{"id":20043,"date":"2022-01-04T11:33:48","date_gmt":"2022-01-04T17:33:48","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20043"},"modified":"2026-08-19T06:10:10","modified_gmt":"2026-08-19T11:10:10","slug":"uplifting-athletes-awards-ecd-global-alliance-investigator-draft","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/uplifting-athletes-awards-ecd-global-alliance-investigator-draft\/","title":{"rendered":"\u201eUplifting Athletes\u201c nominiert ECD Global Alliance f\u00fcr den \u201eInvestigator Award\u201c"},"content":{"rendered":"

Eine Interessenvertretung f\u00fcr seltene Krankheiten vergab ein Forschungsstipendium zur Erdheim-Chester-Krankheit, um eine Studie mit \u00dcberlebenden durchzuf\u00fchren.<\/em><\/h2>\n

Uplifting Athletes is a nonprofit organization focused on using the platform of college football to shine a spotlight on rare diseases.\u00a0 Founded in 2007, Uplifting Athletes funds research and other initiatives, bringing hope to rare communities.\u00a0 Each year the organization grants research dollars through their Uplifting Athletes Young Investigator Draft.\u00a0 Proudly, this year a doctor nominated by the Erdheim-Chester Disease Global Alliance (ECDGA) was selected as a grant recipient!<\/p>\n

\"\"<\/a>

Goyal leistet regelm\u00e4\u00dfig einen Beitrag zur Sensibilisierung und Aufkl\u00e4rung, indem er zusammenarbeitet und Daten aus seiner Arbeit auf dem Gebiet der Histiozytose weitergibt.<\/p><\/div>\n

The nominee, Dr. Gaurav Goyal is an Assistant Professor of Hematology-Oncology and ECD Care Center lead physician at the University of Alabama Birmingham.\u00a0 He will be awarded a $20,000 grant for a Histiocytic Disorders Survivor Study (HDSS).\u00a0 Results from the study will be used to help devise guidelines for the follow-up care of ECD and other histiocytosis patients and develop intervention strategies in the future to mitigate long-term complications. Dr. Gaurav adds, \u201cThe study aims to utilize the ECDGA Patient Registry to understand the spectrum of long-term health conditions that patients with ECD struggle with, including quality of life and chronic pain.\u201d<\/p>\n

The ECD community has had the pleasure and honor of working with Dr. Goyal on multiple projects that have enhanced patient care, increased awareness, and contributed to the science of histiocytosis across the board.\u00a0 Dr. Goyal is a dedicated physician in his field who is passionate about helping patients and families every single day.<\/p>\n

Neun Stipendiaten werden im Rahmen des \u201eUplifting Athletes Young Investigator Draft\u201c 2022 am Samstag, dem 5. Februar, in Philadelphia, Pennsylvania, geehrt.<\/p>\n

\"\"<\/a>Research is a mission-critical goal for the ECD Global Alliance.\u00a0 Working with the Uplifting Athletes team to bring more research to fruition has been an honor. \u00a0In the past, grant funding for ECD research has solely come from private donations, whereas the UA opportunity brings another $10,000 to the initiative.\u00a0 By collaborating with a rare disease group that values the important work of discovery in rare science, The ECDGA has extended ECD research efforts.\u00a0 The ECDGA will continue to strengthen its connections with the rare community to aid in a firm foundation for histiocytosis care worldwide.\u00a0 These connections not only help with ECD and histiocytosis research but also help to raise awareness of ECD within the medical community.<\/p>\n

Die Erdheim-Chester-Krankheit gilt als histiozytisches Neoplasma (eine Form von Blutkrebs), eine \u00e4u\u00dferst seltene Erkrankung ohne bekannte Ursache, die als unterdiagnostiziert gilt. Die Krankheit ist durch die Ansammlung von Histiozyten \u2013 Zellen, die normalerweise Infektionen bek\u00e4mpfen \u2013 in Geweben und Organen gekennzeichnet. Das Gewebe und die Organe werden durch die Infiltration der Histiozyten verdichtet und fibrotisch, was zu Organversagen f\u00fchren kann, sofern keine erfolgreiche Behandlung gefunden wird.<\/p>\n

Die ECD Global Alliance<\/a> ist eine gemeinn\u00fctzige Organisation gem\u00e4\u00df 501(c)(3), die sich der Aufkl\u00e4rung, Unterst\u00fctzung, Bildung und Forschung im Zusammenhang mit der Erdheim-Chester-Krankheit widmet.<\/p>\n

Pressemitteilung<\/a><\/p>","protected":false},"excerpt":{"rendered":"

A rare disease advocacy group awarded an Erdheim-Chester Disease Research Grant to conduct a survivor study. Uplifting Athletes is a nonprofit organization focused on using the platform of college football […]<\/p>\n","protected":false},"author":14,"featured_media":20050,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51,70],"tags":[55,101,83,59,53,86,58,173,56,69,57,130,172,171],"class_list":["post-20043","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-research-awareness","tag-advocacy","tag-awareness","tag-blood-cancer","tag-bone-pain","tag-cancer","tag-collaboration","tag-diabetes-insipidus","tag-dr-goyal","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-research","tag-university-of-alabama-birmingham","tag-uplifting-athletes"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/20043","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=20043"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/20043\/revisions"}],"predecessor-version":[{"id":175261,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/20043\/revisions\/175261"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/20050"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=20043"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=20043"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=20043"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}