The following link is to the protocol for an ECD study as announced by Dr. Augusto Vaglio of the University of Parma in Italy. ECD patients are invited to participate by sending in medical records. The study aims to gather medical records for 120 ECD patients and then analyze them to expand the knowledge on Erdheim-Chester Disease. The goal of the study is to allow earlier diagnosis, better classification of the different disease forms, and improved prediction of the patient prognosis.<\/p>\n
Dies ist eine Gelegenheit f\u00fcr jeden Patienten, einen Beitrag dazu zu leisten, mehr \u00fcber diese Krankheit zu erfahren. Es ist etwas, das jeder Patient tun kann, um unser Anliegen zu unterst\u00fctzen.<\/p>\n
Bitte lesen Sie die beigef\u00fcgten Informationen. Wenn Sie an der Studie teilnehmen m\u00f6chten, m\u00fcssen Sie Ihre medizinischen Unterlagen, wie im verlinkten Dokument \u201cCheckliste der einzureichenden Unterlagen\u201d beschrieben, entweder an die Praxis von Dr. Vaglio in Italien oder an die ECD Global Alliance senden, die diese dann an Dr. Vaglio weiterleiten wird. Falls Sie die Unterlagen direkt an Dr. Vaglio senden, bewahren Sie bitte unbedingt eine Kopie aller eingereichten Unterlagen auf, da wir hoffen, dass bald weitere Studien starten werden, f\u00fcr die m\u00f6glicherweise dieselben Unterlagen ben\u00f6tigt werden.<\/p>\n
Checkliste der zu versendenden Gegenst\u00e4nde<\/a> The following link is to the protocol for an ECD study as announced by Dr. Augusto Vaglio of the University of Parma in Italy. ECD patients are invited to participate […]<\/p>\n","protected":false},"author":20,"featured_media":174698,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-30219","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/30219","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=30219"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/30219\/revisions"}],"predecessor-version":[{"id":174726,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/30219\/revisions\/174726"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/174698"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=30219"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=30219"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=30219"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\nEinverst\u00e4ndniserkl\u00e4rung<\/a>
\nProtokoll<\/a>
\nSo erhalten Sie Ihre Krankenakten<\/a><\/p>","protected":false},"excerpt":{"rendered":"