{"id":20009,"date":"2021-12-16T10:55:16","date_gmt":"2021-12-16T16:55:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20009"},"modified":"2026-08-19T06:21:47","modified_gmt":"2026-08-19T11:21:47","slug":"nachrichten-zum-jahresende-2021","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/2021-year-end-news\/","title":{"rendered":"Nachrichten zum Jahresende 2021"},"content":{"rendered":"<h2>F\u00fcr die ECD-Gemeinschaft zeichnet sich ein neues Jahr voller Hoffnung ab!<\/h2>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/2021-Year-End-Newsletter-online.pdf\">Lesen Sie den Jahresabschluss-Newsletter 2021.<\/a><\/p>\n<p>Die ECD Global Alliance erreicht mit einer Spendenverdopplungsaktion im Rahmen von [\u2026] neue Ma\u00dfst\u00e4be bei der Unterst\u00fctzung derjenigen, die gegen die Erdheim-Chester-Krankheit k\u00e4mpfen.<strong> 31. Dezember 2021<\/strong>!\u00a0 Thanks to an <strong>$80.000 Zuzahlungsspende<\/strong> von einer Gruppe gro\u00dfz\u00fcgiger ECDGA-Vorstandsmitglieder und F\u00f6rderer \u2013 Ihr Beitrag zu unserer wichtigen Arbeit wird dadurch DOPPELT so viel bewirken.<\/p>\n<p>Mit Ihrer Spende k\u00f6nnen wir allen, die von ECD betroffen sind, eine bessere Zukunft erm\u00f6glichen. Bitte spenden Sie noch heute, um unsere Arbeit im kommenden Jahr zu st\u00e4rken \u2026 und seien Sie versichert: Damit bewirken Sie doppelt so viel Gutes! \u00a0<strong><a href=\"https:\/\/www.erdheim-chester.org\/de\/donate-2\/\">Verdoppeln Sie noch heute Ihre Spende!<\/a>\u00a0<\/strong><\/p>\n<p>Was Ihre Spende bewirkt:<\/p>\n<ul>\n<li><strong>Forschung \u2013 <\/strong>Die Finanzierung der Forschung zur Erdheim-Chester-Krankheit steht im Mittelpunkt unserer Arbeit. Der ECD-Forschungsf\u00f6rderpreis 2021 wird in K\u00fcrze bekannt gegeben!<\/li>\n<li><strong>Bildung \u2013 <\/strong>Die Fortbildung von \u00c4rzten erfolgt im Rahmen internationaler Konferenzen, Online-Webinaren, Informationsveranstaltungen zu medizinischen Fachgebieten und vielem mehr.<\/li>\n<li><strong>Support \u2013 <\/strong>Es ist von unsch\u00e4tzbarem Wert, Patienten und ihren Familien die Mittel und Kontakte zur Verf\u00fcgung zu stellen, die sie ben\u00f6tigen, um f\u00fcr ihre eigenen Interessen einzutreten. Ihre Spenden tragen nicht nur dazu bei, dass unsere Gemeinschaft der Betroffenen seltener Krankheiten gedeihen kann. Ihre Spenden sichern auch Forschungsmittel, die zu wissenschaftlichen Erkenntnissen im Bereich der Krebsforschung beitragen.<\/li>\n<\/ul>\n<div id=\"attachment_175267\" style=\"width: 235px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1.jpg\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-175267\" class=\"wp-image-175267 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1.jpg\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1.jpg 225w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1-9x12.jpg 9w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/a><p id=\"caption-attachment-175267\" class=\"wp-caption-text\">Noah ist bereit f\u00fcr die Feiertage! Lest seine ECD-Geschichte im Newsletter.<\/p><\/div>\n<h2>Connect im Jahr 2022<\/h2>\n<p>Over the last two years, the ECD Global Alliance adjusted to the new norms of distancing and travel bans with more online connections.\u00a0 The Annual Patient &amp; Family Gathering was put on hold during this time, making the July 2019 event the last time our ECD family was able to join face-to-face.\u00a0We will continue to press forward with online connections for those that still cannot travel, but will also be offering a live meeting April 7-8, 2022!\u00a0 <a title=\"J\u00e4hrliches Patiententreffen\" href=\"https:\/\/www.erdheim-chester.org\/de\/treffen-der-angehorigen-von-ecd-patienten\/\">Erfahren Sie hier mehr \u00fcber diese Veranstaltung.<\/a><\/p>\n<p>As we reflect on the trials and triumphs of our community members, we want to thank the supporters that come through for those fighting every single day.\u00a0 Your support is not just about your loved one, but about the future for all families faced with Erdheim-Chester Disease.\u00a0 Your provisions have come in all forms, and we appreciate everything you do!<\/p>\n<h3><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/2021-Year-End-Newsletter-online.pdf\">Erfahren Sie mehr \u00fcber die neuesten Entwicklungen in unserem Jahresabschluss-Newsletter!<\/a><\/h3>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>A new year of hope is on the horizon for the ECD community! View the 2021 Year-End Newsletter. The ECD Global Alliance is reaching new levels of support for those [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":20008,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[67,51,70],"tags":[55,101,83,58,56,103,57,122,168,82,52],"class_list":["post-20009","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","category-news","category-research-awareness","tag-advocacy","tag-awareness","tag-blood-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fundraiser","tag-hairy-kidney","tag-histio","tag-matching-gift","tag-rare-cancer","tag-rare-disease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/20009","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=20009"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/20009\/revisions"}],"predecessor-version":[{"id":175268,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/20009\/revisions\/175268"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/20008"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=20009"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=20009"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=20009"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}