=&#8221;1%&#8221; dbdb_version=&#8221;5.5&#8243; db_image_object_fit=&#8221;cover&#8221; border_radii_image=&#8221;on|8px|8px|8px|8px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_gallery][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u039f\u03bc\u03b1\u03b4\u03b9\u03ba\u03ae \u03a6\u03c9\u03c4\u03bf\u03b3\u03c1\u03b1\u03c6\u03af\u03b1 \u03b1\u03c0\u03cc \u03c4\u03b7 \u0394\u03b9\u03b5\u03b8\u03bd\u03ae \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd &#038; \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd \u03bc\u03b5 ECD \u03c3\u03c4\u03bf \u039f\u03c1\u03bb\u03ac\u03bd\u03c4\u03bf 2018 \u03a0\u03b5\u03c1\u03af\u03bb\u03b7\u03c8\u03b7 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7\u03c2 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd &#038; \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd\u0397 \u03a3\u03c5\u03bd\u03ac\u03bd\u03c4\u03b7\u03c3\u03b7 \u0391\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd &#038; \u039f\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03ce\u03bd (PFG) \u03c4\u03bf\u03c5 2018 \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b5 75 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03ba\u03b1\u03b9 [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":173032,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<strong><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/12\/All-Attendee-Group-Photo-2.jpg\"><img class=\"alignleft wp-image-3870 \" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/12\/All-Attendee-Group-Photo-2.jpg\" alt=\"\" width=\"449\" height=\"174\" \/><\/a>Location:<\/strong> Orlando, FL\r\n\r\nA total of 109 patients, family members, and physicians, from eight countries attended the 2018 Patient & Family Gathering.\r\n\r\nAttendees learned about the drug trial process, how to manage multiple medications, how to care for yourself with nutrition and exercise, and more about care management. Please see the event materials below for more on this successful event. Thank you to all participants!\r\n\r\n<strong>Presentation Slides<\/strong>\r\nComing soon!\r\n\r\n<strong>Reception Photos<\/strong>\r\n\r\nThe following photos were taken during the ECD Patient & Family Gathering Reception with medical professionals and ECD families on November 15, 2018 at the Orlando Health Regional Medical Center. Thank you to all participants for attending and engaging with the community. You can find more photos on Facebook under the tag searches #ECDGA18 or directly in our <a href=\"https:\/\/www.facebook.com\/ErdheimChesterDisease\" target=\"_blank\" rel=\"noopener\">ECDGA Facebook page<\/a>.\r\n\r\n[gallery columns=\"4\" size=\"full\" ids=\"35536,35548,35560,35572,35584,35596,35608,35620,35632,35644,35656,35668,35680,35692,35704,35716,35728,35740,35752,35764,35776,35788,35800,35812,35824,35836,35848,35860,35872,35884,35896,35908,35920,35932,35944,35956,35968\"]\r\n\r\n<strong>Patient Meeting Photos<\/strong>\r\n\r\nThe following photos were taken during the ECD Patient & Family Gathering meeting on November 16, 2018 the Orlando Health \u2013 Orlando Regional Medical Center. Thank you to all attendees for participating during the meeting and social times, allowing great support and connections within this community. You can find more photos on Facebook under the tag searches #ECDGA18 or directly in our <a href=\"https:\/\/www.facebook.com\/ErdheimChesterDisease\" target=\"_blank\" rel=\"noopener\">ECDGA Facebook page<\/a>. Please join us again on July 12, 2019 in Milan, Italy!\r\n\r\n[gallery columns=\"4\" size=\"full\" ids=\"35980,35992,36004,36016,36028,36040,36064,36052,37516,37504,37492,37480,37468,37456,37444,37432,37408,37396,37384,37372,37360,37348,37336,37324,37312,37300,37288,37276,37264,37252,37240,37228,37216,37204,37192,37180,37168,37156,37144,37132,37120,37108,37096,37084,37072,37060,37048,37036,37024,37012,37000,36988,36976,36964,36952,36940,36928,36916,36904,36892,36880,36868,36856,36844,36832,36820,36808,36796,36784,36772,36760,36748,36736,36724,36712,36700,36688,36676,36664,36652,36640,36628,36616,36604,36592,36580,36568,36556,36544,36532,36520,36508,36496,36484,36472,36460,36448,36436,36424,36412,36400,36388,36376,36364,36352,36340,36328,36316,36304,36292,36280,36268,36256,36244,36232,36220,36208,36196,36184,36172,36160,36148,36136,36124,36112,36100,36088,36076,37528\"]","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4858],"tags":[],"class_list":["post-102343","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-4858"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/102343","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/comments?post=102343"}],"version-history":[{"count":41,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/102343\/revisions"}],"predecessor-version":[{"id":173601,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/posts\/102343\/revisions\/173601"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media\/173032"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/media?parent=102343"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/categories?post=102343"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/el\/wp-json\/wp\/v2\/tags?post=102343"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}