{"id":74467,"date":"2025-05-26T07:57:52","date_gmt":"2025-05-26T11:57:52","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=74467"},"modified":"2025-05-26T09:59:20","modified_gmt":"2025-05-26T13:59:20","slug":"arzte-der-notfallmedizin-beantworten-fragen-beim-patienten-und-familientreffen-2025","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/ecd-physicians-answer-questions-at-the-2025-patient-family-gathering\/","title":{"rendered":"\u00c4rzte von ECD beantworten Fragen beim Patienten- und Familientreffen 2025"},"content":{"rendered":"

Einer der wertvollsten Aspekte des ECDGA-Treffens f\u00fcr Patienten und Angeh\u00f6rige ist die M\u00f6glichkeit f\u00fcr Patienten und Pflegepersonen, Informationen direkt von den Experten zu erhalten. Bei der diesj\u00e4hrigen Veranstaltung in Barcelona nahmen f\u00fchrende \u00c4rzte auf dem Gebiet der Erdheim-Chester-Krankheit an einer Live-Fragerunde teil, in der sie Einblicke gaben und Fragen der Teilnehmer beantworteten.<\/p>\n

Wir danken Dr. Eli Diamond, Dr. Matt Collin, Dr. Augusto Vaglio, Dr. Julien Haroche und Dr. Xavier Solanich f\u00fcr ihr Engagement, die ECD-Community durch offenen Dialog und Wissensaustausch zu unterst\u00fctzen.<\/p>\n

To learn more about our events and the global effort to advance ECD care, visit www.erdheim-chester.org<\/a>.<\/p>\n

Die Erdheim-Chester Disease Global Alliance (ECDGA) bietet keine medizinische Beratung, Diagnosen oder Behandlungen an. Alle Inhalte dienen ausschlie\u00dflich zu Informationszwecken. Bei medizinischen Fragen wenden Sie sich bitte an einen Arzt.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

One of the most valuable parts of the ECDGA Patient and Family Gathering is the opportunity for patients and caregivers to hear directly from the experts. During this year\u2019s event […]<\/p>\n","protected":false},"author":14,"featured_media":74613,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[2251],"tags":[2697,2397,2256,378,387,2695,2599,2252,2698,2696,2700,2491,2701,2602,2699],"class_list":["post-74467","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-social-posts","tag-augustovaglio","tag-barcelona2025","tag-bellvitgehospital","tag-ecdcommunity","tag-ecdga","tag-ecdphysicians","tag-elidiamond","tag-erdheimchester","tag-julienharoche","tag-mattcollin","tag-medicalqanda","tag-patientfamilygathering","tag-rarediseaseexperts","tag-supportandscience","tag-xaviersolanich"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/74467","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=74467"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/74467\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/74613"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=74467"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=74467"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=74467"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}