{"id":83709,"date":"2025-07-24T14:31:38","date_gmt":"2025-07-24T18:31:38","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=83709"},"modified":"2025-07-24T14:35:08","modified_gmt":"2025-07-24T18:35:08","slug":"die-ecdga-begrust-die-neueste-pflegeeinrichtung-in-london-grosbritannien","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/ecdga-welcomes-newest-care-center-in-london-uk\/","title":{"rendered":"Die ECDGA begr\u00fc\u00dft die Er\u00f6ffnung des neuesten Pflegezentrums in London, Gro\u00dfbritannien"},"content":{"rendered":"<p>Die \u201eErdheim-Chester Disease Global Alliance\u201c (ECDGA) freut sich, die Aufnahme eines neuen Mitglieds bekannt zu geben <strong>ECD-Betreuungszentrum an den University College London Hospitals (UCLH)<\/strong>, mit Sitz in <strong>London, England (NW1 2PG)<\/strong>.<\/p>\n<p>Damit ist dies weltweit das 42. ECD-Care-Center und das dritte anerkannte Care-Center in England, was die fortlaufenden Bem\u00fchungen widerspiegelt, den Zugang zu fachkundiger Versorgung bei der Erdheim-Chester-Krankheit (ECD) weltweit zu verbessern.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u00dcber das neue Pflegezentrum<\/strong><\/p>\n<ul>\n<li><strong>Einrichtung:<\/strong> University College London Hospitals (UCLH)<\/li>\n<li><strong>Standort:<\/strong> London, NW1 2PG<\/li>\n<li><strong>Leitender Arzt:<\/strong> Dr. med. Satyen Gohil, Abteilung f\u00fcr H\u00e4matologie<\/li>\n<li><strong>Bezeichnung:<\/strong> Umfassendes \u00dcberweisungszentrum<\/li>\n<\/ul>\n<p>Dr. Gohil und sein Team verf\u00fcgen \u00fcber wertvolle Erfahrung in der Diagnose und Behandlung von ECD. Mit seinem nachweislichen Engagement f\u00fcr die ECD-Gemeinschaft steht dieses Zentrum nun Patienten in Gro\u00dfbritannien und dar\u00fcber hinaus zur Verf\u00fcgung, die eine fachkundige Beratung und Versorgung suchen.<\/p>\n<blockquote><p>&#8220;When dealing with a condition as rare as ECD, being able to find specialist doctors and nurses who know and care about the condition is essential. Being part of the ECD global alliance is a great resource for patients and shows that they are not alone; they can connect with others, and it is a source of strength when they finally have their diagnosis.&#8221;<br \/>\n<strong>Dr. med. Satyen Gohil, Abteilung f\u00fcr H\u00e4matologie<\/strong><\/p><\/blockquote>\n<p>Diese Erweiterung spiegelt das Ziel der ECDGA wider, den Zugang zur Versorgung zu erweitern und sicherzustellen, dass Patienten in ihrer Region auf kompetente Leistungserbringer zur\u00fcckgreifen k\u00f6nnen. Wie immer variieren die individuellen Bed\u00fcrfnisse der Patienten, und wir empfehlen allen diagnostizierten Personen, sich bez\u00fcglich einer \u00dcberweisung oder Beratung durch ein Versorgungszentrum an ihre Gesundheitsdienstleister zu wenden.<\/p>\n<p><strong>Explore ECD Care Centers Near You<\/strong><\/p>\n<p>To learn more about recognized Care Centers and how to access expert care, visit the ECDGA Care Center Directory.<\/p>\n<p><em>Die Erdheim-Chester Disease Global Alliance (ECDGA) bietet keine medizinische Beratung, Diagnosen oder Behandlungen an. Alle Inhalte dienen ausschlie\u00dflich zu Informationszwecken. Bei medizinischen Fragen wenden Sie sich bitte an einen Arzt.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the addition of a new ECD Care Center at University College London Hospitals (UCLH), located in London, England (NW1 2PG). [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":83723,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[4157,387,4160,4156,3614,4159,2495,3620,3292,379,3844,3475,4155,4158,3285],"class_list":["post-83709","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-communitypower","tag-ecdga","tag-endrare","tag-fundraisingforacause","tag-funrun2025","tag-globalimpact","tag-histiocytosisawareness","tag-hopeinmotion","tag-patientadvocacy","tag-rarebutstrong","tag-rarediseaseawareness","tag-rollforhope","tag-runforrare","tag-togetherwefight","tag-walkforhope"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/83709","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=83709"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/83709\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/83723"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=83709"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=83709"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=83709"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}