{"id":24030,"date":"2014-11-19T08:51:39","date_gmt":"2014-11-19T14:51:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/accueil\/"},"modified":"2026-06-15T16:14:02","modified_gmt":"2026-06-15T21:14:02","slug":"accueil","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/el\/accueil\/","title":{"rendered":"Accueil"},"content":{"rendered":"

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Du 1er juin au 30 juin 2026<\/strong><\/p>\n

[\/et_pb_slide][et_pb_slide heading=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9tZXRhX2tleSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IlZvdHJlIHNvdXRpZW4gZXN0IHBvcnRldXIgZCdlc3BvaXIgISIsImFmdGVyIjoiIiwibWV0YV9rZXkiOiIiLCJlbmFibGVfaHRtbCI6Im9mZiJ9fQ==@” button_text=”Faire un don” button_link=”https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance” url_new_window=”on” alignment=”bottom” _builder_version=”4.27.6″ _dynamic_attributes=”heading” _module_preset=”default” background_enable_color=”off” use_background_color_gradient=”on” background_color_gradient_stops=”rgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%” background_color_gradient_overlays_image=”on” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/shutterstock_2558547307-scaled.jpg” background_enable_image=”on” link_option_url=”https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance” link_option_url_new_window=”on” custom_css_slide_image=”max-width: 250px;||” border_radii_image=”on|10px|10px|10px|10px” box_shadow_style_image=”preset1″ global_colors_info=”{}” sticky_transition=”on”]<\/p>\n

Faites la diff\u00e9rence !<\/p>\n

[\/et_pb_slide][et_pb_slide heading=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9tZXRhX2tleSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IlJlam9pZ25lei1ub3VzIHBvdXIgdW5lIGRpc2N1c3Npb24gISIsImFmdGVyIjoiIiwibWV0YV9rZXkiOiIiLCJlbmFibGVfaHRtbCI6Im9mZiJ9fQ==@” button_text=”Rejoignez-nous aujourd'hui” button_link=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjgzIn19@” alignment=”bottom” _builder_version=”4.27.5″ _dynamic_attributes=”heading,button_link,link_option_url” _module_preset=”default” background_enable_color=”off” use_background_color_gradient=”on” background_color_gradient_stops=”rgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%” background_color_gradient_overlays_image=”on” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/shutterstock_2510723165.jpg” background_enable_image=”on” background_position=”bottom_center” background_vertical_offset=”12%” link_option_url=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjgzIn19@” global_colors_info=”{}” sticky_transition=”on”]<\/p>\n

Se rassembler en tant que communaut\u00e9.<\/p>\n

[\/et_pb_slide][et_pb_slide heading=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9tZXRhX2tleSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IkVuc2VtYmxlLCBub3VzIHNvbW1lcyBmb3J0cyAhIiwiYWZ0ZXIiOiIiLCJtZXRhX2tleSI6IiIsImVuYWJsZV9odG1sIjoib24ifX0=@” button_text=”Rejoignez-nous aujourd'hui” button_link=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjE5MjcyIn19@” alignment=”bottom” _builder_version=”4.27.4″ _dynamic_attributes=”heading,button_link,link_option_url” _module_preset=”default” background_enable_color=”off” use_background_color_gradient=”on” background_color_gradient_stops=”rgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%” background_color_gradient_overlays_image=”on” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/shutterstock_2411548497.jpg” background_enable_image=”on” link_option_url=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjE5MjcyIn19@” global_colors_info=”{}” sticky_transition=”on”]<\/p>\n

ECD Alliance mondiale – Apportez votre soutien !<\/p>\n

[\/et_pb_slide][et_pb_slide heading=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9tZXRhX2tleSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IlJlY2hlcmNoZSBldCBjb2xsYWJvcmF0aW9uIiwiYWZ0ZXIiOiIiLCJtZXRhX2tleSI6IiIsImVuYWJsZV9odG1sIjoib2ZmIn19@” button_text=”En savoir plus” button_link=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ4In19@” alignment=”bottom” _builder_version=”4.27.4″ _dynamic_attributes=”heading,button_link,link_option_url” _module_preset=”default” background_enable_color=”off” use_background_color_gradient=”on” background_color_gradient_stops=”rgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%” background_color_gradient_overlays_image=”on” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/shutterstock_691541095-scaled.jpg” background_enable_image=”on” link_option_url=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ4In19@” global_colors_info=”{}” sticky_transition=”on”]<\/p>\n

Rejoignez le mouvement et faites avancer les choses.<\/p>\n

[\/et_pb_slide][et_pb_slide heading=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9tZXRhX2tleSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IkxlcyBzb2lucyBzb250IGRpc3BvbmlibGVzIiwiYWZ0ZXIiOiIiLCJtZXRhX2tleSI6IiIsImVuYWJsZV9odG1sIjoib2ZmIn19@” button_text=”Trouver un centre de soins” button_link=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjExMjgifX0=@” alignment=”bottom” _builder_version=”4.27.4″ _dynamic_attributes=”heading,button_link,link_option_url” _module_preset=”default” background_enable_color=”off” use_background_color_gradient=”on” background_color_gradient_stops=”rgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%” background_color_gradient_overlays_image=”on” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/shutterstock_2415509297-scaled.jpg” background_enable_image=”on” link_option_url=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjExMjgifX0=@” global_colors_info=”{}” sticky_transition=”on”]<\/p>\n

En savoir plus sur les centres de soins<\/p>\n

[\/et_pb_slide][\/et_pb_fullwidth_slider][\/et_pb_section][et_pb_section fb_built=”1″ disabled_on=”off|on|on” _builder_version=”4.27.4″ _module_preset=”default” background_color=”#0a1640″ custom_padding=”||0px||false|false” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”0px||0px||true|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_button button_url=”https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance” url_new_window=”on” button_text=”Faire un don” disabled_on=”off|on|on” module_class=”full-button” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_border_radius=”3px” button_font=”|||on|||||” button_use_icon=”off” custom_padding=”12px||12px||true|false” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”home-events” _builder_version=”4.27.4″ _module_preset=”default” background_color=”#0a1640″ custom_padding=”0px||0px||true|false” locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”2″ make_equal=”on” custom_padding_last_edited=”on|phone” _builder_version=”4.27.5″ _module_preset=”default” width=”88%” width_tablet=”100%” width_phone=”100%” width_last_edited=”off|desktop” module_alignment=”center” custom_padding=”0px||160px||false|false” custom_padding_tablet=”0px||0px||true|false” custom_padding_phone=”0px||0px||true|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”50px||120px||false|false” custom_padding_tablet=”||0px||false|false” custom_padding_phone=”50px||0px||false|false” custom_padding_last_edited=”on|tablet” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”default” header_2_font=”|600|||||||” header_2_font_size=”50px” background_layout=”dark” custom_margin=”||10px||false|false” header_2_font_size_tablet=”50px” header_2_font_size_phone=”36px” header_2_font_size_last_edited=”on|phone” locked=”off” global_colors_info=”{}”]<\/p>\n

Ev\u00e9nements<\/span><\/h2>\n

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Actualit\u00e9s<\/span><\/h2>\n

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body_text_color=”#FFFFFF” background_color=”#35A4BB” background_enable_color=”on” border_radii=”on|2px|2px|2px|2px” global_colors_info=”{}”][\/dgcm_cptitem][\/dgcm_cptgrid][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”RGBA(255,255,255,0)” custom_margin=”||||false|false” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_row column_structure=”1_3,1_3,1_3″ use_custom_gutter=”on” gutter_width=”2″ make_equal=”on” _builder_version=”4.27.4″ _module_preset=”default” width=”88%” custom_margin=”-180px||||false|false” custom_margin_tablet=”-120px||||false|false” custom_margin_phone=”-120px||||false|false” custom_margin_last_edited=”on|phone” global_colors_info=”{}”][et_pb_column type=”1_3″ module_class=”blurb-grids” _builder_version=”4.27.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”||20px||false|false” border_radii=”on|6px|6px|6px|6px” border_width_all=”6px” border_color_all=”#FFFFFF” box_shadow_style=”preset3″ global_colors_info=”{}”][et_pb_blurb title=”Informations pour les patients” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Patient-Information-Erdheim-Chester-Global-Alliance.jpg” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” header_level=”h3″ header_line_height=”2em” background_color=”#35A4BB” background_enable_image=”off” text_orientation=”center” background_layout=”dark” custom_margin=”||0px||false|false” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”ECD Vue d'ensemble” url=”https:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.6″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ 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header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/demandez-une-brochure\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb _builder_version=”4.27.4″ _module_preset=”default” background_color=”#FFFFFF” min_height=”245px” custom_padding=”20px|10px||10px|false|true” global_colors_info=”{}”]<\/p>\n

Notre objectif est de donner aux personnes touch\u00e9es par la maladie les moyens d’agir en leur apportant des connaissances et un soutien. Erdheim-Chester maladie en leur apportant des connaissances et un soutien. Vous trouverez ici des informations fiables sur ECD, les options de traitement, la gestion des sympt\u00f4mes et la mise en relation avec des sp\u00e9cialistes. Explorez les ressources con\u00e7ues pour aider les patients et les familles \u00e0 cheminer avec confiance et espoir. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=”1_3″ module_class=”blurb-grids” _builder_version=”4.27.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”||20px||false|false” border_radii=”on|6px|6px|6px|6px” border_width_all=”6px” border_color_all=”#FFFFFF” box_shadow_style=”preset3″ global_colors_info=”{}”][et_pb_blurb title=”Informations sur la famille\/les soignants” url=”https:\/\/www.erdheim-chester.org\/fr\/soutien-aux-aidants\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_pexels-kampus-7551607-1.jpg” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” header_level=”h3″ header_line_height=”2em” background_color=”#35A4BB” background_enable_image=”off” text_orientation=”center” background_layout=”dark” custom_margin=”||0px||false|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/soutien-aux-aidants\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”ECD Vue d'ensemble” url=”https:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Ressources pour les familles et les aidants” url=”https:\/\/www.erdheim-chester.org\/fr\/ressources-pour-les-soignants\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-25-1.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/ressources-pour-les-soignants\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Connexion des aidants” url=”https:\/\/www.erdheim-chester.org\/fr\/contact-soignant\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-6.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/contact-soignant\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Demander une brochure” url=”https:\/\/www.erdheim-chester.org\/fr\/demandez-une-brochure\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-32.png” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/demandez-une-brochure\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb _builder_version=”4.27.4″ _module_preset=”default” background_color=”#FFFFFF” min_height=”245px” custom_padding=”20px|10px||10px|false|true” global_colors_info=”{}”]<\/p>\n

Prendre soin d’une personne atteinte de Erdheim-Chester peut \u00eatre difficile, mais vous n’\u00eates pas seul. Nos ressources sont con\u00e7ues pour fournir des conseils, un soutien \u00e9motionnel et des outils pratiques afin d’aider les aidants \u00e0 traverser cette \u00e9preuve. Renseignez-vous sur le site ECD, entrez en contact avec des r\u00e9seaux de soutien et d\u00e9couvrez des strat\u00e9gies pour prendre soin de votre proche tout en prenant soin de vous. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=”1_3″ module_class=”blurb-grids” _builder_version=”4.27.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”||20px||false|false” border_radii=”on|6px|6px|6px|6px” border_width_all=”6px” border_color_all=”#FFFFFF” box_shadow_style=”preset3″ global_colors_info=”{}”][et_pb_blurb title=”Professionnels de la sant\u00e9” url=”https:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Medical-Professionals-Erdheim-Chester-Disease-Global-Alliance.jpg” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” header_level=”h3″ header_line_height=”2em” background_color=”#35A4BB” background_enable_image=”off” text_orientation=”center” background_layout=”dark” custom_margin=”||0px||false|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”ECD Vue d'ensemble” url=”https:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Centres de soins” url=”https:\/\/www.erdheim-chester.org\/fr\/centres-de-soins\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-30.png” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/centres-de-soins\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Ressources m\u00e9dicales” url=”https:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-2.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”\u00c9tudes et essais” url=”https:\/\/www.erdheim-chester.org\/fr\/etudes-et-essais\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/etudes-et-essais\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb _builder_version=”4.27.4″ _module_preset=”default” background_color=”#FFFFFF” min_height=”245px” custom_padding=”20px|10px||10px|false|true” global_colors_info=”{}”]<\/p>\n

Trouvez des outils et des informations pour soutenir votre travail avec les patients du site ECD. Acc\u00e9dez \u00e0 des lignes directrices cliniques actualis\u00e9es, \u00e0 des informations sur les sp\u00e9cialit\u00e9s m\u00e9dicales et \u00e0 des possibilit\u00e9s de financement de la recherche. Nos ressources sont con\u00e7ues pour permettre aux prestataires de soins de sant\u00e9 de fournir les meilleurs soins possibles et d’am\u00e9liorer les r\u00e9sultats pour les personnes vivant avec la maladie. Erdheim-Chester maladie. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ use_custom_gutter=”on” gutter_width=”2″ make_equal=”on” _builder_version=”4.27.4″ _module_preset=”default” width=”88%” global_colors_info=”{}”][et_pb_column type=”1_3″ module_class=”blurb-grids” _builder_version=”4.27.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”||20px||false|false” border_radii=”on|6px|6px|6px|6px” border_width_all=”6px” border_color_all=”#FFFFFF” box_shadow_style=”preset3″ global_colors_info=”{}”][et_pb_blurb title=”Financement et recherche” url=”https:\/\/www.erdheim-chester.org\/fr\/soutien-aux-aidants\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Grant-Research-Erdheim-Chester-Disease-Global-Alliance.jpg” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” header_level=”h3″ header_line_height=”2em” background_color=”#35A4BB” background_enable_image=”off” text_orientation=”center” background_layout=”dark” custom_margin=”||0px||false|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/soutien-aux-aidants\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Financement de la recherche” url=”https:\/\/www.erdheim-chester.org\/fr\/financement-et-recherche\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/How-to-Fundraise-1.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/financement-et-recherche\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Pr\u00e9c\u00e9dentes subventions accord\u00e9es” url=”https:\/\/www.erdheim-chester.org\/fr\/financement-et-recherche\/#past-awards” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/financement-et-recherche\/#past-awards” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”\u00c9tudes et essais” url=”https:\/\/www.erdheim-chester.org\/fr\/etudes-et-essais\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/etudes-et-essais\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Registres et enqu\u00eates” url=”https:\/\/www.erdheim-chester.org\/fr\/registres-et-enquetes\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-22-1.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/registres-et-enquetes\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb _builder_version=”4.27.4″ _module_preset=”default” background_color=”#FFFFFF” min_height=”346px” custom_padding=”20px|10px||10px|false|true” global_colors_info=”{}”]<\/p>\n

D\u00e9couvrez les possibilit\u00e9s de financement pour soutenir la recherche et les initiatives visant \u00e0 en savoir plus sur les maladies infectieuses et \u00e0 am\u00e9liorer les r\u00e9sultats pour les patients et les soignants. Erdheim-Chester la maladie afin d’am\u00e9liorer les r\u00e9sultats pour les patients et les soignants. Explorez les \u00e9tudes cliniques en cours pour les patients du site ECD. <\/p>\n

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Ensemble, nous avons un impact r\u00e9el dans la lutte contre la maladie. Erdheim-Chester la maladie. D\u00e9couvrez les r\u00e9alisations rendues possibles gr\u00e2ce au d\u00e9vouement et \u00e0 la g\u00e9n\u00e9rosit\u00e9 de notre communaut\u00e9, qu’il s’agisse de faire avancer la recherche, d’am\u00e9liorer les soins aux patients ou de favoriser les relations et le soutien \u00e0 l’\u00e9chelle mondiale. Voyez comment votre engagement entra\u00eene des changements significatifs et inspire de l’espoir aux personnes touch\u00e9es par ECD. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=”1_3″ module_class=”blurb-grids” _builder_version=”4.27.4″ _module_preset=”default” background_enable_color=”off” custom_padding=”||20px||false|false” border_radii=”on|6px|6px|6px|6px” border_width_all=”6px” border_color_all=”#FFFFFF” box_shadow_style=”preset3″ global_colors_info=”{}”][et_pb_blurb title=”Prix” url=”https:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_AdobeStock_253395317.jpeg” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” header_level=”h3″ header_line_height=”2em” background_color=”#35A4BB” background_enable_image=”off” text_orientation=”center” background_layout=”dark” custom_margin=”||0px||false|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Possibilit\u00e9s de subventions” url=”https:\/\/www.erdheim-chester.org\/fr\/financement-et-recherche\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-12.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/financement-et-recherche\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Subventions accord\u00e9es par le pass\u00e9” url=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ2MjQwIn19@” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-13.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _dynamic_attributes=”url,link_option_url” _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ2MjQwIn19@” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”Nominez pour un prix” url=”https:\/\/www.erdheim-chester.org\/fr\/prix-communautaires\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-14.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”https:\/\/www.erdheim-chester.org\/fr\/prix-communautaires\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb title=”R\u00e9compenses pass\u00e9es” url=”\/past-awards\/” image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-15.svg” image_icon_width=”50px” content_max_width=”100%” module_class=”small-blurb” _builder_version=”4.27.4″ _module_preset=”default” header_font=”|300|||||||” header_font_size=”14px” background_color=”#F2F2F2″ image_icon_custom_margin=”||0px||false|false” image_icon_custom_padding=”||0px||false|false” text_orientation=”center” custom_padding=”20px||20px||true|false” link_option_url=”\/past-awards\/” global_colors_info=”{}”][\/et_pb_blurb][et_pb_blurb _builder_version=”4.27.4″ _module_preset=”default” background_color=”#FFFFFF” min_height=”346px” height=”346px” custom_padding=”20px|10px||10px|false|true” global_colors_info=”{}”]<\/p>\n

L’Alliance mondiale ECD finance la recherche sur la maladie Erdheim-Chester recherche sur les maladies depuis qu’elle a obtenu le statut 501(c)3 en 2010 (avec effet r\u00e9troactif \u00e0 2009). L’organisation attribue g\u00e9n\u00e9ralement chaque ann\u00e9e une bourse de jeune chercheur d’un montant de 50 000 \u00e0 60 000 dollars. Dans la mesure du possible, l’organisation finance \u00e9galement des projets de plus grande envergure tels que la cr\u00e9ation du registre des patients ECD, des \u00e9tudes sur la survie et une enqu\u00eate sur l’origine de ECD. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”rgba(10,22,64,0.9)” background_enable_image=”off” background_blend=”multiply” custom_padding=”10px||10px||true|false” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.0″ _module_preset=”default” width=”88%” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”default” header_2_font=”|600|||||||” header_2_font_size=”50px” background_layout=”dark” custom_margin=”||10px||false|false” header_2_font_size_tablet=”50px” header_2_font_size_phone=”36px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}”]<\/p>\n

Annonces<\/span><\/h2>\n

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Un r\u00e9seau de centres de soins ECD est disponible pour aider les patients \u00e0 trouver des m\u00e9decins comp\u00e9tents afin de confirmer un diagnostic et de fournir des traitements ainsi que des soins continus. Ces institutions s\u2019engagent \u00e0 mettre \u00e0 disposition une \u00e9quipe de sp\u00e9cialistes pour offrir les meilleurs soins aux patients atteints d\u2019ECD. De plus, des essais\/\u00e9tudes ECD en cours acceptent actuellement des patients ECD. Contactez notre accompagnateur de patients<\/a> pour plus d’informations. <\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” width=”88%” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][dgcm_cptgrid post_type=”post” posts_number=”4″ post_display=”by_tax” tax_for_post=”category” post_terms_category=”51″ column=”4″ equal_height=”on” item_outer_background_bgcolor=”#FFFFFF” item_wrapper_padding=”15px|15px|15px|15px|true|true” column_tablet=”2″ column_phone=”1″ column_last_edited=”on|phone” _builder_version=”4.27.5″ _module_preset=”default” border_radii_item_outer=”on|8px|8px|8px|8px” global_colors_info=”{}”][dgcm_cptitem type=”image” image_size=”original” _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][\/dgcm_cptitem][dgcm_cptitem type=”taxonomy” post_type=”post” tax_for_post=”category” element_padding=”2px|7px|2px|7px|true|true” _builder_version=”4.27.5″ _module_preset=”default” body_text_color=”#35A4BB” body_font_size=”14px” background_color=”rgba(53,164,187,0.09)” background_enable_color=”on” border_radii=”on|4px|4px|4px|4px” global_colors_info=”{}”][\/dgcm_cptitem][dgcm_cptitem type=”title” _builder_version=”4.27.5″ _module_preset=”default” body_font=”|600|||||||” body_font_size=”18px” global_colors_info=”{}”][\/dgcm_cptitem][\/dgcm_cptgrid][et_pb_button button_url=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6Ijg3In19@” button_text=”Voir tout” _builder_version=”4.27.4″ _dynamic_attributes=”button_url” _module_preset=”default” custom_button=”on” button_text_size=”16px” button_bg_color=”#35A4BB” button_border_width=”0px” button_border_radius=”3px” button_font=”|||on|||||” button_use_icon=”off” background_layout=”dark” custom_padding=”10px|30px|10px|30px|true|true” global_colors_info=”{}” button_bg_color__hover=”rgba(10,22,64,0.5)” button_bg_color__hover_enabled=”on|desktop”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#fafafa” custom_padding=”0px||0px||true|false” global_colors_info=”{}”][et_pb_row custom_padding_last_edited=”off|desktop” _builder_version=”4.27.4″ _module_preset=”default” width=”88%” width_tablet=”100%” width_phone=”88%” width_last_edited=”off|desktop” custom_padding=”0px||0px||true|false” custom_padding_tablet=”|||6%|false|false” custom_padding_phone=”|||0%|false|false” module_alignment_tablet=”right” module_alignment_phone=”center” module_alignment_last_edited=”off|desktop” global_colors_info=”{}” width__hover_enabled=”off|desktop”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][dgcm_cptcarousel post_type=”post” posts_number=”20″ post_display=”by_tax” tax_for_post=”category” post_terms_category=”236″ item_desktop=”7″ item_spacing=”60px” autoplay=”on” _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][dgcm_cptitem type=”image” image_size=”original” _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][\/dgcm_cptitem][\/dgcm_cptcarousel][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ make_equal=”on” use_custom_gutter=”on” gutter_width=”1″ specialty=”on” background_color_1=”#FFFFFF” bg_img_2=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/7958dee14703797e3ae00053a7a50ae4.jpg” padding_top_1=”30px” padding_right_1=”50px” padding_bottom_1=”60px” padding_left_1=”50px” padding_top_bottom_link_1=”false” padding_left_right_link_1=”true” padding_1_tablet=”” padding_1_phone=”|20px|30px|20px|false|true” padding_1_last_edited=”on|phone” module_class=”get-in-touch” _builder_version=”4.27.5″ _module_preset=”default” background_color=”#35A4BB” inner_width=”88%” global_colors_info=”{}”][et_pb_column type=”1_2″ specialty_columns=”2″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner _builder_version=”4.27.5″ _module_preset=”default” width=”100%” width_last_edited=”off|phone” max_width=”100%” global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”1_2″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.0″ _module_preset=”default” header_2_font=”|600|||||||” header_2_font_size=”60px” custom_margin=”||10px||false|false” header_2_font_size_tablet=”60px” header_2_font_size_phone=”36px” header_2_font_size_last_edited=”on|phone” global_colors_info=”{}”]<\/p>\n

Prenez contact avec nous<\/span><\/h2>\n

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