{"id":136777,"date":"2026-06-04T15:49:16","date_gmt":"2026-06-04T20:49:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&p=136777"},"modified":"2026-07-28T23:58:35","modified_gmt":"2026-07-29T04:58:35","slug":"umgang-mit-schmerzen-und-erschopfung-bei-ecd","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/de\/event\/managing-ecd-pain-fatigue\/","title":{"rendered":"Thema: Umgang mit Schmerzen und M\u00fcdigkeit bei ECD"},"content":{"rendered":"
Referent: Kevin O\u2019Brien
\nDipl. Krankenschwester, MS-CRNP, Fachkrankenschwester,
\nKlinischer Forscher, Institut f\u00fcr Genomforschung,
\nNational Institutes of Health<\/h5>\n

Datum:<\/strong> Donnerstag, 25. Juni 2026
\nZeit:<\/strong> 13:00 Uhr CDT<\/p>\n

Kevin O\u2019Brien ist Krankenpfleger mit erweiterter Befugnis und klinischer Forscher am National Human Genome Research Institute (NHGRI) der National Institutes of Health in Bethesda, Maryland. Er erwarb seinen Bachelor of Science an der Johns Hopkins University und seinen Master of Science sowie den Abschluss als Krankenpfleger mit erweiterter Befugnis an der University of Maryland.<\/p>\n

Kevin hat eine Schl\u00fcsselrolle in der klinischen Forschung des NHGRI gespielt, unter anderem im Rahmen des Protokolls 15-HG-0006, einer klinischen Studie zur Untersuchung von Dabrafenib und Trametinib bei BRAF-positiven Patienten mit Erdheim-Chester-Syndrom (ECD), sowie im Rahmen der Studie zur nat\u00fcrlichen Krankheitsgeschichte des ECD. <\/p>\n

Hier registrieren<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"

Speaker: Kevin O’Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: Thursday, June 25, 2026 Time: 1:00 PM CDT Kevin O\u2019Brien is a nurse […]<\/p>\n","protected":false},"author":20,"featured_media":136778,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-136777","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tribe_events\/136777","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions"}],"predecessor-version":[{"id":174351,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions\/174351"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/136778"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=136777"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=136777"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tribe_events_cat?post=136777"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}