{"id":19865,"date":"2021-11-01T13:41:18","date_gmt":"2021-11-01T18:41:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19865"},"modified":"2026-08-19T06:49:13","modified_gmt":"2026-08-19T11:49:13","slug":"ankundigung-der-ecd-jahrestagung-2022","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/de\/announcing-the-2022-annual-ecd-meeting\/","title":{"rendered":"Ank\u00fcndigung der ECD-Jahrestagung 2022"},"content":{"rendered":"<h3><em>Eine einzigartige Gemeinschaft wird sich zusammenfinden, um Kontakte zu kn\u00fcpfen und voneinander zu lernen.<\/em><\/h3>\n<p>Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!\u00a0 During the challenges of the pandemic, serving our members remained the top priority.\u00a0 Through regularly scheduled chat sessions, education webinars, and a commitment to support, ECDGA has been able to keep our members connected during the test of the pandemic.<\/p>\n<p><strong>Die<\/strong> <strong>Vom 6. bis 8. April 2022 finden in Rochester, Minnesota, die j\u00e4hrlichen internationalen Veranstaltungen zur Erdheim-Chester-Krankheit statt.<\/strong>. Im Rahmen dieser dreit\u00e4gigen Konferenz finden Veranstaltungen statt, die speziell auf die einzelnen Mitglieder der Gemeinschaft zugeschnitten sind.<\/p>\n<div id=\"attachment_175278\" style=\"width: 310px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-175278\" class=\"wp-image-175278 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1-18x12.png 18w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><p id=\"caption-attachment-175278\" class=\"wp-caption-text\">Dr. Go und Dr. Goyal auf dem New Yorker Symposium 2017<\/p><\/div>\n<p>Die ECDGA f\u00fchlt sich geehrt, dass die diesj\u00e4hrigen Mitveranstalter bei der Planung und Durchf\u00fchrung mitwirken. <a href=\"https:\/\/www.mayo.edu\/research\/faculty\/go-ronald-s-m-d\/bio-20013527?eType=EmailBlastContent&amp;eId=44444444-4444-4444-4444-444444444444\" target=\"_blank\" rel=\"noopener\"><strong>Dr. Ronald Go<\/strong><\/a> is a hematology-oncologist at the Mayo Clinic in Rochester near the meeting location. Dr. Go is the leading physician for the ECD Care Center at his clinic. He has a passion for creating a better experience for all patients. \u00a0Dr. Go has also shown great care to the community by empowering upcoming physicians with inspiring and effective mentoring in the field of histiocytosis. Also hosting is <a href=\"https:\/\/providerdirectory.uabmedicine.org\/provider\/Gaurav+Goyal\/895892?unified=gaurav%20goyal&amp;sort=networks%2Crelevance%2Cavailability_density_best\" target=\"_blank\" rel=\"noopener\"><strong>Dr. Gaurav Goyal<\/strong><\/a><strong>,<\/strong> Dozent an der University of Alabama in Birmingham. Dr. Goyal engagiert sich sowohl beruflich als auch ehrenamtlich f\u00fcr die ECD-Gemeinschaft im Rahmen der ECDGA. Seine Beitr\u00e4ge haben die Forschung und den Versorgungsstandard f\u00fcr Patienten mit Histiozytose positiv beeinflusst; dar\u00fcber hinaus leistet er eine hervorragende Patientenversorgung. Nach seiner Zeit als Assistent bei Dr. Go leitet Dr. Goyal nun ein ECD-Behandlungszentrum in Birmingham. Sowohl Dr. Go als auch Dr. Goyal haben ma\u00dfgeblich zum Wachstum und Erfolg der ECDGA beigetragen.<\/p>\n<p>Die <strong>9<sup>th<\/sup> ECD<\/strong> <strong>Medizinisches Symposium <\/strong>Die Veranstaltung findet am 6. April statt und bietet medizinischen Fachkr\u00e4ften die Gelegenheit, sich auszutauschen und gemeinsam die neuesten Forschungsergebnisse zur ECD zu er\u00f6rtern sowie ihr Wissen \u00fcber die Behandlung und Versorgung von ECD-Patienten zu teilen. Alle medizinischen Fachkr\u00e4fte, die sich f\u00fcr ECD und adulte Histiozytose interessieren, insbesondere Kliniker, die noch keine Erfahrung mit der Behandlung von ECD-Patienten haben, werden nachdr\u00fccklich zur Teilnahme aufgefordert.<\/p>\n<p>Die <strong>8<sup>th<\/sup><\/strong> <strong>ECD<\/strong> <strong>Treffen f\u00fcr Patienten und Angeh\u00f6rige<\/strong> on April 8 is an event offered to all ECD patients, caregivers, and anyone interested in learning more about care and support for ECD patients. The patient meeting sets out to unite patients and family members, as well as increase their knowledge and understanding of ECD. During the meeting, physicians knowledgeable in ECD care offer their specialized expertise and provide answers to the families\u2019 questions. Many patients have reported successful adjustments in their care following these meetings.\u00a0 All ECD patients and their loved ones, especially those with a new diagnosis or who have never attended an ECD event, are strongly encouraged to consider this opportunity.<\/p>\n<p>There is also time available for the professionals and patients to mingle during a social reception held on April 7.\u00a0 This is a more informal setting for introductions, meeting new members, and enjoying fellowship with those that understand the struggles of living with ECD.<\/p>\n<p><strong>\u00a0<\/strong><strong>*Erkl\u00e4rung zu COVID:<\/strong> We are monitoring the sanitation ordinances for this location in hopes that the virus will be behind us in time to hold the meeting as planned.\u00a0 We will continue to monitor the situation and post updates if\u00a0anything changes.\u00a0 Meanwhile, we will continue planning for the dates of April 6 through April 8, 2022.<\/p>\n<p><strong>Weitere Informationen:<\/strong><\/p>\n<ul>\n<li>Medizinisches Fachpersonal: <a href=\"https:\/\/erdheim-chester.salsalabs.org\/scientificmeeting2022\">Erfahren Sie mehr und melden Sie sich an.<\/a><\/li>\n<li>Patienten und Angeh\u00f6rige: <a href=\"https:\/\/erdheim-chester.salsalabs.org\/ecdmeeting2022\">Die Veranstaltungsdetails und die Anmeldung finden Sie hier.<\/a><\/li>\n<li><a href=\"https:\/\/www.erdheim-chester.org\/de\/uber-ecd\/\">Was ist ECD?<\/a><\/li>\n<li><a title=\"\u00dcber uns\" href=\"https:\/\/www.erdheim-chester.org\/de\/about-us-2\/\">Mehr \u00fcber die ECD Global Alliance<\/a><\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>A rare community will join together to connect &amp; learn. Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!\u00a0 During the challenges of [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":19868,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,54,59,53,58,133,134,56,57,122,135,52,130],"class_list":["post-19865","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-disease-education","tag-ecd-awareness","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-medical-symposium","tag-rare-disease","tag-research"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/19865","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/comments?post=19865"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/19865\/revisions"}],"predecessor-version":[{"id":175279,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/posts\/19865\/revisions\/175279"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media\/19868"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/media?parent=19865"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/categories?post=19865"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/de\/wp-json\/wp\/v2\/tags?post=19865"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}