{"id":41688,"date":"2025-01-15T17:17:11","date_gmt":"2025-01-15T22:17:11","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&#038;p=41688"},"modified":"2025-11-18T22:37:11","modified_gmt":"2025-11-19T04:37:11","slug":"10th-annual-ecd-medical-symposium","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/de\/event\/10th-annual-ecd-medical-symposium\/","title":{"rendered":"10th Annual ECD Medical Symposium"},"content":{"rendered":"<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/barcelonapatientfamilygathering\/event\/2024ecdmedicalsymposium-barcelona\/\" target=\"_blank\" rel=\"noopener\">Hier registrieren<\/a><\/span><\/p>\n<p>Medical professionals from around the world will gather in Barcelona May 26-28 to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease. We welcome you to join your professional colleagues to share and learn about new findings related to the science of ECD, the diagnostic details, and the care of those living with ECD. This is the only meeting where medical specialists from different fields join together to discuss ECD. We look forward to you joining in the discussions and hope you might find opportunities for collaboration.<\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-22999 aligncenter\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture1.jpg\" alt=\"\" width=\"2000\" height=\"324\" \/><\/a><\/p>\n<p><strong>Abstract Submissions<\/strong> Abstracts related to ECD and\/or adult histiocytosis are being solicited for presentation at the Medical Symposium.\u00a0 <a href=\"https:\/\/ecdga.questionpro.com\/2025-Abstracts\">Abstracts are being accepted<\/a> for oral and\/or poster presentation.\u00a0 This is a great opportunity to share your work and the work of your colleagues.\u00a0 Please let them know of the opportunity.\u00a0 Abstracts must be submitted no later than February 24, 2025.<\/p>\n<p><span class=\"register-here\"><a class=\"register-here\" href=\"https:\/\/ecdga.questionpro.com\/2025-Abstracts\" target=\"_blank\" rel=\"noopener\">Submit Abstract<\/a><\/span><\/p>\n<p><strong>Veranstaltungskalender<\/strong> <strong><u>Sonntag, 25. Mai 2025 \u2013 Aktivit\u00e4t vor der Sitzung<\/u><\/strong><\/p>\n<p style=\"padding-left: 40px;\"><strong>17:00 \u2013 18:00 Uhr Katholische Messe<\/strong> Alle Interessierten sind vor Beginn der Konferenz zu einer katholischen Messe eingeladen. Pater Charles Balnaves, der Schirmherr des \u201ePatient &amp; Family Gathering\u201c, wird die Messe zelebrieren.<\/p>\n<p><strong><u>Monday, May 26, 2025 \u2013 Patient &amp; Family Gathering.<\/u><\/strong><\/p>\n<p style=\"padding-left: 40px;\"><strong>8 \u2013 8:30 am Registration &amp; Continental Breakfast<\/strong> Genie\u00dfen Sie gemeinsam mit anderen ein leichtes Fr\u00fchst\u00fcck und stimmen Sie sich auf einen informativen Tag voller Hoffnung ein.<\/p>\n<p style=\"padding-left: 40px;\"><strong>8:30 am \u2013 4:30 pm Patient &amp; Family Gathering<\/strong> Verbringen Sie den Tag damit, von medizinischen Fachkr\u00e4ften, Patienten und anderen mehr \u00fcber ECD zu erfahren.<\/p>\n<p style=\"padding-left: 40px;\"><strong>6 \u2013 8 pm Celebration Evening<\/strong> Verbringen Sie gemeinsam mit Patienten, Angeh\u00f6rigen, Freunden und medizinischem Fachpersonal einen Abend voller Hoffnung und Freude.<\/p>\n<p><strong><u>Tuesday, May 27, 2025 \u2013 Medical Symposium.<\/u><\/strong><\/p>\n<p style=\"padding-left: 40px;\"><strong>8 \u2013 8:30 am Registration &amp; Continental Breakfast<\/strong> Genie\u00dfen Sie gemeinsam mit anderen ein leichtes Fr\u00fchst\u00fcck und stimmen Sie sich auf einen informativen Tag voller Hoffnung ein.<\/p>\n<p style=\"padding-left: 40px;\"><strong>8:30 am \u2013 4:30 pm Medical Symposium<\/strong> Spend the day learning more about ECD from other investigators and clinicians. Discover possible future collaboration opportunities.<\/p>\n<p style=\"padding-left: 40px;\"><strong>6:30 \u2013 8:30 pm Medical Reception<\/strong> Spend time relaxing and meeting with friends.<\/p>\n<p><strong><u>Wednesday, May 28, 2025 \u2013 Care Center Meeting.<\/u><\/strong> <strong>8 \u2013 11 am Care Center Meeting<\/strong> Discuss patient care and opportunities to work together to improve patient outcomes. <strong>Wer nimmt daran teil?<\/strong> The event is open to the entire ECD community of medical professionals. Please feel free to invite your colleagues.<\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/barcelonapatientfamilygathering\/event\/2024ecdmedicalsymposium-barcelona\/\" target=\"_blank\" rel=\"noopener\">Hier registrieren<\/a><\/span><\/p>\n<p><strong>Gastgeber<\/strong> <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture2.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-22983\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture2.jpg\" alt=\"\" width=\"160\" height=\"188\" \/><\/a>Xavier Solanich, MD, PhD is this year\u2019s host of the ECD Meeting. Dr. Solanich is a medical specialist in internal medicine at the University Hospital of Bellvitge where he has practiced since August 2010. He leads the ECD Referral Care Center at Bellvitge and in addition to ECD patients, he attends to patients with other rare diseases such as Rosai-Dorfman, primary immunodeficiencies, and some hereditary metabolic diseases (especially Gaucher). He sees patients with systemic autoimmune diseases, mainly systemic vasculitis, periaortitis \/ retroperitoneal fibrosis, and IgG4-related diseases. He is also a consultant to the ophthalmology service for diagnosis and management of patients with uveitis, immune \/ ischemic optic neuritis, and orbital pseudotumor. Dr. Solanich also works in the Systemic Diseases and Aging group at the Bellvitge Biomedical Research Institute (IDIBELL). He has participated in multiple national and international research projects to study systemic autoimmune diseases, immunodeficiencies, and other rare diseases. He has also participated in several clinical trials as principal investigator or collaborator, obtaining competitive public funding. As a result of his research, he is the author of several articles published in indexed scientific journals.<\/p>\n<p><strong>Tagesordnung<\/strong><\/p>\n<p>Eine detaillierte Tagesordnung wird vor der Konferenz zur Verf\u00fcgung stehen. <strong>Hotel<\/strong> F\u00fcr das Treffen f\u00fcr Patienten und Angeh\u00f6rige wurde ein Zimmerkontingent reserviert im \u2013 <a href=\"https:\/\/www.marriott.com\/en-us\/hotels\/bcnrf-renaissance-barcelona-fira-hotel\/overview\/\" target=\"_blank\" rel=\"noopener\">Das Renaissance Barcelona Fira Hotel<\/a> Plaza Europa, 50-52, L&#8217;Hospitalet de Llobregat, Barcelona, Spain, 08902 Please make your reservations using the link below before the hotel deadline. <a href=\"https:\/\/urldefense.com\/v3\/__https:\/www.marriott.com\/event-reservations\/reservation-link.mi?id=1727274366753&amp;key=GRP&amp;guestreslink2=true__;!!C3t69QB3aUNwaBo5Tg!0YqER0euD5kdBUgfqASZPNbLxw7ozmgq9OicuSBWzDO5au8JRPu2LTzzb9t_Ug57ce6ST19xjfo4-EBoMtOS11KUpqMXdreyJTr_QZMPWQ$\" target=\"_blank\" rel=\"noopener\"><strong>Book your group rate for the ECD Global Alliance Conference<\/strong><\/a> Group Room Rate: Single: 240 Euro\/night; Double: 260 Euro\/night Hotel reservation deadline: April 21, 2025<\/p>\n<p><strong>Reisen<\/strong> Barcelona wird vom Flughafen Josep Tarradellas Barcelona-El Prat angeflogen. Zu den Transportm\u00f6glichkeiten zwischen dem Flughafen und dem Hotel geh\u00f6ren:<\/p>\n<ul>\n<li><u>Subway<\/u>. Metro line L9 Sud connects the airport terminals T1 and T2 with the Renaissance Barcelona Fira Hotel. The hotel metro station is Europa Fira. The metro operates daily between 5 am and midnight.<\/li>\n<li><u>Privater Transfer.<\/u> The hotel website states that private transfer is available for 101 Eur (one way) on request.<\/li>\n<\/ul>\n<p><strong>Hilfe bei Stipendien<\/strong><\/p>\n<p>We have a limited number of scholarships available if a member of the ECD medical professional community would be unable to attend due to financial reasons. If a scholarship is needed, please contact the ECDGA at <a href=\"mailto:support@Erdheim-Chester.org\">support@Erdheim-Chester.org<\/a> as early as possible. You will need to include your name, email address, position in the community (clinician, specialist, scientist, student, etc.), and a statement of your need. We will let everyone know what help we can provide by the end of February.<\/p>\n<p><strong>M\u00f6glichkeit zur Nominierung f\u00fcr eine Sensibilisierungskampagne<\/strong><\/p>\n<p>Sie sind herzlich eingeladen, f\u00fchrende Pers\u00f6nlichkeiten aus der ECD-Gemeinschaft zu nominieren \u2013 <a href=\"https:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination\" target=\"_blank\" rel=\"noopener\">https:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination<\/a>. Reichen Sie eine Nominierung f\u00fcr den Mark-Heaney-Preis ein, um eine medizinische Fachkraft zu w\u00fcrdigen, die Ihrer Meinung nach das Leben von ECD-Patienten verbessert hat, indem sie das Bewusstsein f\u00fcr ECD innerhalb der medizinischen Fachwelt gesch\u00e4rft hat. Nominieren Sie jede Person (Patient, Pflegekraft, medizinische Fachkraft, Freund usw.), die sich ehrenamtlich daf\u00fcr eingesetzt hat, das Leben aller von ECD Betroffenen zu verbessern. Der Preistr\u00e4ger wird am 26. Mai im Rahmen des ECD-Festabends bekannt gegeben.<\/p>\n<p><strong>Erfahrungen der Teilnehmer<\/strong><\/p>\n<p>\u201cECDGA is doing a phenomenal job. Thank you team ECDGA for all that you do to improve patient care.\u201d<\/p>\n<p><strong>\u2013 Radiologist<\/strong><\/p>\n<p>\u201cIt is my first ECDGA meeting and I really enjoyed it.\u201d<\/p>\n<p><strong>\u2013 Basic Scientist<\/strong><\/p>\n<p>\u201cThis is the first time to attend an ECD meeting. This is a very amazing event which will definitely change my practice and attitude.\u201d<\/p>\n<p><strong>\u2013 Hematologist<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>The ECD Global Alliance is excited to convene the 10th annual Medical Conference in Barcelona, Spain. The conference will be hosted in partnership with Bellvitge Unversitari Hospital on 26 &#8211; 28 May 2025. The ECD Medical Symposium will be held on 27 May 2025. All medical professionals are welcome!<\/p>","protected":false},"author":20,"featured_media":60189,"template":"","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[294],"class_list":["post-41688","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-ecd-medical-symposium","cat_ecd-medical-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tribe_events\/41688","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tribe_events\/41688\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/60189"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=41688"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=41688"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tribe_events_cat?post=41688"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}